EOLPodcast

Ep. 383 The Good News of 2022 with Karen Wyatt

Learn some of the positive developments around end-of-life issues that took place in 2022.

This is the last episode of 2022 and I’m sharing some of the best “good news” stories I’ve seen this year about progress we’ve made around care at the end of life. Every month I curate end-of-life news stories for my supporters on Patreon and I’ve made note of some encouraging developments that I present to you today. Watch this on YouTube if you’d like to see slides or enjoy listening to the audio. Meanwhile, farewell to 2022 and best wishes for a Happy New Year!

Watch on YouTube

Listen here:

This episode includes:

  • The Lancet Commission on the Value of Death calls for a global paradigm shift on death and dying
  • NHPCO works to improve equity in death and dying and decrease racial disparities in care
  • Studies document inequities in end-of-life care
  • Plan to train community workers to do outreach in underserved areas
  • Recognizing the emotional and spiritual aspects of the dying process
  • Federal legislation to create a national strategy on grief and to expand advance care planning
  • Studies on caregiver stress and model for paying family caregivers
  • Best and worst places to die in the US
  • Studies on use of psychedelics to decrease anxiety at end of life
  • Virtual reality similar to psilocybin in reducing anxiety
  • “Death Tech” and media coverage of death both on the rise
  • Human composting now legal in 5 states

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to those who have made a donation through Paypal or bought me a coffee! Your contributions make all the difference.

EOLPodcast

Ep. 380 Heartwood: The Cycle of Life and Loss with Barbara Becker

Learn about a beautiful new book that explores how death teaches us, through many varied experiences of loss, how to truly live.

My guest Barbara Becker is an interfaith minister and a strategic communications consultant specializing in strengthening the voice of the non-profit community, working with the United Nations, Human Rights First, the Ms. Foundation for Women, and the Grameen Bank of Bangladesh. She is also the author of the book Heartwood: The Art of Living with the End in Mind and she shares the important lessons she has learned from death and loss throughout her life. Learn more about her work at the website:

www.barbarabecker.com

Listen here:

This episode includes:

  • What inspired Barbara to become an interfaith minister and to volunteer in hospice
  • How her work in hospice informed her own feelings about death
  • What is “heartwood” and why it is a fitting title for the book
  • How Barbara turned to her own book for guidance when she faced a health crisis of her own
  • The one question we should ask ourselves to live a more purposeful life
  • What we can learn about coping with death and grief from religious traditions outside of our own
  • Advice to help family caregivers cope with caring for loved ones with Alzheimer’s
  • How to cope with the first holiday season while grieving the death of a loved one

Links mentioned in this episode:

EOLPodcast

Ep. 369 Practical Tools for Home Caregivers with Barbara Karnes RN

Learn useful tips for caring for a dying loved one at home and how to be better prepared for the challenge.

My special return guest is Barbara Karnes RN, hospice nurse, author, thought leader, and expert on end-of-life care. Barbara is going to be a recurring guest from now on, joining the podcast every other month to talk about hospice care. Today we discuss practical tools that caregivers need in order to care for themselves and their loved ones at the end of life. Barbara has written a new guide for caregivers called By Your Side that offers a tremendous number of resources and practical tips and she’ll share many of them with us today. Learn more about Barbara’s work at her website:

www.bkbooks.com

Listen here:

This episode includes:

  • The needs of caregivers are often overlooked by both hospital and hospice staffs
  • What caregivers need to know about food intake for patients at the end of life
  • The importance of keeping a written record of patient’s status throughout the day because it’s too hard to remember
  • The impact of sleep deprivation and fatigue on caregivers including lack of patience and flexibility
  • Why self-care for caregivers is essential and not selfish
  • How to set boundaries with a patient and why they are necessary
  • It’s not a failure to decide that home caregiving is too difficult
  • Why understanding the dying process is important for caregivers
  • How to find support in your community as a caregiver
  • How care of patients with dementia differs from other hospice patients
  • Basic information about pain management and symptom control

Links mentioned in this episode:

Buy me a coffee

Donate on Paypal

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Donna Fleming, and to those who have bought me a coffee and made a donation through Paypal! Your contributions make all the difference.

EOLPodcast

Ep. 353 The Rebellious Widow: Love and Life After Loss with Jill Johnson-Young

Learn practical tips for navigating the caregiving journey and grief after the death of a spouse.

