Tag: end-of-life planning

EOLPodcast

Ep. 428 Love and Loss as a Caregiver Dealing with Lewy Body Dementia with Mary Lou Falcone

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Learn about Lewy Body Dementia, why it is difficult to diagnose, and the special challenges faced by caregivers.

My guest Mary Lou Falcone has been an advocate for Lewy body dementia awareness since her dear husband Nicky Zann died of the disease in 2020. Mary Lou is internationally known as a classical music publicist who has guided the careers of many celebrated artists such as Van Cliburn, Renée Fleming, and James Taylor. Her communication and strategy skills make her well-suited to be an ambassador for LBD awareness and she is committed to sharing her experience and factual information about LBD with the public. She is the author of the newly published book I Didn’t See it Coming: Scenes of Love, Loss, and Lewy Body Dementia. Learn more at her website:

www.maryloufalcone.com

Get the book here

Watch on YouTube

Listen here:

This episode includes:

  • Why Mary Lou decided to become a crusader for LBD awareness
  • The difference between Alzheimer’s and Lewy Body Dementia
  • The symptoms of LBD and why it is often difficult to diagnose
  • The inspiration for writing this book
  • Why LBD is little known by the general population
  • How to cope as a caregiver with the fluctuating symptoms of LBD
  • Survival strategies for LBD caregivers
  • Helpful resources available for caregivers

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donors Trina Wacasey and Samantha Potter and to Dianne Feltham for increasing your pledge.  Also thank you to Anonymous for buying me 3 coffees and to Carol Soppe and Samantha Potter for joining the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 425 Omega Homes: Community Homes for Dying People with Kelley Scott RN

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Learn how social model hospice homes are changing communities and improving end-of-life care for everyone and how you can start one where you live.

My guest Kelley Scott has been caring for dying people throughout the 37 years of her nursing career. She is the founder and executive director of Clarehouse, a “social model” hospice home in Tulsa OK. Kelley also serves as the president of Omega Home Network and provides consulting and mentoring to aspiring social model hospices. She discusses the Omega Home model and how other communities can implement it to improve end-of-life care for everyone. Learn more at the websites:

www.omegahomenetwork.org

www.clarehouse.org

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This episode includes:

  • What is a “social model hospice” or Omega Home
  • How Kelley first got interested in hospice and palliative care as a nurse
  • What inspired Kelley to found Clarehouse
  • Why Omega Homes are important to our communities
  • Advice for those who want to start an Omega Home in their community
  • Barriers to the Omega Home movement
  • How Omega Homes are funded

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to those who’ve bought me a coffee! Also many thanks to all of you who joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 424 Implicit Bias in End-of-Life Care with Kimberly Curseen MD

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Learn why cultural humility and awareness of hidden bias are essential in reducing racial disparities in care at the end of life.

My guest Dr. Kimberly Curseen is board-certified in Internal Medicine, Geriatrics and Palliative Care. She is the director of Supportive and Palliative Care Outpatient Services for Emory Healthcare and helps provide physical, emotional, and spiritual care for patients with cancer at any point in their disease process. She has helped educate physicians on implicit bias in healthcare and has written research articles for the Journal of Palliative Medicine and the Journal of Pain Symptom Management on structural racism and bias in palliative care. We discuss specific issues leading to racial inequities in healthcare and what we need to do to make changes and improve care at the end of life. Learn more about Dr. Curseen’s work:

med.emory.edu

Follow Dr. Curseen

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This episode includes:

  • How Dr. Curseen became interested in hospice and palliative medicine
  • What is “implicit bias” and how we can recognize it
  • Her work in rural Arkansas to educate community members and healthcare providers on implicit bias
  • Why we need “cultural humility” along with cultural competency training
  • How implicit stereotypes and biases contribute to racial inequities in healthcare
  • The current problem of racial disparities in pain management
  • Why improving racial disparities in advance care planning and hospice utilization must begin with our own personal work on hidden biases
  • How end-of-life care providers can develop cultural humility and a person-centered approach in their work
  • Why we need to change what we offer in end-of-life care to fit the patients that need care, rather than trying to force patients to fit into our existing model

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu especially my newest donors Lacy Buynak and Grace Lawrence and to Robin Blanche and Sandy Jane Stacy for increasing your pledge.Thank you to my newest donors on PayPal Erin Collins, Debora Schauss, Kathleen Lynch, and Janice Wildrick! Also many thanks to Ann Hyland and Jerry for buying me coffees! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 422 Practices to Prepare for the End of Life with Patt Lind-Kyle

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Learn how meditation practice can help decrease the fear of death and prepare you for a peaceful end of life.


