Learn about video advance directives and how to get involved in this game-changing innovation for the future of advance care planning.
In this episode I host three guests – Patty Burgess, Dr. Fred Mirarchi, and Sheila Schultz – who have partnered together to create MIDEO University, the only organization to train and certify Advance Care Planning Educators (ACPE’s) in every community. They share how MIDEO’s video advance directives are revolutionizing end-of-life and emergency care in hospitals and how they are training doulas, advance care planners and other healthcare professionals to become paid educators using the MIDEO approach. Learn more at their website:
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand get access to the EOLU mug: “Mind if we talk about death?” (only Patrons can purchase it). PLUS get our new bonuses: the monthly EOL News Update, movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!
Learn how you can get involved (for free) as a host for World Training Day and spread the word about how to care for people at the end of life.
My guest today is Suzanne O’Brien RN, hospice and oncology nurse and the founder of Doulagivers.com. She discusses how end-of-life doulas will change death and dying now and in the future and how she started World Training Day in 2019 to meet the needs of communities around the world for end-of-life training. Learn how you can get involved this year and host an event on 4/20/2020. Get more information at the World Training Day website:
Join the team atPatreon.com/eoluand get access to the EOLU mug: “Mind if we talk about death?” (only Patrons can purchase it). PLUS get our new bonuses: the monthly EOL News Update, movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest Patrons: Joyce Miller, Megan Carmichael, and Lynn; your contributions make all the difference!
Learn how planning ahead and being ready for the unexpected can be a special gift for your loved ones this year.
During the holidays we all want to find the perfect gift for our family members that will show them our love and bring joy to their lives. But face it … in this age of consumerism most people already have more possessions than they need and we have sadly littered our planet with excessive material goods that no one wants or can use. Here’s an idea for a gift you can give now that will bring peace of mind and relief to your loved ones some day in the future: plan ahead for the end of your life, gather your most important documents, and have a conversation with the people closest to you about your wishes.
Creating an end-of-life file that contains all of your most important documents along with your wishes for healthcare and after-death care is a task that will benefit you as well as your loved ones in the future. You will be saving them from a great deal of stress and frustration if they won’t have to search for your papers or guess what you might want for yourself when you reach the end of life. Why not use the holiday season as a motivator to complete your file and offer as a gift of love to your family!
This episode includes:
Ideas for storing your documents
Why it’s important to gather important information in one place so your loved ones can find it
Why you need to complete your advance directive (or living will) and choose a healthcare proxy now rather than later
The benefits of planning your funeral and burial in advance
How to view end-of-life planning as a gift of love for those who care about you
In this episode I share my thoughts on how to approach the very difficult task of making an end-of-life decision about the treatment a loved one should receive. Many people are called upon to be decision-makers in these challenging situations and this episode serves as a guide for choosing the best option for someone we love.Download the handout below:
This episode is sponsored by Suzanne O’Brien and her training program for caring for others at the end of life at Doulagivers.com and by your generous donations on my page at Patreon.com/eolu! Join the team and receive special bonuses as a thank-you!
Thank you to all of my patrons and sponsors! Your support means everything to me!
Every day families are called upon to make nearly impossible decisions about the type of care a loved one should receive as they near the end of life. Here are some suggestions for how to navigate this challenging situation when there is no advance directive available for guidance:
Gather medical information from all healthcare providers involved in care
Ask direct questions:
What is the diagnosis and what complications have occurred?
What is the effectiveness of the recommended treatment?
What are the chances for recovery or improvement?
Are there side effects from the treatment or will it cause additional suffering?
What will happen if treatment is stopped?
What would you do if this were your loved one?
Get expert advice and guidance from a palliative care team if available in your hospital
Remember past conversations with your loved one that might give you clues as to his or her preferences for the end of life
Consider the statistics that most Americans prefer to die at home and most do not want aggressive treatment to prolong life in the face of an incurable condition
Ask your loved one for guidance by expressing your concern and your desire to make the best decision. Even though your loved one cannot verbalize, they can hear you – listen for any intuitive or “felt” guidance that might come to you about the best choice to make.
