EOLPodcast

Ep. 521 Caring House: A Residence for Hospice Care with David Zartman and Joanna Franco

My two guests this week are administrators of Caring House, a non-profit residence for hospice patients in Torrance, California. David Zartman is the Executive Director of Caring House having previously been a successful entrepreneur. Joanna Franco is the Director of Operations with many years of experience as both a caregiver and a residential care coordinator and manager. They discuss the history of Caring House and how residences like this are essential for communities that want to fully support end-of-life care for their people. Learn more at the Caring House website:

yourcaringhouse.org

Watch on YouTube

Listen here:

This episode includes:

  • The history of Caring House
  • The long journey of establishing an Omega Home as a residence for hospice patients
  • What services are provided by Caring House and similar homes
  • Who qualifies to reside there
  • The benefits of “death in community” where several patients and families are experiencing the end of life in the same facility at the same time
  • How staff processes grief after the death of a patient
  • Rituals and traditions followed after a patient death
  • How care is paid for at Caring House

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially Deborah Ward and thank you to Kathleen Lynch, Christina Holbrook and Alan Dulit, Chantal Kersten, and Ann Kenworthy for making donations on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 520 Scattering CJ: A Mother’s Grief Shared by Many with Hallie Twomey

Learn about an uplifting documentary film about a mother’s grief project that became a world-wide movement.

Content Warning:
This episode includes a conversation about the suicide death of a loved one. Please listen with care and take steps to protect your emotional wellbeing. If you or someone you know is struggling or in crisis, help is available. In the U.S., you can call or text the Suicide & Crisis Lifeline at 988 for free and confidential support, 24/7.

My guest Hallie Twomey is a grieving mother on a mission. Following the suicide death of her elder son CJ, Hallie set out to make something positive evolve from horrific tragedy. Her request for people to scatter CJ’s ashes across the world has now become a documentary film, Scattering CJ that is sparking conversations about mental health and removing the stigma associated with suicide. She discusses her own journey of complicated grief after such a tragic loss. Learn more about the film at the website:

scatteringcjfilm.com

Watch on YouTube

Listen here:

This episode includes:

  • The traumatic, complicated grief that follows a suicide death
  • How the movement and the film Scattering CJ came about
  • The miraculous response from people around the world to Hallie’s request
  • Feedback Hallie continues to receive from people who participated in scattering CJ’s ashes
  • Learning to live with questions that can never be answered

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my latest supporter 4Brigid. And thanks to everyone who has bought me a coffee or made a donation on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 519 Dying to Live: How Death Gives Meaning to Life with Andy Chaleff

Learn about a beautiful memoir that teaches readers how to contemplate death in order to find meaning in life.

My guest Andy Chaleff is an award-winning author, speaker, and mentor whose work explores the intersection of grief, love, and transformation. He facilitates deeply personal conversations and workshops that help people navigate life’s most challenging transitions. He is the author of 4 books including his recent memoir titled Dying to Live: Finding Life’s Meaning Through Death. He shares his insights about making peace with death and how it has shaped his life. Learn more at his website:

andychaleff.com

Listen here:

This episode includes:

  • What inspired Andy to write the book
  • How our view of death changes over the arc of life
  • Why we need to have a lot of pain resolved within ourselves in order to show up for another person
  • The “little deaths” of life as a training ground for grief
  • Our need to make peace with death
  • The dual meanings of “dying to live” and why he chose it as a title for the book
  • The value of presence at the end of life
  • Why navigating mistakes makes them even more beautiful
  • The value of writing Last Letters to people we love
  • the power of forgiveness

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and thank you to Alisha Jameson for making a donation on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 518 What My Brother Knew: Grief After Sibling Loss with Kristina Amelong

Learn about a memoir that discusses sibling grief and the spiritual transformation that can occur after loss.