My guest Jill Johnson-Young is a Licensed Clinical Social Worker who has worked in hospice and as a therapist specializing in grief, loss, dementia, and trauma. She shares her personal journey as a caregiver for two spouses and as a “double widow” along with helpful tips for grief and how to break the “widow rules.” She is the author of numerous books about grief for adults and children including her most recent The Rebellious Widow: A Practical Guide to Love and Life After Loss. Learn more at her websites:

www.therebelliouswidow.com

www.jilljohnsonyoung.com

Listen here:

This episode includes:

  • The “widow rules” and why they need to be challenged
  • How society judges grievers rather than allowing them to take their own unique path
  • How anticipatory grief helped with her process of grief after death
  • The importance of fostering intimacy for couples who are facing death (making “body memories”)
  • How medical and hospice providers often overlook the needs of the caregiver
  • What to say to couples dealing with a terminal illness
  • Why couples should discuss the caregiver’s future after death
  • Setting boundaries and asking for help as a caregiver
  • How she found “helpers” to connect with her children and watch over them during the dying process and funeral
  • The jarring moment when a diagnosis is received for both patient and caregiver
  • Challenges facing same-sex couples as they access care
  • Humor as self-preservation for medical staff and caregivers

Links mentioned in this episode:

Buy me a coffee

Donate on Paypal

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons Janis Wiebking and Robin Blanche! Also thank you to Francis Pope Hewitt for your Paypal donation! Your contributions make all the difference.

EOLPodcast

Ep. 349 Why My Family Chose Hospice with Kathleen Vallee Stein

Learn about the hospice experience from the perspective of a family member.

My guest Kathleen Vallee Stein worked for the California Department of Aging and has written numerous articles on caring for aging patents for more than twenty years. Her work has been published in the Christian Science Monitor, Los Angeles Times, Los Angeles Daily News, Pasadena Star-News, Orange County Register, and the Jewish Journal. Recently she has written a book about her family’s experiences as her father faced the end of life called Loving Choices, Peaceful Passing: Why My Family Chose Hospice, and today she’ll share insights from that hospice journey with her father. Learn more at her website:

www.valleeview.com

Listen here:

This episode includes:

  • How her family made the decision to choose hospice for her father
  • The challenges of having conversations about hospice with a loved one at the end of life
  • How the family had to bring up hospice with the doctor initially but he was helpful after that point
  • The relief experienced by the entire family and the patient once they made the decision to stop curative treatment and to enroll in hospice
  • Negative misperceptions about hospice are an obstacle to early admission
  • How her father’s temperament changed for the better after going on hospice
  • Why Kathleen hired in-home professional caregivers even though her parents were initially opposed to it
  • How they managed their parents’ financial issues as a family
  • Dealing with old family conflicts that arise at the end of life
  • How the hospice chaplain made a big difference for her father
  • The many positive surprises that arose during her father’s end of life
  • How they planned the funeral and made decisions about disposition
  • How she and her mother grew closer through the challenges of caring for her father at the end of life
  • Advice to those considering hospice for a loved one
  • Hope and “precious time” with her father in his last days

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference.

EOLPodcast

Ep. 344 Tools for Caregivers to Manage Stress and Increase Joy with Roger Moore

Learn some quick and easy stress management tools to improve health and joy during challenging times.

My guest Roger Moore is a certified hypnotherapist who helps people at the end of life with anxiety, depression, pain and other symptoms. His latest book Becoming the Greatest Expression of You contains tips and practices for overcoming the shame and fear of the past to live life more joyfully now. He discusses how these stress-reducing practices might help caregivers stay healthier as they offer care and support to their loved ones. These suggestions are also perfect for all of us as we navigate the stresses of life. Learn more at Roger’s websites:

www.palmdeserthypnosis.com

Listen here:

This episode includes:

  • How we can rewire the brain even until the moment we die
  • How to experience joy even during times of pain and difficulty
  • When we are able to recognize the presence of stress in our bodies we can more easily shift out of it into a state of joy
  • How laughter can change an entire day
  • Using a practice of “mental rehearsal” to envision things going well instead of badly
  • How caregivers can learn to ask for help from others
  • Simple tips for using meditation to help with stress
  • The importance of practicing gratitude every day
  • How to use self-forgiveness to move past blame and shame when things go wrong

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference.

EOLPodcast

Ep. 340 Caregiver Crisis: Meeting the Needs of the Future with Jessica Zitter MD

Learn about the current crisis in family caregiving and what you can do to help.

My guest Dr. Jessica Zitter is a specialist in Critical Care and Palliative Care medicine and the author of the book Extreme Measures: Finding a Better Path to the End of Life. Her work is featured in the documentary Extremis as well as her new film, Caregiver: A Love Story. Today she discusses the current crisis situation for family caregivers who are drastically overworked with little support. This is one of the most important topics we can address for the future! Learn more at these websites:

www.jessicazitter.com

www.caregiveralovestory.com

Read the transcript here. Watch video on YouTube

Listen here:

This episode includes:

  • What inspired Jessica to create Caregiver: A Love Story
  • How film is a compelling medium for encouraging people to change their behavior
  • How medical providers are often unaware of the stresses facing family caregivers
  • More people are now dying at home than in the hospital which means there is huge need for caregivers
  • 1 out of 5 Americans is caring for a loved one at home
  • The burden experienced by caregivers is physical, mental and financial
  • We need a workplace culture that supports caregivers
  • Family caregivers are providing billions of dollars of unpaid work for an average of 4.5 years
  • Hospitals and doctors are doing a poor job of preparing caregivers for the tasks they will face – The Care Act requires them to provide education (but it’s not happening)
  • Hospice staffs are also burdened by the caregiver crisis
  • We also need to build up and support professional paid caregivers

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference.