My guest Patt LInd-Kyle is an authority on mindulness meditation, chakras, and the Enneagram who will share practices for addressing the fear of death. She is the author of 4 science and spirituality books including her latest Embracing the End of Life, A Journey into Dying and Awakening and Heal Your Mind, Rewire Your Brain. Patt is also a thought leader on how the mind and brain work together to arrive at a sense of who we are. She has studied the dying process in preparation for her own death and has become a leading authority on death and dying consciously. Patt has produced a series of guided meditations to accompany her Embracing the End of Life and Heal Your Mind, Rewire Your Brain books. Learn more at her website:

www.Pattlindkyle.com

Get the book

Watch on YouTube

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This episode includes:

  • Why it is important to face the fear of death
  • The benefits of meditation for confronting the end of life
  • How to start a meditation practice
  • How to let go of the need to control death 
  • How facing death helps us live life more fully

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to those who’ve bought me a coffee! Also many thanks to all of you who joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 417 Dignity Day: A Guidebook for Medical Aid in Dying with Gabrielle Elise Jimenez

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Learn about a helpful guidebook to provide information and dispel fear around medical aid in dying.

My guest Gabrielle Elise Jimenez is a hospice nurse, an end-of-life doula, and a conscious dying educator. She is the author of 6 books and the host of The Hospice Heart Facebook group, which now has 140,000 members. We discuss her latest book Dignity Day, an informational guide for people who are considering or want to learn more about medical aid in dying, based on Gabby’s experiences with patients who have chosen this option in her home state of California. Learn more about Gabby’s work and join her Facebook group at the following links:

www.thehospiceheart.net

fb.com/thehospiceheart.net

Get the book here

Watch on YouTube

Listen here:

This episode includes:

  • Why Gabby chose “Dignity Day” as a title for the book
  • The general requirements for using MAID in states where it is legal
  • What patients and their families should expect when they consult medical providers about MAID
  • How a hospice nurse or end-of-life doula can support a patient going through this process
  • The preparations needed before the medication is ingested
  • What it looks like when a person dies using MAID and how to prepare patients and loved ones for that
  • How to talk to loved ones who don’t support a patient’s decision to use MAID

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donors Lorene Reyes, David Easton, Ed Modell, and thanks to Joan Roellchen-Pfohl for upping your pledge! Also many thanks to Dan and Judy Dickinson for buying some coffees and to all of you who joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 416 Upstream Care for Veterans at End of Life with Lauren Grigsby and Wes Moldogo

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Learn about an innovative ranch that provides a safe and healing space for veterans and how to help veterans prepare for end of life “upstream”, before it’s too late.

My guests this week are two veterans who now work with other veterans at end of life. Lauren Grigsby is the co-executive director at Central Oregon Veterans Ranch and is an end-of-life doula with The Peaceful Presence Project. Wes Moldogo is chaplain who serves in the Oregon Army National Guard’s 2-162 Infantry Regiment and works also as a hospice chaplain. Together Lauren and Wes discuss the Central Oregon Veterans Ranch and the concept of “upstream care” for veterans with spiritual pain. Learn more about the ranch at the website:

www.covranch.org

Listen here:

Watch on YouTube

This episode includes:

  • The inspiration behind the Central Oregon Veterans Ranch
  • Mental health issues and “soul injury” for veterans
  • How the COV Ranch provides dignity and purpose for veterans
  • How needs for veterans change at different life stages
  • What is “upstream care” for veterans (and others) and why is it needed
  • Creating safe space for veterans as they face the end of life
  • Why the military culture of strength may make hospice acceptance more difficult for veterans
  • Why the staff members of Veterans Ranch work on their own vulnerability first
  • The importance of “distress tolerance” in end-of-life work
  • The need for palliative care for unhoused veterans
  • How the Central Oregon area is a great example of community collaboration for veteran care
  • The 3 “spiritual pains” often seen in veterans
  • Upstream interventions to help veterans with spiritual pain

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 413 Death in the E.R. and the Failures of Modern Medicine with Drew Remignanti MD

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Learn about current issues in healthcare that are impacting the quality of care received at the end of life.

My guest Dr. Drew Remignanti is an emergency medicine physician who has lived with chronic illness since being diagnosed with ulcerative colitis at the age of 19. He suffered a major stroke at the age of 38 that sidetracked his career for five years but inspired him to write the book The Healing Connection: A Partnership for Your Health, which explores how dollar-driven motives wield too much influence over our medical decisions, including at the end of life. To learn more about the book follow Dr. Remignanti on Facebook:

Follow on Facebook

Get the book here

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This episode includes:

  • What happens when people show up at the ER without an advance directive
  • Why the default emergency care is “do everything”
  • What is “slow medicine” and how are current forces in the healthcare system working against it
  • Why patients and providers need to work together to make the changes we need
  • When people know and trust their physician they are far more likely to create an advance care plan for their health and follow it
  • Studies show it takes only 40 seconds of compassion in a medical encounter to make a significant difference
  • The “commoditization” of healthcare and the problems it causes
  • The US has an 88% rate of healthcare illiteracy, meaning people do not know how to acquire or apply information about their health

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donor Carole Heaney! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 407 Navigating Your Parents’ Senior Years with Star Bradbury

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Learn some great tips for helping your parents make challenging decisions about their senior years and end of life.

My guest Star Bradbury is an Aging Life Care Specialist and the CEO of Senior Living Strategies. She has helped thousands of families make educated and informed decisions as they navigate the world of senior living and senior healthcare. She is the author of Successfully Navigating Your Parents’ Senior Years: Critical Information to Maximize Their Independence and Make Sure They Get the Care They Need. She shares tips and advice for helping parents make plans for their elder years, including the end of life, and how this book is a resource for all of us regardless of our age. Learn more at her website:

http://www.starbradbury.com

Get the book here

Watch on YouTube

Listen here:

This episode includes:

  • Why it’s important to maximize and prolong your parents’ independence
  • Tips for starting difficult conversations with your parents
  • Why confronting the need for change can get harder as we age
  • The benefits of “just in time” senior planning that takes place before a crisis occurs
  • How to navigate the world of senior living options and the best questions to ask when touring a senior care facility
  • Tips for being involved in your parents’ care when you don’t live nearby
  • Why aging in place may not be the best choice for every senior
  • Why “slow medicine” should be considered as part of our end-of-life planning

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donor Ellen Koski! Your contributions make all the difference.

EOLPodcast

Ep. 403 Death Over Drafts: Meeting People Where They Are with Stefanie Elkins

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Learn about creating opportunities in your community for conversations about death.

My guest Stefanie Elkins is a Family Caregiver Consultant, end-of-life doula, founder of Be Present Care, and the creator of Death Over Drafts, a community event held at breweries across the country to spark meaningful conversations around death and dying. She’ll share her experience bringing end-of-life conversations to community spaces where people naturally gather and how we can make a difference in someone’s end-of-life journey by helping them talk about death and grief. Learn more about Stefanie’s work at her website:

www.bepresentcare.com

Watch on YouTube

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This episode includes:

  • How Stefanie helps patients and families at the end of life
  • What inspired Death Over Drafts
  • Who attends Death Over Drafts and examples of the conversations that have taken place
  • Why conversations about death are important
  • Why we need to meet people where they are and bring death education to various venues and spaces
  • How to bring Death Over Drafts to your own community
  • Why end-of-life workers need to do their own work planning for the end of life
  • How families can support the aging and prepare for the inevitable

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donor Phyllis Wintter and to Don Zacharias for making a Paypal donation! Your contributions make all the difference.