My guest Kristina Amelong is the author of the memoir What My Brother Knew about the death of her younger brother when she was in her teens and her journey from loss and abuse to healing and spiritual awakening. She is the founder of a holistic health business Optimal Health Network and a senior board member for the Center for World Philosophy and Religion. Learn more at her website:

kristinaamelong.com

Listen here:

This episode includes:

  • The story of her brother’s premonition that he would die young
  • How sibling grief is often overlooked in our society
  • How guilt can haunt us for years after a death
  • Synchronicities that have occurred since Jay’s death
  • How grief has been a portal for spiritual transformation
  • Why it can take decades to process the pain of grief
  • The importance of facing grief head-on and not avoiding it

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and thank you to everyone who bought me a coffee or made a donation on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 510 Training Death Literacy Educators with Francesca Lynn Arnoldy

Learn about an exciting new training to become a Death Literacy Educator and teach in your community.

My return guest Francesca Lynn Arnoldy is a doula and a published researcher with the Vermont Conversation Lab and she runs a program for Death Literacy Educators. She is the author of The Death Doula’s Guide to Living Fully and Dying Prepared, My Death Journal, The Map of Memory Lane, and Cultivating the Doula Heart. Today she discusses the importance of training educators who can help our communities grow in knowledge, understanding, and awareness of death. Learn more at her website:

francescalynnarnoldy.com

Listen here:

This episode includes:

  • What is death literacy
  • Why Francesca created this program
  • Training includes curricula and also tools for running a workshop and market it
  • Who might be interested in becoming a Death Literacy Educator
  • Why this movement needs space holders and not exclusively people who are dealing with death and loss themselves
  • What students experience during this training
  • Importance of sharing stories about death and grief
  • How the training helps students find clarity in their teaching and determine the content they prefer to teach
  • Tutorials and tools offered during the training
  • Grant created with Compassion & Choices to provide special training
  • The value of “attentional listening”

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Stephanie Heilker, and to Curtis Robertson who made a donation on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 506 Pediatric Palliative Care and the Remarkable Children it Serves with Bob Macauley MD

Learn about the specialty of pediatric palliative care and how one doctor has benefitted from his relationship with his seriously ill patients.

My guest Dr. Bob Macauley is one of only a few hundred pediatricians in the U.S. specializing in palliative care for children with life-threatening illness. Uniquely Dr. Macauley attended both divinity school and medical school at the same time, which gives him a spiritual perspective on palliative care as well. He is the author of the recently published book Because I Knew You: How Some Remarkable Sick Kids Healed a Doctor’s Soul. Learn more at his website:

robertmacauley.com

Listen here:

This episode includes:

  • What makes pediatric palliative care different from adult care
  • How children understand and cope with their own mortality
  • How his training as both a doctor and an Episcopal priest intersect in his approach to care
  • Some of the remarkable stories of children he has encountered
  • The challenges and rewards of supporting families during the most vulnerable times
  • Why the presence of joy and sorrow often coexist in children’s experiences
  • The spiritual and emotional lessons Dr. Macauley has learned from his work

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and thank you to Yoshimi Kanagawa for buying me 5 coffees and to Kathleen Cheetham who made a donation on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 504 The Ash Rose: Transforming Grief into Beauty with Ian McCartor

Learn about making beautiful memorial art as way of navigating grief and honoring loved ones.

“Ian McCartor, hospice nurse and founder of The Ash Rose project, smiling in a natural setting, wearing a dark shirt.”

My guest Ian McCartor is a hospice nurse, musician, and founder of The Ash Rose, a project that transforms the ashes of loved ones into beautiful rose-shaped keepsakes. In this episode, Ian shares how his work helps individuals navigate grief by creating tangible symbols of remembrance and healing. Ian shares his journey from hospice care to creating tangible symbols of remembrance, highlighting how art and creativity can aid in the grieving process. He delves into the inspiration behind The Ash Rose, the impact it has had on individuals coping with loss, and the broader implications of integrating beauty into end-of-life rituals. Learn more at his website:

theashrose.org

Watch on YouTube

Listen here:

This episode includes:

  • Ian’s journey from hospice nursing to creating The Ash Rose
  • The inspiration behind transforming ashes into rose-shaped keepsakes
  • How art and creativity can play a role in the grieving process
  • Stories of individuals who have found solace through The Ash Rose
  • The importance of honoring loved ones in unique and personal ways
  • Ian’s perspective on the intersection of grief, beauty, and healing

“Out of the ashes, something beautiful can still grow.”

Ian Mccartor

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to Barbara Walker for donating on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 502 Just One Little Thing: Gratitude and Grief with Kelly Buckley

Learn how finding just one little thing to be thankful for every day can help us with grief.

