EOLPodcast

Ep. 377 Center for Conscious Living and Dying: An End-of-Life Care Home with Aditi Sethi, MD

Learn about a model for a non-medical home that is changing how we provide end-of-life care.

My guest Dr. Aditi Sethi is a hospice and palliative care physician and end-of-life doula. She is the founder and executive director of the Center for Conscious Living and Dying, a community supported end-of-life care home near Asheville NC. Aditi shares her journey toward working with death and dying and the creative inspiration that is bringing CCLD into existence. We discuss why the care home model may be the solution to many problems currently facing hospice and end-of-life care. Learn more at the website:

www.ccld.community

Watch on YouTube

Listen here:

This episode includes:

  • How intuition guided Aditi’s journey to becoming a hospice and palliative care physician and an EOL doula
  • What Aditi learned from her travels in India during childhood
  • What needs to change in the medical system to improve how people die
  • How conscious living and conscious dying are intertwined
  • Practices to become more awake and aware in life and in dying
  • What is the Center for Conscious Living and Dying
  • The benefits of community-supported end-of-life homes
  • How creativity can help us devise solve the problems we face around end-of-life care
  • Resources available from the Omega Home Network to help people start EOL care homes
  • How working with Ethan Sisser at his end of life inspired Aditi’s next steps to leap into the unknown

Links mentioned in this episode:

EOLPodcast

Ep. 350 Meeting the End-of-Life Needs of Your Community with Elizabeth Johnson and Erin Collins RN

Learn how this non-profit organization is working to solve gaps in end-of-life care in their community.

My guests Elizabeth Johnson and Erin Collins are the founders and creators of the non-profit Peaceful Presence Project with a mission of helping communities live well, age well and die well by reimagining the way we talk about, plan for and experience the last stage of life. They have created Endnotes, a roadmap for end-of-life planning an will discuss the genesis of their organization and how they take a community-based approach in their work by meeting the gaps that exist in end-of-life care. Learn more at their website:

www.the peacefulpresenceproject.com

Listen here:

This episode includes:

  • How Elizabeth and Erin were inspired to start this organization
  • The Compassionate Communities model of care that informs their work
  • The importance of integrating palliative care into daily life
  • How to reclaim deathcare as a social event with a medical component
  • Surveying the community for strengths and weaknesses around end-of-life issues to determine areas of need
  • Thoughts on improving the medical model to move from a curative focus to a healing focus by increasing education around palliative and end-of-life care
  • Reasons why our advance care planning has not been “successful” so far
  • High quality conversations about EOL choices are essential and they should start outside of healthcare first
  • Why advance care planning is important for those experiencing homelessness
  • The needs for increased access to palliative care in rural communities
  • Exploring who is too poor to die well

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference.

EOLPodcast

Ep. 347 The Global Palliative Care Movement with Katherine Pettus

Learn about the status of palliative care in developing nations around the world and how IAHPC is working to increase global access.

My guest Katherine Pettus is the Senior Advocacy Director for The International Association for Hospice and Palliative Care. In this role she meets with delegates at the United Nations to increase the understanding of palliative care and to advocate for improved availability of opioids for patients needing pain relief. She is the author of Global Palliative Care: Reports from the Peripheries, which describes her visits to communities around the world to witness firsthand their utilization of palliative care. Learn more about the work of IAHPC at the website:

www.hospicecare.com

Listen here:

This episode includes:

  • Why 80% of the world’s population has no access to morphine
  • How Hospice Africa Uganda is utilizing powdered morphine for pain relief and also allows nurses to prescribe it in the field
  • Why palliative care teams are good at “sideways thinking” to solve problems that arrive in the moment
  • How caregiving is a crisis everywhere in the world right now (except Costa Rica that provides support for family caregivers)
  • Why the extended family is becoming a myth in developing nations
  • What is the “health poverty trap” and how lack of access to palliative care contributes to it
  • How the Western model of medicalized death is spreading to developing nations
  • Expanding palliative care helps medical systems and medical providers as well
  • How a “palliative care peace corps” could transform society
  • How COVID has affected the global palliative care movement

Palliative Care transforms everyone who participates in it.” 

Katherine Pettus in Global Palliative Care: Reports from the Peripheries

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference.

EOLPodcast

Ep. 332 Technology Advances for End-of-Life Care with Jeremy Powell

Learn about exciting new technology that promises to help more patients be referred for hospice and palliative care in a timely manner.

