EOLPodcast

Ep. 363 Support for Hospice Nurses with Shelley Henry RN

Learn how this hospice nurse is supporting other nurses by providing employment that allows them to improve their work-life balance.

My guest Shelley Henry has been a registered nurse for over 30 years, with 20 of those years served in hospice. She is the creator of the popular Instagram channel For Hospice Nurses where she shares quick video tips from her many years of experience to make work a little easier for her colleagues. Shelley is also the founder of the Amity Group, which she started with the primary goal of bringing experienced hospice nurses back to the field while maintaining a fulfilling personal life. She discusses how her innovative company helps hospice nurses create the work life they desire while filling in the gaps for hospice companies. Learn more at her website:

www.amitystaffing.com

Watch on YouTube

Listen here:

This episode includes:

  • Why Shelley was drawn to work in hospice
  • The rewards and challenges of being a hospice nurse
  • Why some hospice nurses leave the field
  • Shelley’s top tips for hospice nurses
  • The issues that hospice nurses are most concerned about now
  • How redundant documentation is causing stress and wasting precious time for hospice nurses
  • Why Shelley created Amity Staffing
  • How this model benefits nurses who still want to work in hospice but need more control over their schedule
  • How hospices are benefitting from having well-trained contract nurses available to fill in the gaps

Links mentioned in this episode:

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If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to those who have bought me a coffee and made a donation through Paypal! Your contributions make all the difference.

EOLPodcast

Ep. 362 The Grief Cruises™: Travel to Heal Grief and Honor Loved Ones with Linda Findlay

Learn about an innovative cruise that focuses on grief support and memorialization of loved ones.

My guest Linda Findlay is an Aftercare Coordinator for funeral homes and a hospice bereavement support group facilitator. She is also the founder of The Grief Cruises™ and has escorted four groups on special cruises for the purpose of healing grief and honoring loved ones. She discusses her inspiration for this work and what to expect on a “grief cruise.” Learn more about her work at her websites:

www.thegriefcruises.com

www.mourningdiscoveries.com

Watch on YouTube

Listen here:

This episode includes:

  • Linda’s own grief journey that inspired her current work
  • What is a grief cruise and who is it for
  • The benefits of getting away from ordinary life when dealing with grief
  • Activities included on the cruises: workshops, memory wall, candlelit memorial walk, night of remembrance
  • These experiences help people go home with a coping “toolbox”
  • How families can benefit from taking a grief cruise together
  • How burial at sea for cremated remains is possible during a cruise
  • Feedback from attendees on past cruises
  • How participants learn that grief and joy can coexist
  • How COVID impacted Linda’s work as a bereavement coordinator

Links mentioned in this episode:

Buy me a coffee

Donate on Paypal

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Sharon, and to those who have bought me a coffee and made a donation through Paypal! Your contributions make all the difference.

EOLPodcast

Ep. 361 Exploring End-of-Life Controversies Through Fiction Writing with John Byrne Barry

Learn about a novel that explores the moral dilemma of a son whose father asks him to end his suffering by hastening his death.

My guest John Byrne Barry is a writer, designer, actor, pickleball player, and crossing guard. He is the author of the novel When I Killed My Father: An Assisted-Suicide Family Thriller that explores what might happen if a son followed through on his father’s request to hasten the end of his life. He discusses how fictional stories can help us address controversial issues and find new perspectives on them and why he writes fiction “with a conscience.” Learn more about his writing at his website:

www.johnbyrnebarry.com

Listen here:

This episode includes:

  • Why John chose to wrote a novel that addresses a family member helping a loved one end his life
  • How John did research for the book in order to understand hospice, end-of-life and right-to-die issues
  • How fiction can help us look at controversial and complicated issues and find more compassion for one another
  • How John portrayed communication issues, old family conflicts, and shadow wounds as obstacles to decision-making in the book
  • What John learned from writing this book
  • How end-of-life issues are becoming more visible in popular culture
  • What readers might take away from the book and apply to their own lives

Links mentioned in this episode:

Buy me a coffee

Donate on Paypal

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Karen Hendrickson, and to those who have bought me a coffee and made a donation through Paypal! Your contributions make all the difference.

EOLPodcast

Ep. 360 Creating Community for Death Doulas with Jo-Anne Haun and Karen Hendrickson

Learn why community is important for all of us as we work to improve the end of life in our society.