My guest Kelly Buckley is the author of the book and founder of the movement called Just One Little Thing that has a loyal following worldwide. She is a registered nurse who now nurtures other souls who are dealing with grief. Her own story of journeying from the depths of grief by clinging to gratitude has inspired tens of thousands of people and her writings have been featured on sites such as Maria Shriver, the Huffington Post, Open to Hope, and Hello Grief. Learn more about her work at her website:

kellybuckley.com

Listen here:

This episode includes:

  • Kelly’s experience with grief after the death of her son
  • What inspired her to start using gratitude as a practice for grief
  • The benefits of a gratitude practice
  • How to find gratitude on the darkest of days
  • Why practicing gratitude is not the same as “toxic positivity”
  • How a gratitude practice can improve self-care for healthcare professionals
  • Advice for getting through holidays and anniversaries
  • How to recognize signs from deceased loved ones

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to Erin Collins and Karen Johnston for donating on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 501 Disability-Informed End-of-Life Care with Carrie Batt

Learn why it’s important to be aware of the needs of people with disabilities (and their families) when providing end-of-life and bereavement care.

My guest Carrie Batt is an end-of-life doula and the founder of SEOL Care which offers disability-competent end-of-life care, support and planning for people with a disability and their families. She advocates for disability competent care and grief support after losing a loved one with a disability . She created a Facebook group To Walk a Mile in My Shoes that honors loss and disability. Learn more at her website:

seolcare.ca

Watch on YouTube

Listen here:

This episode includes:

  • How Carrie ended up working in the deathcare community as a disability advocate
  • Definition and categories of disability
  • Why is there so little awareness of the needs of the disability community
  • How end-of-life planning may differ for the disability community
  • What disability awareness training for deathcare workers should consist of
  • Obstacles to improving disability education
  • Providing bereavement support to caregivers for those with a disability
  • End-of-life resources for the disability community

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons Dawn, Rosie Ross, and Beverly. And thank you to Xu Ying Steiner for buying me 5 coffees and to Nancy Reese Jones who made a donation on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 498 Memory Bears and Grief in Community with Michelle Sebern RN

Learn how a project making memory bears for people who are grieving is opening the door to conversation about the end of life.

My guest Michelle Sebern is an RN who trained as an end-of-life doula to channel her skills and passion into more community-focused work. When she found her rural community wasn’t quite ready to receive end-of-life doula services she decided to find a more creative way to give back. She will share how she founded The Memory Bear Maker and now creates customized bears to help people in their grief and begin end-of-life conversations. Learn more at her website:

thememorybearmaker.com

Watch on YouTube

Listen here:

This episode includes:

  • Michelle’s journey from nurse to doula and memory bear maker
  • The challenges of introducing doula services into a community not quite ready for that step
  • How she discovered memory bears to be the perfect blend of her passions
  • How memory bears help with grief
  • Why the bears are an alternate doorway into end-of-life education and conversations
  • How grief unites people by dissolving barriers
  • The magic of storytelling that comes with memory bear making

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Sue Simone, and to Caroline McClure for buying me 3 coffees! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 497 Integrating Doulas and Chaplains in End-of-Life Care with Jane Whitlock and Liza Neal

Learn how doulas and chaplains collaborate to provide end-of-life care in a skilled nursing facility.

My guests for this episode are Jane Whitlock and Liza Neal who both work with the Full Circle Care Program in a skilled nursing facility to support residents and their loved ones during end-of-life journeys. Jane is an end-of-life doula who also helped found the Minnesota Death Collaborative and co-founded Full Circle Care. Liza is a chaplain who has worked to develop spiritual community within and outside faith and multi-faith contexts. She joined the skilled nursing facility in order to be part of the Full Circle Care Program, which we discuss in this interview.

Watch on YouTube

Listen here:

This episode includes:

  • How the Full Circle Care Program came about
  • The goals for the program and what it consists of
  • The roles of doulas and chaplains and how they work together
  • How they support and educate patients, families and staff around grief and end-of-life choices
  • The community that develops within a residential facility and approaching the experience of grief for everyone in the facility
  • The importance of teaching families and staff how to say goodbye to a dying person
  • How this program helps fills the gaps left by today’s “modern” hospice care
  • Obstacles that have occurred in creating this program
  • Tips for other skilled nursing facilities that might want to start a similar program

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Trina Wacasey, and to everyone who has bought me a coffee or donated on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.