Be gentle with yourself and recognize that you have done your best in a challenging situation
Seek support from others outside your family
Tune in next week for another episode! Share this content with others who might it helpful and consider leaving a review on iTunes.
This 4-module course is like having your own personal consultation with an end-of-life physician (me!) who guides you through completing your paperwork one step at a time!
Check it out!
This podcast is sponsored through the EOLU donation page at Patreon.com/eolu. By contributing just $1 or $2 per month you can help support the podcast and the End-of-Life University Interview Series. If you become a supporter I will happily promote your book, website, cause or organization on a future episode of the podcast! THANK YOU to my latest patron Sylvie and to all current patrons!!
IN THE NEWS:
Facebook announces it will offer employees up to 20 days of paid bereavement leave and 6 weeks of paid leave to care for an ill loved one.
A study done by U of Colorado Anschutz showed that oncologists are reluctant to have conversations with patients about their prognosis and patients seem equally unwilling to discuss the difficult facts about their diagnosis. This demonstrates the need for better preparation for the end of life BEFORE the onset of a life-limiting illness.
Change Happens: How to be Prepared for the Ultimate Transition
What steps should you take now to be fully prepared for later life? I like to break them down into 3 categories: Paperwork, People, and Purpose.
Here are some suggestions for your own preparations:
Make sure you have completed an estate plan and/or will to protect your financial assets
Appoint someone to be your financial power of attorney AND a separate person as your medical power of attorney
Complete your advance directive (or living will)
Plan for your funeral and burial
Gather important documents, account numbers, passwords, etc. into on file where they will be accessible in the future (Check out the BE Ready Checklist for a list of all these documents you should gather)
Tie up “loose ends” in your life by practicing forgiveness
Make amends with the people closest to you
Say “I love you” whenever you have the opportunity
Talk with your loved ones about your healthcare wishes
Talk with your doctors (and also spiritual advisor or attorney if relevant) about your end-of-life wishes
Be prepared to care for an ill or dying loved one at home if that should become necessary
Think about your own sense of meaning and purpose in life–are you living life fully in each moment?
Practice being present in the moment by taking up mindfulness or using deep breathing
Recognize that your purpose is not really something you hope to accomplish in the future; it lies in how you live your life each moment
Face your fear of death so that you can fully prepare and then relax and enjoy all that your life offers to you
Click hereto download the End-of-Life Preparedness Assessment to see if you are ready!
Tune in every Monday for a new episode. Until the next time, remember:
What do you do when a family (your own or a patient’s) is crumbling due to unhealed resentments and irreconcilable differences? Find out now.
In today’s episode I’ll share my best tips for helping families move through conflict toward resolution during stressful times like the death of a loved one. I’ve had lots of experience with this work during my years as a hospice doctor so be prepared for a longer-than-usual episode!
My new course Step-by-Step Roadmap for End-of-Life Planning is almost ready for release (just a few days away as I record this!) The course is simple yet comprehensive and will help you examine your mindset, values, beliefs, and fears about death before you make decisions about your end-of-life healthcare. Go to eoluniversity.com/roadmap to learn more and sign up to be notified as soon as the course is released.
This podcast is sponsored through the EOLU donation page at Patreon.com/eolu. By contributing just $1 or $2 per month you can help support the podcast and the End-of-Life University Interview Series. If you become a supporter I will happily promote your book, website, cause or organization on a future episode of the podcast! THANK YOU to all current patrons!!
Managing Family Conflict at the End of Life:
Families facing the death of a loved one are particularly prone to be divided by the resurgence of old conflicts and resentments. Over my years as a hospice doctor I have seen many families split apart by their differences at a time when they most need to be united.
Most of these families had longstanding grievances that had been buried and ignored over the years, only to rise to the surface under the stress of a loved one’s death. Sibling rivalries, parental favoritism, divorce, and competition for inheritances are the most common reasons for these resentments. In addition many families are also divided over religious and political differences, which is an especially prevalent problem right now.
