EOLPodcast

Ep. 350 Meeting the End-of-Life Needs of Your Community with Elizabeth Johnson and Erin Collins RN

Learn how this non-profit organization is working to solve gaps in end-of-life care in their community.

My guests Elizabeth Johnson and Erin Collins are the founders and creators of the non-profit Peaceful Presence Project with a mission of helping communities live well, age well and die well by reimagining the way we talk about, plan for and experience the last stage of life. They have created Endnotes, a roadmap for end-of-life planning an will discuss the genesis of their organization and how they take a community-based approach in their work by meeting the gaps that exist in end-of-life care. Learn more at their website:

www.the peacefulpresenceproject.com

Listen here:

This episode includes:

  • How Elizabeth and Erin were inspired to start this organization
  • The Compassionate Communities model of care that informs their work
  • The importance of integrating palliative care into daily life
  • How to reclaim deathcare as a social event with a medical component
  • Surveying the community for strengths and weaknesses around end-of-life issues to determine areas of need
  • Thoughts on improving the medical model to move from a curative focus to a healing focus by increasing education around palliative and end-of-life care
  • Reasons why our advance care planning has not been “successful” so far
  • High quality conversations about EOL choices are essential and they should start outside of healthcare first
  • Why advance care planning is important for those experiencing homelessness
  • The needs for increased access to palliative care in rural communities
  • Exploring who is too poor to die well

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference.

EOLPodcast

Ep. 343 When My Time Comes: Conversations About Medical Aid in Dying with Diane Rehm

Hear award-winning journalist Diane Rehm discuss what she learned about Medical Aid in Dying through conversations with people both for and against these laws.

My special guest Diane Rehm was the host of The Diane Rehm Show on WAMU and NPR for nearly 40 years with a weekly on-air audience of more than 2.8 million people. She is the author of 5 best-selling autobiographical book including her latest When My Time Comes: Conversations About Whether Those Who Are Dying Should Have the Right to Determine When Life Should End. She shares her experiences traveling the country and interviewing people about medical aid in dying for the book and the documentary film by the same name. Learn more at these websites:

www.dianerehm.org

www.whenmytimecomesmovie.com

Listen here:

This episode includes:

  • Diane’s journey with her husband John at the end of his life
  • Why Diane was inspired to create the documentary (and later the book) When My Time Comes
  • How memories of Dr. Kevorkian may still create fear and negativity around this subject
  • Lack of joy in life is a more common reason for choosing MAID than physical pain
  • Why choosing MAID is different than suicide
  • Current facts about Medical Aid in Dying laws in the U.S.
  • Common arguments against these laws from religious and disability communities
  • Safeguards built into these laws to prevent abuse and coercion
  • Patients with Alzheimer’s and other dementias are not eligible for MAID
  • This option is not equally available to all groups of people across the country for multiple reasons
  • How Brittany Maynard’s story galvanized this movement
  • The goal is to allow choice for people at the end of life

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons Erica Sanchez and Kelly Bean! Your contributions make all the difference.