EOLPodcast

Ep. 495 Care Boss: Strategies for Family Caregivers with Jennifer A. O’Brien

Learn how leadership skills and organizational tools can help decrease stress for family caregivers.

My guest Jennifer O’Brien has been a practice management consultant to physicians for 35 years and is the author of the book The Hospice Doctor’s Widow, which was the subject of our previous interview. After providing care for her husband, a hospice and palliative care physician, at the end of his life she has focused on helping people start conversations about caregiving and end of life. She shares insights and tips from her latest book Care Boss: Leadership Strategies and Resources for Family Caregivers, which was inspired by her realization that there are profound similarities between leadership and family caregivers. Learn more at her website:

jenniferaobrien.com

Listen here:

This episode includes:

  • Similarities and differences between the roles of family caregiver and CEO
  • How leadership strategies can benefit an overwhelmed family caregiver
  • The value of having a mission and vision statement for our end of life
  • How to assemble a “team” as a caregiver by identifying the helpers
  • Tips for delegating tasks to others
  • The best time to read this book and how to use it
  • Rethinking the idea of self-care as self-management and self-awareness
  • Using the Intensity Assessment Tool to understand the degree of stress you are experiencing
  • The idea of “Precious Time” and why it’s important

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to everyone who has bought me a coffee or donated on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 494 Integrating Art and the End of Life with Rich Curtis

Learn how a hospice volunteer and doula utilizes his artistic talents to help patients and families.

My guest Rich Curtis is an artist, teacher, hospice volunteer and end-of-life doula. He currently volunteers for Archbold Hospice in Thomasville GA where he has utilized his artistic talents to help patients and their families at the end of life. Rich discusses his own path as an artist and eventually becoming a doula. He shares his drawings and tips for those considering being a hospice volunteer in this conversation. View Rich’s drawings at the link below or watch the video on YouTube to see them on screen:

View Rich’s drawings here

Watch on YouTube

Listen here:

This episode includes:

  • Rich’s spiritual journey to becoming a doula
  • How Buddhism encourages contemplation of death
  • The value of teaching art students about death
  • How Rich began drawing the hands of patients
  • Why drawings of hands are a unique and powerful remembrance
  • Life stories as told through images of hands
  • Art as an opening to conversations with difficult patients
  • The power of bringing our creative talents to the bedside of hospice patients
  • Tips for hospice volunteers
  • How Rich is creating “Breath Poems” from the sounds of end stage breathing

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my latest supporters Tanya Archambault and Malynda Cress and thanks to Heather Jardine for buying me 3 cups of coffee! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 493 The Good Death: An End-of-Life Guide with Suzanne B. O’Brien RN

Learn what it means to have a “good death” and how and why we all need to prepare for the end of life to benefit ourselves, our loved ones and our planet.

My guest Suzanne B. O’Brien RN is the founder and CEO of Doulagivers Institute and a “pioneer” in the global death doula movement. She has trained hundreds of thousands of people from all around the world to care those at the end of life. Most recently Suzanne is the author of The Good Death: A Guide for Supporting Your Loved One Through the End of Life. She discusses the book and why it’s so important that we facilitate a shift in how we experience death at this time in our world. Learn more at her websites:

Listen here:

This episode includes:

  • How Suzanne first got started offering free end-of-life trainings to lay people as a hospice nurse
  • Why hospice care alone can’t fix all the problems with how we approach the end of life
  • How as a society we lost generational knowledge about caring for the sick, dying and dead at home
  • Why allowing natural death can be a better choice than aggressive life-prolonging treatment
  • Most family members lack the skills and training to care for their dying loved ones at home
  • As the physical body goes through the dying process the spiritual aspect of life becomes more apparent
  • Contemplating mortality helps us shift our mindset about death and changes how we live our lives
  • How rituals help us cope with the losses we experience in life and death

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donor Connie WS and to John Wadsworth for renewing your pledge. Also thanks to Someone who became a monthly member of Buy Me a Coffee! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 492 Rituals and Ceremonies for Life, Death and Grief with Megan Sheldon

Learn about the benefits of creating intentional rituals for the big and small moments of life and death.

