Learn about a short film that was created to encourage people to plan for and have conversations about the end of life.
In this episode I welcome two guests to discuss the short film Honoring Choices that is a powerful tool for persuading people to plan for and talk about the end of life. Elizabeth Coplan is the founder of Grief Dialogues and the creator of the stage play Honoring Choices that ultimately became the film we are featuring. Halle Williams is the marketing director for both Grief Dialogues and Honoring Choices and the co-host of Out of Grief Comes Art Podcast along with Elizabeth. Learn more about their work at the website:
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand receive free gifts like the “Mind if we talk about death?” mini-poster or Love Your Life sticker or coffee mug. PLUS get our regular bonuses: the monthly EOL News Update, occasional movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Maggie Dial! Your contribution makes all the difference.
Learn how The Death Deck helps people have important and necessary conversations about death and dying.
My guests today are the co-creators of The Death Deck, a card game to help inspire conversations about death, dying and grief. Lisa PahlLCSW is a Hospice Social Worker and ER Crisis Interventionist. Lori LoCicero is a writer and entrepreneur and runs a website to help others travel their paths through difficulty. Together they will share why they decided to create The Death Deck, how it can be used, and why conversations about death matter. Learn more about The Death Deck at the website:
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand receive free gifts like the “Mind if we talk about death?” mini-poster or Love Your Life sticker or coffee mug. PLUS get our regular bonuses: the monthly EOL News Update, occasional movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to all who have made donations through Paypal or Buy Me a Coffee! Your contributions make all the difference.
Learn why community is important for all of us as we work to improve the end of life in our society.
Today I’m welcoming two guests to the podcast: Jo-Anne Haun and Karen Hendrickson who are the co-founders of the Death Doula Network of BC. Jo-Anne is a professional end-of-life doula, hospice volunteer, and therapy clown. Karen is a professional coach, a licensed Willow EOL Educator™, and end-of-life doula. They share their experiences in creating an online community for death doulas, why it’s important that we form collaborative networks right now, and how everyone benefits when we work together. Learn more at their website:
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand get access to the EOLU mug: “Mind if we talk about death?” (only Patrons can purchase it). PLUS get our new bonuses: the monthly EOL News Update, movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to those who have bought me a coffee and made a donation through Paypal! Your contributions make all the difference.
Learn about an exciting environmentally friendly option for disposition after death.
My guests today are Micah Truman, the CEO and Founder of Return Home.com, and Brie Smith who is the Services Director for the company. Return Home is designed to ensure a sustainable future for the planet by using terramation, an environmentally friendly option for disposition after death. They discuss the process of terramation (a form of human composting) and how it is available right now to people from all 50 states at Return Home. You can learn more at their website:
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand get access to the EOLU mug: “Mind if we talk about death?” (only Patrons can purchase it). PLUS get our new bonuses: the monthly EOL News Update, movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my new patron fotoguyz! Your contributions make all the difference.
Learn how the innovations of the past year are going to create more positive change in 2022!
In this final episode of 2021 I’ll share with you some of the innovations of 2021 that are going to be driving further change in the coming year. I’ll remind you of some of the conversations from this past year that provide potential solutions to the issues we are currently facing around end-of-life care. And we’ll recognize that amidst all the pain and sorrow of this pandemic year there has been much to be grateful and joyful about!(This episode is overflowing with information so keep a pen and paper handy to make note of interviews you may want to hear!)
There has been an increased interest in advance care planning due to the pandemic. Check out Episode 283 about Mideo – video technology for EOL planning
There is still great need for EOL education everywhere in our society – Episode 300
Technology is disrupting every aspect of EOL care, including grief – Episode 313 about the Grief Refuge App
Palliative Care is expanding and being embraced more and more – Episode 325
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand get access to the EOLU mug: “Mind if we talk about death?” (only Patrons can purchase it). PLUS get our new bonuses: the monthly EOL News Update, movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my new patrons Teri A. Portugal Gooden and Cari Zlotnick; and thank you Brittany Ellis for increasing your monthly pledge! Your contributions make all the difference.
Learn how palliative care can meet the healthcare needs of the future.