My guest Jeremy Powell is the Founder and Chief Executive Officer of Acclivity Health Solutions, a company that aims to transform the management of advanced illness while honoring the patient’s dignity, goals and values. He discusses how technology can help us solve some of the greatest challenges we face in the provision of end-of-life care and why we should embrace technology rather than feel intimidated by it. Learn more at the website:

www.acclivityhealth.com

Listen here:

This episode includes:

  • Current healthcare challenges (including hospice and palliative care) that urgently need to be addressed
  • How COVID-19 has impacted these challenges
  • What technology is being developed to address the challenges facing hospice and palliative care
  • How Machine Learning can provide data that leads to more timely referrals to hospice and palliative care
  • Why lack of interoperability in electronic health records is a deterrent to good patient care
  • How the “3rd Platform” for EHR’s will deconstruct the silos that have existed in healthcare
  • How COVID-19 helped accelerate acceptance of telemedicine
  • Why it’s necessary to look at healthcare finances in order to ensure the survival of hospice in the future
  • Why a technology-driven approach to care does not threaten but can enhance patient-centered care at end of life

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my new patrons Mary Ganapol and Katherine Pettus! Your contributions make all the difference.

EOLPodcast

Ep. 331 Looking Ahead to 2022

Learn how the innovations of the past year are going to create more positive change in 2022!

In this final episode of 2021 I’ll share with you some of the innovations of 2021 that are going to be driving further change in the coming year. I’ll remind you of some of the conversations from this past year that provide potential solutions to the issues we are currently facing around end-of-life care. And we’ll recognize that amidst all the pain and sorrow of this pandemic year there has been much to be grateful and joyful about! (This episode is overflowing with information so keep a pen and paper handy to make note of interviews you may want to hear!)

Listen here:

This episode includes:

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my new patrons Teri A. Portugal Gooden and Cari Zlotnick; and thank you Brittany Ellis for increasing your monthly pledge! Your contributions make all the difference.

EOLPodcast

Ep. 325 Palliative Care: What’s Needed Now and in the Future with John Mulder MD

Learn how palliative care can meet the healthcare needs of the future.

My guest Dr. John Mulder is a pioneering member of the palliative care specialty. He currently serves as chief medical consultant for hospice and palliative car at Holland Home, the largest provider of elder care services in Michigan. He also serves as executive director for the Trillium Institute, which provides education for clinicians on managing serious and terminal illness. He discusses some of the challenges facing palliative care currently and in the future of this specialty. Learn more at this website:

www.trilliuminstitute.org

Listen here:

This episode includes:

  • The differences between hospice and palliative care
  • Why the general public and physicians need to reframe their understanding of palliative care
  • Why the 6 months criteria for hospice admission often interferes with patients receiving care that they need
  • Should hospice and palliative care “rebrand” or “rename” in order to overcome stigmas
  • Why referring patients to palliative care could help physicians with burnout
  • How palliative care can improve patient outcomes and quality of life
  • How physicians can better educate their peers about palliative care and hospice
  • What changes will be needed to meet the rising demands of the aging baby boomer population
  • Why primary palliative care training will be essential in the future
  • The importance of attracting new talent to the speciality
  • How technology may evolve in the future to assist with referrals to palliative and hospice care
  • Dr. Mulder’s new podcast: Palliative Matters

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my new patrons Monica Czaplinski and Jeannie Canepa! Your contributions make all the difference.

EOLPodcast

Ep. 315 “Deep Dive” Part 1: Hospice and EOL Doulas with Deanna Cochran RN

Learn the “long-view” of end-of-life care and how hospice care has changed over time to now include death doulas.

My guest Deanna Cochran is a registered nurse with certification in hospice and palliative care who has served as a private EOL doula since 2005, so she is truly a pioneer in the movement. She is the founder of the CareDoula® School of Accompanying the Dying and the author of “Accompanying the Dying: Practical, Heart-Centered Wisdom for End-of-Life Doula and Healthcare Advocates.” Today we begin a “deep-dive” conversation that covers our experiences in nursing and medical training, hospice of the past vs today’s hospice, and why death doulas are so important right now. Tune in next week for Part 2 of our discussion! Learn more about Deanna’s work and the trainings she offers at her website:

www.certifiedcaredoula.com

Listen here:

This episode includes:

  • How Deanna was first introduced to sitting vigil by her grandmother
  • The lack of death training in nursing and medical schools
  • Why we have to be aware of our own suffering before we can sit with the suffering of others
  • Why death doulas are needed now more than ever in our busy and understaffed healthcare system
  • How hospice care has changed over the years
  • What to do if you are receiving inadequate care from a hospice
  • How the medical system falls short of whole-person care by focusing primarily on the physical aspect of patients
  • Why personal experience matters a great deal in caring for the dying
  • The value of stillness and being quiet in end-of-life care

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest supporters Alix Lutnick and Nancy Kendrick! Your contributions make all the difference.