EOLPodcast

Ep. 339 Feng Shui for Hospice Patients with Char Tarashanti

Learn how paying attention to the small details of the surroundings can make a big difference in the wellbeing of hospice patients.

My guest Char Tarashanti is a retired Hospice Chaplain and Certified Feng Shui Consultant. She shares how the principles of Feng Shui can be applied to the care of hospice patients and improve the physical environment as well as the harmony and balance of the space. Her practical suggestions make it simple for any of us to create more pleasing and appealing surroundings for people at the end of life. Download her handout here:

Handout

Read Transcript

Listen here:

This episode includes:

  • What is Feng Shui
  • How death is viewed within the Feng Shui tradition
  • How Char became interested in Feng Shui and in hospice work
  • The benefits for patient and caregiver of creating a more harmonious space
  • The essential elements of Feng Shui and how to apply them to a hospice room
  • How to manage clutter and get better organized in a home hospice setting
  • The two most important features of Feng Shui for hospice patients
  • How caregivers should communicate about any changes being made in the home before beginning the process

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my new patrons Aby Fy and Anne Janssen and to Richard Schneider for increasing your monthly pledge! Your contributions make all the difference.

EOLPodcast

Ep. 337 The Hospice Doctor’s Widow: A Caregiver’s Journal with Jennifer O’Brien

Learn about a beautiful, artistic journal that explores the caregiver’s journey through dying and grief.

My guest this week is Jennifer O’Brien, author of the creative, gorgeous journal: The Hospice Doctor’s Widow. She discusses her journey as she cared for her husband who was a hospice and palliative care physician diagnosed with stage 4 cancer. We talk about grief and loss and caregiving in this intimate conversation. Learn more at her website:

www.hospicedrswidow.com

Get the book here

Listen here:

This episode includes:

  • Why this book is ideal for caregivers and people dealing with grief
  • How Jennifer created the art for the book
  • How Jennifer incorporated her husband’s wisdom into the book
  • What is “Precious Time” and how did that inform the way she and Bob spent his last days of life together
  • Navigating anticipatory grief for caregivers
  • Why the patient and the caregiver are going through two different processes
  • Why the survivors’ journey can be more difficult than the patient’s journey
  • What is the Triad of Certainty
  • Advice for caregivers
  • The At Peace Toolkit – A Guide to Being at Peace with End of Life

‘Precious Time’ is when you say what you need to say and don’t say what you will later regret.”

from The Hospice Doctor’s Widow by Jennifer O’Brien
  • A Year of Reading Dangerously – Register here
  • Get the At Peace Toolkit from Jennifer here

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my new patrons G. Thackrey and Mary Susan Graham! Your contributions make all the difference.

EOLPodcast

Ep. 277 Seven Year Summer: A Memoir of Two Life and Death Journeys with Anna Byrne

Learn how a long journey through cancer prepared Anna to be a hospice volunteer and inspired her spiritual growth.

My guest Anna Byrne holds a combined degree in Psychology and Gerontology, is a certified teacher, and has been a coordinator for a hospice society in British Columbia. She survived 4 cancer diagnoses in her 30’s and then worked as a volunteer for an elderly hospice patient throughout one entire summer. She is the author of the book Seven Year Summer which tells the story of her own journey through cancer and her days of sitting at Eleanor’s bedside, discussing life and the approach of death. Learn more at her website:

https://annabyrne2.wixsite.com/mysite

Get the book here

Listen here:

This episode includes:

  • How Anna’s perspective on cancer changed throughout her 4 diagnoses
  • The “hero’s journey” of cancer treatment and how it fell apart for Anna
  • The spiritual tools and support that helped Anna navigate her illness and losses
  • The use of “battle” metaphors in medicine and how they cause harm
  • The difference between curing and healing
  • How Anna’s suffering prepared her to be a hospice volunteer for Eleanor
  • The difference between chronos and kairos time
  • How caregivers can better support patients who are facing the end of life
  • How writing the book helped Anna heal some of the trauma of her cancer journey

Links mentioned in this episode:

  • The Conference on Death and Bereavement Studies: A Professional Development Symposium – January 10, 2021 Learn more here
  • Spiritual Journeys in Chronic Illness Course – with Terri Daniels – starts January 7th Learn more here
  • Sign up for the 2021 online reading group A Year of Reading Dangerously at this link
  • Support you local bookstore by buying my books on Bookshop and Indiebound: 7 Lessons for Living from the Dying and The Journey from Ego to Soul
  • Subscribe to this podcast on AppleGoogleSpotifyiHeart RadioStitcher Radio
  • Check out the Series I’ve recorded in the past here
  • Join the team at Patreon.com/eolu and get access to the EOLU mug“Mind if we talk about death?” (only Patrons can purchase it). PLUS get our new bonuses: the monthly EOL News Update, movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference!