My guest Dr. John Mulder is a pioneering member of the palliative care specialty. He currently serves as chief medical consultant for hospice and palliative car at Holland Home, the largest provider of elder care services in Michigan. He also serves as executive director for the Trillium Institute, which provides education for clinicians on managing serious and terminal illness. He discusses some of the challenges facing palliative care currently and in the future of this specialty. Learn more at this website:
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand get access to the EOLU mug: “Mind if we talk about death?” (only Patrons can purchase it). PLUS get our new bonuses: the monthly EOL News Update, movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my new patrons Monica Czaplinski and Jeannie Canepa! Your contributions make all the difference.
Learn how his sister’s illness and death made this neurosurgeon a better doctor.
My guest Dr. Joseph Stern is a partner in the country’s largest neurosurgical group practice in Greensboro, North Carolina. While he has frequently worked with patients and families facing life-limiting illness, his experiences at the bedside of his sister during her nearly one-year ordeal with leukemia, changed everything for him. He shares how his own medical practice was affected by what he learned about the patient’s perspective on end-of-life care and how he envisions our medical system needs to shift in order to improve the care being offered to all patients. He is the author of Grief Connects Us: A Neurosurgeon’s Lessons on Love, Loss, and Compassion. Learn more about his work at his website:
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand get access to the EOLU mug: “Mind if we talk about death?” (only Patrons can purchase it). PLUS get our new bonuses: the monthly EOL News Update, movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference!
Learn why and how to become an EOL Educator through a new program offered by WillowEOL.
My guests Michelle Pante and Reena Lazar are co-founders of Willow End of Life Education and Planning and co-authors of 7 Tools for Making Sense of Life & Death, the workbook and the self-study online program. They have also created the Willow EOL Educator™ Program, which we discuss in this interview. They share the importance of providing education to both the public and healthcare providers in order to change the way we manage the end of life and to find the greatest meaning in life. They are offering a $200 discount to their EOL Educator™ Program for listeners who sign up before the end of May 2021. Learn more and sign up with the coupon code EOLU200 at this link:
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand get access to the EOLU mug: “Mind if we talk about death?” (only Patrons can purchase it). PLUS get our new bonuses: the monthly EOL News Update, movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference!
Learn about video advance directives and how to get involved in this game-changing innovation for the future of advance care planning.
In this episode I host three guests – Patty Burgess, Dr. Fred Mirarchi, and Sheila Schultz – who have partnered together to create MIDEO University, the only organization to train and certify Advance Care Planning Educators (ACPE’s) in every community. They share how MIDEO’s video advance directives are revolutionizing end-of-life and emergency care in hospitals and how they are training doulas, advance care planners and other healthcare professionals to become paid educators using the MIDEO approach. Learn more at their website:
What MIDEO is and why Dr. Mirarchi was inspired to create a video advance directive
How Patty and Sheila became inspired to partner with Dr. Mirarchi to create an educational program for end-of-life doulas and other healthcare professionals
How MIDEO works and what differentiates it from other advance directives
How certification as an ACPE can benefit an end-of-life doula professionally
Why advance care planning should not focus solely on end-of-life scenarios
Why video directives are important during this time of the COVID pandemic
How an ACPE can benefit primary care health providers in their work with patients
How to participate in MIDEO University and become certified as an ACPE
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand get access to the EOLU mug: “Mind if we talk about death?” (only Patrons can purchase it). PLUS get our new bonuses: the monthly EOL News Update, movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference!
Learn how an innovative company is contracting with insurers to educate patients about decision-making around advanced illnesses.
My guest Tracy Brubaker is the COO of Vital Decisions, a company founded by Dr. Jessica Zitter to focus on changing the way people with advanced illness receive care by encouraging advance care planning. She shares how Vital Decisions contracts with insurers to provide education and counseling to their clients and the impact they are having on end-of-life care. Learn more about Vital Decisions at the website:
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand get access to the EOLU mug: “Mind if we talk about death?” (only Patrons can purchase it). PLUS get our new bonuses: the monthly EOL News Update, movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference!
Learn the inside story of this groundbreaking tour across America to promote conversations about death and dying.
My guest Kimberly Paul last appeared on End-of-Life University 2 years ago as she was preparing to embark on a courageous adventure: traveling across the US in an RV and teaching and talking about death and dying with people she met along the way. Today she returns to the podcast to share her inside stories of the Live Well Die WellTour and the lessons she learned on her extraordinary journey. She is also the host of Death by Design Podcast and the author of the book Bridging the Gap: Life Lessons from the Dying. Learn more at her website:
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand get access to the EOLU mug: “Mind if we talk about death?” (only Patrons can purchase it). PLUS get our new bonuses: the monthly EOL News Update, movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference!
