EOLPodcast

Ep. 349 Why My Family Chose Hospice with Kathleen Vallee Stein

Learn about the hospice experience from the perspective of a family member.

My guest Kathleen Vallee Stein worked for the California Department of Aging and has written numerous articles on caring for aging patents for more than twenty years. Her work has been published in the Christian Science Monitor, Los Angeles Times, Los Angeles Daily News, Pasadena Star-News, Orange County Register, and the Jewish Journal. Recently she has written a book about her family’s experiences as her father faced the end of life called Loving Choices, Peaceful Passing: Why My Family Chose Hospice, and today she’ll share insights from that hospice journey with her father. Learn more at her website:

www.valleeview.com

Listen here:

This episode includes:

  • How her family made the decision to choose hospice for her father
  • The challenges of having conversations about hospice with a loved one at the end of life
  • How the family had to bring up hospice with the doctor initially but he was helpful after that point
  • The relief experienced by the entire family and the patient once they made the decision to stop curative treatment and to enroll in hospice
  • Negative misperceptions about hospice are an obstacle to early admission
  • How her father’s temperament changed for the better after going on hospice
  • Why Kathleen hired in-home professional caregivers even though her parents were initially opposed to it
  • How they managed their parents’ financial issues as a family
  • Dealing with old family conflicts that arise at the end of life
  • How the hospice chaplain made a big difference for her father
  • The many positive surprises that arose during her father’s end of life
  • How they planned the funeral and made decisions about disposition
  • How she and her mother grew closer through the challenges of caring for her father at the end of life
  • Advice to those considering hospice for a loved one
  • Hope and “precious time” with her father in his last days

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference.

EOLPodcast

Ep. 340 Caregiver Crisis: Meeting the Needs of the Future with Jessica Zitter MD

Learn about the current crisis in family caregiving and what you can do to help.

My guest Dr. Jessica Zitter is a specialist in Critical Care and Palliative Care medicine and the author of the book Extreme Measures: Finding a Better Path to the End of Life. Her work is featured in the documentary Extremis as well as her new film, Caregiver: A Love Story. Today she discusses the current crisis situation for family caregivers who are drastically overworked with little support. This is one of the most important topics we can address for the future! Learn more at these websites:

www.jessicazitter.com

www.caregiveralovestory.com

Read the transcript here. Watch video on YouTube

Listen here:

This episode includes:

  • What inspired Jessica to create Caregiver: A Love Story
  • How film is a compelling medium for encouraging people to change their behavior
  • How medical providers are often unaware of the stresses facing family caregivers
  • More people are now dying at home than in the hospital which means there is huge need for caregivers
  • 1 out of 5 Americans is caring for a loved one at home
  • The burden experienced by caregivers is physical, mental and financial
  • We need a workplace culture that supports caregivers
  • Family caregivers are providing billions of dollars of unpaid work for an average of 4.5 years
  • Hospitals and doctors are doing a poor job of preparing caregivers for the tasks they will face – The Care Act requires them to provide education (but it’s not happening)
  • Hospice staffs are also burdened by the caregiver crisis
  • We also need to build up and support professional paid caregivers

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference.

EOLPodcast

Ep. 339 Feng Shui for Hospice Patients with Char Tarashanti

Learn how paying attention to the small details of the surroundings can make a big difference in the wellbeing of hospice patients.

My guest Char Tarashanti is a retired Hospice Chaplain and Certified Feng Shui Consultant. She shares how the principles of Feng Shui can be applied to the care of hospice patients and improve the physical environment as well as the harmony and balance of the space. Her practical suggestions make it simple for any of us to create more pleasing and appealing surroundings for people at the end of life. Download her handout here:

Handout

Read Transcript

Listen here:

This episode includes:

  • What is Feng Shui
  • How death is viewed within the Feng Shui tradition
  • How Char became interested in Feng Shui and in hospice work
  • The benefits for patient and caregiver of creating a more harmonious space
  • The essential elements of Feng Shui and how to apply them to a hospice room
  • How to manage clutter and get better organized in a home hospice setting
  • The two most important features of Feng Shui for hospice patients
  • How caregivers should communicate about any changes being made in the home before beginning the process

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my new patrons Aby Fy and Anne Janssen and to Richard Schneider for increasing your monthly pledge! Your contributions make all the difference.

EOLPodcast

Ep. 337 The Hospice Doctor’s Widow: A Caregiver’s Journal with Jennifer O’Brien

Learn about a beautiful, artistic journal that explores the caregiver’s journey through dying and grief.

My guest this week is Jennifer O’Brien, author of the creative, gorgeous journal: The Hospice Doctor’s Widow. She discusses her journey as she cared for her husband who was a hospice and palliative care physician diagnosed with stage 4 cancer. We talk about grief and loss and caregiving in this intimate conversation. Learn more at her website:

www.hospicedrswidow.com

Get the book here

Listen here:

This episode includes:

  • Why this book is ideal for caregivers and people dealing with grief
  • How Jennifer created the art for the book
  • How Jennifer incorporated her husband’s wisdom into the book
  • What is “Precious Time” and how did that inform the way she and Bob spent his last days of life together
  • Navigating anticipatory grief for caregivers
  • Why the patient and the caregiver are going through two different processes
  • Why the survivors’ journey can be more difficult than the patient’s journey
  • What is the Triad of Certainty
  • Advice for caregivers
  • The At Peace Toolkit – A Guide to Being at Peace with End of Life

‘Precious Time’ is when you say what you need to say and don’t say what you will later regret.”

from The Hospice Doctor’s Widow by Jennifer O’Brien
  • A Year of Reading Dangerously – Register here
  • Get the At Peace Toolkit from Jennifer here

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my new patrons G. Thackrey and Mary Susan Graham! Your contributions make all the difference.

EOLPodcast

Ep. 332 Technology Advances for End-of-Life Care with Jeremy Powell

Learn about exciting new technology that promises to help more patients be referred for hospice and palliative care in a timely manner.

My guest Jeremy Powell is the Founder and Chief Executive Officer of Acclivity Health Solutions, a company that aims to transform the management of advanced illness while honoring the patient’s dignity, goals and values. He discusses how technology can help us solve some of the greatest challenges we face in the provision of end-of-life care and why we should embrace technology rather than feel intimidated by it. Learn more at the website:

www.acclivityhealth.com

Listen here:

This episode includes:

  • Current healthcare challenges (including hospice and palliative care) that urgently need to be addressed
  • How COVID-19 has impacted these challenges
  • What technology is being developed to address the challenges facing hospice and palliative care
  • How Machine Learning can provide data that leads to more timely referrals to hospice and palliative care
  • Why lack of interoperability in electronic health records is a deterrent to good patient care
  • How the “3rd Platform” for EHR’s will deconstruct the silos that have existed in healthcare
  • How COVID-19 helped accelerate acceptance of telemedicine
  • Why it’s necessary to look at healthcare finances in order to ensure the survival of hospice in the future
  • Why a technology-driven approach to care does not threaten but can enhance patient-centered care at end of life

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my new patrons Mary Ganapol and Katherine Pettus! Your contributions make all the difference.

EOLPodcast

Ep. 327 Warm Water: The Last Act of Compassion in Hospice Care with Pepper Cappuccio RN

Learn about the unique stories gathered by a hospice nurse who works primarily on-call during after-hours shifts.

My guest Pepper Cappuccio is a registered nurse who has worked in hospice care for over 12 years. As an on-call nurse who frequently works evenings and weekends he is often present at the time of death for patients or shortly thereafter. He is the author of the book Warm Water: The Last Act of Compassion, which consists of stories of patients and families he has helped throughout the years as they navigate the last hours of life. He discusses the uniqueness of his work and shares stories about experiences in hospice that have changed his life. Learn more at his website:

www.peppercappuccio.com

Get Warm Water:The Last Act of Compassion here

Listen here:

This episode includes:

  • How Pepper was inspired to become a hospice nurse
  • Why he is willing to take night call for his hospice and how it differs from field work during the day
  • How he uses music as a source of calming or inspiration in his work
  • How he chose the stories he included in the book to represent a cross-section of patients served by hospice
  • What it’s like to be a male nurse in a traditionally female profession
  • Why families need support during the hours shortly after the death of a loved one
  • What Pepper has learned from his hospice work and what he hopes readers will take away from his book
  • Special stories of synchronicity from the book

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my new patron Cindy Spence! Your contributions make all the difference.

EOLPodcast

Ep. 319 At the Bedside: Tools for Caring for the Dying with Gabrielle Elise Jimenez

Learn how this hospice nurse and end-of-life doula is making a difference by sharing the tools she has learned.

My guest Gabrielle Elise Jimenez is a hospice nurse, end-of-life doula and conscious dying educator. She is also the author of three books intended to teach others how to provide care to their own dying loved ones. She talks about the tools she feels are most important for caregivers to learn and she also shares information about her Facebook page that exploded with new members when people started posting about their grief. Learn more about her books and courses at her website:

www.thehospiceheart.net

Get her books here

Listen here:

This episode includes:

  • How Gabby ended up becoming a hospice nurse and an end-of-life doula
  • The tools needed to care for a dying loved one at home
  • How to help families with grief in hospice
  • How Gabby tapped into the huge need for grief support that exists in our world right now
  • Advice for healthcare professionals who need to recognize their own grief
  • How to stay in balance while doing emotionally challenging work
  • The impact of COVID on hospice workers
  • 3 things everyone should know about death and dying
  • How to live our best lives by recognizing that we will die one day

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference.

EOLPodcast

Ep. 292 Life Review: The Hospice Musical – Life, Love and Loss with Benjamin Kintisch

Learn about a touching and humorous new musical that focuses on the stories of hospice patients and how you can join the audience.

My guest Benjamin Kintisch is a Cantor, hospice chaplain, and music teacher when he’s not performing on stage. He has loved singing and performing since childhood and has had used his skills to create a musical inspired by his experiences with hospice patients. He shares his creative process in writing Life Review: The Hospice Musical and performs two songs from the musical to give us a preview! Learn more at the website:

www.lifereviewmusical.com

Listen here:

This episode includes:

  • How a hospice chaplain became inspired to write a musical
  • The power of both stories and music to open the heart
  • Why music ends up being a good format for telling the stories of hospice patients
  • An overview of Life Review: The Hospice Musical
  • How Ben recognized that the musical needed to contain lightness and humor
  • Coping with the reality that ultimately we can’t fix people
  • Ben’s experiences “workshopping” the musical
  • Feedback from cast members and audiences
  • How Life Review can be used for education and discussion purposes
  • Goals for the musical currently and post-COVID

Links mentioned in this episode:

  • SAVE THE DATE for the upcoming Virtual Cabaret Show of Life Review: The Hospice Musical with Ben Kintisch on Sunday April 25, 2021 at 4 pm Pacific/7 pm Eastern
  • Listen to the unedited interview on YouTube: https://youtu.be/lvLuVXliqlU
  • Sign up for the 2021 online reading group A Year of Reading Dangerously at this link
  • Support your local bookstore by buying my books on Bookshop and Indiebound: 7 Lessons for Living from the Dying and The Journey from Ego to Soul
  • Subscribe to this podcast on AppleGoogleSpotifyiHeart RadioStitcher Radio
  • Check out the Series I’ve recorded in the past here
  • Join the team at Patreon.com/eolu and get access to the EOLU mug“Mind if we talk about death?” (only Patrons can purchase it). PLUS get our new bonuses: the monthly EOL News Update, movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest supporter Trina Wacasey and Suzanne O’Brien for upping your pledge! Your contributions make all the difference!

EOLPodcast, Hospice

Ep. 258 The Heart of Hospice: Supporting the End-of-Life Journey with Helen Bauer and Jerry Fenter

Learn about the issues facing hospice care in the US and how the “heart” of hospice is essential for end-of-life care.

My guests today, Helen Bauer RN and Jerry Fenter, are the hosts of the popular podcast The Heart of Hospice. Having worked as a hospice nurse and hospice chaplain, these two are passionate about offering education and support to anyone who needs information about end-of-life care. Their projects include advance care planning, resources for professional and personal caregivers, and consultations with hospices about staff education. Learn more about their work at their website:

www.theheartofhospice.com

Listen here:

This episode includes:

  • Why Helen and Jerry started The Heart of Hospice
  • The challenge of educating the public and medical professionals about the benefits of hospice care
  • How COVID-19 is impacting hospice care right now
  • Other difficulties facing hospice care in the US
  • Reasons to be hopeful about the future of hospice
  • Self-care tips for professional and personal caregivers
  • The importance of memorial services for hospice staff to process grief
  • Resources available from their website

POEM: Compassion by Miller Williams

"Have compassion for everyone you meet 
even if they don’t want it. What seems conceit, 
bad manners or cynicism is always a sign 
of things no ears have heard, no eyes have seen. 
You do not know what wars are going on 
down there where the spirit meets the bone.”

From -  Healing the Divide: Poems of Kindness and Connection - 
edited by James Crews

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference!

End of Life, EOLPodcast

Ep. 242 Death Care at Home and at a Distance for Families and EOL Doulas with Merilynne Rush

Learn about important resources for caring for loved ones and patients at home and far away.

My guest Merilynne Rush is a former hospice nurse who now practices as an End-of-Life Doula mentor, Home Funeral Guide, Green Burial Educator, Death Cafe host and more. Merilynne joins me today to talk about safe practices for home funerals during the COVID-19 pandemic, how to stay connected to our ill and dying loved ones, and she offers many resources for eol doulas at a distance, as well. Learn more at her website:

www.thedyingyear.org

Listen here:

Death Care at Home and at a Distance

This episode includes:

  • What a home funeral consists of and why consider one now
  • Home funeral resources:
  • How to conduct a safe home funeral during the COVID-19 pandemic
  • The option of live-streaming Virtual Wakes, Visitations, or Funerals
  • Tips for staying connected to our loved ones at a distance
    • Legacy projects
    • Leave written instructions for distributing possessions after death
    • Voice recording of messages for loved ones
    • Window visit
    • Technology
  • Why early hospice admissions are important for hospital and long-term care patients
  • Tips for EOL Doulas to stay in touch with patients when visits aren’t possible (download handout below)
  • Why Advance Care Planning is essential right now
  • Advance Care Planning facilitator training

Other links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference!

End of Life, EOLPodcast

Ep. 222 The Benefits of Medical Hypnosis at the End of Life with Roger Moore

Learn how hypnosis can help dying patients, their loved ones, and their medical providers find greater ease and less stress as they cope with the end of life.

podcastMoore

My guest Roger Moore is a medical hypnotherapist who frequently works with patients at the end of life and their caregivers. He’ll discuss how he utilizes hypnosis to help ease symptoms for his patients and share tools that all of us can use to deal with stress. Learn more about Roger’s work at his website:

www.hypnosishealthinfo.com

Download “Orange Blossom” mp3 here

Listen here:

 

This episode includes:

  • What is “medical hypnosis”
  • What happens in a typical session of hypnosis
  • The “wiggle” technique for returning to the present moment
  • How hypnosis benefits both patient and caregiver
  • How hypnosis helps with the fear of death and dying
  • The “flow through” technique to prevent taking on the suffering of the patient
  • How self-hypnosis tools can help healthcare providers deal with stress, grief and guilt
  • Hypnosis as a tool for learning mindfulness
  • When is the best time to recommend hypnosis as an end-of-life tool
  • Hypnosis can help patients reduce their need for pain medication
  • “Orange Blossom” recording for stress relief

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest Patrons: Gail Clemson, and Kathy Bates; your contributions make all the difference!

End of Life, EOLPodcast, Hospice

Ep. 221 Hospice and Palliative Care: Know the Difference

Understand the basic facts about hospice and palliative care, what they have in common, and what makes them different.

PodcastHospicePall

In this “EOL 101” episode I explain the difference between hospice and palliative care. This is an important piece of information for people making choices around end-of-life care and an area where there are many misconceptions. We all need to be well-versed in EOL options for our own needs and also so that we can help educate others. I’ll offer additional “explainer” episodes in the future!

Listen here:

 

This episode includes:

  • Who is on the palliative care (and hospice) team
  • Whole-person care is offered by both services
  • Who is eligible for palliative care
  • How and why to enroll in palliative care
  • The criteria for admission to hospice
    • Terminal diagnosis
    • 6 months from end of life
    • Forego curative treatment
  • Both hospice and palliative care provide symptom-based, comfort care that focuses on quality of life
  • The main differences between hospice and palliative care (including financial considerations)
  • Why you should choose both types of care if possible (first palliative then transfer to hospice)
  • Why some patients may not choose hospice care but should still opt for palliative care

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest Patrons: Lisa Monroe, Deb Pazderka, Debbie Henkemeyer, and Molly Byock; your contributions make all the difference!

End of Life, EOLPodcast, Hospice

Ep. 216 Hospice Under Threat: How to Protect Patient-Centered End-of-Life Care with Jeff Lycan

Learn about the “dark side” of the hospice business and how to identify and support organizations that are truly patient-centered.

PodcastEOLU19Lycan

My guest Jeffrey Lycan has spent the last 21 years of his  hospice and palliative care nursing career as an advocate for improving care and quality of life for patients at the end of life. He will discuss the recent alarming reports issued by the OIG (Office of the Inspector General) about instances of negligent care in some hospices, the worrisome trend toward profit-centered rather than patient-centered care, and how to support community-based hospices that are preserving Cicely Saunders’ legacy of end-of-life care. Learn about the Why It Matters Campaign he has started:

www.ohioshospice.org/whyitmatters

Listen here:

 

This episode includes:

  • The two OIG reports from July 2019 that exposed fraudulent and negligent care in some hospices (see links below)
  • What a “deficiency” in a hospice survey actually means
  •  Business changes in the hospice industry that have contributed to flaws in the care being offered
  • How some hospices now focus on profit first rather than patient care first
  • How profiteering harms the hospice system, patients and staff
  • New MedPAC proposal for lowering the annual per patient cap for hospices and why it may be a good thing
  • How consumers can choose the best hospice for their loved ones
  • How to register a complaint about hospice care
  • The campaign Why It Matters: Preserving the Legacy of Hospice

As originally championed by Cicely Saunders, MD, the founder of the modern hospice movement, the hospice model of care was based on providing end-of-life care with both compassion and science, and offering this care through engaged community-based, not- for-profit programs.

-from Why It Matters Website

ANNOUNCING:

FREE Webinar with Jane Barton: The Loneliness Epidemic

Register here.

BartonWebinarloneliness

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on Patreon.com/eoluespecially Susan Baumhammer, your contribution means  everything to me!

End of Life, EOLPodcast, Spirituality

Ep. 211 Doorway Into Light: Showing Up for Death, Nourishing Life with Rev. Bodhi Be

Learn about Bodhi’s training program for death doulas on Maui and how to restore the sacred aspect of dying.

PodcastBe

My guest Bodhi Be is an ordained Sufi minister, teacher, guide, funeral director, and bereavement counselor on the island of Maui. He is also the founder and director of the International Death Doula Certificate Training program, which is going on its 4th year. We talk about the sacred aspect of death and dying and the importance of death doulas. Learn more at his website:

www.doorwayintolight.org

Listen here:

 

This episode includes:

  • Bodhi’s long journey from becoming a hospice volunteer to mentoring death doulas
  • Why people need to wake up to plan the importance of planning and preparing for death
  • How hospice care has changed over the years
  • Why he started The Death Store and what it offers
  • How death doulas are changing the conversation about death and dying for the better
  • The International Death Doula training he offers annually
  • His future vision of a conservation burial ground and a guest house for the dying

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on Patreon.com/eolu, your contributions mean  everything to me!

End of Life, EOLPodcast

Ep. 208 Nothing to Do: A Film About Everyday Miracles at the End of Life with Mike Kravinsky

Learn about a feature film that traces the story of a family’s conflict and ultimate resolution as their father reaches the end of life.

PodcastKravinsky

My guest Mike Kravinsky is the writer and director of this feature film that was inspired by his own father’s end-of-life journey. He discusses why and how he created the film and the impact it is having on viewers across the country. You can view this award-winning film, Nothing To Do, on Amazon Prime, iTunes and the Dish Network and it is also available for borrowing from local libraries.

Connect with the film on Facebook.

nothingtodocover

View the film here.

Listen to the podcast:

 

This episode includes:

  • The growing interest in feature films that focus on death and grief
  • How nothing prepares a person for caring for a loved one at the end of life
  • How this film accurately portrays family tension and conflict when dealing with end-of-life decisions
  • The importance of having conversations about these decisions earlier during the end-of-life process
  • How Mike turned real life experiences into a fictional movie
  • What some end-of-life films get wrong about the dying process, which consists of a great deal of waiting and uncertainty
  • How the film portrays the beauty of dying at home with hospice care
  • How being present for the death of a loved one helps us with our own fears of death
  • Why Nothing to Do would be a great choice for an end-of-life film night

Links mentioned in this episode:

Art of Dying Author Series_ September 6, 2019 7-8_30 pm

Join me in New York in September!!

 

 

 

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on Patreon.com/eolu, especially my new patron, Jean Berman–your contribution means  everything to me!

 

EOLPodcast, Hospice, Spirituality

Ep. 196 The Doctor Who Became a Doula to Improve End-of-Life Care with Jackie Yeager MD

Learn how death doula training helped this physician find more meaning and fulfillment in her end-of-life medical practice.

PodcastYeager

My guest Dr. Jackie Yeager is a hospice and palliative care physician who has also trained as a death doula in order to provide the best possible care to her patients. She discusses her passion for slow medicine, especially at the end of life, and describes a new course she is launching on medical information for caregivers and death doulas. Learn more about the Informed Caregiver Course at her website:

www.informedcaregiver.com

Listen here:

 

This interview includes:

  • Why Dr. Jackie decided to become a death doula
  • What is “slow medicine” and why it is important
  • How mindfulness and spiritual practice help her be a better doctor
  • How death doulas augment traditional hospice care
  • How physicians struggle with grief over the deaths of patients
  • The scope of practice for a death doula
  • What is included in Dr. Jackie’s Informed Caregiver Course

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on Patreon.com/eolu, especially my new Patrons: Kimberly Ogle, Linda McCarthy and Sherilee Bakken!

 

 

EOLPodcast, Hospice

Ep. 188 Nurturing the Heart of Hospice: Tools for the Workplace with Brenda Clarkson RN

Learn how administrators and managers can better support their staff in providing heart-based care to hospice patients. 

PodcastClarkson

My guest Brenda Clarkson, with over 40 years of nursing experience in hospice, truly understands the mystery that surrounds the dying process and how best to support patients and hospice staff as they journey together through the end-of-life experience. She shares her model for returning to the roots of excellent hospice care while navigating today’s regulatory challenges as outlined in her book “The Heart of Hospice: Core Competencies for Reclaiming the Mystery.” Contact Brenda at:

bclarkson@virginiahospices.org

heartofhospicecover

Get the book here.

Listen here:

 

ANNOUNCEMENTS:

Registration is now open for the 8-week online course Spiritual Journeys in Chronic Illness. Rev. Dr. Terri Daniel and I will be co-teaching the class, which is offered by the Applied Wisdom Institute in partnership with the University of Redlands. CEU’s will be available! Learn more here.

Mark your calendars now for the event of the year!!! Announcing the Beautiful Dying Expo, which will be held in San Diego CA on November 2-3, 2019. I’ll be there as a facilitator for the event and registration is open now for workshop presenters, vendors, sponsors, authors, filmmakers. Go to www.beautifuldyingexpo.com to learn more. Contact Michele Little at info@beautifuldyingexpo.com if you are interested in being a presenter.

This interview includes:

  • Why honoring “the mystery” of dying and death is important
  • How the modern hospice movement has strayed from from the original heart of patient care
  • A new “mystery model” of hospice care that overcomes some of the challenges faced by hospices today
  • Core competencies of the hospice staff
  • The 4 phases of growth experienced by hospice workers
  • How to decrease the turnover rate of hospice workers
  • Tools for administrators and managers to choose the best staff for hospice work and support them emotionally and spiritually

Links mentioned in this episode:

PatreonMugShot

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on Patreon.com/eolu, especially my new Patron, Martha Turner!!

EOLPodcast, Hospice

Ep. 186 How to Bring Death Doulas to the Hospice Team with Sherry Majewski LPN

Learn how death doulas can benefit both patients and staff when they are added to the hospice interdisciplinary team.

PodcastMajewski

Today I’m sharing an interview with Sherry Majewski who is a hospice-certified LPN who went to become a Certified Death Doula and is now helping her employer create a doula program within the hospice. We talk about the benefits and challenges of adding doulas to the hospice team and why this is an important step forward as we work to improve care for the dying. Learn more about Sherry’s doula services at her website:

www.evolutionaryjourneys.love

Listen here.

 

This interview includes:

  • How Sherry became certified as a death doula through NPEC
  • What has been missing in hospice care for patients and how death doulas can help fill in the gaps
  • Advice for doulas who would like to start working with hospices
  • How hospice staff members can benefit from receiving doula training themselves
  • Benefits of doula care for patients, families, hospice staff members and the hospice organization as a whole
  • Challenges of introducing a doula program to hospice
  • Why certification is important for a death doula

Links mentioned in this episode:

PatreonMugShot

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on Patreon.com/eolu, especially my new patrons Joanna Lillian Brown, Karin Lindfors, Carol Marangoni, Cathy Clemens, Myra Bennett, and to Mandy Pierpont thank you for increasing your pledge!

 

 

End of Life, EOLPodcast

Ep. 161 Needs of the LGBTQ Community at the End of Life with Cheryl Jones

PodcastJones

 

[/audio

CherylJonesheadshotIn this episode I share an interview with Cheryl Jones, host of the Good Grief Radio Show, therapist and author of the newly-released novel An Ocean Between Them. We talk about the important subject of meeting the needs of members of the LGBTQ community at the end of life, which is part of the story told in her new book. Learn about Cheryl’s work here.

Get her book here.

ANNOUNCEMENTS:

sevilleI’ll be leaving for Spain in just a few days! While I’m traveling you will be able to listen to a 4-part series on Palliative Care during this podcast so you won’t miss a single episode! If you’re interested you can follow my photos on Instagram at kwyattmd!

A HUGE THANK YOU to my latest supporters on Patreon.com/eolu: Lisa Milton, Debbie Hall and Christine Hazard Phillips. Your contributions are greatly appreciated and help keep this podcast and the EOLU Interview Series on the air. Join the team to get special bonus content!

CSU Institute for Palliative Care is holding a National Symposium on Palliative Care in San Diego October 11-12. Go to CSUpalliativecare.org to learn more.

FEATURE PRESENTATION:

My guest Cheryl Jones is a grief counselor, host of the Good Grief Radio Show on VoiceAmerica, and the author of the newly-released novel An Ocean Between Them. We will discuss the challenges that LGBTQ people experience in receiving care at the end of life and ways to make our organizations and facilities more inclusive.

In this interview you will learn:
  • Why members of the LGBTQ community access less healthcare than the general populatioN
  • Obstacles faced by LGBTQ individuals in receiving care in residential facilities, hospices, hospitals
  • Why a durable medical power of attorney is an essential document for all LGBTQ individuals
  • How the organization SAGE advocates for LGBTQ seniors
  • How to find common ground in end-of-life care even when we don’t agree on lifestyle choices
  • About post-traumatic growth and why it’s important to foster
  • Ways to create an LGBTQ-supportive environment in your organization or business
  • About Cheryl’s novel that addresses the challenges of LGBTQ relationships with family at the end of life

Cheryl Jones is the host of the radio show Good Grief. She is also a grief counselor and cancer educator. During her education as a Marriage and Family Therapist, her first wife was diagnosed with Multiple Myeloma, which was at the time a uniformly terminal illness with a six month to one year prognosis. In the eight + years that followed, Cheryl engaged daily in the work of preparing for her death. She received training during this period from Stephen and Ondrea Levine (Who Dies and Grieving Into Life and Death) and Richard Olney (founder of Self-Acceptance Training). After her wife’s death, Cheryl immersed herself in her own multifaceted grief, surprised by frequent moments of joy.

Cheryl is a consultant and group leader at the Free Therapy Program of the Women’s Cancer Resource Center, where she developed, manages and teachies in their Continuing Education program. She has trained extensively with Erving Polster, leader in the field of gestalt therapy and author of Everybody’s Life is worth a Novel. She was Clinical Director at the Alternative Family Project, which served the therapeutic needs of LGBTQ families in San Francisco. Finally she is the author of the recently published novel: An Ocean Between Them.

Get the book here.

Website: www.weatheringgrief.com

Tune in every Monday for a new episode (even when I’m traveling!) If you enjoy this content please share it with a friend and consider leaving a review on iTunes.

Until next time …

Face Your Fear             BE Ready              Love Your Life

karen-signature

 

 

End of Life, EOLPodcast

Ep. 156 How to Talk to Strangers About Death & Dying

Learn some tips for starting important conversations about death with people you are meeting for the first time!

PodcastStrangers

 

IMG_4043In this episode I’ll share with you some stories about my recent yoga retreat and the many amazing conversations I was able to have with strangers about death and dying. I’ve got a few tips for you about starting up your own conversations about death with random strangers. (Here’s a photo from a sunrise hike I took during the retreat!)

 

Links to articles mentioned in this episode:

Tips for Talking With Your Loved Ones About the End of Life

How to Have Everyday Conversations About Death and Dying

How to Talk to Your Healthcare Provider About Your End-of-Life Wishes 

ANNOUNCEMENTS:

You can still sign up for A Year of Reading Dangerously online reading group and read one book each month about death, dying and the afterlife. Click here to learn more.

HealingChantsAlbumThis episode is sponsored by the album Healing Chants by Gia! You’ll love Gia’s angelic voice and ethereal music for meditation and relaxation. (Full disclosure: Gia is my daughter!)

You can listen to samples and purchase the album here.

Stay tuned to the end of the podcast as I’ll play her song Evocation as the Outro today!

A HUGE THANK YOU to my latest supporter on Patreon.com/eolu: Karen Van Hoof! I appreciate your support very much. Thanks also to all of the other patrons – sign up and join the team for as little as $1 per month at Patreon.com/eolu!

FEATURE PRESENTATION:

Today I’ll tell you about my recent 5-day retreat at a yoga center where I went to relax, do yoga and finish revising one of my books. While I was there I had the pleasure of talking with many other visitors to the retreat center about death and dying, which was fascinating. Normally I don’t find many people out in the general public who want to talk about death. And while the people I conversed with weren’t necessarily interested in death before our discussion they each seemed to come away with a new understanding or sense of peace.

In order to confront our society’s fear of death we need many more conversations like this to happen every day with people who are not already tuned in to death awareness.

Each of us needs to step up and reach out to others to start a dialogue about death that might prove very helpful to our conversation partner and very informative for us.

Here are my tips for talking with strangers about death and dying:

  1. Choose the right time and place: my conversations generally took place at the table while I was sharing a meal with various strangers. Breaking bread together creates an automatic sense of connection and safety since we usually associate mealtimes with positive feelings. There is also often some free time between courses where conversation can happen naturally. It may also work well to talk about death during other shared activities like hiking, gardening or cooking. Watch for the right opportunity to arise.
  2. Find common ground first: make sure you have established a basic connection by talking about the meal (or the garden, or the hike, etc.) Since my conversation partners were also there for yoga classes we had an automatic common subject to begin chatting about while we established a connection.
  3. Perfect your “elevator speech” which is a very brief story you tell whenever someone asks “What do you do?” The idea is that your answer is so brief you can complete it during a short elevator ride from one floor to the next. So think of one or two sentences you can use to answer that question and give another person an idea of your work. My answer at the yoga retreat was: “I’m a retired hospice physician who now writes books.” Tell them enough to garner their interest and curiosity and lead naturally to more questions. I purposely avoided mentioning death and dying in my initial introduction so that I wouldn’t frighten anyone away before we even got started. But most individuals I encountered were intrigued and asked more either about the hospice work or about the books I’m writing. Both of those questions led directly to a talk about death and dying. On several occasions the other person immediately brought up a story of a loved one or friend on hospice. Many times it was a story that desperately needed to be told and also came with questions about death, dying and hospice. I was amazed by the quality of conversation that occurred in these instances and the need for accurate information. I’m convinced that many people out there really do need to talk about death and dying but rarely encounter anyone they can speak to, which is where you come in!
  4. Hone your listening skills: for these conversations focus on listening rather than telling your own story. Watch for cues from the other person that there is a need to say something and encourage them to talk by asking a question or two and stopping to listen attentively. We are all passionate about our work and other endeavors and there will be opportunities to share that at some point in the future. Initially it’s more important to just listen and hold space so that the other person can ask questions and get the support they need. Rely on your intuition to tell you when that person is ready for a little nudge or encouragement to go deeper into their feelings.
  5. Share just enough information: again it is important to be a good listener so when you do describe your work don’t go overboard. Use simple and accurate terms to convey what you do but pause and allow the other person to ask for the information they need.

As you’ll hear when you listen to this episode I was able to have meaningful conversations with different people every day while I was at the retreat. These are some of the most important discussions we can be having right now so take a chance and strike up a conversation with a stranger about death and dying!

There will be a new episode every Monday so be sure to tune in again! And if you enjoy this content please share it with others and consider leaving a review on iTunes.

Until next time …

Face Your Fear            BE Ready              Love Your Life 

karen-signature