EOLPodcast

Ep. 295 Psilocybin Therapy at End of Life: The Legal Case with Kathryn Tucker, JD

Learn about the legal effort to make psilocybin available as a transformative therapy at the end of life.

My guest Kathryn Tucker is a Special Counsel at Emerge Law Group where she co-chairs the Psychedelic Practice Group. She is also the Executive Director of the End-of-Life Liberty Project and served two decades as Director of Advocacy and Legal Affairs for Compassion & Choices, working to improve care and expand choice at the end of life. She shares the current legal case she is spearheading to allow terminally ill patients to try psilocybin as a palliative care medication and how psilocybin has already been shown to be hugely beneficial to patients at the end of life. Learn more about her work at:

www.emergelawgroup.com

Listen here:

This episode includes:

  • The benefits of psilocybin therapy for palliative care
  • Why terminally ill patients cannot currently access psilocybin therapy
  • What are Right to Try (RTT) laws and how they may apply to psilocybin
  • History behind psilocybin being labeled a Schedule I drug by the DEA
  • Test case that has been filed in court based on Washington state and Federal RTT laws
  • How “friends of the court” can be helpful to this case
  • Why the success of this case could open access for patients in other states
  • Oregon’s Psilocybin Therapy Law and implications for other states

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference!

EOLPodcast

Ep. 288 PEACH: Palliative Education and Care for the Homeless with Dr. Naheed Dosani

Learn about an innovative program to provide end-of-life care to people living on the streets and in shelters in Toronto.

My guest Dr. Naheed Dosani is the founder of PEACH, a mobile outreach program that provides palliative care to the homeless on the streets and in the shelters of Toronto. His model led to the development of Journey Home Hospice, Toronto’s first hospice for the homeless, which opened in May 2018. He’ll share how and why he started PEACH and inspire all of us to be more aware of and active in dealing with the issues of homelessness and health inequities in our communities. Learn more about PEACH at this webpage:

http://www.icha-toronto.ca/peach-covid-19-palliative-care-resources-for-physicians-and-frontline-workers

Follow Dr. Dosani:

Listen here:

This episode includes:

  • What inspired Naheed to create a palliative care program for homeless people
  • How PEACH functions and provides care for patients on the streets and in shelters
  • Why there is a great need for palliative care for the homeless population
  • Health issues faced by homeless people and their shockingly low life expectancy
  • How to replicate PEACH in other cities and countries
  • Trauma-informed care and why it is needed for all patients, including those who are homeless
  • Why we need systemic change in medicine to provide more equitable care to all people
  • Dealing with grief, compassion fatigue and moral injury for healthcare providers
  • Why we’re facing a global pandemic of grief due to COVID-19

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference!

End of Life, EOLPodcast, Hospice

Ep. 221 Hospice and Palliative Care: Know the Difference

Understand the basic facts about hospice and palliative care, what they have in common, and what makes them different.

PodcastHospicePall

In this “EOL 101” episode I explain the difference between hospice and palliative care. This is an important piece of information for people making choices around end-of-life care and an area where there are many misconceptions. We all need to be well-versed in EOL options for our own needs and also so that we can help educate others. I’ll offer additional “explainer” episodes in the future!

Listen here:

 

This episode includes:

  • Who is on the palliative care (and hospice) team
  • Whole-person care is offered by both services
  • Who is eligible for palliative care
  • How and why to enroll in palliative care
  • The criteria for admission to hospice
    • Terminal diagnosis
    • 6 months from end of life
    • Forego curative treatment
  • Both hospice and palliative care provide symptom-based, comfort care that focuses on quality of life
  • The main differences between hospice and palliative care (including financial considerations)
  • Why you should choose both types of care if possible (first palliative then transfer to hospice)
  • Why some patients may not choose hospice care but should still opt for palliative care

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest Patrons: Lisa Monroe, Deb Pazderka, Debbie Henkemeyer, and Molly Byock; your contributions make all the difference!

End of Life, EOLPodcast

Ep. 165 Part 4: The Palliative Care Team Chaplain with Stephanie Ryu

PodcastPallRyu

 

 

ProvidenceRyuITIn Part 4 of our series on palliative care I share an interview with Stephanie Ryu a palliative care chaplain. She’ll discuss her role providing spiritual support to patients with advanced illness. 

Learn more about palliative care here.

ANNOUNCEMENTS:

madrid-2713916_640My awesome Spain trip is at an end as this episode airs and I’ll be making my way back to Colorado! You can check out all of my pictures on Instagram at kwyattmd!

