EOLPodcast, Hospice

Ep. 258 The Heart of Hospice: Supporting the End-of-Life Journey with Helen Bauer and Jerry Fenter

Learn about the issues facing hospice care in the US and how the “heart” of hospice is essential for end-of-life care.

My guests today, Helen Bauer RN and Jerry Fenter, are the hosts of the popular podcast The Heart of Hospice. Having worked as a hospice nurse and hospice chaplain, these two are passionate about offering education and support to anyone who needs information about end-of-life care. Their projects include advance care planning, resources for professional and personal caregivers, and consultations with hospices about staff education. Learn more about their work at their website:

www.theheartofhospice.com

Listen here:

This episode includes:

  • Why Helen and Jerry started The Heart of Hospice
  • The challenge of educating the public and medical professionals about the benefits of hospice care
  • How COVID-19 is impacting hospice care right now
  • Other difficulties facing hospice care in the US
  • Reasons to be hopeful about the future of hospice
  • Self-care tips for professional and personal caregivers
  • The importance of memorial services for hospice staff to process grief
  • Resources available from their website

POEM: Compassion by Miller Williams

"Have compassion for everyone you meet 
even if they don’t want it. What seems conceit, 
bad manners or cynicism is always a sign 
of things no ears have heard, no eyes have seen. 
You do not know what wars are going on 
down there where the spirit meets the bone.”

From -  Healing the Divide: Poems of Kindness and Connection - 
edited by James Crews

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference!

End of Life, EOLPodcast

Ep. 227 Approaching the Tipping Point: Looking Back at a Decade of Change and Ahead to 2020

Learn how changes that began in the last decade foreshadow future growth in the death-positive movement.

In this final solo episode for 2019 I take a look back at some of the significant events of the past decade that helped to move forward the end-of-life movement. Then I share some tips and insights for continuing the momentum for positive change and increased death awareness in 2020. Find out how you can be part of the future as we move toward better care of the dying and the dead in our society.

Listen here:

This episode includes:

  • Previous events that helped set the stage for the momentum of the past decade (e.g. Five Wishes, Green Burial Council, Suzanne O’Brien’s community training for doulas)
  • Major movements of the past decade that have helped shift the narrative on death and dying:
    • National Home Funeral Alliance
    • The Conversation Project
    • Death Cafe
    • Ask a Mortician with Caitlin Doughty
    • Confessions of a Funeral Director with Caleb Wilde
    • Death Over Dinner
    • Atul Gawande’s book Being Mortal
    • Recompose (formerly the Urban Death Project)
    • Brittany Maynard’s quest for death with dignity
    • formation of the EOL Doula Council
  • What we have learned from the natural childbirth movement
  • Tips for continuing the momentum in 2020:
    • Don’t wait – the time is now
    • It will take all of us to create change – form coalitions and collaborations
    • Create a unified message for the cause
    • Education is critical
    • Tailor the message for specific groups
    • Be in it for the long haul (growth takes time)

Links mentioned in this episode:

  • Episode 145 and 146: What the EOL Movement Can Learn from the Natural Childbirth Movement
  • Episode 128: Why We Need Death Ed for Everyone Right Now
  • Interview with Deanna Cochran on EOL doula movement
  • Episode 186: How to Bring Death Doulas to the Hospice Team
  • Join the team at Patreon.com/eolu and get access to the EOLU mug“Mind if we talk about death?” (only Patrons can purchase it). PLUS get our new bonuses: the monthly EOL News Update, movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest Patron Delana Schneider, your contributions make all the difference!

End of Life, EOLPodcast, Hospice

Ep. 216 Hospice Under Threat: How to Protect Patient-Centered End-of-Life Care with Jeff Lycan

Learn about the “dark side” of the hospice business and how to identify and support organizations that are truly patient-centered.

PodcastEOLU19Lycan

My guest Jeffrey Lycan has spent the last 21 years of his  hospice and palliative care nursing career as an advocate for improving care and quality of life for patients at the end of life. He will discuss the recent alarming reports issued by the OIG (Office of the Inspector General) about instances of negligent care in some hospices, the worrisome trend toward profit-centered rather than patient-centered care, and how to support community-based hospices that are preserving Cicely Saunders’ legacy of end-of-life care. Learn about the Why It Matters Campaign he has started:

www.ohioshospice.org/whyitmatters

Listen here:

 

This episode includes:

  • The two OIG reports from July 2019 that exposed fraudulent and negligent care in some hospices (see links below)
  • What a “deficiency” in a hospice survey actually means
  •  Business changes in the hospice industry that have contributed to flaws in the care being offered
  • How some hospices now focus on profit first rather than patient care first
  • How profiteering harms the hospice system, patients and staff
  • New MedPAC proposal for lowering the annual per patient cap for hospices and why it may be a good thing
  • How consumers can choose the best hospice for their loved ones
  • How to register a complaint about hospice care
  • The campaign Why It Matters: Preserving the Legacy of Hospice

As originally championed by Cicely Saunders, MD, the founder of the modern hospice movement, the hospice model of care was based on providing end-of-life care with both compassion and science, and offering this care through engaged community-based, not- for-profit programs.

-from Why It Matters Website

ANNOUNCING:

FREE Webinar with Jane Barton: The Loneliness Epidemic

Register here.

BartonWebinarloneliness

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on Patreon.com/eoluespecially Susan Baumhammer, your contribution means  everything to me!

End of Life, EOLPodcast, Hospice

Ep. 22 End of Month Update on the End-of-Life with Karen Wyatt MD

In this episode from January 25, 2016 Dr. Karen Wyatt does an end-of-month review of news and happenings in the end-of-life arena. Subjects covered include:
-deaths of David Bowie and Stephen Levine and their possible influences on societal acceptance of death and dying
-studies on monthly stipends being paid to post-9/11 caregivers
-Facebook videos of preschool being held in a nursing home and dementia patient caring for a baby doll
-NHPCO infographic showing hospice trends over the past 6 years
-JAMA special issue on death and dying and Atul Gawande’s editorial
-study showing unnecessary screening for breast and prostate cancer in older Americans
-Story from Australia of Pat and Peter who died together in a suicide pact to avoid having to seek out medical care in later life