One of the important functions of hospice staff members and other end-of-life workers is to assist splintered families with healing and resolution of their conflicts, whenever possible. But sometimes we are called to assist our own families when challenges arise. Here are some tips for being a peacemaker for a fractured family:
Remain neutral on the issues of conflict. As much as possible leave your own biases, preferences and beliefs at the door if you hope to help resolve a disagreement. This will be much easier if you are not emotionally entangled in the conflict. But even if you are, you need to learn to become a “Witness” to the situation (a higher state of consciousness that allows you remain detached.)
Listen to all sides of the argument. Spend time with each person involved in the conflict until you can grasp their perspective. If you are part of the disagreement then at least try to understand the point of view of the others involved in the situation. As soon as you begin to understand how and why the others feel the way they do then you have taken a huge step toward reconciliation.
Avoid trigger topics. Political and religious differences may complicate family conflicts at the end of life but are usually not reconcilable. So it is best to “agree to disagree” about these points of view and set them aside so that the focus can be on healing other issues.
Be present. By staying calm and unemotional you can prevent the conflict from escalating into an all-out war. Practice mindfulness to help strengthen your ability to be present so that your own emotions don’t flare up when you are trying to help others.
Find common ground. As you listen carefully to the stories of each opponent in the disagreement you may recognize certain common threads–areas where they actually share the same perspective without realizing it. Gather these threads so that you can remind those in conflict that are some things they have in common. Help them untie around the things that matter most (like doing what’s best for their loved one.)
Learn the wishes of the dying loved one (if possible.) If you can still communicate with the patient you may find out that she has a wish for her family to reconcile. You can use this wish to help draw the combatants together in their desire to please and comfort the one they love. Let the patient’s wishes become a “magnet” around which the rest of the family gradually comes together.
Have patience. Don’t try to force a reconciliation by rushing into a family conference or intervention. Allow for some separation initially and let the gaps between individuals gradually begin to close.
The bottom line is that families who don’t wait until the end of life to resolve their differences have a much easier time negotiating the challenges of death and dying. But that’s not the case for most families. Most are left to rehash old sibling issues, betrayals, disappointments, and wounds during the last days of their loved one’s life when they should be sitting at the bedside offering love and comfort.
It’s not enough to get your paperwork done … make sure it’s done right!
In this episode we’ll look at several common mistakes people make when doing their advance directives–mistakes that could make it more difficult for their end-of-life wishes to be carried out. Learn how to get your paperwork right so you can relax!
This podcast is supported through the generous donations of listeners made on Patreon.com/eolu. When you donate just $1 or $2 per month I will thank you by mentioning your name on the podcast and promoting your cause!
Thank you to my latest patron: Jayne Boulton–I appreciate your support Jayne!
In the News:
An online article from Managed Healthcare Executive asks the question: Can Data Analytics Aid in End-of-Life Care Decisions? The author cites a recent study from JAMA that shows 70% of MD’s reporting that they have not been trained to have end-of-life conversations with patients and 73% of patients over the age of 65 have never had an advance care planning discussion with a doctor.
Medical data analysts have suggested that EHR’s might be useful to help health systems identify patients in need of end-of-life conversations. The article points out that current management of advance directives on EHR’s is poor since on average it requires clicks on 12 different screens to locate a patient’s AD, which takes 1.3 minutes–not fast enough in an emergency situation. In addition many patients at the end of life experience more than 3 transfers to different facilities and their paperwork is often lost in the process.
Much work needs to be done to help patients get their wishes met at the end of life! For that reason I have created a NEW online course to guide people through creating their advance directives, making them legal, and having conversations with loved ones and doctors about their wishes.
Join Dr. Karen Wyatt, the host of Death Expo, in this conversation with emeregency room physician Dr. Monica Williams-Murphy, author of the award-winning book It’s OK to Die. They will discuss Dr. Williams-Murphy’s mission “to create conditions in which people: plan ahead, make their peace, understand that it is OK to die naturally, and make educated choices which allow them to pass away peacefully and comfortably surrounded by those who love them most.”