Tune in next week to hear my stories from Spain!

FEATURE PRESENTATION:

In this presentation Stephanie Ryu will discuss her role as a chaplain on the palliative care team.

You will learn:

  • How the work of a palliative care chaplain differs from other chaplaincy work
  • The role of spiritual care in the whole-person approach to illness and healing
  • The importance of spirituality at the end of life
  • How chaplains assist patients of all religions and those who follow no religion

Stephanie Ryu is a graduate of St. Xavier University and Fuller Theological Seminary. She completed CPE Residency at Providence St. Joseph – Burbank in 2012-13 along with a 6-month fellowship in hospice and palliative care. She now serves as a Palliative Care Chaplain for Providence Health and Services.

Tune in next week for a brand new episode!! If you like this content consider leaving a review on iTunes.

Until next time …

Face Your Fear         BE Ready         Love Your Life

karen-signature

End of Life, EOLPodcast

Ep. 164 Part 3: The Palliative Care Team Social Worker with Andrea Strouth MSW

PodcastPallStrouth

 

 

ProvidenceStrouthIn Part 3 of our series on palliative care I share an interview with Andrea Strouth MSW a social worker on the palliative care team. She’ll talk about her role on the team to help us understand why social workers play an important part in the care of patients with advanced illness.

Learn more about palliative care here.

ANNOUNCEMENTS:

sagrada-familia-392009_640At the time of this broadcast I’m still enjoying my Spain trip – probably eating some tapas in Barcelona! I’ll be returning home in a few weeks but meanwhile check out my photos on Instagram at kwyattmd!

 

 

FEATURE PRESENTATION:

In this presentation Andrea Strouth LCSW, MSW will discuss the role of the social worker on the palliative care team.

You will learn:

  • The duties of the palliative care team social worker
  • Why palliative patients might need social work services
  • How the multidisciplinary palliative care team functions as a unit
  • The rewards of working on a palliative care team

Andrea Strouth received her MSW from the University of Pennsylvania. She is currently working at Providence Health & Services-Southern California to help develop their outpatient palliative care program. Previously, Andrea worked at the Abramson Cancer Center at Penn Medicine and in the Medical and Cardiothoracic Intensive Care Units at Hahnemann University Hospital in Philadelphia, Pennsylvania. Her passion lies in advanced care planning and education surrounding end-of-life issues to ensure patients feel empowered in every aspect of their care.

Tune in next Monday for Part 4 of this series. If you find this content helpful please share it with other and consider leaving a review on iTunes! Also your contributions to my page at Patreon.com/eolu are always appreciated!

Until next time …

Face Your Fear         BE Ready           Love Your Life

karen-signature

End of Life, EOLPodcast

Ep. 163 Part 2: The Palliative Care Team Nurse with Rebekah Riemer RN

PodcastPallRiemer

 

 

Providencebeka (002)In Part 2 of our series on palliative care I share an interview with Rebekah Riemer a palliative care nurse. She’ll talk about her role on the team and why she decided to specialize in palliative care nursing.

Learn more about palliative care here.

ANNOUNCEMENTS:

flamencoMy Spain trip continues this week as I visit more of Andalucia and take in some flamenco dancing.  I’ll be returning home in a few weeks but meanwhile check out my photos on Instagram at kwyattmd!

 

FEATURE PRESENTATION:

In this presentation Rebekah Riemer RN will discuss the role of the nurse on the palliative care team and her own story of being called to work in palliative.

You will learn:

  • How Beka was introduced to palliative care as a family member of a patient and a patient herself
  • The typical duties of a palliative care nurse
  • How palliative care meets the physical, emotional and spiritual needs of patients and their families
  • The most common misperceptions about palliative care for the public and for healthcare providers

Rebekah “Beka” Riemer, RN, CCRN was an intensive care nurse for over eight years, working in surgical as well as medical ICUs and currently works as the Nurse Coordinator on the Inpatient Palliative Care Team at Providence Little Company of Mary in Torrance, California. She is on the team working towards the recertification of the Joint Commission’s Advanced Certification for Palliative Care. She serves on the Critical Care Committee representing nursing and Palliative Care, as well as on the Ethics Committee and Mortality Committee.

In addition, Ms. Riemer volunteers at the Leukemia Lymphoma Society of America (LLSA), Los Angeles, CA chapter. In 2013, she was 1st runner up for Woman of the Year, as she raised over $50,000 for leukemia/lymphoma research for the LLSA. Ms. Riemer has been an ELNEC-Critical Care faculty member for over five years.