My guest Megan Sheldon is a cultural mythologist, humanist celebrant, and end-of-life doula in North Vancouver, BC. She is the co-founder of Be Ceremonial, the world’s first guided ritual and ceremony app. Megan will discuss her work creating ceremonies for people around the world, focusing on what she calls the ‘seemingly invisible moments of change’ in life and in death. She offers online workshops, virtual courses, and seasonal retreats and you can learn more at her website:

beceremonial.com

Watch on YouTube

Listen here:

This episode includes:

  • Why rituals are important as we navigate life and loss
  • How rituals are a forgotten part of our lives that come naturally to us
  • Ceremonies and rituals ultimately involve storytelling
  • What inspired Megan and her husband to create the Be Ceremonial app
  • How the app works and who might benefit from using it
  • Daily rituals can help us build our own creativity
  • The components of a meaningful ceremony, including a ritual for being present
  • Examples of simple rituals
  • Rituals for care providers for supporting self and others
  • How rituals help us embody the emotions we feel during challenging times

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to everyone who has bought me a coffee or donated on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 488 DEAD Talks Podcast: Life, Grief and the L.A. Fires with David Ferrugio

Learn how talking about death and grief on a podcast can help us face tragedy and loss together.

My special guest David Ferrugio is the host of DEAD Talks Podcast, where he hosts guests like Tony Hawk, Neil deGrasse Tyson, Billy Carson, David Dastmalchian, Bryan Callen, Hospice Nurse Julie and many more over a growing audience of nearly 1 million followers, including social media platforms. He discusses his story of loss at the early age of 12 and his passion for helping others face grief by sharing conversations with his guests about loss. As current residents of Los Angeles we also talk about the recent fires that have devastated this city. Learn more about David’s work and podcast at this link:

www.deadtalks.net

Watch on YouTube

Listen here:

This episode includes:

  • David’s journey with grief since the death of his father on 9/11
  • What inspired him to create DEAD Talks Podcast
  • Why his podcast is about life as much as death
  • The fact that grief is both universal and also unique to each and every person
  • Loss as an impetus for growth
  • How his perspective on a possible afterlife opened after interviewing certain guests
  • The importance of gratitude in life and when facing loss
  • The impact of the LA fires and grieving as a community

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu. Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 485 Highlights of 2024: The Best of the Best with Karen Wyatt MD

Find out what you may have missed in 2024 if you haven’t listened to every episode!

In this solo episode I recap some of the episodes of this podcast that had the greatest impact on me personally and professionally! All of the interviews from 2024 were fantastic but if you missed any of these be sure to take a listen! Thanks for your support this year! Looking forward to another amazing year – be sure to subscribe and leave a rating and review if you enjoy this content.

HAPPY NEW YEAR AND MANY BLESSINGS TO YOU AND YOUR BELOVEDS!

Watch on YouTube

Listen here:

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my latest supporters Nancy Walker and Linda Fennigbauer and thanks to Linda for also making a Paypal donation! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLU Blog

Something from Nothing: Grieving My Mom During the Holidays

By Karen Wyatt MD

As the anniversary of my mother’s death approaches I’m reflecting back on that first year after her death and how I navigated grief through the year, including the holidays. I was with Mom for the week before she died and had the privilege of shepherding her through that transition—a moment I had been preparing for since I first became a hospice physician. I knew many years ago that I would be with my Mom on the day she died and that it would be one of the most important days of my life.

Her death itself was actually joyful, though it was a process that took a great deal of inner work on her part, which has also been true for many of my hospice patients. Mom had been ready and waiting to “go home” for the previous 5 years and was relieved that her time had finally come. So as she took her last breaths I had to celebrate on her behalf, that her struggle was coming to an end, even while my heart was breaking as each thread of our physical connection slipped through my hands and I confronted the enormity of that loss.

For days after her death I was in a heightened state of consciousness—sensing her presence everywhere around me, exquisitely aware of the beauty and fragility of absolutely everything in existence. Every portal of my being was wide open and love poured freely into and out from my heart as I delicately negotiated those tender days.

