Category: EOLPodcast

EOLPodcast

Ep. 403 Death Over Drafts: Meeting People Where They Are with Stefanie Elkins

kwyattmd

Learn about creating opportunities in your community for conversations about death.

My guest Stefanie Elkins is a Family Caregiver Consultant, end-of-life doula, founder of Be Present Care, and the creator of Death Over Drafts, a community event held at breweries across the country to spark meaningful conversations around death and dying. She’ll share her experience bringing end-of-life conversations to community spaces where people naturally gather and how we can make a difference in someone’s end-of-life journey by helping them talk about death and grief. Learn more about Stefanie’s work at her website:

www.bepresentcare.com

Watch on YouTube

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This episode includes:

  • How Stefanie helps patients and families at the end of life
  • What inspired Death Over Drafts
  • Who attends Death Over Drafts and examples of the conversations that have taken place
  • Why conversations about death are important
  • Why we need to meet people where they are and bring death education to various venues and spaces
  • How to bring Death Over Drafts to your own community
  • Why end-of-life workers need to do their own work planning for the end of life
  • How families can support the aging and prepare for the inevitable

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donor Phyllis Wintter and to Don Zacharias for making a Paypal donation! Your contributions make all the difference.

EOLPodcast

Ep. 402 Grief After a Suicide Death: My Personal Story with Karen Wyatt MD

kwyattmd

Learn the story of my journey with grief after my father’s death by suicide and how it may differ from other grief experiences.

In this solo episode I share the story of my own grief experience after my father died by suicide 34 years ago. This is an ongoing journey that has shifted and changed over the years, teaching me a great deal about life, death and grief. The week this episode airs is the anniversary of Dad’s death, so I’m currently processing it once again and thought I would share the story with you. Hopefully this will be helpful to others who are dealing with grief after suicide or trying to help someone who is grieving. I want to decrease the stigma and shame that surround suicide so that we can get better about asking for, receiving, and giving help to those who are suffering. (Note: There are slides that accompany this talk if you watch on YouTube.)

Get my book 7 Lessons for Living from the Dying

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This episode includes:

  • The shock and numbness of my first year of grief
  • What I needed from others during my early grieving process
  • Why I couldn’t talk about my father’s death for a long time
  • How hospice opened me to finally begin embracing my grief
  • Why allowing myself to feel anger was difficult but pivotal in my grief process
  • Why it didn’t really matter what other people said to me during my grief experience
  • Why I have compassion for people who couldn’t be there for me
  • How I used rituals and travel to help me with my grief
  • The devastating guilt that accompanies grief after suicide
  • How my grief has changed over the years

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to Mark and Cheri McClure for buying me 5 coffees! Your contributions make all the difference.

EOLPodcast

Ep. 401 End-of-Life Visions and Other Experiences with Barbara Karnes RN

kwyattmd

Learn about “non-ordinary” end-of-life experiences like deathbed visions and why they are a gift to patients and their loved ones.

This week I’m welcoming back my recurring guest Barbara Karnes RN, hospice nurse and international speaker and educator. She is also the author of the “little blue hospice book” Gone from My Sight and the recent book for caregivers, By Your Side. Barbara and I discuss common phenomena that occur during the last days of life that can be upsetting to families if they don’t understand what’s happening. As usual we share lots of stories and experiences along with our own approach to handling these situations. Learn more about Barbara’s work at her website:

www.bkbooks.com

Watch on YouTube

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This episode includes:

  • The frequency of unexplained phenomena at the end of life
  • What it’s like when a patient experiences a deathbed vision
  • The symbolic language that patients may use prior to death
  • What is terminal lucidity and how to help loved ones understand what is happening
  • How to respond to patients and caregivers when deathbed phenomena occur
  • Why it’s important to validate and normalize these experiences
  • Why we should avoid interjecting our own beliefs and interpretations about these events
  • How to help loved ones find the gift in these experiences rather than be afraid of them

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my latest patron Stefanie Elkins! Your contributions make all the difference.

EOLPodcast

Ep. 400 The Value of Death: The Lancet Commission Report with Dr. Libby Sallnow

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Learn about the important recent report from the Lancet Commission in the UK on the value of death and what each of us needs to do to help bring death back into life.

My guest Dr. Libby Sallnow is a palliative medicine consultant and honorary senior lecturer at St. Christopher’s Hospice and the UCL Marie Curie Palliative Care Research Department, UK. She is also the co-author of The Lancet Commission Report on the Value of Death: Bringing Death Back Into Life. In addition her PhD explored the translation of a model of compassionate communities from Kerala, India to London, UK. She discusses the creation of the report on The Value of Death and its key takeaways that can form a roadmap for the reform and rebalancing of death and dying in our societies. Learn more about her work at the website:

www.ucl.ac.uk/health-of-public/news-and-events/spotlight/spotlight-dr-libby-sallnow

Watch on YouTube

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This episode includes:

  • What inspired Libby’s interest in end-of-life care
  • The Lancet Commission on the Value of Death and what lead to their recent report
  • Why we need to rebalance death and dying
  • The “5 principles of a realistic utopia” as described in the report
  • Why we need to focus on death literacy first as we try to improve end-of-life care in our societies
  • The compassionate communities approach (to be covered in a future episode)

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my latest patrons Jeff Black and Lindsay Compton, and to Brittany Ellis for your donation on Paypal! Your contributions make all the difference.

EOLPodcast

Ep. 399 Grief Rituals and Transcending the “Five Stages” with Dr. Terri Daniel

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Learn how rituals can help us with grief and what the Five Stages model gets wrong about grief.

My guest this week is Dr. Terri Daniel, inter-spiritual hospice chaplain, end-of-life educator, and grief counselor. She shares some of the powerful rituals she uses for grief at funerals and workshops and we dive into the Five Stages model and why it continues to be popular in our society. Terri is also the author of four books on death, grief and the afterlife and the founder of The Conference on Death, Grief and Belief, which focuses on how religious beliefs and cultural ideologies influence one’s relationship with death and grief. Learn more at Terri’s websites:

www.danieldirect.net

www.deathgriefandbelief.com

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This episode includes:

  • Terri’s journey from caring for her son Danny at the end of his life to the work she is doing now
  • Why she started The Conference on Death, Grief and Belief and how to attend
  • Unique and powerful grief rituals Terri has created for people at the end of their lives and also for funerals and workshops
  • How rituals help us with grief and mourning
  • How the Five Stages model initially became applied to grief
  • What the Five Stages model gets wrong about acceptance
  • How the Five Stages model persists in our society
  • What ChatGPT says about why the Five Stages model is popular
  • Other models for personality and “love languages” that have attained widespread popularity in spite of having no evidence of accuracy (and why this happens)

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my latest patron Catherine Paton, and to Anne Jungerman for increasing your pledge, Amrita for buying me a coffee, Suzie Hopkins for your donation on Paypal, and Ray Burleigh for your donation and poem! Your contributions make all the difference.

EOLPodcast

Ep. 398 Spiritual and Emotional Healing of Serious Illness with Lesley Wirth

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Learn about the importance of healing the emotions and the soul along with the body during serious illness.

My guest Lesley Wirth is a poet and writer who has a Masters Degree in Spiritual Psychology. She helps women experiencing a “dark night of the soul” by helping them deal with fear and spiritual and emotional pain, including after being diagnosed with serious illness. Lesley is the creator of the programs Poetry for Healing and The Power of Your Intuition. She discusses her work using poetry in workshops and also teaching how to access intuition. Learn more about her work at her website:

www.lesleywirth.com

Watch on YouTube

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This episode includes:

  • Lesley’s story of a “dark night of the soul”
  • How a diagnosis of serious illness can lead to an over-focus on the physical aspects of illness while leaving out the emotional and spiritual
  • Why healing requires more than just a physical approach
  • How to deal with fear and anxiety during difficult times
  • Why “positive psychology” may bypass the areas where deep healing is actually needed
  • How poetry can help with healing
  • Why medical providers could benefit from approaching illness as more than just a physical problem

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to Robin Bissell for your donation on Paypal! Your contributions make all the difference.

EOLPodcast

Ep. 397 Talking About Death with ChatGPT

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Learn how the AI language model ChatGPT can be used as a resource for information about death and dying and when caution is required.

My special “guest” this week is ChatGPT an AI language model that can understand and respond to human language. Chat has been trained on a wide range of topics, including end-of-life care, hospice, palliative care, grief and bereavement, and advance care planning, among others. I conducted a written “interview” with Chat to test its knowledge and in this episode I report on my findings. In addition, I’ve compiled all of our correspondence into a book titled Conversations on Death with ChatGPT, which you can access now in ebook format. I hope you enjoy hearing about my adventures with Chat!

Get the book

Watch on YouTube

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This episode includes:

  • What an AI language model consists of and how to interact with it
  • The amazing depth and breadth of content and resources that ChatGPT was able to generate in a matter of seconds
  • What I learned about euphemisms for death from Chat
  • What Chat got wrong about for-profit hospice
  • How Chat needed better information about talking to children about death
  • Chat’s creative ideas for promoting advance care planning in predominantly Black communities
  • Chat’s thoughts about the 5-stages model of grief
  • A haiku Chat wrote about grief
  • How Chat helped me deal with guilt over my father’s suicide death

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons Susan Mackey and Colleen Bracken, and to Laura Srygley for buying me a coffee and Fabricio Vasconcelos de Lima for donating on Paypal! Your contributions make all the difference.

EOLPodcast

Ep. 396 The Chrysalis™ Room: Transforming Death in the Nursing Home with Loretta Downs

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Learn about a mission to transform care for dying patients and their loved ones in nursing homes.

My guest Loretta Downs is a Certified End-of-Life Care Practitioner and holds a Masters Degree in Gerontology. She founded Chrysalis End-of-Life Inspirations to advocate for the creation of private rooms in nursing homes and hospitals where families and friends can keep vigil with a loved one who is dying. She’ll discuss her project and share some of the stories that have inspired her work. (NOTE: This is an archived interview from the days before I acquired a professional microphone, so the sound quality is less than desired, but the content is excellent!) Learn more at Loretta’s website:

www.endoflifeinspirations.com

Listen on YouTube

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This episode includes:

  • How Loretta became interested in working with the dying
  • What is a “Chrysalis Room”
  • How Loretta conceived of the idea of a separate room for the dying in nursing homes
  • How the Chrysalis Room has benefitted both the patients and the staffs of long-term care facilities
  • What it takes to create a Chrysalis Room
  • How to advocate with a facility to change the way they care for the dying

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons Marian Head and Jaime Corbin, and to Lynn Mytroen for buying me a coffee! Your contributions make all the difference.

EOLPodcast

Ep. 395 Conscious Dying, Dreamwork, and Death Doulas in Mexico with Wilka Roig

kwyattmd

Learn about the growth of the positive death movement in Mexico and the value of conscious dying and dreamwork.

My guest Wilka Roig is a transpersonal psychologist, death doula, grief counselor, dream worker, and educator. She is the president of Fundación Elisabeth Kübler-Ross (EKR) México Centro and a doula instructor for INELDA. She discusses the growth of the doula movement in Mexico and the end-of-life issues that are currently arising in Mexico and Central and South America. In addition she talks about the dream work she engages in and the importance of symbolic dreams at the end of life. Learn more at her website:

www.wilkaroig.com

Watch on YouTube

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This episode includes:

  • How Wilka first became interested in working with death, loss and grief
  • The work of the EKR Foundation in Mexico and what programs are being offered
  • The growth of Death Café in Mexico
  • Death doula training in Mexico and how doulas are being received
  • The value of collaborating with other providers and communities to share knowledge
  • How Wilka helped start the green burial movement in Mexico
  • Why spiritual growth requires us to look at our own mortality
  • The power of the symbolism of dreams to help us heal and grow
  • Why we should be asking people at the end of life about their dreams
  • How healthcare providers could benefit from participating in a dream group

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to Diane for buying me 3 coffees! Your contributions make all the difference.

EOLPodcast

Ep. 394 You’re Going to Die (YG2D): Creatively Exploring Death and Dying with Ned Buskirk

kwyattmd

Learn how YG2D brings diverse communities in to the conversation of death and dying using creativity.

My guest Ned Buskirk is the Founder, Podcast Host, Facilitator and Executive Director for You’re Going to Die (YG2D), a 501(c)3 non-profit organization. Ned discusses the YG2D movement and how the arts are essential to helping us make meaning out of our mortality. We also talk about the importance of self-care as we try to make changes in how we think and talk about death in our society. Learn more at the website:

www.yg2d.com

www.instagram.com/yergoing2die

Watch on YouTube

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This episode includes:

  • The need that inspired the creation of the first YG2D open mic
  • How YG2D has responded to the needs of community
  • The paradox between the urgent need for the message to get out and the reality that we also need to let go and relax in the moment
  • How creative arts can be a gentle way to introduce the reality of death and dying
  • The arts are “medicine” for our mortality
  • Writing helps us access unconscious parts of ourselves that have been buried
  • We need places we can go where we are safe enough to be vulnerable
  • How listening to stories is as important as telling our own
  • Grief can be a “rite of passage” in our culture, especially if we can talk about it
  • It’s important to find the right community that can hold you in the way you need to be held
  • Why we need self-care and balance when we are working in the death and dying field
  • The prison work that Ned is engaging in through YG2D

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to Barbara Butler for your donation and to Laura for buying me 5 coffees! Your contributions make all the difference.

EOLPodcast

Ep. 393 End-of-Life Care for People with Dementia with Barbara Karnes RN

kwyattmd

Learn about the challenges faced by caregivers for dementia patients and some creative ideas for offering support.

In this episode I welcome back my recurring guest Barbara Karnes, hospice nurse, speaker, thought leader, and expert on end-of-life care. She is the author of the “little blue hospice book” Gone From My Sight and her most recent book By Your Side: A Guide for Caring for the Dying at Home. We discuss the challenges of caring for a person with dementia and the impact that care can have on family members. Learn more about Barbara’s work at her website:

www.bkbooks.com

Get the book here

Watch on YouTube

Listen here:

This episode includes:

  • There are now over 7 million people with dementia in the US
  • Dementia patients require twice as many hours of care as other patients
  • The late stage of dementia can last 1-2 years; patients are eligible for hospice care during the last 6 months
  • How the last stage of life for dementia patients differs from that of other end-of-life patients
  • Why caregivers for dementia patients are much more likely to suffer exhaustion and depression
  • A marker to use for determining when a dementia patient is eligible for hospice
  • Why it’s essential to create an advance directive early in the course of dementia while the patient can make decisions
  • The need for “dementia doulas” to guide and assist caregivers
  • What happens when a caregiver can no longer take care of their loved one at home
  • How some financial planners are doing a better job talking to their clients about preparing for healthcare needs than medical providers are doing
  • Simple tips to help caregivers in the moment

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Barbara Richardson and thank you also to Jen Blalock for buying me a coffee! Your contributions make all the difference.

EOLPodcast

Ep. 392 The Evolution of the American Funeral with Todd Harra

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Learn the fascinating history of some funeral customs in America and how the profession is changing.

My guest Todd Harra is a 4th generation funeral director, embalmer, post-mortem reconstructionist, and creationist who works for the family funeral business in Wilmington, Delaware. He is also an author of several books including his latest book Last Rites: The Evolution of the American Funeral. He discusses the fascinating history of many funeral customs here in the U.S. and why funerals are important. Learn more at his website:

www.toddharra.com

Get the book here

Watch on YouTube

Listen here:

This episode includes:

  • What inspired Todd to work in the family business as a funeral director
  • How this career provides lessons in grace and humility
  • Common myths and stigmas about the profession of funeral director
  • How the funeral industry continues to evolve
  • How and why the practice of embalming the dead began in the U.S.
  • The history of viewing the body before burial and why it may be helpful for mourners
  • The discovery at a Neanderthal burial site of evidence for early funeral practices
  • Why funerals are important and a vital step in the grieving process
  • When and why to include children in funerals
  • How technology will change funerals in the future
  • What we need to remember about the history of funerals as we move into the future

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Heather Capuano! Your contributions make all the difference.

EOLPodcast

Ep. 391 Dying in America: A Journalist’s Exploration with Ann Neumann

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Learn about this journalist’s research into “the good death” and what she learned through seven years of study and travel across the U.S.

My guest Ann Neumann is a journalist whose work has appeared in The New York Times, The Guardian, Harper’s magazine, The Baffler, Guernica magazine, and elsewhere. After caring for her father at his end of life she became a hospice volunteer and began to research the meaning of a “good death” in this country, which led to her book The Good Death: An Exploration of Dying in America. She shares some of the things she learned about death as she traveled the country and listened to opinions, beliefs, and stories about what constitutes a good death. Learn more at her website:

www.annneumann.wordpress.com

Get the book here

Watch on YouTube

Listen here:

This episode includes:

  • How Ann’s experience caring for her father at the end of his life inspired her research for the book
  • How Ann and her family felt unprepared for the actual dying process even though they were receiving care from hospice
  • How the “gentle” marketing of hospice and death care services can obscure the reality of the challenges of dying
  • The tragedy of “false hope” being offered to patients rather than factual information
  • Where Ann found inspiration for each of the topics she covered in the book (e.g. medical aid in dying, pro-life movement, religious influence on dying, disability issues, prison hospice)
  • Why “dignity” can mean something different to people who live with disabilities
  • The extensive work needed to overcome racial disparities in end-of-life care and restore trust

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Jason P. and thank you also the anonymous person who bought me 5 coffees! Your contributions make all the difference.

EOLPodcast

Ep. 390 Funeral Consumers Alliance: Resources for Funeral Planning with Martha Lundgren

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Learn how the FCA helps consumers plan ahead for funerals and make informed choices for themselves and their loved ones.

My guest Martha Lundgren is the president of the board of Funeral Consumers Alliance of Arizona. She also serves on the speakers bureau for FCA-AZ and is a representative in the Arizona End of Life Care Partnership. Martha will tell us the role FCA plays in educating people about their rights when planning a funeral and how to avoid costly mistakes, which is information we all need to know for ourselves, loved ones, patients and clients. Learn more at the websites:

Funeral Consumers Alliance of Arizona: www.fcaaz.org

National Funeral Consumers Alliances: www.funerals.org

Watch on YouTube

Listen here:

This episode includes:

  • The role of the Funeral Consumers Alliance
  • Why planning ahead is important for funerals, especially if you have specific wishes for what happens
  • How FCA helps consumers “shop around” for funeral arrangements
  • The funeral industry in general lacks transparency about pricing
  • Why you should plan in advance but not pay in advance for funerals
  • Consumers should beware of deceptive advertising in the funeral industry
  • Why it’s important to name someone to pay for and plan your funeral
  • What to do if your loved one doesn’t want a funeral
  • How to cover the cost of a funeral or disposition
  • What happens if someone dies while traveling out of state or out of the country

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Diana Hiatt! Your contributions make all the difference.

EOLPodcast

Ep. 389 Virtual Reality as a Tool for End-of-Life Anxiety and Pain with Gregory Roufa and Lama Karma

kwyattmd

Learn how virtual reality technology can be utilized in a powerful way to ease distress and find meaning for people facing life-limiting illness.

My two guests, Gregory Roufa and Lama Karma, both work for Anuma, a company specializing in developing sacred experiences in virtual reality. Gregory is the co-founder and CEO at Anuma and Karma is an experience designer. They discuss the work Anuma is doing to create VR experiences that can benefit patients facing serious illness, particularly at the end of life, without the use of drugs. Learn more at the website:

www.anuma.com

Watch on YouTube

Listen here:

This episode includes:

  • What is Virtual Reality
  • What equipment is used for a VR experience
  • The inspiration behind Anuma
  • What is a “self-transcendent” experience
  • How to use VR in a beneficial rather than a harmful way
  • What to expect from the Clear Light Program
  • Why a transcendent experience can be helpful for anxiety at the end of life
  • Results seen so far from Anuma’s studies
  • How to work with Anuma as a facilitator on pilot projects or as a capital partner
  • How Virtual Reality has similar effects to a medium dose of psychedelic medication (and is legal and available now)

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Jean Oswald and also to Madeleine for buying me a coffee! Your contributions make all the difference.

EOLPodcast

Ep. 388 A Song for You: Personalized Songs for Hospice Patients with Emily Cavanagh

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Learn about an initiative to provide hospice patients with songs written specifically for them about their lives and stories.

My guest Emily Cavanagh is a singer/songwriter based in New York City who performs in places like New York, Chicago and Dublin. She has made a career for herself as a singer at the intersection of music and service as she brings music to marginalized communities. She is the founder of the music initiative A Song for You, which features local, touring, and Grammy Award-winning songwriters who compose and perform original personalized songs for hospice patients and their families. She will discuss the inspiration behind A Song for You and how this work has benefitted both the recipients and the creators of these special songs. Learn more at her websites:

www.emilycavanaghmusic.com

www.hereisasongforyou.org

Watch on YouTube

Listen here:

This episode includes:

  • How Emily got started in social work, activism and music
  • What inspired her to create A Song for You
  • The first song Emily wrote for a patient
  • How she writes songs for total strangers
  • How A Song for You has grown over time
  • The process for applying to have a song written for someone
  • How patients, families and songwriters have benefitted from sharing this special music
  • How to support A Song for You and its mission

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons Lucy Karl and Amrita Dhanji, and also to Karen Friedmann for buying me a coffee! Your contributions make all the difference.

EOLPodcast

Ep. 387 How to Save Hospice with Ira Byock MD

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Learn about some positive steps that are needed to heal the current hospice industry in the U.S. and how your story can make a difference.

My guest Dr. Ira Byock is a leading palliative care physician, author and public advocate for improving care through the end of life. He is the author of Dying Well, The Four Things That Matter Most, and The Best Care Possible. We discuss his recent essay pinion piece published in STAT online: “Hospice Care Needs Saving,” which is a response to the November Propublica/New Yorker article How the Visionary Hospice Movement Became a For-Profit Hustle. Learn more at his website:

www.irabyock.org

Read the STAT article

Watch on YouTube

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This episode includes:

  • Our reactions to the Propublica article
  • What the article got right about today’s hospice and why we need to take it seriously
  • What the hospice movement needs to work on to improve care for patients and rebuild trust with the public
  • Why internal “self-correction” is more important now for the hospice industry than expecting Congress to make changes
  • Why over-focus on profit is dangerous for the hospice movement
  • Why transparency, strengthened oversight, and legal accountability are important steps for saving hospice
  • How stories about current hospice care can be helpful as we move forward

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Sara Perry! Your contributions make all the difference.

EOLPodcast

Ep. 386 Five Wishes: Advance Care Planning for Everyone with Joanne Eason

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Learn more about the Five Wishes document and why it can be a good choice as an advance directive.

My guest Joanne Eason is the president of Five Wishes, the nation’s only national advance care planning program. She discusses the history of the Five Wishes organization and the benefits of using the Five Wishes form as an advance directive. We review the reasons why everyone over age 18 needs and advance directive and how Five Wishes can meet that need. Learn more at the website:

www.fivewishes.org

Watch on YouTube

Listen here:

This episode includes:

  • The original inspiration behind Five Wishes
  • What the Five Wishes document consists of
  • Which 46 states recognize Five Wishes as a legal document and the extra steps needed in the other 4 states
  • Why choose Five Wishes over state advance directive forms or how to use both forms together
  • The benefits of planning ahead for the end of life
  • The importance of choosing the best person as a healthcare proxy
  • Why Five Wishes asks individuals to define “what life support treatment means to me”
  • The importance of including questions about more than just wishes for medical treatment in advance care planning
  • What steps to take after completing Five Wishes
  • How the Five Wishes form acknowledges the “gray areas” of end-of-life planning

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons Kyle Tevlin and Janice Cotter! Your contributions make all the difference.

EOLPodcast

Ep. 385 End Well: Shifting the Culture Around End of Life with Tracy Wheeler

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Learn how End Well brings together fresh and diverse perspectives on the end of life from art, design and other non-medical fields.

My guest Tracy Wheeler is the executive director of End Well, an organization dedicated to transforming how the world views end of life. Tracy has a background in art, education, culture and politics, which inform her commitment to shining a light on how we might make end of life a part of life. She discusses the mission and work of End Well since its founding and what lies ahead in the future, including the new End Well Podcast. Learn more at the website:

www.endwellproject.org

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This episode includes:

  • Why the end-of-life movement needs to expand beyond the perspective of the healthcare industry
  • Why End Well is working with Hollywood to get more stories written about the end of life
  • How the Netflix series From Scratch portrayed very accurately a true story of serious illness and end of life
  • What the first season of the End Well Podcast consists of
  • About Dr. Shoshana Ungerleider, the founder of End Well, and what inspired her to create this organization
  • Why end-of-life care issues cannot be fixed within the medical system that helped create those very issues
  • The End Well Conference planned for 2024 and how to sign up for the mailing list
  • Why psychedelic assisted therapy will be part of the wave of the future
  • The fear of death that exists within the medical profession
  • The impact of COVID on how healthcare approaches death and dying

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons Michele Duncan King, Arianna Workman, and Katrina Marcuse-Sharratt! Your contributions make all the difference.

EOLPodcast

Ep. 384 People Don’t Die Like They Do in the Movies with Barbara Karnes RN

kwyattmd

Learn how to counteract the misinformation about death in modern media and teach people the truth about the natural dying process.

In this episode I welcome back my recurring guest Barbara Karnes who is a hospice nurse, international speaker, and author of the books Gone From My Sight: The Dying Experience and By Your Side: A Guide for Caring for the Dying at Home. We discuss her slogan “People don’t die like they do in the movies” and how popular media, including television, film and books, provide misleading and inaccurate portrayals of the dying process. Learn how to get a T-shirt with the slogan on her website:

www.bkbooks.com

Watch on YouTube

Listen here:

This episode includes:

  • How movies and television programs misinform people about death and dying
  • The consequences of inaccurate portrayals of the end of life in popular media
  • What the natural dying process actually looks like
  • The “work” of dying and how to support a person in the process
  • Why we can’t expect a dying loved one to do or say something to support us
  • How a person’s breathing changes before death
  • Preparation for the dying process helps loved one be more present at the bedside
  • How CPR is depicted in medical TV shows as a miracle procedure that works most of the time
  • The actual facts about CPR
  • Confusion in advance care planning due to misinformation
  • Choosing the right healthcare proxy

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Sharon Patterson! Your contributions make all the difference.