She also spoke at the National Teaching Institute for Critical Care Nurses in 2017, speaking about the importance of integrating Palliative Care in Critical Care settings. She will also be published in the 5th edition of the Oxford Textbook for Palliative Care Nursing in the seventh chapter titled, “ Interdisciplinary Palliative Care Teams: Specialists in Delivering Palliative Care”.

Tune in next Monday for Part 3 of our series on palliative care! If you enjoy this content please share it with others who might find it helpful and consider leaving a review on iTunes!

Until next time …

Face Your Fear       BE Ready        Love Your Life

karen-signature

End of Life, EOLPodcast, Hospice

Ep. 162 Part 1: The Palliative Care Team Physician with Colin Scibetta MD

PodcastPallScibetta

 

 

ProvidencescibettaThis episode is the first of a 4-part series that introduces you to the members of a palliative care team. Today Dr. Colin Scibetta discusses his role as the physician on the team and how palliative care differs from hospice care. In future episodes you’ll hear from the team nurse, social worker and chaplain.

 

ANNOUNCEMENTS:

grenade-1285671_640As this episode airs I am enjoying a trip through Spain, including cycling in the Andalucia region! I’ll be back home in a few weeks to report on the trip. Follow me on Instagram to see my photos at kwyattmd or this link: https://www.instagram.com/kwyattmd/

 

FEATURE PRESENTATION:

This interview will cover:

  • What palliative care consists of
  • The difference between palliative care and hospice
  • The benefits of palliative care for patients
  • How the whole-person approach of palliative medicine also benefits care providers
  • Why Providence Institute for Human Caring (et al) was awarded the Circle of Life Award from the American Hospital Association

 

Colin Scibetta MD is a fellowship-trained palliative medicine physician who complete his undergrad in neuroscience and biology at Wesleyan University. He then moved to Ecuador where he worked on a health initiative for indigenous communities impacted by oil development. Dr. Scibetta did his undergraduate medical training at the University of California, San Francisco School of Medicine, where he also completed an internal medicine residency and a fellowship in hospice and palliative medicine.

Remember to tune in next week for Part 2 of this palliative care series! If you enjoy this content be sure to share it with others who might find it helpful and consider leaving a review on iTunes. 

Until next time …

Face Your Fear          BE Ready           Love Your Life

karen-signature

End of Life, EOLPodcast

Ep. 159 How to Make Difficult End-of-Life Decisions for a Loved One

PodcastDecisions

 

 

purposequestionIn this episode I share my thoughts on how to approach the very difficult task of making an end-of-life decision about the treatment a loved one should receive. Many people are called upon to be decision-makers in these challenging situations and this episode serves as a guide for choosing the best option for someone we love. Download the handout below:

Guide for Difficult EOL Decisions

ANNOUNCEMENTS:

This episode is sponsored by Suzanne O’Brien and her training program for caring for others at the end of life at Doulagivers.com and by your generous donations on my page at Patreon.com/eolu! Join the team and receive special bonuses as a thank-you!

Thank you to all of my patrons and sponsors! Your support means everything to me!

FEATURE PRESENTATION:

Download the handout here:

Guide for Difficult EOL Decisions

Every day families are called upon to make nearly impossible decisions about the type of care a loved one should receive as they near the end of life. Here are some suggestions for how to navigate this challenging situation when there is no advance directive available for guidance:

  • Gather medical information from all healthcare providers involved in care
  • Ask direct questions:
    • What is the diagnosis and what complications have occurred?
    • What is the effectiveness of the recommended treatment?
    • What are the chances for recovery or improvement?
    • Are there side effects from the treatment or will it cause additional suffering?
    • What will happen if treatment is stopped?
    • What would you do if this were your loved one?
  • Get expert advice and guidance from a palliative care team if available in your hospital
  • Remember past conversations with your loved one that might give you clues as to his or her preferences for the end of life
  • Consider the statistics that most Americans prefer to die at home and most do not want aggressive treatment to prolong life in the face of an incurable condition
  • Ask your loved one for guidance by expressing your concern and your desire to make the best decision. Even though your loved one cannot verbalize, they can hear you – listen for any intuitive or “felt” guidance that might come to you about the best choice to make.
  • Be gentle with yourself and recognize that you have done your best in a challenging situation
  • Seek support from others outside your family

Tune in next week for another episode! Share this content with others who might it helpful and consider leaving a review on iTunes.

Until next time …

Face Your Fear        BE Ready         Love Your Life

karen-signature

 

End of Life, EOLPodcast

Ep. 150 Die Wise: A Call for Wisdom in the Approach to Death with Stephen Jenkinson

Learn about Stephen’s teachings on death phobia in our society and how palliative care and the medical system fail to address this problem.