EOLPodcast

Ep. 397 Talking About Death with ChatGPT

kwyattmd

Learn how the AI language model ChatGPT can be used as a resource for information about death and dying and when caution is required.

My special “guest” this week is ChatGPT an AI language model that can understand and respond to human language. Chat has been trained on a wide range of topics, including end-of-life care, hospice, palliative care, grief and bereavement, and advance care planning, among others. I conducted a written “interview” with Chat to test its knowledge and in this episode I report on my findings. In addition, I’ve compiled all of our correspondence into a book titled Conversations on Death with ChatGPT, which you can access now in ebook format. I hope you enjoy hearing about my adventures with Chat!

Get the book

Watch on YouTube

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This episode includes:

  • What an AI language model consists of and how to interact with it
  • The amazing depth and breadth of content and resources that ChatGPT was able to generate in a matter of seconds
  • What I learned about euphemisms for death from Chat
  • What Chat got wrong about for-profit hospice
  • How Chat needed better information about talking to children about death
  • Chat’s creative ideas for promoting advance care planning in predominantly Black communities
  • Chat’s thoughts about the 5-stages model of grief
  • A haiku Chat wrote about grief
  • How Chat helped me deal with guilt over my father’s suicide death

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons Susan Mackey and Colleen Bracken, and to Laura Srygley for buying me a coffee and Fabricio Vasconcelos de Lima for donating on Paypal! Your contributions make all the difference.

EOLPodcast

Ep. 391 Dying in America: A Journalist’s Exploration with Ann Neumann

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Learn about this journalist’s research into “the good death” and what she learned through seven years of study and travel across the U.S.

My guest Ann Neumann is a journalist whose work has appeared in The New York Times, The Guardian, Harper’s magazine, The Baffler, Guernica magazine, and elsewhere. After caring for her father at his end of life she became a hospice volunteer and began to research the meaning of a “good death” in this country, which led to her book The Good Death: An Exploration of Dying in America. She shares some of the things she learned about death as she traveled the country and listened to opinions, beliefs, and stories about what constitutes a good death. Learn more at her website:

www.annneumann.wordpress.com

Get the book here

Watch on YouTube

Listen here:

This episode includes:

  • How Ann’s experience caring for her father at the end of his life inspired her research for the book
  • How Ann and her family felt unprepared for the actual dying process even though they were receiving care from hospice
  • How the “gentle” marketing of hospice and death care services can obscure the reality of the challenges of dying
  • The tragedy of “false hope” being offered to patients rather than factual information
  • Where Ann found inspiration for each of the topics she covered in the book (e.g. medical aid in dying, pro-life movement, religious influence on dying, disability issues, prison hospice)
  • Why “dignity” can mean something different to people who live with disabilities
  • The extensive work needed to overcome racial disparities in end-of-life care and restore trust

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Jason P. and thank you also the anonymous person who bought me 5 coffees! Your contributions make all the difference.

EOLPodcast

Ep. 390 Funeral Consumers Alliance: Resources for Funeral Planning with Martha Lundgren

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Learn how the FCA helps consumers plan ahead for funerals and make informed choices for themselves and their loved ones.

My guest Martha Lundgren is the president of the board of Funeral Consumers Alliance of Arizona. She also serves on the speakers bureau for FCA-AZ and is a representative in the Arizona End of Life Care Partnership. Martha will tell us the role FCA plays in educating people about their rights when planning a funeral and how to avoid costly mistakes, which is information we all need to know for ourselves, loved ones, patients and clients. Learn more at the websites:

Funeral Consumers Alliance of Arizona: www.fcaaz.org

National Funeral Consumers Alliances: www.funerals.org

Watch on YouTube

Listen here:

This episode includes:

  • The role of the Funeral Consumers Alliance
  • Why planning ahead is important for funerals, especially if you have specific wishes for what happens
  • How FCA helps consumers “shop around” for funeral arrangements
  • The funeral industry in general lacks transparency about pricing
  • Why you should plan in advance but not pay in advance for funerals
  • Consumers should beware of deceptive advertising in the funeral industry
  • Why it’s important to name someone to pay for and plan your funeral
  • What to do if your loved one doesn’t want a funeral
  • How to cover the cost of a funeral or disposition
  • What happens if someone dies while traveling out of state or out of the country

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Diana Hiatt! Your contributions make all the difference.