But within a few weeks I had retreated into the protective cocoon of grief, while I went through the motions of daily life, numb and slightly dazed. I could no longer recall what it felt like to be in that incredible state of lightness I had experienced immediately after her death and I concluded that it had simply been a symptom of sleep deprivation. 

Over the next few months I kept myself incredibly busy as I joined a mastermind group, traveled to a publicity summit, became a radio show host, produced a digital workshop and created an online interview series, along with doing speaking engagements in various parts of the country. I stayed constantly on the go and rarely took a moment off, even when I was “on vacation.”

I was proud of myself for being so resilient and productive. I didn’t realize that I had actually been hiding for all of those months from the grief that was mounting up inside me. But then everything fell apart: my radio show was cancelled, the interview series ended, my mastermind group moved on without me, my publicity contacts stopped communicating and I had run out of speaking engagements. 

Winter weather had arrived, the holidays were looming, my calendar was empty and I had nothing to show for a year of exhausting over-commitment and frantic busy-ness. I suddenly recognized how short the days had become as I laid awake for hours in the darkness, lost in my own emptiness.

“This is my first holiday season without Mom,” I thought to myself, remembering how much she loved these times of celebration and always made each moment feel so full … full of love and joy and laughter. And now, though I had the financial resources to buy anything I wanted or needed, I could not even begin to fill this emptiness that haunted me deep in the darkness.

How had she done it? What “magic” had she created to make each moment of anticipation before a special holiday feel so extraordinary, so full of meaning?

Searching for answers, I unpacked a box of some of her prized holiday decorations I had “inherited” after she died: a glittery ornament she and my grandmother had pieced together from old greeting cards; a tree-shaped wall hanging she and her sister made from broken green and brown glass (beer bottles my grandfather found in the trash behind a local dance hall) and adorned with old costume jewelry; various vases and candle holders she had crafted from discarded plastic bottles and glass jars, decorated with scraps of lace and fabric.

I had found these “treasures” of hers to be deeply embarrassing when I was a teenager and my friends from across town would visit our little house. They lived in huge homes, fancily decorated with porcelain figurines and hand-painted glass ornaments, which no one was allowed to touch. Yet my mother, oblivious of our humiliating low social status, proudly displayed her homemade trinkets as if they were priceless works of art.

Lost in these memories as I held the fragile greeting card ornament in my hands, I suddenly realized what my mother had been able to do all those years ago …

She had created something from nothing …

She had excelled at making each day seem special, even though her resources were limited. She managed to create little miracles everywhere she went, though her pocketbook was empty. She took things that were unwanted and discarded and gave them new purpose and meaning, finding the hidden beauty in everything. 

She did this even with the destitute families she met who needed a place to live—she allowed them to move into the little rental house she owned, knowing they wouldn’t be able to pay their rent for several months. “You will make it up later when things are going better,” she would tell them. And her grateful tenants, relieved that someone finally saw something of value in them, almost always repaid her.

As I arranged my mother’s treasures on a shelf in my living room, I suddenly knew what I needed to do. I would find my way through this grief that was smothering me by doing what Mom would do: make something from nothing for the holidays.

That night when the sun went down and the temperature dropped well below freezing, I placed two buckets of water out in the snow.  They froze around the perimeter and remained hollow inside, forming beautiful sparkling ice lanterns that glowed with the light of the candles I placed in them.

I situated these ice lanterns at the top of my driveway, where they illuminated the path toward home in the deepest darkness of night though they were composed of “nothing” but water. Each evening as I trudged through the snow to light them I took comfort in the warmth emitted by those tiny flames and found hope that perhaps this light will also guide others who are wandering in the dark shrouds of grief toward the home they are seeking.

Though Mom will never again be with me physically and I will never again open a present from her on a special holiday, I have received the most important gift she could ever give me: the ability to cherish what really matters in life, to find the hidden beauty in everything, to make something from nothing. 

And that has become my path through this process of grief: to continue to honor Mom’s memory by offering up whatever I have as a gift to the Universe, free from self-judgment and embarrassment, cherishing each moment as a priceless work of art, creating always:

Something from nothing …

Light in the darkness …

Fullness within the emptiness.

It is all I can do right now … and indeed … all that needs to be done.