PodcastJenkinson

DieWiseIn this episode I share an excerpt from an interview with Stephen Jenkinson, author of the book Die Wise, founder of Orphan Wisdom and subject of the documentary Griefwalker. Stephen discusses some of the problems with our approach to death in modern society, including the medical system.

Learn more about Stephen’s work here.

Get Die Wise here.

 

ANNOUNCEMENTS:

Thank you to my latest supporter on Patreon.com/eolu: Bernadette Koch. I appreciate your willingness to contribute to this podcast and the End-of-Life University Series to keep them on the air. If you’d like to join the team, support this work, and get awesome bonuses at the same time, go to Patreon.com/eolu to learn more and sign up!

 

obrienwebinar

On July 24th I’m hosting Suzanne O’Brien RN for a free webinar where she’ll be teaching “End-of-Life Doula Training for Caregivers and Volunteers.” If you’d like to know more about the work of end-of-life doulas and learn important skills for caring for the dying, this webinar will be valuable for you.

Learn more at: eoluniversity.com/obrien.

Click here to sign up for the webinar (it’s free and you’ll receive the replay if you can’t attend live.)

FEATURE PRESENTATION:

StephenJenkinson2My guest Stephen Jenkinson is a palliative care consultant, teacher, author and ceremonialist who is “revolutionizing grief and dying in North America.” As the author of Die Wise he teaches that “Dying well is a right and responsibility of everyone.”

Dying well is a right and responsibility of everyone. – Stephen Jenkinson

In this interview we discuss:

  • The origin of death phobia in our society
  • How the fear of non-existence is the greatest fear of most people
  • Why “lost” and “loss” are not helpful terms to use when discussing death
  • The danger of the “fighting illness” mentality of modern medicine
  • Why dying and grief are things that we “do” rather than events that “happen to us”
  • Why palliative care should be dying-centered rather than relief-centered

(This is an excerpt from the interview with Stephen. The full interview can be found at Patreon.com/eolu as a bonus for Platinum level supporters ($5 per month.))

Tune in every Monday for a new episode and if you like this content please share it with others or consider leaving a review on iTunes.

Until next week:

Face Your Fear         BE Ready          Love Your Life

karen-signature

 

 

End of Life, EOLPodcast, Hospice

Ep. 109 Twenty Years of “Dying Well” – A Conversation with Ira Byock, MD

Learn from palliative care thought leader Dr. Ira Byock how end-of-life care has changed over the past 2 decades since his book “Dying Well” was published.

PodcastByock

IralaughingIn this episode I share a recent interview with Dr. Ira Byock that celebrates the 20th anniversary of his book Dying Well and features his wise perspective on end-of-life care “then and now.”

Learn more about Dr. Byock at www.irabyock.org.

Get Dying Well at Amazon or Barnes & Noble

ANNOUNCEMENTS:

OLYMPUS DIGITAL CAMERAAs you listen to this broadcast I am currently in Italy–traveling and doing research for my new book on grief (also eating … a lot!) This episode has been pre-recorded (along with several others) so that there will be no interruptions in the podcast. If you want to see photos of my journey follow me on Instagram or Facebook.

Patreonbecome2xThis podcast is generously sponsored by donations on my page at Patreon.com/eolu. Thank you to all of my patrons–your support means everything to me!! Submit your questions for the next “Hospice Happy Hour” Q&A Session here and I’ll answer them next month. You can become a patron for just $1 or $2 per month and you’ll receive access to the Q&A recordings, the Top 10 Interviews from EOLU, and the opportunity to have your work promoted on this podcast. Go to Patreon.com/eolu to learn more!

FEATURED PRESENTATION:

Read the transcript of this interview here:

EOLU17Byock

In this interview I will talk with Dr. Ira Byock about his groundbreaking book Dying Well: The Prospect for Growth at the End of Life which was published in 1997. We discuss:

  • How he first got interested in hospice care during his residency training
  • What inspired him to write Dying Well
  • How writing the book helped him heal his own grief over his father’s death
  • Changes he has seen in hospice and palliative care over the past 20 years (“the good, the bad, and the ugly”)
  • Where we should be focusing our efforts now to continue to improve the end of life for everyone
  • The upcoming Symposium on Palliative Care, Pain Management and Whole Person Care where Dr. Byock will be a presenter
  • Where to purchase Dying Well

Download the Readers Discussion Guide for Dying Well here.

Dr. Ira Byock is a leading palliative care physician, author, and public advocate for improving care through the end of life. He is the Founder and Chief Medical Officer for the Institute for Human Caring of Providence St. Joseph Health.