In this interview you will learn:
the tragic consequences of being unprepared for the end-of-life
the factors that have contributed to our cultural change in attitude toward death and dying
how to prepare for the death of a loved one – understanding the physical changes associated with dying
how to make peace with death and let go at the end-of-life
what doctors need to know in order to offer better care at the end-of-life
Support this podcast and End-of-Life University Interview Series by donating at Patreon.com/eolu!
In this episode Dr. Karen Wyatt discusses the fact that according to the Nebraska End-of-Life Survey, even though 70% of patients surveyed want their doctors to discuss their end-of-life options but only 21% of them have actually had those conversations.
In addition, while 86% of doctors agree that they themselves would enroll in hospice if terminally ill, only 27% of them are comfortable discussing hospice as an option with terminally ill patients.
There is a huge disconnect between what patients want from their doctor and what they receive and also what doctors would do for themselves at the end-of-life and what they do for their patients.
Today’s conversation looks at reasons for this disconnect to point the way toward changes that are needed in how medicine approaches the end of life. Here are some of the attitudes and mindsets that make it difficult for some doctors to address death and dying, based on conversations between Dr. Wyatt and her colleagues:
“It’s not my job. My passion is for saving lives.” Ideally doctors must maintain their passion for life, but must also make room for death, since every patient will ultimately die. Doctors need to cultivate a view of life that includes the reality of death.
“I don’t have enough time and the end of life is less important than other issues I’m expected to discuss with patients.” The average primary care visit with an elderly patient last 15.7 minutes and covers 6 topics. Doctors need to view the end of life as the final stage of development and give it the same attention as the other stages of development.
“Death represents failure.” While death in general is a natural process and not a failure, for doctors the death of a patient can be a devastating experience, especially if it is unexpected. Doctors carry an enormous burden of responsibility for the health and wellbeing of their patients and mistakes can lead to complications and death. For doctors it is difficult to carry both responsibilities: to preserve life and promote health while also honoring death in its place.
“I don’t want to take away my patient’s hope.” Many doctors recognize that optimism and positivity are essential for a patient’s survival and wellbeing. But they view curative treatments as the source of that hope while failing to recognize that hope has many different meanings for patients. They promote ongoing treatment in order to keep hope alive while failing to offer emotional and spiritual support that can foster hope even in the face of death.
By recognizing the obstacles that keep doctors from engaging in end-of-life interactions with patients we can help overcome them over time. It’s important to have compassion for everyone involved as we try to move forward and evolve care at the end of life in our society.
You can support EOLU by making a small pledge of financial support ($1 or $2 per month) at Patreon.com/eolu. Be sure to tune in every Monday for a new episode, leave comments and write reviews on iTunes! Remember to:
Marggie Hatala – author and teacher of a writing class related to end of life; her books are “Sally: A Memoir” and the forthcoming “Life as Prayer”; learn more at www.marggiehatala.com
Next she begins the Update for September by talking about the new documentary film currently streaming on Neflix: Extremis, which won 1st place at the Tribeca Film Festival. Please see this film which takes place in the ICU at Highland Hospital in Oakland and features Dr. Jessica Nutik Zitter. This is a must-see film that brilliantly depicts the conundrum that exists at the end of life when painful decisions must be made. By showing the real-life conversations that take place in the ICU between staff, family members and patients, a case is made for everyone to complete their advance directives and prepare their loved ones to honor their wishes at the end of life. But the painful process of decision-making becomes apparent as each individual struggles with the unknown and the unknowable in these dire situations.
The other topics covered this month include:
BMJ Online report that patients who receive hospice care for the last 6 months of life have better pain control, fewer hospital days, and are less likely to die in the hospital or ICU.
Researchers at John Hopkins found that their palliative care program led to savings of ~ $19 million over 5 years in addition to improved quality of care and patient satisfaction.
Study originally published in Health Affairs and reported on Reuters online showed gaps in palliative care in the US. Read the article.
“What it feels like to die,” an article in The Atlantic discusses the active dying process from the patient’s perspective. Read the article.