EOLPodcast

Ep. 275 Training Caregivers to Meet the Needs of a Loved One with Roz Jones

Learn how and why we need to train many more family and paid caregivers to meet the needs of our aging population, especially during COVID-19.

My guest Roz Jones is the founder of Jacksonville’s Best Caregivers, an organization in Jacksonville FL that provides short and long term caregivers for facilities and families. She is also an author, speaker, crisis counselor and caregiver coach who trains new caregivers and their family members to offer care at home to their ill loved ones. Learn more about her work at her website:

www.thecaregivercafe.net

Listen here:

This episode includes:

  • Top 6 things brand new caregivers need to learn before they start caring for a loved one
  • How caregiving has changed during COVID-19
  • What precautions family caregivers should take to keep their loved one safe from COVID-19
  • Why setting clear boundaries is one of the most important tips for caregivers to avoid burnout
  • How to have productive conversations with ill loved ones about difficult subjects like advance directives, financial issues, loss of independence, end of life
  • Why “Loneliness Kills” the elderly, how COVID-19 has made it worse, and how to help
  • Self-care tips for caregivers
  • How to train with Roz to be a well-informed and effective family caregiver

Links mentioned in this episode:

  • Subscribe to this podcast on AppleGoogleSpotifyiHeart RadioStitcher Radio
  • Check out the Series I’ve recorded in the past here
  • Join the team at Patreon.com/eolu and get access to the EOLU mug“Mind if we talk about death?” (only Patrons can purchase it). PLUS get our new bonuses: the monthly EOL News Update, movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest supporter Jaime Byrne and renewing supporter Nancy Walker! Your contributions make all the difference!

EOLPodcast, Hospice

Ep. 258 The Heart of Hospice: Supporting the End-of-Life Journey with Helen Bauer and Jerry Fenter

Learn about the issues facing hospice care in the US and how the “heart” of hospice is essential for end-of-life care.

My guests today, Helen Bauer RN and Jerry Fenter, are the hosts of the popular podcast The Heart of Hospice. Having worked as a hospice nurse and hospice chaplain, these two are passionate about offering education and support to anyone who needs information about end-of-life care. Their projects include advance care planning, resources for professional and personal caregivers, and consultations with hospices about staff education. Learn more about their work at their website:

www.theheartofhospice.com

Listen here:

This episode includes:

  • Why Helen and Jerry started The Heart of Hospice
  • The challenge of educating the public and medical professionals about the benefits of hospice care
  • How COVID-19 is impacting hospice care right now
  • Other difficulties facing hospice care in the US
  • Reasons to be hopeful about the future of hospice
  • Self-care tips for professional and personal caregivers
  • The importance of memorial services for hospice staff to process grief
  • Resources available from their website

POEM: Compassion by Miller Williams

"Have compassion for everyone you meet 
even if they don’t want it. What seems conceit, 
bad manners or cynicism is always a sign 
of things no ears have heard, no eyes have seen. 
You do not know what wars are going on 
down there where the spirit meets the bone.”

From -  Healing the Divide: Poems of Kindness and Connection - 
edited by James Crews

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference!

End of Life, EOLPodcast, Spirituality

Ep. 238 A Death Lived: A Doctor’s Memoir of Her Husband’s End of Life with Martha Calihan MD

A doctor learns about death by caring for her husband at the end of his life.

My guest Dr. Martha Calihan has been a practicing physician for over 30 years but she didn’t learn about the end of life until she became a caregiver for her ill husband. She shares how she navigated those challenging days and how being a caregiver made her a better doctor. She is the author of A Death Lived – a memoir of her end-of-life journey with her husband Charles. Learn more at her website:

www.fivestoneswellness.com

Get the book here.

Listen here:

A Death Lived with Martha Calihan MD

This episode includes:

  • How an Integrative medical provider differs from a conventionally-trained physician
  • The challenges of playing dual roles of wife and physician
  • What doctors can do better to help patients and families navigate the end of life
  • Making medical decisions when the patient’s health status is constantly changing
  • The freedom that comes from “speaking the unspeakable”
  • One valuable question doctors need to ask caregivers: “If you come home and [your loved one] is unresponsive, do you know what you would do?”
  • Tips for having the “death talk” with loved ones
  • How to decide when it’s time to say no to medical interventions
  • The gift of Near Death Awareness and how it helps with fear and grief

It’s more beautiful than you could ever imagine.