Today I’m welcoming two guests to the podcast: Jo-Anne Haun and Karen Hendrickson who are the co-founders of the Death Doula Network of BC. Jo-Anne is a professional end-of-life doula, hospice volunteer, and therapy clown. Karen is a professional coach, a licensed Willow EOL Educator™, and end-of-life doula. They share their experiences in creating an online community for death doulas, why it’s important that we form collaborative networks right now, and how everyone benefits when we work together. Learn more at their website:

www.ddnbc.com

Watch on YouTube

Listen here:

This episode includes:

  • Why Jo-Anne and Karen decided to create DDNBC
  • How the pandemic helped inspire this online network
  • How facing death can help us truly find quality in life
  • Why preparing in advance can help us cope with a terminal diagnosis
  • The value of humor to help us shift energy and cope with difficult situations
  • Why the role of the death doula is essential at this time in our history to fill in gaps in end-of-life care
  • Doula communities allow creative potential to arise for each individual and foster collaboration
  • The need for community-wide education about loss and end-of-life issues

Links mentioned in this episode:

Buy me a coffee

Donate on Paypal

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to those who have bought me a coffee and made a donation through Paypal! Your contributions make all the difference.

EOLPodcast

Ep. 359 Unburying My Father: A Grief Project with Zander Masser

Learn how discovering his father’s old slides helped Zander heal his longstanding grief and understand his father’s story.

My guest Zander Masser is an occupational therapist, husband, father, musician and author of the newly released narrative photography book Unburying My Father. The book chronicles his 10-year project of exploring his own grief while sorting through ten thousand slides he found in his father’s basement. Today he shares how this project helped him find new perspective on his grief and how he is helping others use storytelling and creativity to heal their grief. Learn more at his website:

www.randymasserphoto.com

Listen here:

This episode includes:

  • What Zander learned about his father through this project
  • How Zander gathered stories for the book
  • How learning his father’s hidden stories helped Zander better appreciate his photography
  • The trauma experienced by his father because of his diagnosis
  • How this book has given a voice to Zander’s father and made meaning of his entire life
  • How new layers of grief have emerged since undertaking this project
  • The shift from focusing on our loved one’s death to focusing on their life
  • How Zander was unprepared at age 14 to go through grief therapy because his family had almost never talked about his father’s illness and death
  • How to use creativity and stories to explore grief
  • How objects from the past can help us tell stories about our loved ones
  • How Zander used social media to begin putting this story out to the world
  • What medical providers can improve upon to help children deal with grief over the death of a loved one

Links mentioned in this episode:

Buy me a coffee

Donate on Paypal

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially to my newest donor Elizabeth Grace Wolf! Also thank you to Jen Blalock for buying me a coffee. Your contributions make all the difference.

EOLPodcast

Ep. 358 STIFF: The Curious Lives of Human Cadavers with Mary Roach

Find out what happens when a body is donated to science and how cadavers have benefitted the living through various types of research.

My guest Mary Roach is the author of multiple New York Times bestsellers including STIFF: The Curious Lives of Human Cadavers, which has sold over 1 million copies and been translated into 17 different languages. She’ll tell us why she wrote this book, how she did the research for it and what she learned from this project. Her stories range from macabre to heartbreaking in this look at the “other side” of death that we rarely explore: how the deceased benefit the living. Learn more about Mary’s work at her website:

www.maryroach.net

View on YouTube

Listen here:

This episode includes:

  • What drew Mary to write about cadavers
  • The surprising fact that this book sold over 1 million copies when it was first published in 2003 in our death-phobic society
  • What it was like to do research for this book
  • Which experiences were most challenging for Mary
  • How cadaver researchers cope with the trauma of witnessing human carnage
  • Why cadavers are our superheroes and the contributions they have made to the betterment of humankind
  • A touching ceremony Mary witnessed at the UCSF gross anatomy lab
  • What is a “beating heart” cadaver
  • How cadaver research has changed over the years

Links mentioned in this episode:

  • Order All the Flowers of the Mountain by Christina Holbrook here (and thank you!)

Buy me a coffee

Donate on Paypal

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to those who have bought me a coffee and made a donation through Paypal! Your contributions make all the difference.