EOLU Blog

How Family Movie Night Can Lead to a Conversation About Death and Grief

by Karen Wyatt MD

Recently there has been a growing focus for individuals in our society to look at their hopes and desires for the end-of-life and put those wishes into writing. The Five Wishes document and The Conversation Project Starter Kit, along with many online options, have helped people think about that day when life will come to an end and put those thoughts and feelings into writing.

But the most important step in the end-of-life planning process is to talk about those wishes with loved ones and that conversation is often difficult to initiate. How do we start talking about death with people who aren’t sure they want to discuss it? How do we address the experience of loss and grief, which is also often avoided in our society?

One idea is to use a film, perhaps during a family “movie night,” to help introduce the topic and get the discussion started. Films project the stories of characters onto the screen and allow us to look at difficult subjects from a distance without feeling personally involved. The stories portrayed in movies can also inspire the imagination, stir up emotions and provoke deep thoughts—all of which can be helpful during a conversation about death and grief.

Here are some suggestions for creating a special “movie night” exploration of death and grief: 

  • Allow ample time 

    Choose a night when nothing else has been planned so there will be time and space for the conversation to unfold naturally after the film.

    • Keep it cozy

    Make sure the seating arrangements are comfortable for everyone, provide snacks and beverages, and minimize outside distractions that might take attention away from the film and the conversation.

    • Select the film carefully

    Consider the age and comfort level of the people you want to engage in conversation as you make your choice. Also be clear about your objective: do you want to inspire a discussion about death in general or do you have specific topics to bring up such as hospice care or living fully at the end of life or facing grief after the death of a loved one?

    For example, The Bucket List is a great film to kick off a conversation about how to live life fully when you know you are going to die. His Three Daughters shows the difficulties of family dynamics when one member is dying. Terms of Endearment focuses on the mother-daughter relationship and portrays the dying process and the grief that follows. Many holiday movies like The Christmas Checklist focus on characters who are experiencing grief when others are celebrating. If children are part of the conversation, The Lion King, Coco or Up could help address issues of grief after loss and the fact that death is a normal part of life.

    • Have a few questions ready 

    Don’t force the conversation but be prepared to get it started with your own comments or questions. For example ask “What’s on your bucket list?” or “What would you give as a gift if you knew it was your last Christmas?” or “How do you think Mufasa’s death changed Simba?” or “How did the Christmas Checklist help Emily process her grief?”

    • Do it again

    In case your first movie night conversation doesn’t go as well as hoped, plan to try again with a different film and a different approach. These conversations are challenging but extremely important so don’t give up on the idea! 

    Since death is a natural and universal part of our human existence we really should be talking about it on a regular basis. Get creative and imagine how you might bring up the discussion after other films your family might watch together. Remember that families who have talked about death are more likely to have positive experiences when a loved one reaches the end of life. It’s definitely a conversation worth having!

    EOLPodcast

    Ep. 481 Help Texts: Text-Based Grief Support with Emma Payne

    Learn about effective, personalized grief support that arrives via text message and how this innovation is a game changer for caregivers, healthcare workers, and the bereaved.

    My guest Emma Payne is the founder and CEO of Help Texts, which provides private grief, caregiver, or mental health support via personalized text messages. On this episode, Emma’s second guest appearance, she will discuss what’s new on the Help Texts platform and the data they’ve been gathering about the efficacy of grief-informed texting. You need to know about this tool if you work anywhere in the end of life as a means of offering support to people who are grieving, caregivers and healthcare workers. This is a game-changer! Learn more at the website:

    YouTube Channel

    Listen here:

    This episode includes:

    • What inspired Emma to create Help Texts
    • Why text messaging is an ideal delivery method for grief support, as validated by neuroscience
    • How Help Texts messages are customized and personalized to each person who signs up by many different experts in this space
    • Why the cost of Help Texts is less than one hour of therapy
    • Research shows remarkable efficacy of these messages
    • Why people supporting grievers are also included in receiving helpful messages and reminders by text
    • The ripple effect of helping people become “grief literate” one text message at a time
    • How hospices and other organizations are signing up to gift Help Texts to the families they work with
    • Help Texts for healthcare workers and caregivers
    • Support is also now available for pregnancy loss, pet loss, and mental health issues

    Links mentioned in this episode:

    If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu,  and to Molly Byock for making a donation through Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.