EOLPodcast

Ep. 370 Date with Death Club: Exploring Mortality in Community with Rev. Karen Johnston

Learn about a free curriculum you can bring to your community to foster conversations about death.

My guest Rev. Karen Johnston is an ordained Unitarian Universalist minister and the founder of Date with Death Club. Her own spiritual practice centers on “befriending death” and she shares how this led her to create the curriculum for Date with Death Club. We discuss how to work on befriending death and why education about death is essential. Karen tells us how to join the Date with Death Club and register to use her curriculum for free. Learn more at her website:

www.datewithdeathclub.com

Watch on YouTube

Listen here:

This episode includes:

  • Karen’s spiritual practice of befriending death
  • The benefits of making friends with death and losing fear
  • We must go through the fear of death rather than around it
  • How Karen became inspired to create the Date with Death Club
  • The subjects included in this secular curriculum and how they can be used in a variety of ways
  • What are “third things” and why they help us explore our heartspace about difficult issues
  • The importance of addressing our “eco-grief” right now
  • Why Karen is offering it for others to use at no charge
  • How to get involved and utilize the curriculum in your own community

Links mentioned in this episode:

Buy me a coffee

Donate on Paypal

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Bob McInnis, and to Dawn Greene for making a donation through Paypal! Your contributions make all the difference.

EOLU Blog

Finding Meaning in a Broken Life

Focus on the goodness of life rather than the regrets to find healing.

Jody was just 36 years old when she found out her colon cancer was incurable. I came to her apartment for our first hospice visit and saw that she was depressed and despondent over her diagnosis—as I had expected for someone her age who was raising two children by herself. She told me story after story of all the regrets she was carrying. And I just listened.

Her life had been unimaginably difficult—in foster care for most of her childhood then finally adopted at age 12 by a wonderful couple who loved her dearly. But she had been so filled with rage she couldn’t receive their love. She experimented with drugs and alcohol and was in and out of juvenile detention for petty crimes throughout her teens. There had been other even deeper regrets, but she didn’t want to talk about them. 

Jody was angry and bitter, but also ashamed. She believed she had wasted her life and now her children would grow up without a mother. She asked if there was any way to speed up her dying process because she could no longer face all of the emotional pain that was coming to the surface. 

We talked about things she could do to help with grief for her children, like writing letters to them that they could open at various milestones throughout their lives. She liked the idea that she could make sure her children didn’t feel unwanted, which she had experienced for most of her life.

I wasn’t sure how we could help Jody heal from all of these regrets. There were so many broken threads in her life and so many pieces to help her put back together. But then a little miracle happened. On my next visit with Jody she was like a different person: joyful and filled with energy and laughter. And she had more stories to tell me. 

Jody’s adoptive sister had come for a weekend visit and had brought with her boxes of old photos and a scrapbook. The two of them spent hours each day going through the photos together and gluing them into the album as a keepsake for Jody’s children. They wrote little stories on the pages to explain the pictures, which were arranged in a chronological timeline of Jody’s life.

She showed me each of the pages and told me entirely different stories than I had heard on my previous visit. Here was a family trip to the beach when she was 16. There was her favorite Halloween costume. And look: she was all dressed up for senior prom. Then there were pages and pages of pictures of her with her children: playing games, reading books, opening Christmas gifts, laughing, hugging, eating—all the little moments of life.

Jody wiped a tear away and smiled at me with a radiance I hadn’t seen before. “I’ve had a good life,” she said. “And I’ve been a good mom.” 

Here in her hands were the photos that documented all of the goodness of her life. In comparison to the magnificence of these moments, her regrets had faded away. She found meaning in the memories captured in these photos and was able to weave the broken threads of her life into a beautiful tapestry that was uniquely hers. 

Jody died just two weeks later. But she had been able to go through the album with her children and tell them all the stories that were depicted there. And she managed to write each of them letters that they could open when they were older. They would know they were loved and that their lives mattered and that an angel would be watching over them for all of their days. 

For most of us—like Jody—life hands us a mixture of sorrows and joys. We can view it all through the lens of regret and wish that things had been different. But we can also find ways to pick up the broken pieces and put them together to create a work of art–the likes of which has never before been seen–that might just change the world.