Friends and Family Letter Project by Dr. VJ Periyakoil at Stanford includes 7 prompts for letter writers to leave messages for their loved ones. Read the article.
“7 Songs for a Long Life” documentary from Scotland that depicts how terminally ill patients use singing as therapy. Read the article.
The Friendly Atheist Julie Stahl reminds us not to impose our own religious or spiritual beliefs on those who are grieving and may not share your perspective. Read her blog.
Thanks for tuning in to the podcast! I hope you enjoy this information. If you feel inspired to offer a little support go to Patreon.com/eolu to join the community!
In this episode Dr. Karen Wyatt highlights several excellent books about the end of life that have been sent to her by their authors. If you have considered starting an end-of-life book club (as mentioned in Episode 33) you’ll find many great books to choose from in this list. Here are the book titles and authors, along with links for learning more or purchasing the books:
“My Voice, My Choice: A Practical Guide to Writing a Meaningful Healthcare Directive”; by Anne Elizabeth Denny; www.anneelizabethdenny.com
“LastingMatters Organizer: Where Loved Ones Find What Matters Most”; by Barbara Bates Sedoric: www.lastingmatters.com
In this episode Dr. Wyatt thanks her supporter Cathy Zheutlin who is a film producer currently making a documentary called “Living While Dying.” If you would like to support this podcast go to Patreon.com/eolu where you can make a donation of $1 or $2 per month to help defray the expenses of the podcast. Your name will be mentioned on the podcast as a thank you!
Dr. Wyatt discusses Advance Directives from a doctor’s point of view and relates stories about situations involving “the good, the bad, and the ugly” of this legal paperwork. The discussion includes:
AD’s are legal forms best applied to long-term situations and can be helpful to prevent or terminate life-supporting care that is actually prolonging suffering and the dying process
we may wish that having AD’s in place will give us some measure of control over the circumstances of our death, but this is often not the case – there are many scenarios in which wishes cannot be carried out
AD’s are no substitute for having conversations with loved ones about our end-of-life wishes
be sure to communicate your wishes with everyone who might have a stake or concern about your dying process – make sure everyone hears the same message
update your loved ones whenever your wishes change
face your own fears of dying and of being kept alive in order to be extremely clear about your wishes – revisit these thoughts frequently
recognize that in the end circumstances may be out of everyone’s control and your wishes may not be followed. Find peace with that scenario and help alleviate any guilt your loved ones might carry if your wishes are not met.
Tune in next week for another episode of EOLU! Sign up for the End-of-Life University Interview series – 2 new interviews each month about all aspects of death and dying. Register here to be notified when the next interview is available.
In this episode Dr. Wyatt thanks her newest Patreon supporter, Elaine den Hoed. If you’d like to make a small donation to help cover the expenses of this podcast and the EOLU interview series go to www.patreon.com/eolu. Your help is greatly appreciated!
This episode includes:
Nebraska’s plan to improve services for Alzheimer’s and dementia patients
“Memory Cafes” taking place in Minnesota
Study that looked at the utilization of Assisted Dying laws and found that none of the feared consequences have occurred: usage has been very low and there has been no “slippery slope” decline to euthanasia
University of Vermont study showed significant disparity between physicians’ estimations of prognosis and patients’ understanding of their own prognosis, pointing out the need for better doctor-patient communication
Survey of Hem-Oncology MD’s showed that they feel patient’s unrealistic expectations of cure or prolonged life are the most common barrier to quality end-of-life care
Study that found Palliative Care conversations about patient prognosis created PTSD for family members has been widely criticized for the way it was set up
Seniors are the fastest growing group of social media users
Article discussing mourning rituals among animals
Stephen Hawking declares “There is no afterlife.”
Photo of fatal motorcycle crash site in Kentucky shows what some believe is a “spirit” hovering over the site
Elderly couple in San Antonio who both have dementia died within 3 hours of one another while holding hands
Thanks for tuning in to the EOLU podcast! Be sure to come back every Monday and share these episodes with someone else who might find them helpful!