EOLPodcast

Ep. 357 The Hidden Grief of the Replacement Child with Jeremy Damec

My guest Jeremy Damec has a master’s in Counseling Psychology and has worked with youth and families in San Francisco and in Mexico providing therapeutic services and developing community programs to support family and youth development. After his mother’s death from cancer in 2009 and following his own personal journey of grief, he began in 2015 working with families and their loved ones who are approaching the end of life. He has done volunteer chaplaincy training, end-of-life doula training, worked at a funeral home, and as a celebrant has officiated at both funerals and weddings. Today he shares his personal experience as a “replacement child” born after the death of his older brother. Learn more about Jeremy’s work at his website:

www.jeremydeathandgrief.com

Watch on YouTube

Listen here:

This episode includes:

  • What is a “replacement child”
  • Jeremy’s story of being introduced to grief before he was born
  • How a replacement child experiences grief
  • How a mother’s grief can influence her unborn child
  • How to process unspoken and hidden grief that has been present since before birth
  • How to find information about a loved one who died in the past
  • How being a replacement child has shaped and informed the work Jeremy does now

Links mentioned in this episode:

Buy me a coffee

Donate on Paypal

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially to my newest donors Erin Bishop, Carole Dempsey, and Sue Skeates! Also thank you to C. Schlumberg and Frances Pope Hewitt for making donations through Paypal. Your contributions make all the difference.

EOLPodcast

Ep. 356 What Keeps Me Up at Night (about Hospice and Palliative Care) with Ira Byock MD

Dr. Ira Byock takes an honest and challenging look at worrisome issues within the hospice and palliative care field.

My guest today is Dr. Ira Byock who is a leading palliative care physician, author, and public advocate for improving care through the end of life. He is the Founder and Chief Medical Officer for the Institute for Human Caring of Providence St. Joseph Health. He is a frequent guest on this podcast and the author of Dying Well, The Four Things that Matter Most, and The Best Care Possible. Today he shares some of the concerns he has about current issues in hospice and palliative care. Learn more about his books and his work at the website:

www.irabyock.org

Watch on YouTube

Read the transcript

Listen here:

This episode includes:

  • The history of hospice programs and how and why they began
  • For-profit hospices now outnumber non-profit hospices by nearly 3 to 1
  • Problems with for-profit hospices include poor staffing, patients are less likely to see a doctor or social worker, 10% fewer nursing visits
  • For-profits extract up to 20% margin from patient care and make it hard for non-profits to stay in business
  • Concerns about sending patients home for hospice care without providing training to family members
  • Staff are burning out because of moral distress and because of excessive case loads which are being imposed for the sake of profit
  • For-profit hospices are being traded on Wall Street and private equity firms are also buying up hospices
  • How a focus on marketing and “branding” is causing palliative care to distance itself from hospice and from death and dying
  • Why we have to be brave enough to talk about and deal with the things that people in our society are afraid of
  • Why the palliative care “brand” should be providing the best care possible through the end of life (instead of “at the end of life”)
  • What to do:
    • Don’t trust blindly – ask questions and be discerning
    • Don’t lose your outrage – speak up when you see poor care being given
    • Be strong advocates for one another
    • Support community-based non-profit hospices

Links mentioned in this episode:

  • Pre-order All the Flowers of the Mountain by Christina Holbrook here (and thank you!)

Buy me a coffee

Donate on Paypal

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially to my newest donor Mary E. Moriarty! Your contributions make all the difference.

EOLPodcast

Ep. 355 Irish Keening and Wakes: Traditional Mourning Rituals with Mary McLaughlin

Learn about the history and importance of Irish mourning rituals.

My guest Mary McLaughlin is a singer/songwriter and teacher who studies and teaches workshops about Irish singing and technique and Gaelic song and culture. She has recorded five CD’s to international acclaim, written two song books and completed a PhD in Irish Otherworld Song. Today she teaches us about Irish wakes and the ancient funeral ritual of keening. Learn more at her website:

www.marymclaughlin.com

Watch on YouTube

Listen here:

This episode includes:

  • The ancient tombs found in Ireland and what we can learn from them
  • Many contemporary funeral traditions have been influenced by both Christian and Pagan customs
  • Wakes thrived during the Middle Ages in the early Celtic Church but were later forbidden
  • “Professional waking” used to take place in small Irish villages
  • The purpose of the wake is to help people cry and mourn, sometimes through laughter and games
  • Keeners had to be good singers and specially trained to provide this ritual for wakes
  • The benefits of having keeners be outsiders to help the family express emotion, move into their grief, and create a sense of awe
  • The keen would continue from the wake through to the burial ground
  • The three stages of ritual: separation, liminality, and re-incorporation
  • How the keen addresses the 5 stages described by Elisabeth Kubler-Ross

Links mentioned in this episode:

  • Pre-order All the Flowers of the Mountain by Christina Holbrook here (and thank you!)
  • Recommended Book: My Father’s Wake by Kevin Toolis
  • Sign up for Mary’s newsletter here

Buy me a coffee

Donate on Paypal

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially to my newest donor JoAna Dwyer! Also thank you to Mark Langlois for buying me a coffee (3, in fact)! Your contributions make all the difference.

EOLPodcast

Ep. 354 The Hospice Journey: A Step-by-Step Guide with Barbara Karnes RN

Learn about the basics of hospice care, when to consider it, how to talk about it with others, and what to expect during the dying process.

My guest Barbara Karnes RN is an internationally recognized author, speaker, thought leader and expert on end of life care. She is the author of the “little blue hospice book” Gone From My Sight: The Dying Experience, which has sold over 30 million copies worldwide in 12 different languages. Today Barbara shares her insights and stories about the hospice journey for patients and their families and walks us through each step of the process. Learn more about her work at her website:

www.bkbooks.com

Listen here:

This episode includes:

  • When is it time to consider hospice
  • Why hospice care is a special type of medical care
  • How to find a good hospice
  • What it takes to care for a loved one at home
  • What hospice does and doesn’t provide for families
  • How to talk to a loved one about hospice
  • What to expect as death draws near
  • How hospice provides comfort and pain management

Links mentioned in this episode:

Buy me a coffee

Donate on Paypal

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially to Jan Wessel for increasing your pledge! Also thank you to Thilda Zorn for your Paypal donation and Bob Hoffman for buying me a coffee! Your contributions make all the difference.

EOLPodcast

Ep. 353 The Rebellious Widow: Love and Life After Loss with Jill Johnson-Young

Learn practical tips for navigating the caregiving journey and grief after the death of a spouse.

My guest Jill Johnson-Young is a Licensed Clinical Social Worker who has worked in hospice and as a therapist specializing in grief, loss, dementia, and trauma. She shares her personal journey as a caregiver for two spouses and as a “double widow” along with helpful tips for grief and how to break the “widow rules.” She is the author of numerous books about grief for adults and children including her most recent The Rebellious Widow: A Practical Guide to Love and Life After Loss. Learn more at her websites:

www.therebelliouswidow.com

www.jilljohnsonyoung.com

Listen here:

This episode includes:

  • The “widow rules” and why they need to be challenged
  • How society judges grievers rather than allowing them to take their own unique path
  • How anticipatory grief helped with her process of grief after death
  • The importance of fostering intimacy for couples who are facing death (making “body memories”)
  • How medical and hospice providers often overlook the needs of the caregiver
  • What to say to couples dealing with a terminal illness
  • Why couples should discuss the caregiver’s future after death
  • Setting boundaries and asking for help as a caregiver
  • How she found “helpers” to connect with her children and watch over them during the dying process and funeral
  • The jarring moment when a diagnosis is received for both patient and caregiver
  • Challenges facing same-sex couples as they access care
  • Humor as self-preservation for medical staff and caregivers

Links mentioned in this episode:

Buy me a coffee

Donate on Paypal

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons Janis Wiebking and Robin Blanche! Also thank you to Francis Pope Hewitt for your Paypal donation! Your contributions make all the difference.

EOLPodcast

Ep. 352 Cross-Cultural End-of-Life Practices with Gary Wederspahn

Learn about fascinating end-of-life rituals from cultures around the world.