Tune in every Monday for a new episode of the podcast! If you enjoy this content please take a moment to leave a review on iTunes – it will help other listeners find the podcast.

Meanwhile remember ….

Face Your Fears.                       BE Ready.                      Love Your Life.

karen-signature

 

 

SaveSaveSaveSave

SaveSave

End of Life, EOLPodcast, Spirituality

Ep. 102 Supernatural Stories from the Dreams of a Hospice Physician

podcastdreams

In this episode I’ll share my own “supernatural” dreams that occurred while I was caring for hospice patients. It’s time to come forward and talk more openly about these experiences to help shed light on the dying process and the after-death realms.

ANNOUNCEMENTS:

An Evening withDr. Ira Byock

Register now for “An Evening with Ira Byock MD” which will take place on Monday August 21st at 6 pm Pacific/9 pm Eastern. We will be celebrating the 20th Anniversary of his groundbreaking book Dying Well. Dr. Byock and I will discuss the changes in palliative and hospice care that have taken place over the past 20 years and what changes still must occur to ensure that everyone has the opportunity to “die well.”

Click here to learn more and register (it’s free and you’ll receive the replay if you can’t attend live.) You’ll also receive the Dying Well Readers Discussion Guide – a very helpful resource for leading a book group or workshop on Dying Well.

Patreonbecome2xThis podcast is supported by generous donations to my page at Patreon.com/eolu. A HUGE “Thank you” goes out to my latest donor: Jane Duncan Rogers of BeforeIGoSolutions.com – a non-profit located in Scotland. And thanks as well to all of the other supporters who are chipping in a few $ per month to help keep the podcast and the End-of-Life University Interview Series on the air! Learn more or become a patron at Patreon.com/eolu.

PERSONAL NEWS:

OLYMPUS DIGITAL CAMERAI am currently planning an Autumn trip to Italy where I will be eating amazing food, viewing sacred sites, cycling, and researching a new book on grief. You can view my Pinterest board if you are interested in seeing all the locations on my “wish-list” for the trip. Feel free to make suggestions if you have a favorite spot in Italy that I shouldn’t miss! I’ll be sharing photos on Instagram and Facebook once the trip begins.

PRESENTATION:

This week I attended a meeting at the IANDS 2017 Conference in Denver (International Association for Near Death Studies.) I sat together in a small circle with individuals from all around the country who have had near-death experiences and also with end-of-life caregivers who have had unusual “supernatural” experiences while working with the dying.

I was impressed by the courage of the group members who were willing to share their stories and risk being labelled as “flakey” or even crazy. And that’s what inspired me to record this podcast episode. 

During my work with hospice patients on multiple occasions I experienced vivid dreams where I saw my patients in “soul form” (or a disembodied state) before they had actually died. These dreams brought me much comfort and also eased my fear of death. On some occasions I was able to share the dreams with family members who were comforted, as well, by the visions I had seen.

I have never shared these dreams publicly out of a fear of being ostracized by the medical profession. But the time for secrecy has long passed and we need transparency and truth in all matters surrounding death and dying. So I’m telling these stories in hopes that others might be inspired to talk openly about their experiences as well. If you have a story to tell but no one to share it with I hope you will email me at karen@karenwyattmd.com and describe your experience – let’s support one another!

Tune in next week for another new episode. Until then remember ….

Face Your Fear.                   BE Ready.                   Love Your Life.

karen-signature

EOLPodcast

Ep. 71 The Death-Positive Movement: Trends and Goals for 2017

It’s a brand new year! Let’s look ahead and see what’s possible in 2017!

blogtemplate2017

In today’s episode of the podcast we’ll look ahead at the coming year, study the trends in the death-positive movement and discover where it might be possible to create new volunteer and career opportunities for ourselves and our communities in 2017.

First I’ll share my own goals for the coming year, which include revising, editing and publishing the two books I wrote in 2016. I also plan to release two new training courses this spring and have lined up a fascinating group of speakers for the End-of-Life University Interview Series. To stay up-to-date on all the latest interviews and offering from EOLU, be sure to to sign up for the mailing list here.

Thank you from the bottom of my heart to all the contributors to this podcast on supportonpatreon-e1412764908776Patreon.com/eolu. Your support helps pay for the expenses of creating this podcast and the EOLU Interview Series. If you’d like to become a patron just go to Patreon.com/eolu and sign up to contribute just $1 or $2 per month.