Charles’ last words – from “A Death Lived”

Links mentioned in this episode:

  • Pre-order 7 Lessons for Living from the Dying here
  • Libby app
  • Dr. Calihan’s book: A Death Lived
  • Five Wishes document
  • Final Gifts by Maggie Callanan
  • Join the team at Patreon.com/eolu and get access to the EOLU mug“Mind if we talk about death?” (only Patrons can purchase it). PLUS get our new bonuses: the monthly EOL News Update, movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest Patrons:  Molly Oldfield and Lisa Rivera. Your contributions make all the difference!

EOLPodcast

Ep. 184 Caring for a Loved One with Dementia with Kathy Flora

Learn some helpful advice for being a caregiver for a patient with dementia.

PodcastFlora

Today I talk with Kathy Flora who has served as her mother’s caregiver as she has journeyed through dementia. Kathy shares her wisdom and advice for those who find themselves in a similar role with a parent or other loved one. She is the author of the book “Walking My Momma Home: Finding Love, Grace, and Acceptance Through the Labyrinth of Dementia.” Learn more at Kathy’s website:

www.kathyflora.com

WalkingMomma

Get the book here.

Listen here.

 

ANNOUNCEMENT:

PatreonMugShotNOW! You can get this mug designed exclusively for Patrons of this podcast on Patreon.com/eolu!

“Mind if we talk about death?”

Join our team and you’ll be eligible to purchase the mug!

Support EOLU by signing up today and receive additional special bonuses!

This interview with Kathy Flora includes:

  • How to recognize when an elderly loved one is declining if you live far away
  • How to talk to a loved one about necessary life changes such as giving up driving, managing finances, and living independently
  • The difference between an independent living facility and assisted living
  • How to deal with role reversal as our parents age
  • The “long goodbye of dementia” and coping with anticipatory grief
  • Who should be on a caregiver’s “essential team”
  • How to maintain relationships and communication with siblings who live at a distance
  • The hidden blessings from caring for a loved one with dementia

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on Patreon.com/eolu, especially my new patron Kate Riley!

 

EOLPodcast

Ep. 179 How to Conquer Overwhelm as a Family Caregiver with Tandy Elisala

Learn how to cope with all of the ups and downs and challenges of being a caregiver for a loved one.

podcastelisala

My guest Tandy Elisala knows all about the stresses of being a family caregiver having cared for both of her parents while raising 3 children as a single mom. She is the host of the Empowered Family Caregiver Podcast, an author, speaker, and coach and she’ll share her best tips and advice with us today. Learn more at her website:

www.TandyElisala.com

The Complete Caregiver Respite Guide

Quick Start Guide to Conquering Overwhelm

healing-through-the-chaos-2641

Get the book here.

Listen here:

 

This interview includes:

  • The biggest challenges facing family caregivers
  • Owning up to the negative emotions facing caregivers
  • Why some caregivers have trouble asking for help
  • Advice for getting help from others
  • How to move past guilt for not being a “perfect” caregiver
  • What we can learn about being a care receiver
  • Tips for self-care
  • Resources for respite care

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on Patreon.com/eolu, especially E. Kiran for upping  your pledge!

End of Life, EOLPodcast, Spirituality

Ep. 142 It’s Complicated: Mother-Daughter Relationships at the End of Life with Kate Riley

Learn how mothers and daughters cope with their changing roles as the end of life nears.

PodcastRiley

KateRileyIn this episode I share an interview with Kate Riley, author and death midwife, about our own relationships with our mothers and how they changed as we provided care to them at the end of life.  Happy Mother’s Day to all mothers out there listening!

Learn more about Kate’s work here.

 

ANNOUNCEMENTS:

Thank you to my latest sponsor on Patreon.com/eolu: Marilyn Stoner. Thank you for support and thanks to all of my patrons – I appreciate your generosity very much!!

This episode is brought to you by my course Get Over it For Good: Healing the Hidden Wounds of Childhood. Learn to get over events from the past that keep you stuck and unable to grow. This is a self-study course that helps you identify your hidden wounds and discover the wisdom you can gain from them. Platinum supporters on Patreon.com/eolu will receive a 30% discount on the course! Learn more about the course here.

FEATURE PRESENTATION:

My guest Kate Riley and I discuss the joys and challenges of daughters who care for their mothers at the end of life. Kate was the caregiver for her mother during the last 9 months of her life and shares her insights about that process.

In this interview you will learn:

  • The ups and downs of the caregiver journey
  • The benefits of presence at the end of life
  • How meditation helps with preparation for death
  • Death has its own mysterious timing
  • The pain of letting go of our mothers and being let go of by them
  • How caregiving helps us heal our relationships
  • Advice for daughters caring for their mothers

Kate Riley is a certified death midwife, minister, international story consultant, author and educator. She began private practice in compassionate end-of-life care after completing hospice training in the late 1980s. She serves as a liaison for individuals facing end-of-life decisions, working with their families and medical teams in providing a more person-centered approach. She encourages and supports those who want to take a conscious, active role in their own dying process. She is the author of The Green Velvet Journals and Launching Vee’s Chariot: An End-of-Life Tale. Kate lives in the Wood River Valley of Idaho—a great place to find balance in all of life’s stages. Her advanced training includes death midwife/doula certification through Final Passages and current enrollment in the California State University Palliative Care Chaplaincy program.

Remember to tune in every Monday for a new episode! If you enjoy this content please consider leaving a review on iTunes. Until next week:

Face Your Fear         BE Ready         Love Your Life

karen-signature

End of Life, EOLPodcast

Ep. 98 The Benefits of Mindfulness Meditation for Caregivers and Health Professionals

Learn how to get started with your own practice of mindfulness and enjoy improved health in body, mind and spirit.

PodcastMindfulness

giagem.jpg
In this episode my guest Gia George, who is a yoga and meditation teacher, will tell us why and how to start a simple meditation practice. You’ll learn what you need to know to get started with mindfulness and maintain a routine that will help with stress and life’s challenges. Visit Gia’s website at divinelygia.com.

Patreonbecome2xThis podcast is supported through generous contributions on my page at Patreon.com/eolu. If you would like to chip in $1 or $2 per month you’ll receive access to our monthly “Hospice Happy Hour Hangouts” and I will promote your EOL-related book, business, organization, or website on the podcast. THANK YOU to all of my Patreon supporters! You make this podcast possible!

In this interview you will learn:

  • The physical, mental, emotional and spiritual benefits of a mindfulness meditation practice
  • How meditation can specifically benefit those in the caregiving and healthcare professions
  • Why meditation is actually a form of “listening prayer”
  • How to begin if you’ve never meditated before
    • When to meditate
    • Frequency
    • How to sit
    • Dealing with thoughts
    • Avoiding self-judgment
    •  Maintaining the practice
  • How “guided meditation” can be a good way to get started
  • Being mindful during every day activities to improve focus and relieve stress

ZenQuestGuidedCheck out Gia’s Zen Quest Guided Meditation CD if you’d like some help getting your practice started:

Zen Quest: Guided Meditations, Healing Journeys is a compilation of 7 guided meditations, each 10-minutes in length. These vision quests take you on relaxing journeys through your mind, heart, and soul, as you explore the healing metaphors and symbols of the Universe. Each meditation is rich with hidden gems of wisdom, woven through a beautiful quest. Go to this link to listen to samples and purchase the CD if you are interested: Guided Meditation CD

Watch Gia’s FREE weekly meditation videos on YouTube: Meditation Monday

Tune in every Monday to a new episode! Until the next time remember:

Face Your Fears.                   BE Ready.                   Love Your Life.

karen-signature

SaveSave

SaveSave

EOLPodcast

Ep. 71 The Death-Positive Movement: Trends and Goals for 2017

It’s a brand new year! Let’s look ahead and see what’s possible in 2017!

blogtemplate2017

In today’s episode of the podcast we’ll look ahead at the coming year, study the trends in the death-positive movement and discover where it might be possible to create new volunteer and career opportunities for ourselves and our communities in 2017.

First I’ll share my own goals for the coming year, which include revising, editing and publishing the two books I wrote in 2016. I also plan to release two new training courses this spring and have lined up a fascinating group of speakers for the End-of-Life University Interview Series. To stay up-to-date on all the latest interviews and offering from EOLU, be sure to to sign up for the mailing list here.

Thank you from the bottom of my heart to all the contributors to this podcast on supportonpatreon-e1412764908776Patreon.com/eolu. Your support helps pay for the expenses of creating this podcast and the EOLU Interview Series. If you’d like to become a patron just go to Patreon.com/eolu and sign up to contribute just $1 or $2 per month.

Here are some of the Trends I’ll be watching in 2017:

  1. Increasing number of Palliative Care Programs in hospitals across the country. Though many of the current programs are either understaffed or underfunded, these problems are likely to be corrected in the near future. To meet current standards, each palliative care team must have a chaplain and a social worker so if you have training in either of those fields you might find employment opportunities in a palliative care program in your community.
  2. Need for creative solutions for hospice care. Because for-profit hospices are taking over many of the smaller non-profit hospices there is a risk that uninsured patients or those with needs for expensive care might be turned away. There is a need for social-model hospices (see Episode 23) and possibly for community-based non-profit, non-Medicare-certified organizations that can help bridge gaps in services for hospice patients. Here are some recommended training programs for becoming an end-of-life doula or midwife:
    1. Sebastopol CA: Jerrigrace Lyons http://finalpassages.org
    2. Austin Texas: Donna Belk (Online training program): http://beyondhospice.com
    3. Austin Texas: Deanna Cochran http://www.qualityoflifecare.com
    4. Ann Arbor Michigan: Merrilyn Rush and Patty Brennan http://center4cby.com This training starts right away – Feb. 3-5, 2017
    5. Calgary Canada: Sarah Kerr http://soulpassages.ca/about/
    6. New York and online: Suzanne B. O’Brien RN: http://www.doulagivers.com
  3. Need for more caregivers. As baby boomers age and approach the end-of-life the caregiver shortage will become a much greater issue. Opportunities will exist to create caregiver training and support services in communities and even to start businesses that employ caregivers.
  4. Community outreach can help support the changes that are slowly occurring in the healthcare system. One of the best ways to encourage change in healthcare is to empower consumers to demand changes from their physicians. This will require outreach and education in the community. Here are some ideas for outreach and links to learn more from previous podcasts:
    1. Plan a community end-of-life event.
    2. Start a Death Cafe.
    3. Plan an EOL Film Festival.
    4. Start an EOL Book Club. Get a list of potential books here.
  5. Create an “Inreach” for members of the EOL community by starting a discussion group, networking event or collaboration opportunity for those who are already working in this arena.
  6. Bring volunteer movements to your community. Consider starting a group of volunteer caregivers who can provide respite care for family caregivers or start your own chapter of Threshold Choir, Twilight Brigade, or No One Dies Alone.
  7. Provide education for your community either as a voluntary act of service or as a paid instructor. Here are some possible ideas:
    1. Assist people to correctly complete their advance directives.
    2. Teach a community class on death and dying.
    3. Train caregivers.
    4. Teach about green burial, promote a natural burial ground in your community, help people access green burial supplies
    5. Educate the community about their rights to a home funeral

I hope these ideas inspire your own personal goals for 2017! Stay connected with me and keep tuning in to the podcast. Let me know your own inspirations and plans for the New Year by adding your comments.

Until next week ….

Face Your Fears.              BE Ready.             Love Your Life.

End of Life, EOLPodcast

Ep. 68 Holiday Gift Guide for Those Coping With Death and Bereavement

 

This week Dr. Wyatt shares ideas for holiday gifts that are appropriate for caregivers, patients, and the bereaved. Those of us who work with dying patients and bereaved families believe it is important to deal with death openly and frankly, rather than trying to hide or deny the reality that we are all going to die some day. By choosing a gift that acknowledges death you can help foster a healthier approach to the end-of-life in our society and provide an opening for your friend to seek you out for support and conversation.

Here are some “death-aware” gifts that you might consider for various individuals grappling with death and loss this holiday season:

  1. Books: As a reader, books are always one of my favorite gifts to give and receive and there are many that can fit the criteria of “death-aware”. Here are just a few of those books:
    1. The Legacy Letters by Carew Papritz consists of a series of letters from a dying father to his unborn children. This small book is profound and impactful but not too confronting about death and dying. Since it has a masculine perspective on life and death this would be a great gift for a man who may not resonate with some of the other books listed here.
    2. A Call from Spooner Street by Carol Ascher is a good read for an adult child dealing with the death of an elderly parent.
    3. Connecting the Dots and Support for Alzheimer’s and Dementia Caregivers by Judith London are wonderful books for caregivers of dementia patients.
    4. The Last Adventure of Life by Rev. Maria Hoaglund is full of helpful tips for families dealing with the dying of a loved one at home.
    5. Final Gifts by Maggie Callanan and Patricia Kelley is another wonderful book for families with a loved one nearing death that deals with unique deathbed experiences and communications.
    6. Safe Passage by Molly Fumia is an inspirational little book of daily devotions for one who is grieving.
    7. Turning the Corner on Grief Street by Rev. Terri Daniel is appropriate for someone in the later stages of grief who is ready for a spiritually transformative look at grief.
    8. Home Funeral Ceremonies by Donna Belk and Kateyanne Unullisi is a beautiful book of rituals and ceremonies for a family comfortable with having their loved one die and receive after-death care at home.
    9. What Really Matters by Karen Wyatt MD is a book of stories about hospice patients, their families and the process of discovering what really matters in death as well as life.
    10. Find additional recommended books in Episode 56.
  1. Music Music is a matter of personal preference but here are some lovely choices for those near the end-of-life:
    1. Walking Each Other Home by The Threshold Choir consists of songs appropriate for the bedside of a dying patient.
    2. Rosa Mystica and The Geography of the Soul by Therese Schroeder-Sheker contain beautiful harp and vocal music for the dying produced by her Chalice of Repose Project.
    3. Graceful Passages by Gary Malkin is a combination CD and Gift book with music and the spoken word for anyone exploring the issues of life and death.
  1. Hello Game (formerly called “My Gift of Grace”) This game is a fun and inspirational tool for creating conversations about death and dying. It would be a great gift for a family facing future loss (which actually describes all of our families) who need some help talking about the end-of-life. The questions contained in the game provide a gentle introduction to a difficult subject.
  1. Memory Quilt or Pillow Favorite clothing items like T-shirts, ties, skirts or dresses can be used to make beautiful memorial quilts or pillows. This might be a thoughtful gift for someone close to you who is grieving a loved one if you have access to those clothing items.
  1. Ceremonial Supplies You might package together one of the suggested books or CD’s along with some of these supplies to help families create rituals for the dying process and for grief:
    1. Incense or sage
    2. Essential oils such as lavender, frankincense, lemon, sandalwood, tea tree. Read about aromatherapy for the dying here.
    3. Candles
    4. Handmade paper for writing notes
    5. Journal
  1. Gifts for Caregivers If you know someone caring for a loved one during this holiday season be sure to offer a little extra TLC or support. Stress levels can increase greatly for caregivers at this time of year with an influx of visitors and extra tasks to perform. Here are some thoughtful ideas:
    1. Gift certificate for a massage or “spa day”
    2. Homemade “coupon” book with redeemable certificates for help with errands, housecleaning, laundry, cooking, or respite care
    3. Gift cards for local restaurants that provide home delivery
    4. Punch card for a local yoga studio or gym along with offers of respite care so the caregiver can get away at least once a week
    5. Provide an outing for the patient including transportation and companionship to give the caregiver a break
    6. “Fidget Blanket” for a dementia patient to keep hands occupied
    7. DVD for the patient of a favorite movie or sporting event (especially old musicals, comedies and TV shows from the 1960’s)
    8. CD for the patient of music from the 1940’s and 50’s
    9. Invitation for a “lunch date” for the caregiver along with respite care for the patient
    10. Create a “Memory Book” for the patient of old photos, newspaper clippings and special documents from the past.

These suggestions are just a beginning to help you start thinking creatively about how to give a meaningful and fitting gift to a loved one facing death, dying or grief this holiday season. Spend some time searching for the perfect present that honors death and supports the one experiencing this difficult path.

But remember, there is no substitute for your presence, which is far more important than any other gift you can give. Be willing to spend time with your friend or loved one, even when you don’t know what to say and can do nothing more than sit in silence. Offering your calm and loving attention in the midst of a busy holiday season can be a gift for you, as well.

Wishing you many blessings this holiday season! Go to Patreon.com/eolu if you’d like to support this podcast and End-of-Life University. Tune in each Monday for a new episode and remember:

Face Your Fears.                BE Ready.                Love Your Life.

 

 

End of Life, EOLPodcast

Ep. 66: November End of Month Update on the End of Life

In this episode Dr. Wyatt thanks her latest supporter on Patreon.com/eolu, Suzanne O’Brien RN, founder of Doulagivers. If you would like to help support this podcast and End-of-Life University Interview Series for the small contribution of $1 or $2 per month, go to Patreon.com/eolu and sign up to become a supporter!

In other personal news, Dr. Wyatt just reached the 50,000 word goal on her novel-writing challenge for the month of November! Stay tuned for more information on Starry Night,  a novel about living and dying!

Go to DeathExpo.com if you are interested in getting the downloadable filed from Death Expo 2016. Tune in to Episode 65 to hear the highlights and take-aways from this fantastic educational event!

Next Dr. Wyatt shares the latest news and information about end-of-life issues that caught her eye during the month of November:

  • Survey of seniors in the U.S. shows that 27% have done absolutely no planning or preparing for the end of life. Those least likely to have prepared correlate with the following characteristics: age between 65-74, black or Hispanic, low-income, low education level, and diagnosis of Alzheimers.
  • Canadian study shows that for seniors who have completed Advance Directives, Values and Choices do not always align, showing a lack of guidance for choosing end-of-plans and confusion about basing choices on underlying values
  • a paper cited in the Journal of Pain and Symptom Management calls for improved consistency in honoring the EOL choices of patients in nursing homes and hospitals
  • Go Wish Card Game found helpful for patients completing their advance directives; helps them identify their values and priorities
  • Home-based Palliative Care shown to lower healthcare expenses in last year and 3 months of life, decrease hospital admissions and increase hospice utilizations. 87% of patients who receive palliative care at home are able to die at home, compared to only 24% of all Medicare patients who die at home
  • Review  of 43 palliative care clinical studies shows that palliative care improves quality of life but does not extend life
  • UC Santa Cruz has started a program to pair pre-med students with hospice patients
  • Study shows doctors are reluctant to discontinue routine medications that are no longer indicated for their patients at the end of life due to lack of awareness, low priority, and fear of causing patient to feel abandoned
  • Colorado became 6th state in the U.S. to approved medically aided dying during the November election
  • AARP and the National Association of Area Agencies on Aging have a launched a campaign to identify seniors suffering with loneliness and isolation in order to connect them with community resources; 43% of seniors report loneliness which leads to medical consequences
  • new movie Collateral Beauty deals with grief and death and will be released on Dec. 16th
  • Canadian singer-songwriter Leonard Cohen died on November 7th at the age of 82

Tune in every Monday for a new episode! Subscribe and leave reviews on iTunes by going here: https://itunes.apple.com/us/podcast/end-of-life-university/id1033282990 

Until next week remember:

Face Your Fears.                     BE Ready.                       Love Your Life.