My guest Gary Wederspahn is a board member of the Final Exit Network and the author of a book and many articles on cross-cultural communications and relations. He has served as a Peace Corps Director in Guatemala, Costa Rica and Ecuador and has traveled in over 20 countries. He shares his passion for studying end-of-life rituals and traditions wherever he has traveled, including slides from many different countries. Learn more at these websites:

www.finalexitnetwork.org

www.thegooddeathsocietyblog.net

Watch on YouTube

Listen here:

This episode includes:

  • What is appreciative inquiry and how it facilitates conversations
  • Why studying end-of-life traditions introduces you to the values and deep culture of societies
  • How end-of-life care has been outsourced here in the U.S. to our detriment
  • Mayan traditions around death in Guatemala during Dia de los Muertos
  • Three-part community cremation rituals in Bali
  • The “thin veil” between the living and the dead that is perceived in many cultures
  • How “continuing bonds” with ancestors help strengthen the family
  • The use of cremated ashes to make burial beads in Korea
  • How Vietnamese funeral processions resemble funeral parades in New Orleans
  • Ceremonial kites flown in Guatemala city to honor their ancestors during Dia de los Muertos
  • Zoroastrian custom of leaving corpses in “Towers of Silence” for vultures to consume
  • Ifugao people in high country of Philippines keep bodies of their ancestors in rafters of the house and bring them out during special events
  • “Bone collecting” ritual after cremation in Japan
  • Igorot hanging coffins in the Philippines
  • Tibetan sky burial also depends on vultures; Sioux burial platforms similarly rely on ravens to consume the body
  • How Gary’s exposure to the rituals of other countries has informed his own decisions for the end of life

Links mentioned in this episode:

Buy me a coffee

Donate on Paypal

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Erinn Gregory! Your contributions make all the difference.

EOLPodcast

Ep. 351 Grief and the Best and Worst of Times with Dianne Gray

Learn how the death of her son inspired Dianne Gray’s current work as a death doula and patient advocate.

My guest Dianne Gray is a death doula, grief specialist and the Chief Innovation and Patient Advocacy Officer at Acclivity Health. After her son’s death from a rare neurodegenerative disorder she has dedicated her life to improving care for all adults and children facing serious illness. She shares her long journey with grief and how it has shaped and informed her work and her life.

Listen here:

This episode includes:

  • How Dianne survived the end-of-life journey and death of her son
  • The best and worst experiences of the dying process
  • How Dianne’s encounters with death and grief led her to the mission of helping others facing loss
  • Why death and grief are part of the wellness movement and must be included in life in order to be whole
  • What Dianne learned about life from the work of Elisabeth Kubler-Ross
  • Simple tools to ease grief and improve resilience
  • Therapy works for some people and not for others – keep searching for a good fit with a therapist
  • Learning that grief is a long journey to become someone new
  • Why viewing life as a fascinating adventure is helpful (and we never know what might happen next)
  • How social media can help or harm our grieving process
  • How Dianne works virtually as a patient advocate to get patients admitted to hospice and palliative care

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons Phyllis Nickel and Kathleen Ribbens! Your contributions make all the difference.

EOLPodcast

Ep. 350 Meeting the End-of-Life Needs of Your Community with Elizabeth Johnson and Erin Collins RN

Learn how this non-profit organization is working to solve gaps in end-of-life care in their community.

My guests Elizabeth Johnson and Erin Collins are the founders and creators of the non-profit Peaceful Presence Project with a mission of helping communities live well, age well and die well by reimagining the way we talk about, plan for and experience the last stage of life. They have created Endnotes, a roadmap for end-of-life planning an will discuss the genesis of their organization and how they take a community-based approach in their work by meeting the gaps that exist in end-of-life care. Learn more at their website:

www.the peacefulpresenceproject.com

Listen here:

This episode includes:

  • How Elizabeth and Erin were inspired to start this organization
  • The Compassionate Communities model of care that informs their work
  • The importance of integrating palliative care into daily life
  • How to reclaim deathcare as a social event with a medical component
  • Surveying the community for strengths and weaknesses around end-of-life issues to determine areas of need
  • Thoughts on improving the medical model to move from a curative focus to a healing focus by increasing education around palliative and end-of-life care
  • Reasons why our advance care planning has not been “successful” so far
  • High quality conversations about EOL choices are essential and they should start outside of healthcare first
  • Why advance care planning is important for those experiencing homelessness
  • The needs for increased access to palliative care in rural communities
  • Exploring who is too poor to die well

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference.

EOLPodcast

Ep. 349 Why My Family Chose Hospice with Kathleen Vallee Stein

Learn about the hospice experience from the perspective of a family member.