In this episode Dr. Wyatt addresses the Western tendency to deny and avoid the subjects of aging and death. But first she announced the upcoming release of her latest book “The Tao of Death” – an adaptation of Lao Tzu’s Tao Te Ching through the perspective of death (it’s awesome!) The book should be available for sale as an ebook by the end of this month so stay tuned. If you’d like to be notified when the book goes on sale sign up for the email list at www.eoluniversity.com and you’ll get an email notification (and a significant discount!)
Next she thanks her newest Patreon sponsor, Holly Randall, for her support of EOLU. If you would like to be mentioned on the podcast go to www.Patreon.com/eolu and make a $1 or $2 per month donation to say “Thank you” for EOLU and help defray the expense of creating the interview series and this podcast.
Today’s episode is sponsored by Irina Jordan and Artisurn.com. Irina has a free gift for everyone of a special coloring ebook called “Coloring Through Grief.” You can download and print the coloring pages (they’re beautiful, by the way!) at http://tinyurl.com/artisurnor go to: http://www.artisurn.com/pages/coloring-through-grief-free-coloring-ebook. These coloring pages are FREE and when you download them you’ll also receive a special promo code for a 10% discount on a handmade cremation urn from Artisurn. Get the coloring pages now – it’s really fun and relaxing to color!
In today’s chat Dr. Wyatt talks about some steps we can all take to help shift our own and our society’s mindset about aging and death. She will talk about:
Seeing through the false messages of youthfulness and anti-aging that are prevalent in advertising and marketing
How to see the beauty in aging
How to embrace your own mortality with grace and dignity
Three pillars of a new mindset about death:
Every living thing ultimately dies
Life is precious because it is fleeting
Each of us must find our own meaning in life and death
If you enjoy this episode you probably know someone else who would like it too so please share! Also remember to go to Patreon.com to check out the EOLU donation page, stay tuned for “The Tao of Death” and listen in every Monday for a new episode!
Join Dr. Karen Wyatt and her guest Irina Jordan, Founder and Owner of ARTISURN, an online marketplace for handcrafted cremation urns, jewelry and keepsakes made by talented artisans. We will discuss the role of the creative arts in remembering our loved ones or beloved pets at the end-of-life and in healing grief. According to Irina Jordan, ARTISURN craftsmen are sensitive to the deep emotional component required in creating sacred objects and we will learn how they do this work. In this interview you will discover:
how cremation urns are created and measured
why a handmade cremation urn is preferred
how cremation jewelry is made, using ashes fused with glass
You can download and print Irina’s gift: Coloring Through Grief – a beautiful adult coloring book – at this link: http://tinyurl.com/artisurnYou’ll receive a promo code for a 10% discount you can use on any Artisurn handmade cremation urn.
Thanks for tuning in! Remember to support this podcast and the EOLU interview series at www.patreon.com/eolu !! Thanks to Irina Jordan and Artisurn for their support of EOLU!!
Join Dr. Karen Wyatt as she discusses How to Rise Above the Fear of Death. She talks about why it’s important for our entire society to face our fears of death and get a handle on them. Then she offers 6 suggestions for getting over the fear of death:
Think about death – daily if possible.
Write about death – keep a journal and record your process of facing your fears there
Read about death – start reading some great books that have been written recently about death. You can download a list of books at the link below this message or go to this webpage: Recommended Reading.
In this episode Dr. Wyatt shares her thoughts about why each of us should think and talk about death long before we are dying. But before that she discusses her recent speaking tour with presentations at the Afterlife Awareness Conference in St. Louis MO and the Conscious Dying Panel Discussion she moderated; the New Death & Dying Event in Minneapolis MN and an additional speaking event in Rochester MN.
You can support this podcast by donating to Patreon.com/eolu. This week the featured patron is Jim Erskine, creator of the Expired “card game for mortals,” who will be soon be launching a Kickstarter campaign for the game. To become a featured patron just go to Patreon.com/eolu and make a small donation!
For those who are reluctant to talk or think about death, here are 5 compelling reasons why it’s important to do so:
Preserve your financial legacy
Protect your minor children
Get the kind of care you want at the end-of-life (or be protected from care you don’t want)
Be remembered as you would like to be by your loved ones
Lessen the stress for your loved ones
Leave comments and reviews on iTunes to help this podcast get noticed, share with your friends, and become a patron (if you are so inclined.)
Today Dr. Karen Wyatt discusses some ideas for building a support community for end-of-life workers and people interested in death and dying. Working in this field can be rather lonely at times as our society still fears and avoids the subject of death. But we need a network of support around us in order to do this challenging work. So here are some ideas for creating our own community of support:
Attend a Death Cafe. Learn more and out if there is a Death Cafe in your area by searching the Death Cafe website: www.DeathCafe.com
If there is no face-to-face Death Cafe in your area consider calling in by telephone to the Virtual Death Cafe, which generally meets on the 2nd Sunday of each month. Learn more at www.eoluniversity.com/death-cafe
Start your own Death Cafe. If you feel inclined to become a Death Cafe host (no specific training is required) you might want to start your own and truly benefit your community. Get completes Guidelines for starting a Death Cafe at www.DeathCafe.com/how
Use Social Media sites to get connected with others:
On Facebook search for these pages or public groups (then “Like” the page or ask to become a member of the group): Slow Medicine, Afterlife Awareness, Death Cafe, Death Midwifery in Canada, End-of-Life University, Death Expo
Linked-In: search for groups based on interests such as Hospice, Palliative Care, Chaplain Services, Grief, End-of-Life
Twitter: follow hashtags like #EOL #hpm #eolchat #dwd #eolcare #funeralplanning #deathcafe #hospice (depending on your interests)
Start a death and dying Meetup Group. You can create your own curriculum for a meetup (unlike Death Cafe that has no agenda) and include films, speakers, panel discussions, field trips. Go to www.Meetup.com to see if there is already a meetup in your area or to start one of your own.
Join an organization. I highly recommend that you look into joining the National Home Funeral Alliance, which offers free registration, monthly conference calls and an annual face-to-face conference. You don’t have to be a home funeral guide to join and you will find many, many like-minded people there! Learn more about the NHFA at www.homefuneralalliance.org
Today Dr. Karen Wyatt offers the End of Month Update for April 2016. In this episode she recaps the 10-Day SMART Decisions Challenge for completing your advance directives – if you are interested in still doing the challenge on your own time you can check it out at www.eoluniversity.com/challenge. Also be sure to check out the EOLU page at Patreon.com/eolu if you’d like to make a small monthly donation to help keep EOLU on the air (much appreciated!)
Topics discussed in this presentation include:
A study showing that the population of people over age 65 will increase to 88million by the year 2050 – meaning there will be a huge need for services for the elderly. Reference to Episode #08: It Takes A Village to Care for the Elderly.
New “Affinity-Based” senior living communities are springing up around the country like Chinese-American and Indian-American communities.
The Harvard Study of Adult Development, which started in 1938, has shown that relationships are the key to a long happy life.
A British study in which the extreme elderly (over the age of 95) were interviewed about death and dying showed that they were at peace with death, ready to go and had talked with their doctors about death, but not their families.
A newly released survey of doctors found that they overwhelmingly support new CPT codes that allow for billing for end-of-life conversations and planning with patients but most of them report they are not ready to have these conversations because they have not been trained and don’t know what to say.
The Credit for Caring Act is currently being discussed in the US Congress and would provide up to $3000 per year in tax credits for family caregivers.
“Presenteeism” is a new term to describe the lack of productivity on the job experienced by family caregivers who are also employed outside the home (which amounts to 20% of Americans.)
Reports of funeral ritual behavior from the animal kingdom.
Driving Miss Norma – the story of a 90-year-old woman who said “no” to treatment after her cancer was diagnosed and is currently traveling the US in an RV with her son and daughter-in-law.
Be sure to leave comments below, subscribe to the podcast, write reviews, and recommend EOLU to your friends. Looking forward to our next opportunity to chat about the end-of-life!