Learn how changes that began in the last decade foreshadow future growth in the death-positive movement.
In this final solo episode for 2019 I take a look back at some of the significant events of the past decade that helped to move forward the end-of-life movement. Then I share some tips and insights for continuing the momentum for positive change and increased death awareness in 2020. Find out how you can be part of the future as we move toward better care of the dying and the dead in our society.
Previous events that helped set the stage for the momentum of the past decade (e.g. Five Wishes, Green Burial Council, Suzanne O’Brien’s community training for doulas)
Major movements of the past decade that have helped shift the narrative on death and dying:
National Home Funeral Alliance
The Conversation Project
Death Cafe
Ask a Mortician with Caitlin Doughty
Confessions of a Funeral Director with Caleb Wilde
Death Over Dinner
Atul Gawande’s book Being Mortal
Recompose (formerly the Urban Death Project)
Brittany Maynard’s quest for death with dignity
formation of the EOL Doula Council
What we have learned from the natural childbirth movement
Tips for continuing the momentum in 2020:
Don’t wait – the time is now
It will take all of us to create change – form coalitions and collaborations
Create a unified message for the cause
Education is critical
Tailor the message for specific groups
Be in it for the long haul (growth takes time)
Links mentioned in this episode:
Episode 145 and 146: What the EOL Movement Can Learn from the Natural Childbirth Movement
Episode 128: Why We Need Death Ed for Everyone Right Now
Interview with Deanna Cochran on EOL doula movement
Episode 186: How to Bring Death Doulas to the Hospice Team
Join the team atPatreon.com/eoluand get access to the EOLU mug: “Mind if we talk about death?” (only Patrons can purchase it). PLUS get our new bonuses: the monthly EOL News Update, movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest Patron Delana Schneider, your contributions make all the difference!
Learn about a new online resource for people dealing with the death of a loved one.
My guest Liz Eddy is the founder of Lantern.co, an innovative online resource for navigating the stressful and painful days after the death of a loved one. She shares how she was inspired to create this site and how it benefits those in need of information and guidance with all of the decisions that must be made after a death. Learn more at the website:
Join the team at Patreon.com/eoluand get access to the EOLU mug: “Mind if we talk about death?” (only Patrons can purchase it)
If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on Patreon.com/eolu,especially my newest Patron David Stubbers, your contributions mean everything to me!
Learn about educational planning tools that are available for end-of-life navigators and teachers to use with their clients.
This week I welcome back to the podcast Reena Lazar and Michelle Pante of WillowEOL.com who will tell us about the free tools they offer to assist with end-of-life planning and a new workbook they have created (available to purchase). We will also discuss the importance of end-of-life planning and sharing our wishes with our loved ones. Learn more at their website:
Join the team at Patreon.com/eoluand get access to the EOLU mug: “Mind if we talk about death?” (only Patrons can purchase it)
If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on Patreon.com/eolu, especially my new supporter Kathy Breakwell, your contribution means everything to me!
Learn how a training program for end-of-life doulas is preparing a wide variety of students to care for their loved ones with compassion and heart.
My guest Francesca Arnoldy has trained as both a birth and death doula and continues to guide clients through these passages at the beginning and end of life. She is the developer and program director of the End-of-Life Doula Professional Certificate Program at the University of Vermont that provides training for not only doulas but also other medical providers and lay people in caring for the dying. She is the author of the book Cultivating the Doula Heart: The Essentials of Compassionate Care. Learn about her work at her website:
Learn about the best of EOLU in 2018 and how to catch up if you missed any of these events!
“Death Education for Everyone” was the theme for 2018 and we’ll review all the great educational content that was provided in the past year. It’s not too late to listen in on the best webinars and interviews of the year before we get started on a brand new season of EOLU! Check out the links for the events you’ve missed in the description below.
Happy New Year to each and every one of you!
ANNOUNCEMENTS:
BIG NEWS!! Starting in 2019 the EOLU Interview Series will merge with the EOLU Podcast – so all the great interviews you are used to hearing on the interview series will now be available as podcast episodes. This means you can subscribe to the podcast and listen to the interviews on your phone while you are on the go! In addition you’ll be able to hear the solo episodes (like this one) where I share my wisdom, inspiration, and ideas for embracing the end of life and living fully today.
You can subscribe to the podcast at one of the following links (whichever podcast app you use):
Thanks for all of your support in 2018! I appreciate you for listening in and encouraging me to keep going. And I’m especially grateful to those of you who have become patrons on my donation page at Patreon.com/eolu: you make my heart sing!
FEATURE PRESENTATION:
2018 has been a wonderful year for EOLU that began with a goal of supporting “Death Education for Everyone.” In support of that goal the following programs were created:
A Year of Reading Dangerously online reading group; we’ve read one book a month this year and held 9 live book discussions with authors of the books in attendance. Nearly 1,000 readers from around the world have joined together to read the same book at the same time. We’ve all learned a lot about death, dying and the afterlife and have had fun in the process!
Teaching Guidelines for a Death and Dying Class – this free pdf was made available to hundreds of people interested in teaching about end of life issues. You can still get the Guidelines here.
Workshop on How to Teach a Death and Dying Class successfully helped launch dozens of classes around the country and culminated in 5 students creating online webinars, which you can view here.
Promoted Cathy Zheutlin’s new film “Living While Dying” as an excellent tool for teaching community members about death and dying. Learn more about the film here.
Co-hosted 3 teaching webinars that were very well received. If you missed these there’s still time to watch:
“End-of-Life Doula Training for Caregivers and Volunteers” with Suzanne O’Brien of Doulagivers.com. View the webinar here.
“Bridge Time: The Consequences of Change” with Jane Barton of Cardinalife.com; she talks about how caregivers can become more resilient in the face of change. View the webinar here.
“Collaborative Care for Caregivers: How to Ask for Help” with Jane Barton. View the webinar here.
The “best” interviews of 2018 (though they were all fantastic!);
Hansa Bergwall talking about the WeCroak app he created for smart phones that reminds you of your mortality 5 times a day. Listen here.
Dr. Bob Uslander who has pioneered a new concierge model of end-of-life care, which could be a game-changer for the medical system and how we help patients navigate their last days. Listen here.
Alua Arthur of Going With Gracetalked about the legal issues that can occur after death and how to prepare for them in advance. Listen here.
Deanna Cochran RN and Suzanne O’Brien RN both talked about the creation of the End-of-Life Doula Council by the NHPCO and the National End-of-Life Doula Alliance, which now provides certification training for doulas. Listen to Deanna’s interview here. Listen to Suzanne’s interview here.
Jonathan Bartels RN discussed The Medical Pause which he initiated to show respect after the death of a patient at his hospital and has now spread around the world! Listen here.
It’s not enough to get your paperwork done … make sure it’s done right!
In this episode we’ll look at several common mistakes people make when doing their advance directives–mistakes that could make it more difficult for their end-of-life wishes to be carried out. Learn how to get your paperwork right so you can relax!
This podcast is supported through the generous donations of listeners made on Patreon.com/eolu. When you donate just $1 or $2 per month I will thank you by mentioning your name on the podcast and promoting your cause!
Thank you to my latest patron: Jayne Boulton–I appreciate your support Jayne!
In the News:
An online article from Managed Healthcare Executive asks the question: Can Data Analytics Aid in End-of-Life Care Decisions? The author cites a recent study from JAMA that shows 70% of MD’s reporting that they have not been trained to have end-of-life conversations with patients and 73% of patients over the age of 65 have never had an advance care planning discussion with a doctor.
Medical data analysts have suggested that EHR’s might be useful to help health systems identify patients in need of end-of-life conversations. The article points out that current management of advance directives on EHR’s is poor since on average it requires clicks on 12 different screens to locate a patient’s AD, which takes 1.3 minutes–not fast enough in an emergency situation. In addition many patients at the end of life experience more than 3 transfers to different facilities and their paperwork is often lost in the process.
Much work needs to be done to help patients get their wishes met at the end of life! For that reason I have created a NEW online course to guide people through creating their advance directives, making them legal, and having conversations with loved ones and doctors about their wishes.
I’ve written the course to help people be prepared mentally and emotionally to make end-of-life decisions and avoid the common mistakes discussed below.
Join Dr. Karen Wyatt and her guest Ashley Benem as they discuss Ashley’s experiences creating and hosting a large community event focused on the end-of-life. Hear how Ashley conceived of The Art of Death Exhibition and Conference in Bellingham, WA in 2014 and learn what it takes to create a similar event in your own community.
In this interview you will learn:
The basic template Ashley used for planning her event
A step-by-step approach to putting on a large community event
The benefits of engaging your entire community in an educational, inspirational event about the end-of-life