My guest Kathleen Vallee Stein worked for the California Department of Aging and has written numerous articles on caring for aging patents for more than twenty years. Her work has been published in the Christian Science Monitor, Los Angeles Times, Los Angeles Daily News, Pasadena Star-News, Orange County Register, and the Jewish Journal. Recently she has written a book about her family’s experiences as her father faced the end of life called Loving Choices, Peaceful Passing: Why My Family Chose Hospice, and today she’ll share insights from that hospice journey with her father. Learn more at her website:

www.valleeview.com

Listen here:

This episode includes:

  • How her family made the decision to choose hospice for her father
  • The challenges of having conversations about hospice with a loved one at the end of life
  • How the family had to bring up hospice with the doctor initially but he was helpful after that point
  • The relief experienced by the entire family and the patient once they made the decision to stop curative treatment and to enroll in hospice
  • Negative misperceptions about hospice are an obstacle to early admission
  • How her father’s temperament changed for the better after going on hospice
  • Why Kathleen hired in-home professional caregivers even though her parents were initially opposed to it
  • How they managed their parents’ financial issues as a family
  • Dealing with old family conflicts that arise at the end of life
  • How the hospice chaplain made a big difference for her father
  • The many positive surprises that arose during her father’s end of life
  • How they planned the funeral and made decisions about disposition
  • How she and her mother grew closer through the challenges of caring for her father at the end of life
  • Advice to those considering hospice for a loved one
  • Hope and “precious time” with her father in his last days

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference.

EOLPodcast

Ep. 348 My Living Obituary: Legacy Therapy at the End of Life with Maggie Gannon and Heidi Connolly

Learn about a new platform that helps people create their own obituary or legacy project to benefit their loved ones after death.

My guests are Maggie Gannon, an Adult Gerontology Clinical Nurse Specialist who started My Living Obituary, and Heidi Connolly, an author, musician and intuitive coach who helps people write their obituaries. Maggie created My Living Obituary to help palliative care and hospice teams increase quality of life and improve patient experience. Heidi helps people using the platform craft their own stories to leave behind as a legacy for their loved ones. Learn more about their work at these websites:

Maggie: www.mylivingobituary.com

Heidi: www.theobitwriter.net and www.heidiconnolly.com

Listen here:

This episode includes:

  • The evidence behind legacy therapy to enhance dignity at the end of life based on research by Dr. Harvey Chochinov
  • How telling our life story helps us find meaning in our existence
  • Legacy therapy helps improve quality of life and decrease depression for patients
  • Studies have shown that family members benefit from legacy therapy as well
  • Listening to patients’ stories has been shown to increase their sense of worth and value
  • How the legacy therapy platform can be incorporated into the intake process for patients and used to measure quality of life and bill for advance care planning
  • Tips for writing an obituary:
    • Just get started
    • You don’t have to be a good writer
    • Make lists of characteristics, preferences, stories
    • Find a good “hook” for the story
    • Include poems, music, videos
  • The benefits of having a guide and a platform to help people craft an obituary
  • Creating your own living obituary before you die helps unburden loved ones at the time of your death
  • How this platform allows unlimited space for obituaries, unlike newspaper obituaries
  • How clinical staff can use the platform to enroll new patients and assist them with the life review questions

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference.

EOLPodcast

Ep. 347 The Global Palliative Care Movement with Katherine Pettus

Learn about the status of palliative care in developing nations around the world and how IAHPC is working to increase global access.

My guest Katherine Pettus is the Senior Advocacy Director for The International Association for Hospice and Palliative Care. In this role she meets with delegates at the United Nations to increase the understanding of palliative care and to advocate for improved availability of opioids for patients needing pain relief. She is the author of Global Palliative Care: Reports from the Peripheries, which describes her visits to communities around the world to witness firsthand their utilization of palliative care. Learn more about the work of IAHPC at the website:

www.hospicecare.com

Listen here:

This episode includes:

  • Why 80% of the world’s population has no access to morphine
  • How Hospice Africa Uganda is utilizing powdered morphine for pain relief and also allows nurses to prescribe it in the field
  • Why palliative care teams are good at “sideways thinking” to solve problems that arrive in the moment
  • How caregiving is a crisis everywhere in the world right now (except Costa Rica that provides support for family caregivers)
  • Why the extended family is becoming a myth in developing nations
  • What is the “health poverty trap” and how lack of access to palliative care contributes to it
  • How the Western model of medicalized death is spreading to developing nations
  • Expanding palliative care helps medical systems and medical providers as well
  • How a “palliative care peace corps” could transform society
  • How COVID has affected the global palliative care movement

Palliative Care transforms everyone who participates in it.” 