EOLPodcast

Ep. 338 Ask Doctor Death: Tough Questions About Tough Topics with Terri Daniel and Karen Wyatt

Learn how Terri Daniel and I used our experiences with loss and grief to motivate the work we do today.

In this episode I’m featuring a conversation I had with the Rev. Dr. Terri Daniel on the Ask Doctor Death Podcast, of which I am an occasional co-host. Terri is the creator of the former Afterlife Awareness Conference and now the Conference on Death, Grief and Belief, which will be held July 2022 in Portland OR. We share a wide-ranging discussion that includes our own personal stories and our spiritual journeys, which have brought us where we are today. Learn more about Terri and the conference:

http://www.danieldirect.net

http://www.deathgriefandbelief.com

Download transcript here

Listen here:

This episode includes:

  • The grief experiences that brought each of us to do work focused on end-of-life issues
  • What it means to us to be spiritual but not religious
  • How we each have found meaning in suffering and grief (and why we wish everyone could)
  • How toxic theology can harm people at the end of life or during grief
  • What we disagree with about some contemporary advice given to those who are grieving (especially on social media)

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my new patrons Monica Kaniewska and Katharina Mack! Your contributions make all the difference.

EOLPodcast

Ep. 311 The Conundrum of “Hope” at the End-of-Life

Learn why hope is a powerful tool that can be harmful or helpful at the end of life.

In this solo episode I share some thoughts, concerns, studies, quotes and clips on hope and why it isn’t always a good thing at the end of life. From doctors who refuse to refer patients to hospice and palliative care because they don’t want to take away their hope, to patients who cling to false hopes and resist planning for the end of life, I’ve long been concerned that we are using hope in a toxic way in our medical system. It’s time to look at a better way to help patients find meaning and positive experiences at the end of life than just handing them empty hope.

Listen here:

This episode includes:

  • How hope can be harmful for some people as they approach the end of life
  • Study showing the unrealistic expectations of terminal patients for how long they thought they had to live
  • The consequences of unrealistic hope for individual patients and the medical system
  • How some medical providers use hope as a tool without recognizing the harm it can cause to patients
  • How unrealistic hope can prevent patients from focusing on the present moment
  • Study showing that hope has a spectrum from “miracle cure” to “peaceful death”
  • Most patients want gentle honesty from their doctors but doctors often don’t recognize that
  • How to “dance with death” (per Stephen Jenkinson) rather than fighting against death
  • Why hope can be a superficial disguise for the fear of death
  • How to help people move beyond unrealistic hope to greater acceptance of death

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu, especially my supporter John Kuntz for increasing your monthly pledge! Your contributions make all the difference!

EOLPodcast, mortal wisdom, Spirituality

Ep. 284 The Hero’s Journey at the End of Life

Learn what the Hero’s Journey can teach us about the dying process and how to support someone on that journey.

In this solo episode I share some thoughts about the archetypal Hero’s Journey, conceived by Joseph Campbell as a template for the transformative experiences of our own lives and those who are facing the end of life. Each of us has the opportunity to be a mentor for someone who is going through the ordeal of their own hero’s journey and this model can help us understand how to offer support and what is needed from us. Download a one page handout at the link below:

Listen here:

This episode includes:

  • Why the archetypal Hero’s Journey applies to people at the end of life
  • Why things generally have to fall apart before transformation can occur
  • How dissolution of life’s equilibrium can lead to either transformation or regression
  • The importance of a mentor for people experiencing the sacred end-of-life journey
  • The most important tasks of the end-of-life hero’s journey
    • Reframing Suffering
    • Strengthening Connections
    • Finding Meaning
    • Facing Fear of Death
  • How unaddressed shadow issues can sabotage transformation at the end of life
  • The benefits of stories as tools for a mentor
  • How to utilize stories to assist with transformation

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference!

EOLPodcast

Ep. 257 Coping with Unexpected Change in an Uncertain World

Learn how to build resiliency to better cope with the overwhelming changes taking place in the world right now.

In this solo episode I talk about the necessity of change in life and what happens when the amount of change we are forced to deal with exceeds our capacity to manage it. I share some thoughts about the consequences of “change fatigue” and how to increase our resiliency to better deal with and grow from the experience of unexpected and unwanted change.

Listen here:

This episode includes:

  • Why we resist change
  • Why change is essential for growth
  • The “Bucket Theory” of change
  • The consequences of “change fatigue”
  • The 6 building blocks of resilience:
    • Values and beliefs
    • Meaning and purpose
    • Mindset
    • Relationships
    • Physical health
    • Emotional health
  • Tips for strengthening your own “building blocks”
  • Lessons from the dying for coping with change

What the caterpillar calls the end of the world …

the master calls a butterfly.”

– Richard Bach

Links mentioned in this episode:

  • IANDS 2020 Virtual Conference
  • Get my book here7 Lessons for Living from the Dying
  • Subscribe to this podcast on AppleGoogleSpotifyiHeart RadioStitcher Radio
  • Check out the Series I’ve recorded in the past here
  • Join the team at Patreon.com/eolu and get access to the EOLU mug“Mind if we talk about death?” (only Patrons can purchase it). PLUS get our new bonuses: the monthly EOL News Update, movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference!

EOLPodcast, Spirituality

BONUS 9: Love Over Fear – Stories for Precarious Times

Welcome to this weekly bonus series of brief stories designed to touch your heart and offer you comfort, joy, laughter, and inspiration as we face uncertain times together! Remember always to choose LOVE over fear!

Story 9: Every Life is Precious

Every Life is Precious

Featured Poem:

Shoulders by Naomi Shihab Nye

A man crosses the street in rain,

stepping gently, looking two times north and south,

because his son is asleep on his shoulder.

No car must splash him.

No car drive too near to his shadow.

This man carries the world’s most sensitive cargo

but he’s not marked.

Nowhere does his jacket say FRAGILE,

HANDLE WITH CARE.

His ear fills up with breathing.

He hears the hum of a boy’s dream

deep inside him.

We’re not going to be able

to live in this world

if we’re not willing to do what he’s doing

with one another.

The road will only be wide.

The rain will never stop falling.

EOLPodcast, Grief

Ep. 244 Creative Tools for Grief During the COVID-19 Pandemic with Claudia Coenen

Learn how creativity can help us process our feelings of grief and sadness to become more whole during times of difficulty.

My guest Claudia Coenen is certified in grief counseling and thanatology and is also a musician, dancer, writer, and chef who utilizes creative process and somatic therapy in her work with clients. She is also the author of two books – “Shattered by Grief: Picking up the pieces to become WHOLE again” and “The Creative Toolkit for Working With Grief and Bereavement: A Practitioner’s Guide”. Today Claudia shares how creativity can help all of us deal with our grief and sadness as we cope with the global pandemic and some specific tools for fostering resilience and healing in a time of distress. Learn more about her work at her website:

www.thekarunaproject.com

Listen here:

Creative Tools for Grief with Claudia Coenen

This episode includes:

  • How creativity can help us deal with trauma, loss and grief
  • Why everyone is creative – even if they don’t know it
  • Creative activities for addressing fear during the pandemic
    • Fear and Action Worksheet
    • Shield Collage
    • Resilience basket
  • How various models for grief can help us get in touch with our emotions
    • Shattering of the Assumptive World
    • Meaning-making
    • Dual Process
    • Companioning Model
  • A daily ritual for acknowledging the current collective grief of humankind: Lovingkindness Meditation for the Pandemic

May we be at peace.

May we be healthy and strong.

May we be open-hearted.

May we remember we are all connected.”

from Lovingkindness Meditation for the Pandemic

Links mentioned in this episode:

  • Pre-Order 7 Lessons for Living from the Dying here
  • Claudia’s Website: The Karuna Project
  • Get Claudia’s Book here: Shattered by Grief: Picking up the pieces to become WHOLE again
  • Pre-Order Claudia’s new book here: The Creative Toolkit for Working with Grief and Bereavement
  • View Karuna Cards here
  • Shattering of the Assumptive World grief model – Ronnie Janoff-Bulman book
  • Leave a message for me at SpeakPipe.com/eolu and I’ll include it in a future episode!
  • Join the team at Patreon.com/eolu and get access to the EOLU mug“Mind if we talk about death?” (only Patrons can purchase it). PLUS get our new bonuses: the monthly EOL News Update, movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!
  • SUBSCRIBE to the podcast here

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference!

End of Life, EOLPodcast

Ep. 131 Embracing the Mystery of Death as We Plan for the Future

Learn why it’s difficult to make black-and-white decisions for the end of life when death itself is a mystery that will unfold with its own timing.

PodcastMystery

giagemThis week is a solo episode in which I share two stories about hospice patients I cared for and the unpredictability of death, even when a terminal diagnosis is present. This reality means that we have to keep growing in our awareness and acceptance of death as a mystery, even while we complete paperwork that gives concrete instructions for our last days of life. AND I feature some clips from my beautiful daughter Gia’s new album of Healing Chants!

Check out the album here!

ANNOUNCEMENTS:

You can still sign up for A Year of Reading Dangerously and expand your consciousness about death by reading books throughout 2018! Sign up here.

Slide01Get the Teaching Guidelines for a Death & Dying Class then join our work group in March as we team up to help one another create our own unique classes!

Sign up for the guide here.

 

A HUGE THANK YOU to my supporters on Patreon.com/eolu: Julie Lester, Brian Hempstead, and Mandy Pierpoint! Your generosity means so much to me! And thanks as well to all of the donors who have made pledges over the past year. I appreciate you so much! If you’d like to become a patron and receive the Hospice Happy Hour Q&A recording each month along with other bonuses go to Patreon.com/eolu to learn more!

FEATURE PRESENTATION:

I learned through my hospice work that death is a mystery and cannot be predicted or controlled unless we choose to take it into our own hands. Even then the method we use to end our life might fail or we might die of other causes before we can carry out our plans. But that mysterious aspect of death makes it endlessly fascinating to witness. If we can adopt a beginner’s mind about death then we can gradually become more relaxed and less fearful as we watch it approach.

The stories of two of my hospice patients illustrate the mystery of death quite well. One man was expected to live for several months after he signed up for hospice but died the next day of a massive heart attack. Another was in terminal renal failure and, according to medical experts, could not possibly remain alive for more than 2 weeks. And yet, that patient survived an entire year (it’s a great story so please listen in!)

As we work to complete our advance directives and put our wishes into writing we should also remember that this paperwork is not a guarantee of how our final days will unfold. The legal forms just help us prevent an outcome we don’t want. But when and how death comes will still be a mystery and we may end up awake and alert during our final days and responsible for our own decisions. So we would do well to keep learning about death and growing in our acceptance. In that way we can best prepare ourselves for any decisions we have to make at the end of life.

Remember there’s a new episode each Monday! Please tune in again next week and, if you enjoy this content leave a review on iTunes.

Check out Gia’s new album – you’ll hear her beautiful song Evocation as this episode ends!!

Until next week:

Face Your Fear           BE Ready           Love Your Life

karen-signature

 

 

 

End of Life, EOLPodcast

Ep. 127 The Consequences of Ignoring Death

Learn how our 100-year history of ignoring death has led to a death-phobic society and the consequences we face as individuals.

PodcastIgnoreDeath

DEATHEDforeveryoneIn this episode I share my thoughts on the negative effects, for individuals and for society in general, of our dysfunctional relationship with death. This topic leads into my theme for 2018: Death Education for Everyone, which you’ll be learning more about in upcoming episodes!

ANNOUNCEMENTS:

There’s still plenty of time to join the year-long reading group for 2018: A Year of Reading Dangerously. We just finished reading When Breath Becomes Air for January and are moving on to Smoke Gets in Your Eyes by Caitlin Doughty for our February selection. Click here to join the reading group!

Huge thanks to all of my current supporters on Patreon.com/eolu! I appreciate your generosity very much and also the emotional and spiritual support I derive from knowing that you are listening and that you care about the work I’m doing!

FEATURE PRESENTATION:

For the past century we here in the U.S. (and other developed nations, as well) have been gradually slipping into a state of ignorance about death. With the rise of modern medicine and the funeral industry, death has been removed from the home and from day-to-day life, allowing us to shove death into the far reaches of consciousness and to deny to ourselves that it exists.

But death is an essential component of life that cannot be ignored without causing some negative consequences. Today I’ll talk about these factors that result from ignoring death:

  • We think there’s always more time
  • We forget that life is fragile
  • We don’t cherish our relationships
  • We don’t appreciate change
  • We are unable to find meaning in life
  • We don’t live life fully

Here are the quotes I included in today’s discussion:

“Man … lives as if he is never going to die, and then dies having never really lived.” – Dalai Lama

“Death is very likely the single best invention of Life. It is Life’s change agent. It clears out the old to make way for the new.” – Steve Jobs

“Remembering that I’ll be dead soon is the most important tool I’ve ever encountered to help me make the big choices in life. Because almost everything – all external expectations, all pride, all fear of embarrassment or failure – these things just fall away in the face of death, leaving only what is true and important.” – Steve Jobs

“Death is not the greatest loss in life. The greatest loss is what dies inside us while we live.” – Norman Cousins

“Many people die at twenty-five and aren’t buried until they are seventy-five.” – Benjamin Franklin

So commit to start recognizing the presence of Death in your life every day until you can embrace and appreciate Death as a necessary component of Life. Then go out and start teaching other people to do the same thing!

Tune in each Monday for a new episode. If you enjoy this content please consider leaving a review on iTunes!

Until next week ..

Face Your Fear              BE Ready            Love Your Life

karen-signature

End of Life, EOLPodcast, Spirituality

Ep. 125 How to Have a Peaceful Death

Learn some steps you can take NOW to ensure that you will be at peace when you reach the end of life.

PodcastPeacefulDeath

momThis week I’m sharing with you my reflections on what it takes to be at peace when you die. I just observed the 5th anniversary of my Mom’s death and I was inspired to create this podcast by thinking about the peace she experienced at the time of her death and how she was able to achieve that! 

Read the companion blog on this subject here.

 

ANNOUNCEMENTS:

Join A Year of Reading Dangerously and read fantastic books about death and dying all through 2018! Learn more and sign up here.

Thanks to my latest supporter on Patreon.com/eolu: Cheryl Durden! Your contribution to this podcast and to the End-of-Life University Interview Series is greatly appreciated!

FEATURE PRESENTATION:

After writing a blog this week called “Why Some People Don’t Die in Peace” I decided that I should go further and address HOW to actually be more at peace when the end of life arrives. So here are my thoughts! These are all things to start working on now in order to be at peace in the end:

PHYSICAL:

  • Plan ahead for your time of dying: What type of care do you want to receive? Where do you want to be when you die?
  • Appoint a reliable healthcare proxy to speak on your behalf
  • Create advance directives and talk about them with everyone (family, medical providers, clergy, friends, attorney)
  • Do “death-cleaning” by giving away all the things you don’t need any more
  • Think about where you will live and who will take care of you if you are unable to care for yourself. How have you provided for these possibilities
  • Make note of all of your preparations along with all of your financial and ownership information. Make sure this is accessible to family members who may need this information in the future.
  • Plan ahead for your funeral and burial

MENTAL:

  • Prepare yourself for death by reading and learning what happens at the end of life
  • Participate in a Death Cafe to have conversations about death
  • Watch films about the end of life (like “Extremis” on Netflix)
  • Attend workshops, classes, lectures in your community about death and dying

EMOTIONAL:

  • Get your emotional “house in order” by reviewing your unfinished business – who do you need to forgive? What unhealed wounds are you carrying?
  • Work on practicing forgiveness now
  • Let go of old resentments
  • Make amends for your own errors in the past

SPIRITUAL:

  • Find meaning in life, no matter how difficult the circumstances of your life
  • Learn to live every moment and find joy and love wherever you go
  • Figure out what really matters to you and make sure you are living that every day
  • Face your fear of death to help you overcome all fears in your life and live with more joy

Thanks for supporting EOLU! I appreciate your listening – if you enjoy this content please leave a review on iTunes. Tune in next week for another fascinating episode!

Until then …

Face Your Fear              BE Ready               Love Your Life

karen-signature

End of Life, EOLPodcast

Ep. 07 What Hospice Patients Know that the Rest of Us Don’t

Dr. Karen Wyatt discusses the lessons she learned about life from working with hospice patients. These lessons were the foundation of her award-winning book What Really Matters: 7 Lessons for Living from the Stories of the Dying.

In this call you will learn:

-the true meaning of joy
-how to let go of the past
-why you must let life change you