EOLPodcast

Ep. 386 Five Wishes: Advance Care Planning for Everyone with Joanne Eason

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Learn more about the Five Wishes document and why it can be a good choice as an advance directive.

My guest Joanne Eason is the president of Five Wishes, the nation’s only national advance care planning program. She discusses the history of the Five Wishes organization and the benefits of using the Five Wishes form as an advance directive. We review the reasons why everyone over age 18 needs and advance directive and how Five Wishes can meet that need. Learn more at the website:

www.fivewishes.org

Watch on YouTube

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This episode includes:

  • The original inspiration behind Five Wishes
  • What the Five Wishes document consists of
  • Which 46 states recognize Five Wishes as a legal document and the extra steps needed in the other 4 states
  • Why choose Five Wishes over state advance directive forms or how to use both forms together
  • The benefits of planning ahead for the end of life
  • The importance of choosing the best person as a healthcare proxy
  • Why Five Wishes asks individuals to define “what life support treatment means to me”
  • The importance of including questions about more than just wishes for medical treatment in advance care planning
  • What steps to take after completing Five Wishes
  • How the Five Wishes form acknowledges the “gray areas” of end-of-life planning

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons Kyle Tevlin and Janice Cotter! Your contributions make all the difference.

EOLPodcast

Ep. 379 Honoring Choices: A Film to Inspire End-of-Life Planning with Elizabeth Coplan and Halle Williams

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Learn about a short film that was created to encourage people to plan for and have conversations about the end of life.

In this episode I welcome two guests to discuss the short film Honoring Choices that is a powerful tool for persuading people to plan for and talk about the end of life. Elizabeth Coplan is the founder of Grief Dialogues and the creator of the stage play Honoring Choices that ultimately became the film we are featuring. Halle Williams is the marketing director for both Grief Dialogues and Honoring Choices and the co-host of Out of Grief Comes Art Podcast along with Elizabeth. Learn more about their work at the website:

www.griefdialogues.com

Honoring Choices trailer

Watch interview on YouTube

Listen here:

This episode includes:

  • What inspired the creation of the film Honoring Choices
  • The true story behind the film
  • What Elizabeth and Halle hope the film will accomplish
  • The serious racial disparity in completing advance directives and how the film helps address this issue
  • The power of storytelling and how the film uses story to teach
  • The premiere of Honoring Choices at the Reimagine Festival in LA
  • How to use the film for teaching for hospices, hospitals, schools, churches
  • How to sponsor a screening of the film
  • Inspiration for the podcast Out of Grief Comes Art

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Maggie Dial! Your contribution makes all the difference.

EOLPodcast

Ep. 374 Why We Need to Talk About Death with Lisa Pahl LCSW and Lori LoCicero

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Learn how The Death Deck helps people have important and necessary conversations about death and dying.

My guests today are the co-creators of The Death Deck, a card game to help inspire conversations about death, dying and grief. Lisa Pahl LCSW is a Hospice Social Worker and ER Crisis Interventionist. Lori LoCicero is a writer and entrepreneur and runs a website to help others travel their paths through difficulty. Together they will share why they decided to create The Death Deck, how it can be used, and why conversations about death matter. Learn more about The Death Deck at the website:

www.thedeathdeck.com

Watch on YouTube

Listen here:

This episode includes:

  • What The Death Deck offers and how it helps inspire conversations about death
  • Why it’s important to talk about death, dying and grief
  • How Lori feels she and her husband would have benefitted from talking about these issues before he became ill
  • New version (The EOL Deck) coming soon to help people who are facing terminal illness or at the end of life
  • Creative ideas for using The Death Deck in various situations

Links mentioned in this episode:

Buy me a coffee

Donate on Paypal

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to all who have made donations through Paypal or Buy Me a Coffee! Your contributions make all the difference.