Here are some of the Trends I’ll be watching in 2017:

  1. Increasing number of Palliative Care Programs in hospitals across the country. Though many of the current programs are either understaffed or underfunded, these problems are likely to be corrected in the near future. To meet current standards, each palliative care team must have a chaplain and a social worker so if you have training in either of those fields you might find employment opportunities in a palliative care program in your community.
  2. Need for creative solutions for hospice care. Because for-profit hospices are taking over many of the smaller non-profit hospices there is a risk that uninsured patients or those with needs for expensive care might be turned away. There is a need for social-model hospices (see Episode 23) and possibly for community-based non-profit, non-Medicare-certified organizations that can help bridge gaps in services for hospice patients. Here are some recommended training programs for becoming an end-of-life doula or midwife:
    1. Sebastopol CA: Jerrigrace Lyons http://finalpassages.org
    2. Austin Texas: Donna Belk (Online training program): http://beyondhospice.com
    3. Austin Texas: Deanna Cochran http://www.qualityoflifecare.com
    4. Ann Arbor Michigan: Merrilyn Rush and Patty Brennan http://center4cby.com This training starts right away – Feb. 3-5, 2017
    5. Calgary Canada: Sarah Kerr http://soulpassages.ca/about/
    6. New York and online: Suzanne B. O’Brien RN: http://www.doulagivers.com
  3. Need for more caregivers. As baby boomers age and approach the end-of-life the caregiver shortage will become a much greater issue. Opportunities will exist to create caregiver training and support services in communities and even to start businesses that employ caregivers.
  4. Community outreach can help support the changes that are slowly occurring in the healthcare system. One of the best ways to encourage change in healthcare is to empower consumers to demand changes from their physicians. This will require outreach and education in the community. Here are some ideas for outreach and links to learn more from previous podcasts:
    1. Plan a community end-of-life event.
    2. Start a Death Cafe.
    3. Plan an EOL Film Festival.
    4. Start an EOL Book Club. Get a list of potential books here.
  5. Create an “Inreach” for members of the EOL community by starting a discussion group, networking event or collaboration opportunity for those who are already working in this arena.
  6. Bring volunteer movements to your community. Consider starting a group of volunteer caregivers who can provide respite care for family caregivers or start your own chapter of Threshold Choir, Twilight Brigade, or No One Dies Alone.
  7. Provide education for your community either as a voluntary act of service or as a paid instructor. Here are some possible ideas:
    1. Assist people to correctly complete their advance directives.
    2. Teach a community class on death and dying.
    3. Train caregivers.
    4. Teach about green burial, promote a natural burial ground in your community, help people access green burial supplies
    5. Educate the community about their rights to a home funeral

I hope these ideas inspire your own personal goals for 2017! Stay connected with me and keep tuning in to the podcast. Let me know your own inspirations and plans for the New Year by adding your comments.

Until next week ….

Face Your Fears.              BE Ready.             Love Your Life.

End of Life, EOLPodcast, Hospice

Ep. 70 Looking Back on 2016: A Positive Year for End-of-Life Issues

In this final episode of 2016 Dr. Wyatt thanks all of the patrons who have generously made contributions on Patreon.com/eolu this year! Thank you for offering your support for this podcast and the End-of-Life University interview series!

In this look back at 2016 we talk about the following positive events in the end-of-life arena:

  • In January JAMA dedicated a special issue to “Death, Dying and the End-of-Life”, which represents a positive breakthrough in awareness of EOL issues by the medical profession
  • Medical schools began adopting new training programs for students in pain management, palliative care, and communication skills around advance care planning. There is a college-level program that pairs pre-med students with hospice patients
  • Nursing homes and long-term care facilities are bringing in children and college students to interact with patients
  • Dementia rates in the US  have dropped in the past year
  • Pilot studies are underway involving providing education and training to family caregivers and providing a small stipend to caregivers
  • A demonstration project is underway to study the benefits of providing curative care simultaneously with hospice care
  • Studies showed that palliative care lowers healthcare costs along with providing increased quality of life, improved pain management and fewer hospital days
  • Harvard study of adult development showed that relationships are a key to longevity
  • California and Colorado both passed assisted dying laws in 2016
  • The nation’s first conference on VSED was held this year
  • Conversation Sabbath took place for the first time in November, bringing discussions about death and dying into places of worship
  • Dying to Know Day was held in the US, inspired by the movement in Australia
  • Miss Norma, a 90-year old woman who refused treatment for her cancer, spent most of the year traveling around the country in an RV with her son and daughter-in-law, fully enjoying the last days of her life

Thank you for tuning in to the EOLU Podcast during 2016! I hope this has been a positive and productive year for you. May 2017 be filled with growth, surprises, peace and joy! See you next year and until then …

Face Your Fears.              BE Ready.              Love Your Life.