Tag: medically assisted dying

EOLPodcast

Ep. 417 Dignity Day: A Guidebook for Medical Aid in Dying with Gabrielle Elise Jimenez

kwyattmd

Learn about a helpful guidebook to provide information and dispel fear around medical aid in dying.

My guest Gabrielle Elise Jimenez is a hospice nurse, an end-of-life doula, and a conscious dying educator. She is the author of 6 books and the host of The Hospice Heart Facebook group, which now has 140,000 members. We discuss her latest book Dignity Day, an informational guide for people who are considering or want to learn more about medical aid in dying, based on Gabby’s experiences with patients who have chosen this option in her home state of California. Learn more about Gabby’s work and join her Facebook group at the following links:

www.thehospiceheart.net

fb.com/thehospiceheart.net

Get the book here

Watch on YouTube

Listen here:

This episode includes:

  • Why Gabby chose “Dignity Day” as a title for the book
  • The general requirements for using MAID in states where it is legal
  • What patients and their families should expect when they consult medical providers about MAID
  • How a hospice nurse or end-of-life doula can support a patient going through this process
  • The preparations needed before the medication is ingested
  • What it looks like when a person dies using MAID and how to prepare patients and loved ones for that
  • How to talk to loved ones who don’t support a patient’s decision to use MAID

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donors Lorene Reyes, David Easton, Ed Modell, and thanks to Joan Roellchen-Pfohl for upping your pledge! Also many thanks to Dan and Judy Dickinson for buying some coffees and to all of you who joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 286 The Three Regrets: Stories from a Buddhist Hospice Chaplain with Tenzin Kiyosaki

kwyattmd

Learn how a former Buddhist nun brought her gentle, compassionate approach to hospice chaplaincy.

ANNOUNCEMENT: The Laughter Yoga Webinar mentioned in this episode has been rescheduled for March 10th due to severe weather-related power outages experienced by the presenter. You can still register using the link below.

My guest Tenzin Kiyosaki has been a certified interfaith hospice chaplain for the past 13 years. She also practiced as a Buddhist nun for 27 years after being ordained by His Holiness the Dalai Lama and brings an Eastern perspective to her hospice work. She is the author of the book The Three Regrets: Inspirational Stories of Love and Forgiveness at Life’s End and shares the spiritual wisdom she gathered from her work with dying patients.

Get the book here.

Listen here:

This episode includes:

  • How Tenzin was inspired to become a hospice chaplain
  • What Tenzin learned from her Buddhist studies about the end of life
  • What hospice work is always an ongoing learning experience
  • How Western culture avoids the subject of death while Eastern cultures embrace it
  • The failure of Western medicine to accept impermanence
  • What led Tenzin to return her vows and become a lay person once again
  • The role of a chaplain in hospice to find the “heart” of each patient
  • Do chaplains and hospice need different titles to overcome bias in our society?
  • How to help patients who regret a lack of accomplishment in life
  • Helping patients who have not shared enough love during their lives
  • Why regret at the end of life is actually a good sign
  • A Buddhist perspective on medical aid in dying

Links included in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu! Your contributions make all the difference!

EOLPodcast

Ep. 251 Insights Into the Experience of Dying with Jennie Dear

kwyattmd

Learn about current research into the experience of dying as a physical, emotional and spiritual process.

My guest Jennie Dear, who has been a journalist, English professor and hospice volunteer, was curious about the question “what does it feel like to die?” so she conducted her own research project. After interviewing doctors, nurses, psychologists, and other experts about the passage between diagnosis and death, she wrote a book (What Does it Feel Like to Die?) to share the hopeful insights she gained. She discusses what she learned from that project and what most people don’t know and need to know about the dying process. Learn more about her work at the website:

www.jenniedear.com

Listen here:

This episode includes:

  • Why and how Jennie wrote this book
  • How knowing about the physical process of dying can help people prepare better for the end of life
  • Why some dying patients’ pain is not alleviated
    • Fear of opioid abuse
    • Other untreated symptoms
    • Mental/emotional suffering of the dying process
  • Neuroscience experiments with patients in a vegetative state show patients are more aware than they appear to be
  • How do we know that “hearing is the last sense to go” for a dying patient
  • The 4 trajectories of dying (according to Dr. Joanne Lynn) and why it’s helpful to understand them
    • Sudden death
    • Terminal illness
    • Chronic illness
    • Frailty
  • Most common reasons for choosing medical aid in dying:
    • Fear of pain
    • Not wanting to be a burden to family
    • Not wanting to prolong the dying process

Links mentioned in this episode:

  • Course: Racism in Death Care – Confronting Bias, Ignorance and Prejudice taught by Joel Anthony and Anita Grant
  • Get Jennie’s book here: What Does it Feel Like to Die?
  • Get Karen’s book here: 7 Lessons for Living from the Dying
  • Dr. Joanne Lynn discusses 3 Trajectories of Death – video
  • The Five Trajectories pdf by Jennifer Moore Ballentine
  • Jennie’s YouTube video
  • Join the team at Patreon.com/eolu and get access to the EOLU mug: “Mind if we talk about death?” (only Patrons can purchase it). PLUS get our new bonuses: the monthly EOL News Update, movie reviews from 2 Doctors and a Movie, and automatic access to A Year of Reading Dangerously!

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest Patron: Heather Capuano. Your contributions make all the difference!

End of Life, EOLPodcast, Hospice

Ep. 70 Looking Back on 2016: A Positive Year for End-of-Life Issues

kwyattmd

In this final episode of 2016 Dr. Wyatt thanks all of the patrons who have generously made contributions on Patreon.com/eolu this year! Thank you for offering your support for this podcast and the End-of-Life University interview series!

In this look back at 2016 we talk about the following positive events in the end-of-life arena:

  • In January JAMA dedicated a special issue to “Death, Dying and the End-of-Life”, which represents a positive breakthrough in awareness of EOL issues by the medical profession
  • Medical schools began adopting new training programs for students in pain management, palliative care, and communication skills around advance care planning. There is a college-level program that pairs pre-med students with hospice patients
  • Nursing homes and long-term care facilities are bringing in children and college students to interact with patients
  • Dementia rates in the US  have dropped in the past year
  • Pilot studies are underway involving providing education and training to family caregivers and providing a small stipend to caregivers
  • A demonstration project is underway to study the benefits of providing curative care simultaneously with hospice care
  • Studies showed that palliative care lowers healthcare costs along with providing increased quality of life, improved pain management and fewer hospital days
  • Harvard study of adult development showed that relationships are a key to longevity
  • California and Colorado both passed assisted dying laws in 2016
  • The nation’s first conference on VSED was held this year
  • Conversation Sabbath took place for the first time in November, bringing discussions about death and dying into places of worship
  • Dying to Know Day was held in the US, inspired by the movement in Australia
  • Miss Norma, a 90-year old woman who refused treatment for her cancer, spent most of the year traveling around the country in an RV with her son and daughter-in-law, fully enjoying the last days of her life

Thank you for tuning in to the EOLU Podcast during 2016! I hope this has been a positive and productive year for you. May 2017 be filled with growth, surprises, peace and joy! See you next year and until then …

Face Your Fears.              BE Ready.              Love Your Life.

End of Life, EOLPodcast, Hospice

Ep. 62 October End-of-Month Update – Halloween Edition

kwyattmd

 

Dr. Wyatt thanks her newest Patreon.com supporter Tracy Zagata. You can become a supporter as well by going to Patreon.com/eolu and signing up!

Sign up for Death Expo which will take place Nov. 10-13, and hear 12 speakers on EOL issues. Go to DeathExpo.com to register free to tune in to these excellent presentations.

This episode is taking place on Halloween and the Day of the Dead. Dr. Wyatt includes the following updates:

  • CMS report 52% increase in Medicare spending on hospice between 2007 and 2015 due to 38% increase in the number of patients receiving hospice care, primarily patients with dementia
  • the DEA is mandating 34% decrease in opioid production due to dramatic increase in opioid-related deaths since 1999 – rate has quadrupled during that time frame
  • JAMA Oncology reports that the cost of secobarbital, the drug most frequently prescribed in assisted dying cases, has increased by $25oo; there is no explanation except that drug companies can get away with it
  • California is the first state to require that palliative care teams have a chaplain for those patients who want to receive spiritual care
  • Debra Beaulieu writes in HealthLeaders Media that all clinicians should know the following about palliative care: 1) that it’s not just for dying patients 2) that it is often underutilized and 3) all clinicians should have basic palliative care skills
  • Study in J. Palliative Med showed that home-based palliative care (as opposed to hospital-based care) meets more of patients’ needs in the last 3 months of life and costs $12,000 less per patient
  • Controversial “doll therapy” for dementia patients
  • Study shows that 11% of female caregivers over the age of 50 have to leave their employment to fulfill caregiver duties, costing $300,000 in lost wages, benefits, and Social Security over time
  • Census data reveals that currently 25% of seniors are considered “Elder Orphans,” meaning that they have no children or close family to care for them; these numbers will only grow as Baby Boomers age, reinforcing the need for more caregivers
  • Medicare Care Choice Pilot Program is currently underway; patients can receive home-hospice care while continuing curative treatments if they have a diagnosis of cancer, COPD, CHF, or HIV; there are 140 participating hospices in the program
  • Survey shows that 1/2 of MS patients would consider medically assisted dying in the case of unbearable pain, being a financial burden to others, or if unable to enjoy what makes life worth living
  • Study reveals the 69% of MOLST or POLST forms have incomplete information and 14% have conflicting choices, making them nearly impossible for care providers to follow
  • the nation’s first conference on VSED was held in October at the Seattle U. School of Law and was featured in an article in the NY Times. Phyllis Shacter was a speaker – you can hear her EOLU interview in episode 25
  • Conversation Sabbath will take place November 11-20 with >30 congregations from various faiths participating; the focus will be on EOL conversations and theconversationproject.org will provide tools and resources for the event
  • Andrew Henderson, 28 year old performance artist who is terminally ill has created an art performance called Taking it to the Grave and will tattoo the secrets of his audience on his body before he dies
  • Miss Norma, the 90 year old woman who chose to go on a cross-country RV tour with her son and daughter-in-law rather than undergo treatment for cancer, has died

Have a safe and meaningful Day of the Dead! Tune in every Monday for a new episode and support EOLU at Patreon.com/eolu. Until next week remember to:

Face Your Fears.                 BE Ready.                Love Your Life.