Tag: end-of-life planning

EOLPodcast

Ep. 450 Death Doula World Training Day with Suzanne O’Brien RN

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Learn about a movement with a goal to train 1 million death doulas around the world.

My guest Suzanne O’Brien RN is the founder and CEO of Doulagivers Institute and a pioneer in the global death doula movement. She was awarded Worldwide Leader in Healthcare by the International Nurse Association and named Humanitarian Ambassador for Oprah Magazine in 2019. She discusses her experiences bringing death doula trainings to an international audience and her goal to train 1 million people to be death doulas. Learn more at her website:

doulagivers.com

YouTube Channel

Listen here:

This episode includes:

  • How Suzanne ended up becoming a hospice nurse and then creating Doulagivers Institute
  • Following intuition to find our path
  • Gaps that exist in hospice care, including that families don’t receive training for caring for a loved one
  • Why we need the Good Death Campaign to train 1 million people as death doulas
  • The benefits of having a “roadmap” for the end of life
  • How Death Doula World Training Day will benefit the end-of-life movement in Guatemala
  • What Suzanne learned about life and death on a trip to Zimbabwe
  • The greatest lesson Suzanne has learned from working with the dying
  • There’s a huge need for death doulas now and in the future
  • The need for death doulas to do community education

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and thank you to Påivi Vallo for your donation on Paypal. Your contributions make all the difference and ensure this podcast stays ad-free.

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Ep. 449 Open to Love: Senior Dating After Loss and Grief with Drs. Gloria Horsley and Frank Powers

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Learn about an informative and inspirational book to help seniors find love in their lives after experiencing loss through death or divorce.

My special guests this week, Drs. Gloria Horsley and Frank Powers, are a senior couple who met later in life, after experiencing loss. Gloria is a marriage and family therapist and Frank is a psychologist so between them they possess a lot of knowledge about grief, loss and relationships, including the deadly impact of loneliness on seniors in our society. Together they’ve written the book Open to Love: The Secrets of Senior Dating, which springs from their own experience of meeting and falling in love through a senior dating app. They share their tips and suggestions for seniors looking for love and facing the challenge of dating after a long-term relationship. Learn more at their websites:

opentohope.com

goldendatingdoctors.com

Get the book

YouTube Channel

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This episode includes:

  • The value of senior dating for alleviating loneliness and isolation in later life
  • What seniors need to know about the current dating world
  • Tips for trying an online dating app for the first time
  • The most important qualities to look for in a later life partner
  • Advice for later life partners whose children are not supportive of their new relationship
  • How seniors in a new relationship might discuss difficult issues such as finances, caregiving expectations and end-of-life preparations
  • What senior couples should consider before deciding whether or not to marry

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and thank you to Leslie for buying me a coffee and everyone who has joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

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Ep. 442 When You Die Project: Raising Death Awareness with Johanna Lunn

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Learn about a trilogy of documentary films that inform and inspire conversations about death, dying and the afterlife.

My guest Johanna Lunn is an award-winning producer, director, and writer, who has crafted many compelling, entertaining, and profoundly thought-provoking programs during her 20+ years in the business. She is the director and producer of the When You Die Documentary Trilogy. Johanna discusses how she founded WhenYouDie.org to foster awareness about death by curating many voices to share their stories–from palliative care clinicians, death doulas and the bereaved, to poets, comedians, and artists. Learn more at the website:

whenyoudie.org

YouTube Channel

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This episode includes:

  • What inspired Johanna to create this series of films
  • How she gathered the speakers she interviewed for each film
  • Why we need to look ahead to create something new rather than relying on what has worked in the past
  • The need for both a “curing team” and a “healing team”
  • What Johanna has learned about death, dying and the afterlife from creating the When You Die Project
  • Who can benefit from these films and her long term goals for them
  • How to watch and share these three documentaries with others

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donors Jane Whitlock, Robin Mallor, Carla Wheeler, and 4Brigid.  Also thank you to Dana Tuttle for buying me 3 coffees and Lisa Creeden for joining the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

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Ep. 439 Medical Aid in Dying: A Chaplain’s Perspective with Rev. Dr. Terri Daniel

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Learn how hospice chaplains can offer support to people who choose medical aid in dying.

My guest Dr. Terri Daniel is an inter-spiritual hospice chaplain, end-of-life educator, and grief counselor, who is the author of four books on death, grief and the afterlife, and a frequent guest on the podcast. Today Terri and I talk about medical aid in dying from a chaplain’s perspective and she discusses her experiences working for a hospice in Oregon that provides support for MAID. Learn more about Terri’s work at her website:

danieldirect.net

Watch on YouTube

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This episode includes:

  • The history of medical aid in dying in Oregon
  • How EOLCOR (End-of-Life Choices Oregon) assists people who want to utilize medical aid in dying
  • The wide variations in hospice policies around medical aid in dying
  • Dilemmas around communicating with family members who don’t support MAID
  • How MAID differs from suicide and why we need to understand that difference
  • A beautiful end-of-life ritual Terri created for a person utilizing MAID
  • Why some chaplains feel conflicted about supporting medical aid in dying
  • Religious objections to MAID
  • The “don’t ask, don’t tell” policy about MAID in some hospices
  • Dementia directive for advance care planning

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donor Kathleen Behrens.  Also thank you to Tom Waknitz and Carew Papritz for joining the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

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Ep. 435 Home Funerals as an Option After Death with Jerrigrace Lyons

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Learn how to create a home funeral ceremony that can honor and celebrate the life of a loved one.

My guest for this interview from the archives is Jerrigrace Lyons, founder of Final Passages, where she offers training for death doulas and home funeral guides. She shares the beauty of a home funeral and describes step-by-step how to honor a loved one with a private, intimate ceremony after death. Learn more at her website:

www.finalpassages.org

Hear the original interview and see the slides at this link: https://InstantTeleseminar.com/Events/89192217

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This episode includes:

  • How the home funeral movement is changing our societal perception of death and after-death care
  • Why home funerals are powerful
  • The beautiful rituals that can be created economically for a home funeral
  • How to go about creating a home funeral

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to those who’ve bought me a coffee! Also many thanks to all of you who joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

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Ep. 433 Medical Aid in Dying: A Physician’s Perspective with Dr. Bob Uslander

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Learn about a unique medical practice that focuses on end-of-life issues for patients including medical aid in dying.

My guest Dr. Bob Uslander is an emergency medicine physician whose career evolved toward caring for the elderly and those facing the end of their lives. He created a novel approach to end-of-life care called Empowered Endings with his wife Elizabeth, a spiritual counselor and medical social worker, to ensure that patients and their loved ones have their decisions, goals and dignity honored at the end of life. Dr. Bob shares his experiences and thoughts around providing support for patients who choose to use Medical Aid in Dying. Learn more at his website:

www.empoweredendings.com

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This episode includes:

  • How Dr. Bob got interested in working with patients at the end of life
  • The significant gaps that currently exist in palliative and end-of-life care for patients
  • Why his practice focuses on holistic care for both patients and their families
  • How Empowered Endings works along with hospice and fills in the gaps when hospice cannot provide care
  • The need for physicians to support patients who choose to use MAID
  • Why MAID providers should have some special training in this area in order to properly support patients and their families
  • What it’s like as a physician to provide medical support for patients choosing MAID
  • Advice for other physicians who may be considering supporting MAID

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to those who’ve bought me a coffee! Also many thanks to all of you who joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

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Ep. 428 Love and Loss as a Caregiver Dealing with Lewy Body Dementia with Mary Lou Falcone

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Learn about Lewy Body Dementia, why it is difficult to diagnose, and the special challenges faced by caregivers.

My guest Mary Lou Falcone has been an advocate for Lewy body dementia awareness since her dear husband Nicky Zann died of the disease in 2020. Mary Lou is internationally known as a classical music publicist who has guided the careers of many celebrated artists such as Van Cliburn, Renée Fleming, and James Taylor. Her communication and strategy skills make her well-suited to be an ambassador for LBD awareness and she is committed to sharing her experience and factual information about LBD with the public. She is the author of the newly published book I Didn’t See it Coming: Scenes of Love, Loss, and Lewy Body Dementia. Learn more at her website:

www.maryloufalcone.com

Get the book here

Watch on YouTube

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This episode includes:

  • Why Mary Lou decided to become a crusader for LBD awareness
  • The difference between Alzheimer’s and Lewy Body Dementia
  • The symptoms of LBD and why it is often difficult to diagnose
  • The inspiration for writing this book
  • Why LBD is little known by the general population
  • How to cope as a caregiver with the fluctuating symptoms of LBD
  • Survival strategies for LBD caregivers
  • Helpful resources available for caregivers

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donors Trina Wacasey and Samantha Potter and to Dianne Feltham for increasing your pledge.  Also thank you to Anonymous for buying me 3 coffees and to Carol Soppe and Samantha Potter for joining the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

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Ep. 425 Omega Homes: Community Homes for Dying People with Kelley Scott RN

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Learn how social model hospice homes are changing communities and improving end-of-life care for everyone and how you can start one where you live.

My guest Kelley Scott has been caring for dying people throughout the 37 years of her nursing career. She is the founder and executive director of Clarehouse, a “social model” hospice home in Tulsa OK. Kelley also serves as the president of Omega Home Network and provides consulting and mentoring to aspiring social model hospices. She discusses the Omega Home model and how other communities can implement it to improve end-of-life care for everyone. Learn more at the websites:

www.omegahomenetwork.org

www.clarehouse.org

Watch on YouTube

Listen here:

This episode includes:

  • What is a “social model hospice” or Omega Home
  • How Kelley first got interested in hospice and palliative care as a nurse
  • What inspired Kelley to found Clarehouse
  • Why Omega Homes are important to our communities
  • Advice for those who want to start an Omega Home in their community
  • Barriers to the Omega Home movement
  • How Omega Homes are funded

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to those who’ve bought me a coffee! Also many thanks to all of you who joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

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Ep. 424 Implicit Bias in End-of-Life Care with Kimberly Curseen MD

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Learn why cultural humility and awareness of hidden bias are essential in reducing racial disparities in care at the end of life.

My guest Dr. Kimberly Curseen is board-certified in Internal Medicine, Geriatrics and Palliative Care. She is the director of Supportive and Palliative Care Outpatient Services for Emory Healthcare and helps provide physical, emotional, and spiritual care for patients with cancer at any point in their disease process. She has helped educate physicians on implicit bias in healthcare and has written research articles for the Journal of Palliative Medicine and the Journal of Pain Symptom Management on structural racism and bias in palliative care. We discuss specific issues leading to racial inequities in healthcare and what we need to do to make changes and improve care at the end of life. Learn more about Dr. Curseen’s work:

med.emory.edu

Follow Dr. Curseen

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This episode includes:

  • How Dr. Curseen became interested in hospice and palliative medicine
  • What is “implicit bias” and how we can recognize it
  • Her work in rural Arkansas to educate community members and healthcare providers on implicit bias
  • Why we need “cultural humility” along with cultural competency training
  • How implicit stereotypes and biases contribute to racial inequities in healthcare
  • The current problem of racial disparities in pain management
  • Why improving racial disparities in advance care planning and hospice utilization must begin with our own personal work on hidden biases
  • How end-of-life care providers can develop cultural humility and a person-centered approach in their work
  • Why we need to change what we offer in end-of-life care to fit the patients that need care, rather than trying to force patients to fit into our existing model

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu especially my newest donors Lacy Buynak and Grace Lawrence and to Robin Blanche and Sandy Jane Stacy for increasing your pledge.Thank you to my newest donors on PayPal Erin Collins, Debora Schauss, Kathleen Lynch, and Janice Wildrick! Also many thanks to Ann Hyland and Jerry for buying me coffees! Your contributions make all the difference and ensure this podcast stays ad-free.

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Ep. 422 Practices to Prepare for the End of Life with Patt Lind-Kyle

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Learn how meditation practice can help decrease the fear of death and prepare you for a peaceful end of life.


My guest Patt LInd-Kyle is an authority on mindulness meditation, chakras, and the Enneagram who will share practices for addressing the fear of death. She is the author of 4 science and spirituality books including her latest Embracing the End of Life, A Journey into Dying and Awakening and Heal Your Mind, Rewire Your Brain. Patt is also a thought leader on how the mind and brain work together to arrive at a sense of who we are. She has studied the dying process in preparation for her own death and has become a leading authority on death and dying consciously. Patt has produced a series of guided meditations to accompany her Embracing the End of Life and Heal Your Mind, Rewire Your Brain books. Learn more at her website:

www.Pattlindkyle.com

Get the book

Watch on YouTube

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This episode includes:

  • Why it is important to face the fear of death
  • The benefits of meditation for confronting the end of life
  • How to start a meditation practice
  • How to let go of the need to control death 
  • How facing death helps us live life more fully

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to those who’ve bought me a coffee! Also many thanks to all of you who joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

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Ep. 417 Dignity Day: A Guidebook for Medical Aid in Dying with Gabrielle Elise Jimenez

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Learn about a helpful guidebook to provide information and dispel fear around medical aid in dying.

My guest Gabrielle Elise Jimenez is a hospice nurse, an end-of-life doula, and a conscious dying educator. She is the author of 6 books and the host of The Hospice Heart Facebook group, which now has 140,000 members. We discuss her latest book Dignity Day, an informational guide for people who are considering or want to learn more about medical aid in dying, based on Gabby’s experiences with patients who have chosen this option in her home state of California. Learn more about Gabby’s work and join her Facebook group at the following links:

www.thehospiceheart.net

fb.com/thehospiceheart.net

Get the book here

Watch on YouTube

Listen here:

This episode includes:

  • Why Gabby chose “Dignity Day” as a title for the book
  • The general requirements for using MAID in states where it is legal
  • What patients and their families should expect when they consult medical providers about MAID
  • How a hospice nurse or end-of-life doula can support a patient going through this process
  • The preparations needed before the medication is ingested
  • What it looks like when a person dies using MAID and how to prepare patients and loved ones for that
  • How to talk to loved ones who don’t support a patient’s decision to use MAID

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donors Lorene Reyes, David Easton, Ed Modell, and thanks to Joan Roellchen-Pfohl for upping your pledge! Also many thanks to Dan and Judy Dickinson for buying some coffees and to all of you who joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

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Ep. 416 Upstream Care for Veterans at End of Life with Lauren Grigsby and Wes Moldogo

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Learn about an innovative ranch that provides a safe and healing space for veterans and how to help veterans prepare for end of life “upstream”, before it’s too late.

My guests this week are two veterans who now work with other veterans at end of life. Lauren Grigsby is the co-executive director at Central Oregon Veterans Ranch and is an end-of-life doula with The Peaceful Presence Project. Wes Moldogo is chaplain who serves in the Oregon Army National Guard’s 2-162 Infantry Regiment and works also as a hospice chaplain. Together Lauren and Wes discuss the Central Oregon Veterans Ranch and the concept of “upstream care” for veterans with spiritual pain. Learn more about the ranch at the website:

www.covranch.org

Listen here:

Watch on YouTube

This episode includes:

  • The inspiration behind the Central Oregon Veterans Ranch
  • Mental health issues and “soul injury” for veterans
  • How the COV Ranch provides dignity and purpose for veterans
  • How needs for veterans change at different life stages
  • What is “upstream care” for veterans (and others) and why is it needed
  • Creating safe space for veterans as they face the end of life
  • Why the military culture of strength may make hospice acceptance more difficult for veterans
  • Why the staff members of Veterans Ranch work on their own vulnerability first
  • The importance of “distress tolerance” in end-of-life work
  • The need for palliative care for unhoused veterans
  • How the Central Oregon area is a great example of community collaboration for veteran care
  • The 3 “spiritual pains” often seen in veterans
  • Upstream interventions to help veterans with spiritual pain

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference and ensure this podcast stays ad-free.

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Ep. 413 Death in the E.R. and the Failures of Modern Medicine with Drew Remignanti MD

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Learn about current issues in healthcare that are impacting the quality of care received at the end of life.

My guest Dr. Drew Remignanti is an emergency medicine physician who has lived with chronic illness since being diagnosed with ulcerative colitis at the age of 19. He suffered a major stroke at the age of 38 that sidetracked his career for five years but inspired him to write the book The Healing Connection: A Partnership for Your Health, which explores how dollar-driven motives wield too much influence over our medical decisions, including at the end of life. To learn more about the book follow Dr. Remignanti on Facebook:

Follow on Facebook

Get the book here

Watch on YouTube

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This episode includes:

  • What happens when people show up at the ER without an advance directive
  • Why the default emergency care is “do everything”
  • What is “slow medicine” and how are current forces in the healthcare system working against it
  • Why patients and providers need to work together to make the changes we need
  • When people know and trust their physician they are far more likely to create an advance care plan for their health and follow it
  • Studies show it takes only 40 seconds of compassion in a medical encounter to make a significant difference
  • The “commoditization” of healthcare and the problems it causes
  • The US has an 88% rate of healthcare illiteracy, meaning people do not know how to acquire or apply information about their health

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donor Carole Heaney! Your contributions make all the difference and ensure this podcast stays ad-free.

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Ep. 407 Navigating Your Parents’ Senior Years with Star Bradbury

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Learn some great tips for helping your parents make challenging decisions about their senior years and end of life.

My guest Star Bradbury is an Aging Life Care Specialist and the CEO of Senior Living Strategies. She has helped thousands of families make educated and informed decisions as they navigate the world of senior living and senior healthcare. She is the author of Successfully Navigating Your Parents’ Senior Years: Critical Information to Maximize Their Independence and Make Sure They Get the Care They Need. She shares tips and advice for helping parents make plans for their elder years, including the end of life, and how this book is a resource for all of us regardless of our age. Learn more at her website:

http://www.starbradbury.com

Get the book here

Watch on YouTube

Listen here:

This episode includes:

  • Why it’s important to maximize and prolong your parents’ independence
  • Tips for starting difficult conversations with your parents
  • Why confronting the need for change can get harder as we age
  • The benefits of “just in time” senior planning that takes place before a crisis occurs
  • How to navigate the world of senior living options and the best questions to ask when touring a senior care facility
  • Tips for being involved in your parents’ care when you don’t live nearby
  • Why aging in place may not be the best choice for every senior
  • Why “slow medicine” should be considered as part of our end-of-life planning

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donor Ellen Koski! Your contributions make all the difference.

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Ep. 403 Death Over Drafts: Meeting People Where They Are with Stefanie Elkins

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Learn about creating opportunities in your community for conversations about death.

My guest Stefanie Elkins is a Family Caregiver Consultant, end-of-life doula, founder of Be Present Care, and the creator of Death Over Drafts, a community event held at breweries across the country to spark meaningful conversations around death and dying. She’ll share her experience bringing end-of-life conversations to community spaces where people naturally gather and how we can make a difference in someone’s end-of-life journey by helping them talk about death and grief. Learn more about Stefanie’s work at her website:

www.bepresentcare.com

Watch on YouTube

Listen here:

This episode includes:

  • How Stefanie helps patients and families at the end of life
  • What inspired Death Over Drafts
  • Who attends Death Over Drafts and examples of the conversations that have taken place
  • Why conversations about death are important
  • Why we need to meet people where they are and bring death education to various venues and spaces
  • How to bring Death Over Drafts to your own community
  • Why end-of-life workers need to do their own work planning for the end of life
  • How families can support the aging and prepare for the inevitable

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donor Phyllis Wintter and to Don Zacharias for making a Paypal donation! Your contributions make all the difference.

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Ep. 397 Talking About Death with ChatGPT

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Learn how the AI language model ChatGPT can be used as a resource for information about death and dying and when caution is required.

My special “guest” this week is ChatGPT an AI language model that can understand and respond to human language. Chat has been trained on a wide range of topics, including end-of-life care, hospice, palliative care, grief and bereavement, and advance care planning, among others. I conducted a written “interview” with Chat to test its knowledge and in this episode I report on my findings. In addition, I’ve compiled all of our correspondence into a book titled Conversations on Death with ChatGPT, which you can access now in ebook format. I hope you enjoy hearing about my adventures with Chat!

Get the book

Watch on YouTube

Listen here:

This episode includes:

  • What an AI language model consists of and how to interact with it
  • The amazing depth and breadth of content and resources that ChatGPT was able to generate in a matter of seconds
  • What I learned about euphemisms for death from Chat
  • What Chat got wrong about for-profit hospice
  • How Chat needed better information about talking to children about death
  • Chat’s creative ideas for promoting advance care planning in predominantly Black communities
  • Chat’s thoughts about the 5-stages model of grief
  • A haiku Chat wrote about grief
  • How Chat helped me deal with guilt over my father’s suicide death

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons Susan Mackey and Colleen Bracken, and to Laura Srygley for buying me a coffee and Fabricio Vasconcelos de Lima for donating on Paypal! Your contributions make all the difference.

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Ep. 391 Dying in America: A Journalist’s Exploration with Ann Neumann

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Learn about this journalist’s research into “the good death” and what she learned through seven years of study and travel across the U.S.

My guest Ann Neumann is a journalist whose work has appeared in The New York Times, The Guardian, Harper’s magazine, The Baffler, Guernica magazine, and elsewhere. After caring for her father at his end of life she became a hospice volunteer and began to research the meaning of a “good death” in this country, which led to her book The Good Death: An Exploration of Dying in America. She shares some of the things she learned about death as she traveled the country and listened to opinions, beliefs, and stories about what constitutes a good death. Learn more at her website:

www.annneumann.wordpress.com

Get the book here

Watch on YouTube

Listen here:

This episode includes:

  • How Ann’s experience caring for her father at the end of his life inspired her research for the book
  • How Ann and her family felt unprepared for the actual dying process even though they were receiving care from hospice
  • How the “gentle” marketing of hospice and death care services can obscure the reality of the challenges of dying
  • The tragedy of “false hope” being offered to patients rather than factual information
  • Where Ann found inspiration for each of the topics she covered in the book (e.g. medical aid in dying, pro-life movement, religious influence on dying, disability issues, prison hospice)
  • Why “dignity” can mean something different to people who live with disabilities
  • The extensive work needed to overcome racial disparities in end-of-life care and restore trust

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Jason P. and thank you also the anonymous person who bought me 5 coffees! Your contributions make all the difference.

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Ep. 390 Funeral Consumers Alliance: Resources for Funeral Planning with Martha Lundgren

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Learn how the FCA helps consumers plan ahead for funerals and make informed choices for themselves and their loved ones.

My guest Martha Lundgren is the president of the board of Funeral Consumers Alliance of Arizona. She also serves on the speakers bureau for FCA-AZ and is a representative in the Arizona End of Life Care Partnership. Martha will tell us the role FCA plays in educating people about their rights when planning a funeral and how to avoid costly mistakes, which is information we all need to know for ourselves, loved ones, patients and clients. Learn more at the websites:

Funeral Consumers Alliance of Arizona: www.fcaaz.org

National Funeral Consumers Alliances: www.funerals.org

Watch on YouTube

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This episode includes:

  • The role of the Funeral Consumers Alliance
  • Why planning ahead is important for funerals, especially if you have specific wishes for what happens
  • How FCA helps consumers “shop around” for funeral arrangements
  • The funeral industry in general lacks transparency about pricing
  • Why you should plan in advance but not pay in advance for funerals
  • Consumers should beware of deceptive advertising in the funeral industry
  • Why it’s important to name someone to pay for and plan your funeral
  • What to do if your loved one doesn’t want a funeral
  • How to cover the cost of a funeral or disposition
  • What happens if someone dies while traveling out of state or out of the country

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Diana Hiatt! Your contributions make all the difference.

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Ep. 386 Five Wishes: Advance Care Planning for Everyone with Joanne Eason

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Learn more about the Five Wishes document and why it can be a good choice as an advance directive.

My guest Joanne Eason is the president of Five Wishes, the nation’s only national advance care planning program. She discusses the history of the Five Wishes organization and the benefits of using the Five Wishes form as an advance directive. We review the reasons why everyone over age 18 needs and advance directive and how Five Wishes can meet that need. Learn more at the website:

www.fivewishes.org

Watch on YouTube

Listen here:

This episode includes:

  • The original inspiration behind Five Wishes
  • What the Five Wishes document consists of
  • Which 46 states recognize Five Wishes as a legal document and the extra steps needed in the other 4 states
  • Why choose Five Wishes over state advance directive forms or how to use both forms together
  • The benefits of planning ahead for the end of life
  • The importance of choosing the best person as a healthcare proxy
  • Why Five Wishes asks individuals to define “what life support treatment means to me”
  • The importance of including questions about more than just wishes for medical treatment in advance care planning
  • What steps to take after completing Five Wishes
  • How the Five Wishes form acknowledges the “gray areas” of end-of-life planning

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons Kyle Tevlin and Janice Cotter! Your contributions make all the difference.

EOLPodcast

Ep. 379 Honoring Choices: A Film to Inspire End-of-Life Planning with Elizabeth Coplan and Halle Williams

kwyattmd

Learn about a short film that was created to encourage people to plan for and have conversations about the end of life.

In this episode I welcome two guests to discuss the short film Honoring Choices that is a powerful tool for persuading people to plan for and talk about the end of life. Elizabeth Coplan is the founder of Grief Dialogues and the creator of the stage play Honoring Choices that ultimately became the film we are featuring. Halle Williams is the marketing director for both Grief Dialogues and Honoring Choices and the co-host of Out of Grief Comes Art Podcast along with Elizabeth. Learn more about their work at the website:

www.griefdialogues.com

Honoring Choices trailer

Watch interview on YouTube

Listen here:

This episode includes:

  • What inspired the creation of the film Honoring Choices
  • The true story behind the film
  • What Elizabeth and Halle hope the film will accomplish
  • The serious racial disparity in completing advance directives and how the film helps address this issue
  • The power of storytelling and how the film uses story to teach
  • The premiere of Honoring Choices at the Reimagine Festival in LA
  • How to use the film for teaching for hospices, hospitals, schools, churches
  • How to sponsor a screening of the film
  • Inspiration for the podcast Out of Grief Comes Art

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Maggie Dial! Your contribution makes all the difference.