EOLPodcast

Ep. 371 Complicated Decisions in the ICU with Travis Rieder

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Learn how a bioethicist found himself in a decision-making dilemma after his own father suffered a healthcare crisis and was on a ventilator in the ICU.

My guest Travis Rieder is a bioethicist and the director of the Master of Bioethics degree program at the Johns Hopkins Berman Institute of Bioethics. He is also an author and TED Talk speaker who recently penned an article titled “A Father’s Wish, A Bioethicist’s Dilemma.” He shares the dilemma he faced as a healthcare proxy for his father during a dire health crisis, which sheds light on the challenges of making the best decisions in the moment when the outcome is uncertain. Learn more about his writing at his website:

www.travisrieder.com

Watch on YouTube

Listen here:

This episode includes:

  • What bioethicists do and how Travis was attracted to this field
  • What is “preventable catastrophe” and how that concept informs his work
  • Bioethical challenges during the pandemic
  • The personal dilemma he faced when his father was in the ICU
  • The importance of clear communication during a health crisis
  • Why knowing your loved one’s wishes may not always lead to easy decision-making
  • How to make the best decisions even when information is limited
  • How this experience changed what Travis teaches his bioethics students

Links mentioned in this episode:

  • Volunteer Hospice of Clallam County Soul Care Speaker Series October 12th at Noon Pacific: Register here
  • DDNBC Workshop with Barbara Karnes and Karen Wyatt October 13th at 6:30 pm Pacific: Register here
  • Travis Rieder’s Article: A Father’s Wish, a Bioethicist’s Dilemma”

Buy me a coffee

Donate on Paypal

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to Binta Sumareh for making a donation through Paypal! Your contributions make all the difference.

EOLPodcast

Ep. 368 Why Death Education is Important with Karen Wyatt

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Learn some ideas for how you might teach others in your community about death and dying and why you should.

In today’s solo episode I’ll share with you my thoughts on why death education is so essential in our society today. No matter what type of work you do in the end-of-life field (estate attorney, hospice staff, death doula, home funeral guide, green burial practitioner, bereavement counselor) you need to help educate your community about death, dying and grief if you want people to utilize your services. Right now we ALL need to become death educators in our own special way and I’ll talk about why that’s true and how you might get involved.

Watch on YouTube to see the slides

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This episode includes:

  • We are living longer and developing complex diseases (like Alzheimer’s) with increasing incidence.
  • Medical tech continues to advance rapidly allowing us to prolong life (even when patient’s don’t want that).
  • Our society is divided over ethical and moral dilemmas around end-of-life issues like medical aid in dying and removal of life support.
  • Being unprepared for death has a high financial cost (too much medical care and wasteful after-death care)
  • There is also and emotional and spiritual cost to ignoring death.
  • Where we need to be teaching about death, dying and grief:
    • The home – showing parents how to talk to their children about death
    • Schools – teaching high school and college students about death through classes, book clubs, discussion groups
    • Churches – clergy members need to know about EOL issues in order to better serve their congregations
    • Workplaces – employers and staff need to know how to deal with death and grief at work
    • Medical facilities – of course all medical personnel need much more education about death, grief, and how to deal with EOL decisions
    • Assisted living and nursing homes – staff also need to know how to handle grief, help residents with ACP, create sacred space for dying residents

Links mentioned in this episode:

Buy me a coffee

Donate on Paypal

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Francesca Arnoldy, and to those who have bought me a coffee and made a donation through Paypal! Your contributions make all the difference.

EOLPodcast

Ep. 366 The Death Conversation Game and Talking About Death with Angela Fama

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Learn about a creative game to help foster conversations about death.

My guest Angela Fama is an artist and photographer who lives in Vancouver Canada and is also a recently trained death doula. She created the Death Conversation Game and facilitates online seasonal Let’s Talk About Death conversations. She will share how she became interested in exploring death as a subject and why she created the game. We will also play a few rounds of the game so you can see how it works! Learn more at her websites:

www.angelafama.com

www.deathconversationgame.com

Get the game here

Watch on YouTube

Listen here:

This episode includes:

  • Angela’s What is Love project
  • How focusing on love led her eventually to learn about death
  • Why Angela needed to talk about death after a serious accident
  • What inspired the Death Conversation Game
  • How playing a game helps facilitate conversations about death
  • Why it’s important for people to talk about death
  • How to create a safe, trauma-informed space to discuss death
  • We play the game to demonstrate how it works
  • Who might benefit from using the game in their work
  • How Angela’s time in Zimbabwe influenced her decision to become a death doula
  • Angela’s request for a collaborator to extend the reach of the game

Do you realize that everyone you know someday will die?“

The Flaming Lips from Do You Realize

Links mentioned in this episode:

  • Song: Do You Realize by The Flaming Lips
  • Get in touch with Angela: info@deathconversationgame.com

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If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Martha Lundgren, and to those who have bought me a coffee and made a donation through Paypal! Your contributions make all the difference.

EOLPodcast

Ep. 365 How to Live a Death-Aware Life with Karen Wyatt MD (ENCORE)

kwyattmd

Learn the benefits of having a personal practice to increase our death-awareness.

In this encore solo episode I’ll be sharing with you research that shows that the human brain has a primal mechanism to protect us from thinking about and acknowledging our own personal death. Even those of us who study death and teach others how to prepare for the end of life can be in denial about our own mortality. However, living with “death awareness” is the best way to grow spiritually and make the most of every moment of life. My book The Tao of Death (with a companion journal) can be used for daily contemplation and help you become more death aware in your own life. Let’s talk about why we need to maintain our death-awareness and how to do it!

www.eoluniversity.com/taoofdeath

Get the book here

Download journal

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Listen here:

This episode includes:

  • A study that shows the defenses against death-awareness that exist in the primitive human brain
  • Why personal death-awareness must be intentionally cultivated
  • How death-awareness can expand and transform our lives
  • Why daily death contemplation is essential to our growth
    • Think about the fleeting nature of life
    • Acknowledge fears of death and dying
    • Recognize barriers to awareness
  • Benefits of increased death-awareness:
    • Enjoy the present moment
    • Find comfort in stillness
    • Experience authentic gratitude for life
    • Experience awe
    • Become less attached to material things
    • Be more inclusive and less exclusive
    • See everything as sacred

Links mentioned in this episode:

Buy me a coffee

Donate on Paypal

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to those who have bought me a coffee (thank you Elisa Weger!) and made a donation through Paypal! Your contributions make all the difference.

EOLPodcast

Ep. 360 Creating Community for Death Doulas with Jo-Anne Haun and Karen Hendrickson

kwyattmd

Learn why community is important for all of us as we work to improve the end of life in our society.

Today I’m welcoming two guests to the podcast: Jo-Anne Haun and Karen Hendrickson who are the co-founders of the Death Doula Network of BC. Jo-Anne is a professional end-of-life doula, hospice volunteer, and therapy clown. Karen is a professional coach, a licensed Willow EOL Educator™, and end-of-life doula. They share their experiences in creating an online community for death doulas, why it’s important that we form collaborative networks right now, and how everyone benefits when we work together. Learn more at their website:

www.ddnbc.com

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Listen here:

This episode includes:

  • Why Jo-Anne and Karen decided to create DDNBC
  • How the pandemic helped inspire this online network
  • How facing death can help us truly find quality in life
  • Why preparing in advance can help us cope with a terminal diagnosis
  • The value of humor to help us shift energy and cope with difficult situations
  • Why the role of the death doula is essential at this time in our history to fill in gaps in end-of-life care
  • Doula communities allow creative potential to arise for each individual and foster collaboration
  • The need for community-wide education about loss and end-of-life issues

Links mentioned in this episode:

Buy me a coffee

Donate on Paypal

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to those who have bought me a coffee and made a donation through Paypal! Your contributions make all the difference.