Katherine Pettus in Global Palliative Care: Reports from the Peripheries

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference.

EOLPodcast

Ep. 346 Settling Estate Issues After the Death of a Loved One with Matthew Van Drimmelen

Learn how common it is for people to have complicated financial issues to deal with after the death of a loved one and how this company can help.

My guest Matthew Van Drimmelen is the owner and founder of Full-Circle Aftercare, a company he created to help people deal with the stress and worry of settling estate issues after the death of a loved one. He shares some of the major issues families need help with after death and how they work with funeral homes and hospices to offer their services. Learn more at the website:

www.full-circlecare.com

Listen here:

This episode includes:

  • How this company works with families to help them tie up loose ends
  • The “hidden surprises” families sometimes overlook when trying to settle an estate
  • How Matt’s staff does investigative work to help families sort out the financial, insurance, property, tax, investment, and retirement accounts of their loved ones
  • Why these services are necessary even when the family has an estate attorney
  • How the company creates step-by-step plans to help survivors get back on their feet after a death
  • Why it matters how and when you notify financial institutions about a loved one’s death
  • Why fraud protection may be necessary after a death occurs
  • The difference between power of attorney and executorship and why it matters
  • The challenges of settling estate issues faced by people who are grieving
  • Why helping people with these after-death issues is gratifying and helps prevent grief overload in this work
  • What we should be doing now to make things easier for our loved ones after we die

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my patrons Sherrill Shimek for updating your pledge! Your contributions make all the difference.

EOLPodcast

Ep. 345 Grief Coach: How Text-Based Support Can Help with Grief with Emma Payne

Learn how personalized text messages can help with the grief process for the bereaved and their support persons.

My guest Emma Payne is a seasoned entrepreneur and MIT graduate who is the founder and CEO of Grief Coach, a company that provides meaningful support to those who are experiencing loss and bereavement. She shares how Grief Coach offers personalized text messages to people who are grieving and to their support persons and why it is so effective. Learn more at the website:

www.grief.coach

Listen here:

This episode includes:

  • What inspired Emma to create Grief Coach
  • Our society lacks education about grief, particularly in challenging situations
  • How Grief Coach works
  • What types of loss and grief are supported through Grief Coach
  • What changes occurred for Grief Coach as a result of the pandemic
  • Sources for the tips and suggestions that are provided by text message
  • Research behind text-based grief support and why it is effective
  • How Grief Coach includes supporters of the bereaved in their messages
  • How Grief Coach works with hospices to offer benefits to their bereavement programs
  • How Grief Coach also helps clinicians manage end-of-life situations and deal with their own grief on the job
  • Grief Coach can be given as a gift to a bereaved person

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons Morgan Rakay and Patti Stueland! Your contributions make all the difference.

EOLPodcast

Ep. 344 Tools for Caregivers to Manage Stress and Increase Joy with Roger Moore

Learn some quick and easy stress management tools to improve health and joy during challenging times.

My guest Roger Moore is a certified hypnotherapist who helps people at the end of life with anxiety, depression, pain and other symptoms. His latest book Becoming the Greatest Expression of You contains tips and practices for overcoming the shame and fear of the past to live life more joyfully now. He discusses how these stress-reducing practices might help caregivers stay healthier as they offer care and support to their loved ones. These suggestions are also perfect for all of us as we navigate the stresses of life. Learn more at Roger’s websites:

www.palmdeserthypnosis.com

Listen here:

This episode includes:

  • How we can rewire the brain even until the moment we die
  • How to experience joy even during times of pain and difficulty
  • When we are able to recognize the presence of stress in our bodies we can more easily shift out of it into a state of joy
  • How laughter can change an entire day
  • Using a practice of “mental rehearsal” to envision things going well instead of badly
  • How caregivers can learn to ask for help from others
  • Simple tips for using meditation to help with stress
  • The importance of practicing gratitude every day
  • How to use self-forgiveness to move past blame and shame when things go wrong

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference.