EOLPodcast

Ep. 351 Grief and the Best and Worst of Times with Dianne Gray

Learn how the death of her son inspired Dianne Gray’s current work as a death doula and patient advocate.

My guest Dianne Gray is a death doula, grief specialist and the Chief Innovation and Patient Advocacy Officer at Acclivity Health. After her son’s death from a rare neurodegenerative disorder she has dedicated her life to improving care for all adults and children facing serious illness. She shares her long journey with grief and how it has shaped and informed her work and her life.

Listen here:

This episode includes:

  • How Dianne survived the end-of-life journey and death of her son
  • The best and worst experiences of the dying process
  • How Dianne’s encounters with death and grief led her to the mission of helping others facing loss
  • Why death and grief are part of the wellness movement and must be included in life in order to be whole
  • What Dianne learned about life from the work of Elisabeth Kubler-Ross
  • Simple tools to ease grief and improve resilience
  • Therapy works for some people and not for others – keep searching for a good fit with a therapist
  • Learning that grief is a long journey to become someone new
  • Why viewing life as a fascinating adventure is helpful (and we never know what might happen next)
  • How social media can help or harm our grieving process
  • How Dianne works virtually as a patient advocate to get patients admitted to hospice and palliative care

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons Phyllis Nickel and Kathleen Ribbens! Your contributions make all the difference.

EOLPodcast

Ep. 349 Why My Family Chose Hospice with Kathleen Vallee Stein

Learn about the hospice experience from the perspective of a family member.

My guest Kathleen Vallee Stein worked for the California Department of Aging and has written numerous articles on caring for aging patents for more than twenty years. Her work has been published in the Christian Science Monitor, Los Angeles Times, Los Angeles Daily News, Pasadena Star-News, Orange County Register, and the Jewish Journal. Recently she has written a book about her family’s experiences as her father faced the end of life called Loving Choices, Peaceful Passing: Why My Family Chose Hospice, and today she’ll share insights from that hospice journey with her father. Learn more at her website:

www.valleeview.com

Listen here:

This episode includes:

  • How her family made the decision to choose hospice for her father
  • The challenges of having conversations about hospice with a loved one at the end of life
  • How the family had to bring up hospice with the doctor initially but he was helpful after that point
  • The relief experienced by the entire family and the patient once they made the decision to stop curative treatment and to enroll in hospice
  • Negative misperceptions about hospice are an obstacle to early admission
  • How her father’s temperament changed for the better after going on hospice
  • Why Kathleen hired in-home professional caregivers even though her parents were initially opposed to it
  • How they managed their parents’ financial issues as a family
  • Dealing with old family conflicts that arise at the end of life
  • How the hospice chaplain made a big difference for her father
  • The many positive surprises that arose during her father’s end of life
  • How they planned the funeral and made decisions about disposition
  • How she and her mother grew closer through the challenges of caring for her father at the end of life
  • Advice to those considering hospice for a loved one
  • Hope and “precious time” with her father in his last days

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference.

EOLPodcast

Ep. 340 Caregiver Crisis: Meeting the Needs of the Future with Jessica Zitter MD

Learn about the current crisis in family caregiving and what you can do to help.

My guest Dr. Jessica Zitter is a specialist in Critical Care and Palliative Care medicine and the author of the book Extreme Measures: Finding a Better Path to the End of Life. Her work is featured in the documentary Extremis as well as her new film, Caregiver: A Love Story. Today she discusses the current crisis situation for family caregivers who are drastically overworked with little support. This is one of the most important topics we can address for the future! Learn more at these websites:

www.jessicazitter.com

www.caregiveralovestory.com

Read the transcript here. Watch video on YouTube

Listen here:

This episode includes:

  • What inspired Jessica to create Caregiver: A Love Story
  • How film is a compelling medium for encouraging people to change their behavior
  • How medical providers are often unaware of the stresses facing family caregivers
  • More people are now dying at home than in the hospital which means there is huge need for caregivers
  • 1 out of 5 Americans is caring for a loved one at home
  • The burden experienced by caregivers is physical, mental and financial
  • We need a workplace culture that supports caregivers
  • Family caregivers are providing billions of dollars of unpaid work for an average of 4.5 years
  • Hospitals and doctors are doing a poor job of preparing caregivers for the tasks they will face – The Care Act requires them to provide education (but it’s not happening)
  • Hospice staffs are also burdened by the caregiver crisis
  • We also need to build up and support professional paid caregivers

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference.

EOLPodcast

Ep. 337 The Hospice Doctor’s Widow: A Caregiver’s Journal with Jennifer O’Brien

Learn about a beautiful, artistic journal that explores the caregiver’s journey through dying and grief.

My guest this week is Jennifer O’Brien, author of the creative, gorgeous journal: The Hospice Doctor’s Widow. She discusses her journey as she cared for her husband who was a hospice and palliative care physician diagnosed with stage 4 cancer. We talk about grief and loss and caregiving in this intimate conversation. Learn more at her website:

www.hospicedrswidow.com

Get the book here

Listen here:

This episode includes:

  • Why this book is ideal for caregivers and people dealing with grief
  • How Jennifer created the art for the book
  • How Jennifer incorporated her husband’s wisdom into the book
  • What is “Precious Time” and how did that inform the way she and Bob spent his last days of life together
  • Navigating anticipatory grief for caregivers
  • Why the patient and the caregiver are going through two different processes
  • Why the survivors’ journey can be more difficult than the patient’s journey
  • What is the Triad of Certainty
  • Advice for caregivers
  • The At Peace Toolkit – A Guide to Being at Peace with End of Life

‘Precious Time’ is when you say what you need to say and don’t say what you will later regret.”

from The Hospice Doctor’s Widow by Jennifer O’Brien
  • A Year of Reading Dangerously – Register here
  • Get the At Peace Toolkit from Jennifer here

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my new patrons G. Thackrey and Mary Susan Graham! Your contributions make all the difference.

EOLPodcast

Ep. 332 Technology Advances for End-of-Life Care with Jeremy Powell

Learn about exciting new technology that promises to help more patients be referred for hospice and palliative care in a timely manner.

My guest Jeremy Powell is the Founder and Chief Executive Officer of Acclivity Health Solutions, a company that aims to transform the management of advanced illness while honoring the patient’s dignity, goals and values. He discusses how technology can help us solve some of the greatest challenges we face in the provision of end-of-life care and why we should embrace technology rather than feel intimidated by it. Learn more at the website:

www.acclivityhealth.com

Listen here:

This episode includes:

  • Current healthcare challenges (including hospice and palliative care) that urgently need to be addressed
  • How COVID-19 has impacted these challenges
  • What technology is being developed to address the challenges facing hospice and palliative care
  • How Machine Learning can provide data that leads to more timely referrals to hospice and palliative care
  • Why lack of interoperability in electronic health records is a deterrent to good patient care
  • How the “3rd Platform” for EHR’s will deconstruct the silos that have existed in healthcare
  • How COVID-19 helped accelerate acceptance of telemedicine
  • Why it’s necessary to look at healthcare finances in order to ensure the survival of hospice in the future
  • Why a technology-driven approach to care does not threaten but can enhance patient-centered care at end of life

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my new patrons Mary Ganapol and Katherine Pettus! Your contributions make all the difference.

EOLPodcast

Ep. 325 Palliative Care: What’s Needed Now and in the Future with John Mulder MD

Learn how palliative care can meet the healthcare needs of the future.

My guest Dr. John Mulder is a pioneering member of the palliative care specialty. He currently serves as chief medical consultant for hospice and palliative car at Holland Home, the largest provider of elder care services in Michigan. He also serves as executive director for the Trillium Institute, which provides education for clinicians on managing serious and terminal illness. He discusses some of the challenges facing palliative care currently and in the future of this specialty. Learn more at this website:

www.trilliuminstitute.org

Listen here:

This episode includes:

  • The differences between hospice and palliative care
  • Why the general public and physicians need to reframe their understanding of palliative care
  • Why the 6 months criteria for hospice admission often interferes with patients receiving care that they need
  • Should hospice and palliative care “rebrand” or “rename” in order to overcome stigmas
  • Why referring patients to palliative care could help physicians with burnout
  • How palliative care can improve patient outcomes and quality of life
  • How physicians can better educate their peers about palliative care and hospice
  • What changes will be needed to meet the rising demands of the aging baby boomer population
  • Why primary palliative care training will be essential in the future
  • The importance of attracting new talent to the speciality
  • How technology may evolve in the future to assist with referrals to palliative and hospice care
  • Dr. Mulder’s new podcast: Palliative Matters

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my new patrons Monica Czaplinski and Jeannie Canepa! Your contributions make all the difference.

EOLPodcast

Ep. 319 At the Bedside: Tools for Caring for the Dying with Gabrielle Elise Jimenez

Learn how this hospice nurse and end-of-life doula is making a difference by sharing the tools she has learned.

My guest Gabrielle Elise Jimenez is a hospice nurse, end-of-life doula and conscious dying educator. She is also the author of three books intended to teach others how to provide care to their own dying loved ones. She talks about the tools she feels are most important for caregivers to learn and she also shares information about her Facebook page that exploded with new members when people started posting about their grief. Learn more about her books and courses at her website:

www.thehospiceheart.net

Get her books here

Listen here:

This episode includes:

  • How Gabby ended up becoming a hospice nurse and an end-of-life doula
  • The tools needed to care for a dying loved one at home
  • How to help families with grief in hospice
  • How Gabby tapped into the huge need for grief support that exists in our world right now
  • Advice for healthcare professionals who need to recognize their own grief
  • How to stay in balance while doing emotionally challenging work
  • The impact of COVID on hospice workers
  • 3 things everyone should know about death and dying
  • How to live our best lives by recognizing that we will die one day

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference.

EOLPodcast

Ep. 288 PEACH: Palliative Education and Care for the Homeless with Dr. Naheed Dosani

Learn about an innovative program to provide end-of-life care to people living on the streets and in shelters in Toronto.

My guest Dr. Naheed Dosani is the founder of PEACH, a mobile outreach program that provides palliative care to the homeless on the streets and in the shelters of Toronto. His model led to the development of Journey Home Hospice, Toronto’s first hospice for the homeless, which opened in May 2018. He’ll share how and why he started PEACH and inspire all of us to be more aware of and active in dealing with the issues of homelessness and health inequities in our communities. Learn more about PEACH at this webpage:

http://www.icha-toronto.ca/peach-covid-19-palliative-care-resources-for-physicians-and-frontline-workers

Follow Dr. Dosani:

Listen here:

This episode includes:

  • What inspired Naheed to create a palliative care program for homeless people
  • How PEACH functions and provides care for patients on the streets and in shelters
  • Why there is a great need for palliative care for the homeless population
  • Health issues faced by homeless people and their shockingly low life expectancy
  • How to replicate PEACH in other cities and countries
  • Trauma-informed care and why it is needed for all patients, including those who are homeless
  • Why we need systemic change in medicine to provide more equitable care to all people
  • Dealing with grief, compassion fatigue and moral injury for healthcare providers
  • Why we’re facing a global pandemic of grief due to COVID-19

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference!

EOLPodcast, Hospice

Ep. 258 The Heart of Hospice: Supporting the End-of-Life Journey with Helen Bauer and Jerry Fenter

Learn about the issues facing hospice care in the US and how the “heart” of hospice is essential for end-of-life care.

My guests today, Helen Bauer RN and Jerry Fenter, are the hosts of the popular podcast The Heart of Hospice. Having worked as a hospice nurse and hospice chaplain, these two are passionate about offering education and support to anyone who needs information about end-of-life care. Their projects include advance care planning, resources for professional and personal caregivers, and consultations with hospices about staff education. Learn more about their work at their website:

www.theheartofhospice.com

Listen here:

This episode includes:

  • Why Helen and Jerry started The Heart of Hospice
  • The challenge of educating the public and medical professionals about the benefits of hospice care
  • How COVID-19 is impacting hospice care right now
  • Other difficulties facing hospice care in the US
  • Reasons to be hopeful about the future of hospice
  • Self-care tips for professional and personal caregivers
  • The importance of memorial services for hospice staff to process grief
  • Resources available from their website

POEM: Compassion by Miller Williams

"Have compassion for everyone you meet 
even if they don’t want it. What seems conceit, 
bad manners or cynicism is always a sign 
of things no ears have heard, no eyes have seen. 
You do not know what wars are going on 
down there where the spirit meets the bone.”

From -  Healing the Divide: Poems of Kindness and Connection - 
edited by James Crews

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference!

End of Life, EOLPodcast

Ep. 227 Approaching the Tipping Point: Looking Back at a Decade of Change and Ahead to 2020

Learn how changes that began in the last decade foreshadow future growth in the death-positive movement.

In this final solo episode for 2019 I take a look back at some of the significant events of the past decade that helped to move forward the end-of-life movement. Then I share some tips and insights for continuing the momentum for positive change and increased death awareness in 2020. Find out how you can be part of the future as we move toward better care of the dying and the dead in our society.

Listen here:

This episode includes:

  • Previous events that helped set the stage for the momentum of the past decade (e.g. Five Wishes, Green Burial Council, Suzanne O’Brien’s community training for doulas)
  • Major movements of the past decade that have helped shift the narrative on death and dying:
    • National Home Funeral Alliance
    • The Conversation Project
    • Death Cafe
    • Ask a Mortician with Caitlin Doughty
    • Confessions of a Funeral Director with Caleb Wilde
    • Death Over Dinner
    • Atul Gawande’s book Being Mortal
    • Recompose (formerly the Urban Death Project)
    • Brittany Maynard’s quest for death with dignity
    • formation of the EOL Doula Council
  • What we have learned from the natural childbirth movement
  • Tips for continuing the momentum in 2020:
    • Don’t wait – the time is now
    • It will take all of us to create change – form coalitions and collaborations
    • Create a unified message for the cause
    • Education is critical
    • Tailor the message for specific groups
    • Be in it for the long haul (growth takes time)

Links mentioned in this episode:

  • Episode 145 and 146: What the EOL Movement Can Learn from the Natural Childbirth Movement
  • Episode 128: Why We Need Death Ed for Everyone Right Now
  • Interview with Deanna Cochran on EOL doula movement
  • Episode 186: How to Bring Death Doulas to the Hospice Team
  • Join the team at Patreon.com/eolu and get access to the EOLU mug“Mind if we talk about death?” (only Patrons can purchase it). PLUS get our new bonuses: the monthly EOL News Update, movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest Patron Delana Schneider, your contributions make all the difference!

End of Life, EOLPodcast, Hospice

Ep. 221 Hospice and Palliative Care: Know the Difference

Understand the basic facts about hospice and palliative care, what they have in common, and what makes them different.

PodcastHospicePall

In this “EOL 101” episode I explain the difference between hospice and palliative care. This is an important piece of information for people making choices around end-of-life care and an area where there are many misconceptions. We all need to be well-versed in EOL options for our own needs and also so that we can help educate others. I’ll offer additional “explainer” episodes in the future!

Listen here:

 

This episode includes:

  • Who is on the palliative care (and hospice) team
  • Whole-person care is offered by both services
  • Who is eligible for palliative care
  • How and why to enroll in palliative care
  • The criteria for admission to hospice
    • Terminal diagnosis
    • 6 months from end of life
    • Forego curative treatment
  • Both hospice and palliative care provide symptom-based, comfort care that focuses on quality of life
  • The main differences between hospice and palliative care (including financial considerations)
  • Why you should choose both types of care if possible (first palliative then transfer to hospice)
  • Why some patients may not choose hospice care but should still opt for palliative care

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest Patrons: Lisa Monroe, Deb Pazderka, Debbie Henkemeyer, and Molly Byock; your contributions make all the difference!

End of Life, EOLPodcast, Hospice

Ep. 216 Hospice Under Threat: How to Protect Patient-Centered End-of-Life Care with Jeff Lycan

Learn about the “dark side” of the hospice business and how to identify and support organizations that are truly patient-centered.

PodcastEOLU19Lycan

My guest Jeffrey Lycan has spent the last 21 years of his  hospice and palliative care nursing career as an advocate for improving care and quality of life for patients at the end of life. He will discuss the recent alarming reports issued by the OIG (Office of the Inspector General) about instances of negligent care in some hospices, the worrisome trend toward profit-centered rather than patient-centered care, and how to support community-based hospices that are preserving Cicely Saunders’ legacy of end-of-life care. Learn about the Why It Matters Campaign he has started:

www.ohioshospice.org/whyitmatters

Listen here:

 

This episode includes:

  • The two OIG reports from July 2019 that exposed fraudulent and negligent care in some hospices (see links below)
  • What a “deficiency” in a hospice survey actually means
  •  Business changes in the hospice industry that have contributed to flaws in the care being offered
  • How some hospices now focus on profit first rather than patient care first
  • How profiteering harms the hospice system, patients and staff
  • New MedPAC proposal for lowering the annual per patient cap for hospices and why it may be a good thing
  • How consumers can choose the best hospice for their loved ones
  • How to register a complaint about hospice care
  • The campaign Why It Matters: Preserving the Legacy of Hospice

As originally championed by Cicely Saunders, MD, the founder of the modern hospice movement, the hospice model of care was based on providing end-of-life care with both compassion and science, and offering this care through engaged community-based, not- for-profit programs.

-from Why It Matters Website

ANNOUNCING:

FREE Webinar with Jane Barton: The Loneliness Epidemic

Register here.

BartonWebinarloneliness

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on Patreon.com/eoluespecially Susan Baumhammer, your contribution means  everything to me!

End of Life, EOLPodcast, Hospice

Ep. 201 Nurturing Touch as a Tool for Care of Hospice Patients with Elizabeth Erbrecht

Learn about the power of touch to bring comfort and dignity to patients at the end of life.

PodcastErbrecht

My guest Elizabeth Erbrecht is a massage therapist and end-of-life doula who specializes in touch and massage for the dying. We’ll talk about the importance of touch for all of us and especially for patients at the end of life. Elizabeth shares information from her guide book Nurturing Touch for the Dying and how to get comfortable touching our dying patients. Learn more at her website:

www.elizabetherbrecht.com

nurturingtouch

Get the book here.

Listen here.

 

This episode includes:

  • The importance of touch for human survival and wellbeing
  • The common fears of touching dying patients
  • How to use touch to support a dying loved one in a gentle, safe way
  • What to consider before using essential oils on a dying patient
  • “Safe zones” for initiating touch with patients
  • Why the ability to be present is essential for the power of touch
  • How simple touch can help people relax and let go during the active dying process

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on Patreon.com/eolu!

EOLPodcast, Hospice, Spirituality

Ep. 196 The Doctor Who Became a Doula to Improve End-of-Life Care with Jackie Yeager MD

Learn how death doula training helped this physician find more meaning and fulfillment in her end-of-life medical practice.

PodcastYeager

My guest Dr. Jackie Yeager is a hospice and palliative care physician who has also trained as a death doula in order to provide the best possible care to her patients. She discusses her passion for slow medicine, especially at the end of life, and describes a new course she is launching on medical information for caregivers and death doulas. Learn more about the Informed Caregiver Course at her website:

www.informedcaregiver.com

Listen here:

 

This interview includes:

  • Why Dr. Jackie decided to become a death doula
  • What is “slow medicine” and why it is important
  • How mindfulness and spiritual practice help her be a better doctor
  • How death doulas augment traditional hospice care
  • How physicians struggle with grief over the deaths of patients
  • The scope of practice for a death doula
  • What is included in Dr. Jackie’s Informed Caregiver Course

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on Patreon.com/eolu, especially my new Patrons: Kimberly Ogle, Linda McCarthy and Sherilee Bakken!

 

 

End of Life, EOLPodcast

Ep. 175 The Highlights of 2018 and What’s New for Next Year!

Learn about the best of EOLU in 2018 and how to catch up if you missed any of these events!

PodcastNewYear

“Death Education for Everyone” was the theme for 2018 and we’ll review all the great educational content that was provided in the past year. It’s not too late to listen in on the best webinars and interviews of the year before we get started on a brand new season of EOLU! Check out the links for the events you’ve missed in the description below.

Happy New Year to each and every one of you!

 

ANNOUNCEMENTS:

BIG NEWS!! Starting in 2019 the EOLU Interview Series will merge with the EOLU Podcast – so all the great interviews you are used to hearing on the interview series will now be available as podcast episodes. This means you can subscribe to the podcast and listen to the interviews on your phone while you are on the go! In addition you’ll be able to hear the solo episodes (like this one) where I share my wisdom, inspiration, and ideas for embracing the end of life and living fully today.

You can subscribe to the podcast at one of the following links (whichever podcast app you use):

Subscribe on Apple Podcasts (Click “View in iTunes” then click “Subscribe”)

Subscribe on Stitcher

You can also listen to the episodes at www.eolupodcast.com.

Thanks for all of your support in 2018! I appreciate you for listening in and encouraging me to keep going. And I’m especially grateful to those of you who have become patrons on my donation page at Patreon.com/eolu: you make my heart sing!

FEATURE PRESENTATION:

2018 has been a wonderful year for EOLU that began with a goal of supporting “Death Education for Everyone.”  In support of that goal the following programs were created:

  • A Year of Reading Dangerously online reading group; we’ve read one book a month this year and held 9 live book discussions with authors of the books in attendance. Nearly 1,000 readers from around the world have joined together to read the same book at the same time. We’ve all learned a lot about death, dying and the afterlife and have had fun in the process!

View the books and discussions from 2018 here.

Join the reading group here (if you haven’t already signed up!)

  • Teaching Guidelines for a Death and Dying Class – this free pdf was made available to hundreds of people interested in teaching about end of life issues. You can still get the Guidelines here.
  • Workshop on How to Teach a Death and Dying Class successfully helped launch dozens of classes around the country and culminated in 5 students creating online webinars, which you can view here.
  • Promoted Cathy Zheutlin’s new film “Living While Dying” as an excellent tool for teaching community members about death and dying. Learn more about the film here.
  • Co-hosted 3 teaching webinars that were very well received. If you missed these there’s still time to watch:
    • “End-of-Life Doula Training for Caregivers and Volunteers” with Suzanne O’Brien of Doulagivers.com. View the webinar here.
    • “Bridge Time: The Consequences of Change” with Jane Barton of Cardinalife.com; she talks about how caregivers can become more resilient in the face of change. View the webinar here.
    • “Collaborative Care for Caregivers: How to Ask for Help” with Jane Barton. View the webinar here.

The “best” interviews of 2018 (though they were all fantastic!);

  • Hansa Bergwall talking about the WeCroak app he created for smart phones that reminds you of your mortality 5 times a day.  Listen here.
  • Dr. Bob Uslander who has pioneered a new concierge model of end-of-life care, which could be a game-changer for the medical system and how we help patients navigate their last days. Listen here.
  • Alua Arthur of Going With Grace talked about the legal issues that can occur after death and how to prepare for them in advance. Listen here.
  • Deanna Cochran RN and Suzanne O’Brien RN both talked about the creation of the End-of-Life Doula Council by the NHPCO and the National End-of-Life Doula Alliance, which now provides certification training for doulas. Listen to Deanna’s interview here. Listen to Suzanne’s interview here.
  • Cheryl Jones of Good Grief Radio Show talked about end-of-life issues and the LGBTQ community. Listen here.
  • Jonathan Bartels RN discussed The Medical Pause which he initiated to show respect after the death of a patient at his hospital and has now spread around the world! Listen here.
  • Michael Hebb talked about founding Death Over Dinner. Listen here.
  • Joe Primo of Good-Grief.org discussed helping children with grief and how to include them in the experience of death and dying. Listen here.

For 2019 I’ll still be focusing on education as the primary goal of EOLU along with collaboration with other change-makers and this unifying message:

Let’s do dying and death better!

  • A Year of Reading Dangerously will continue! View the book list here.
  • There will be another workshop on How to Teach a Death and Dying Class (stay tuned to future podcasts for more information)
  • More webinars (TBD)
  • Speaking engagements (announcements coming soon)

Thank you for listening to the podcast and for leaving reviews on iTunes (they make a big difference!)

Tune in every week for a new episode! Until next time remember:

Face Your Fear         BE Ready          Love Your Life

karen-signature

 

 

End of Life, EOLPodcast

Ep. 165 Part 4: The Palliative Care Team Chaplain with Stephanie Ryu

PodcastPallRyu

 

 

ProvidenceRyuITIn Part 4 of our series on palliative care I share an interview with Stephanie Ryu a palliative care chaplain. She’ll discuss her role providing spiritual support to patients with advanced illness. 

Learn more about palliative care here.

ANNOUNCEMENTS:

madrid-2713916_640My awesome Spain trip is at an end as this episode airs and I’ll be making my way back to Colorado! You can check out all of my pictures on Instagram at kwyattmd!

Tune in next week to hear my stories from Spain!

FEATURE PRESENTATION:

In this presentation Stephanie Ryu will discuss her role as a chaplain on the palliative care team.

You will learn:

  • How the work of a palliative care chaplain differs from other chaplaincy work
  • The role of spiritual care in the whole-person approach to illness and healing
  • The importance of spirituality at the end of life
  • How chaplains assist patients of all religions and those who follow no religion

Stephanie Ryu is a graduate of St. Xavier University and Fuller Theological Seminary. She completed CPE Residency at Providence St. Joseph – Burbank in 2012-13 along with a 6-month fellowship in hospice and palliative care. She now serves as a Palliative Care Chaplain for Providence Health and Services.

Tune in next week for a brand new episode!! If you like this content consider leaving a review on iTunes.

Until next time …

Face Your Fear         BE Ready         Love Your Life

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End of Life, EOLPodcast

Ep. 164 Part 3: The Palliative Care Team Social Worker with Andrea Strouth MSW

PodcastPallStrouth

 

 

ProvidenceStrouthIn Part 3 of our series on palliative care I share an interview with Andrea Strouth MSW a social worker on the palliative care team. She’ll talk about her role on the team to help us understand why social workers play an important part in the care of patients with advanced illness.

Learn more about palliative care here.

ANNOUNCEMENTS:

sagrada-familia-392009_640At the time of this broadcast I’m still enjoying my Spain trip – probably eating some tapas in Barcelona! I’ll be returning home in a few weeks but meanwhile check out my photos on Instagram at kwyattmd!

 

 

FEATURE PRESENTATION:

In this presentation Andrea Strouth LCSW, MSW will discuss the role of the social worker on the palliative care team.

You will learn:

  • The duties of the palliative care team social worker
  • Why palliative patients might need social work services
  • How the multidisciplinary palliative care team functions as a unit
  • The rewards of working on a palliative care team

Andrea Strouth received her MSW from the University of Pennsylvania. She is currently working at Providence Health & Services-Southern California to help develop their outpatient palliative care program. Previously, Andrea worked at the Abramson Cancer Center at Penn Medicine and in the Medical and Cardiothoracic Intensive Care Units at Hahnemann University Hospital in Philadelphia, Pennsylvania. Her passion lies in advanced care planning and education surrounding end-of-life issues to ensure patients feel empowered in every aspect of their care.

Tune in next Monday for Part 4 of this series. If you find this content helpful please share it with other and consider leaving a review on iTunes! Also your contributions to my page at Patreon.com/eolu are always appreciated!

Until next time …

Face Your Fear         BE Ready           Love Your Life

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End of Life, EOLPodcast

Ep. 163 Part 2: The Palliative Care Team Nurse with Rebekah Riemer RN

PodcastPallRiemer

 

 

Providencebeka (002)In Part 2 of our series on palliative care I share an interview with Rebekah Riemer a palliative care nurse. She’ll talk about her role on the team and why she decided to specialize in palliative care nursing.

Learn more about palliative care here.

ANNOUNCEMENTS:

flamencoMy Spain trip continues this week as I visit more of Andalucia and take in some flamenco dancing.  I’ll be returning home in a few weeks but meanwhile check out my photos on Instagram at kwyattmd!

 

FEATURE PRESENTATION:

In this presentation Rebekah Riemer RN will discuss the role of the nurse on the palliative care team and her own story of being called to work in palliative.

You will learn:

  • How Beka was introduced to palliative care as a family member of a patient and a patient herself
  • The typical duties of a palliative care nurse
  • How palliative care meets the physical, emotional and spiritual needs of patients and their families
  • The most common misperceptions about palliative care for the public and for healthcare providers

Rebekah “Beka” Riemer, RN, CCRN was an intensive care nurse for over eight years, working in surgical as well as medical ICUs and currently works as the Nurse Coordinator on the Inpatient Palliative Care Team at Providence Little Company of Mary in Torrance, California. She is on the team working towards the recertification of the Joint Commission’s Advanced Certification for Palliative Care. She serves on the Critical Care Committee representing nursing and Palliative Care, as well as on the Ethics Committee and Mortality Committee.

In addition, Ms. Riemer volunteers at the Leukemia Lymphoma Society of America (LLSA), Los Angeles, CA chapter. In 2013, she was 1st runner up for Woman of the Year, as she raised over $50,000 for leukemia/lymphoma research for the LLSA. Ms. Riemer has been an ELNEC-Critical Care faculty member for over five years.

She also spoke at the National Teaching Institute for Critical Care Nurses in 2017, speaking about the importance of integrating Palliative Care in Critical Care settings. She will also be published in the 5th edition of the Oxford Textbook for Palliative Care Nursing in the seventh chapter titled, “ Interdisciplinary Palliative Care Teams: Specialists in Delivering Palliative Care”.

Tune in next Monday for Part 3 of our series on palliative care! If you enjoy this content please share it with others who might find it helpful and consider leaving a review on iTunes!

Until next time …

Face Your Fear       BE Ready        Love Your Life

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End of Life, EOLPodcast, Hospice

Ep. 162 Part 1: The Palliative Care Team Physician with Colin Scibetta MD

PodcastPallScibetta

 

 

ProvidencescibettaThis episode is the first of a 4-part series that introduces you to the members of a palliative care team. Today Dr. Colin Scibetta discusses his role as the physician on the team and how palliative care differs from hospice care. In future episodes you’ll hear from the team nurse, social worker and chaplain.

 

ANNOUNCEMENTS:

grenade-1285671_640As this episode airs I am enjoying a trip through Spain, including cycling in the Andalucia region! I’ll be back home in a few weeks to report on the trip. Follow me on Instagram to see my photos at kwyattmd or this link: https://www.instagram.com/kwyattmd/

 

FEATURE PRESENTATION:

This interview will cover:

  • What palliative care consists of
  • The difference between palliative care and hospice
  • The benefits of palliative care for patients
  • How the whole-person approach of palliative medicine also benefits care providers
  • Why Providence Institute for Human Caring (et al) was awarded the Circle of Life Award from the American Hospital Association

 

Colin Scibetta MD is a fellowship-trained palliative medicine physician who complete his undergrad in neuroscience and biology at Wesleyan University. He then moved to Ecuador where he worked on a health initiative for indigenous communities impacted by oil development. Dr. Scibetta did his undergraduate medical training at the University of California, San Francisco School of Medicine, where he also completed an internal medicine residency and a fellowship in hospice and palliative medicine.

Remember to tune in next week for Part 2 of this palliative care series! If you enjoy this content be sure to share it with others who might find it helpful and consider leaving a review on iTunes. 

Until next time …

Face Your Fear          BE Ready           Love Your Life

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End of Life, EOLPodcast

Ep. 161 Needs of the LGBTQ Community at the End of Life with Cheryl Jones

PodcastJones

 

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CherylJonesheadshotIn this episode I share an interview with Cheryl Jones, host of the Good Grief Radio Show, therapist and author of the newly-released novel An Ocean Between Them. We talk about the important subject of meeting the needs of members of the LGBTQ community at the end of life, which is part of the story told in her new book. Learn about Cheryl’s work here.

Get her book here.

ANNOUNCEMENTS:

sevilleI’ll be leaving for Spain in just a few days! While I’m traveling you will be able to listen to a 4-part series on Palliative Care during this podcast so you won’t miss a single episode! If you’re interested you can follow my photos on Instagram at kwyattmd!

A HUGE THANK YOU to my latest supporters on Patreon.com/eolu: Lisa Milton, Debbie Hall and Christine Hazard Phillips. Your contributions are greatly appreciated and help keep this podcast and the EOLU Interview Series on the air. Join the team to get special bonus content!

CSU Institute for Palliative Care is holding a National Symposium on Palliative Care in San Diego October 11-12. Go to CSUpalliativecare.org to learn more.

FEATURE PRESENTATION:

My guest Cheryl Jones is a grief counselor, host of the Good Grief Radio Show on VoiceAmerica, and the author of the newly-released novel An Ocean Between Them. We will discuss the challenges that LGBTQ people experience in receiving care at the end of life and ways to make our organizations and facilities more inclusive.

In this interview you will learn:
  • Why members of the LGBTQ community access less healthcare than the general populatioN
  • Obstacles faced by LGBTQ individuals in receiving care in residential facilities, hospices, hospitals
  • Why a durable medical power of attorney is an essential document for all LGBTQ individuals
  • How the organization SAGE advocates for LGBTQ seniors
  • How to find common ground in end-of-life care even when we don’t agree on lifestyle choices
  • About post-traumatic growth and why it’s important to foster
  • Ways to create an LGBTQ-supportive environment in your organization or business
  • About Cheryl’s novel that addresses the challenges of LGBTQ relationships with family at the end of life

Cheryl Jones is the host of the radio show Good Grief. She is also a grief counselor and cancer educator. During her education as a Marriage and Family Therapist, her first wife was diagnosed with Multiple Myeloma, which was at the time a uniformly terminal illness with a six month to one year prognosis. In the eight + years that followed, Cheryl engaged daily in the work of preparing for her death. She received training during this period from Stephen and Ondrea Levine (Who Dies and Grieving Into Life and Death) and Richard Olney (founder of Self-Acceptance Training). After her wife’s death, Cheryl immersed herself in her own multifaceted grief, surprised by frequent moments of joy.

Cheryl is a consultant and group leader at the Free Therapy Program of the Women’s Cancer Resource Center, where she developed, manages and teachies in their Continuing Education program. She has trained extensively with Erving Polster, leader in the field of gestalt therapy and author of Everybody’s Life is worth a Novel. She was Clinical Director at the Alternative Family Project, which served the therapeutic needs of LGBTQ families in San Francisco. Finally she is the author of the recently published novel: An Ocean Between Them.

Get the book here.

Website: www.weatheringgrief.com

Tune in every Monday for a new episode (even when I’m traveling!) If you enjoy this content please share it with a friend and consider leaving a review on iTunes.

Until next time …

Face Your Fear             BE Ready              Love Your Life

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