Learn about an exciting new training to become a Death Literacy Educator and teach in your community.
My return guest Francesca Lynn Arnoldy is a doula and a published researcher with the Vermont Conversation Lab and she runs a program for Death Literacy Educators. She is the author of The Death Doula’s Guide to Living Fully and Dying Prepared, My Death Journal, The Map of Memory Lane, and Cultivating the Doula Heart. Today she discusses the importance of training educators who can help our communities grow in knowledge, understanding, and awareness of death. Learn more at her website:
Support your local bookstore by buying my books on Bookshop and Indiebound:7 Lessons for Living from the Dying and The Journey from Ego to Souloin the team atPatreon.com/eoluand receive free gifts like the “Mind if we talk about death?” mini-poster or Love Your Life sticker or coffee mug. PLUS get our regular bonuses: the monthly EOL News Update, monthly What to Watch recommendations, Behind the Scenes Bonus content, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Stephanie Heilker, and to Curtis Robertson who made a donation on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.
Learn about the specialty of pediatric palliative care and how one doctor has benefitted from his relationship with his seriously ill patients.
My guest Dr. Bob Macauley is one of only a few hundred pediatricians in the U.S. specializing in palliative care for children with life-threatening illness. Uniquely Dr. Macauley attended both divinity school and medical school at the same time, which gives him a spiritual perspective on palliative care as well. He is the author of the recently published book Because I Knew You: How Some Remarkable Sick Kids Healed a Doctor’s Soul. Learn more at his website:
Support your local bookstore by buying my books on Bookshop and Indiebound:7 Lessons for Living from the Dying and The Journey from Ego to Souloin the team atPatreon.com/eoluand receive free gifts like the “Mind if we talk about death?” mini-poster or Love Your Life sticker or coffee mug. PLUS get our regular bonuses: the monthly EOL News Update, monthly What to Watch recommendations, Behind the Scenes Bonus content, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and thank you to Yoshimi Kanagawa for buying me 5 coffees and to Kathleen Cheetham who made a donation on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.
Learn about making beautiful memorial art as way of navigating grief and honoring loved ones.
My guest Ian McCartor is a hospice nurse, musician, and founder of The Ash Rose, a project that transforms the ashes of loved ones into beautiful rose-shaped keepsakes. In this episode, Ian shares how his work helps individuals navigate grief by creating tangible symbols of remembrance and healing. Ian shares his journey from hospice care to creating tangible symbols of remembrance, highlighting how art and creativity can aid in the grieving process. He delves into the inspiration behind The Ash Rose, the impact it has had on individuals coping with loss, and the broader implications of integrating beauty into end-of-life rituals. Learn more at his website:
Support your local bookstore by buying my books on Bookshop and Indiebound:7 Lessons for Living from the Dying and The Journey from Ego to Souloin the team atPatreon.com/eoluand receive free gifts like the “Mind if we talk about death?” mini-poster or Love Your Life sticker or coffee mug. PLUS get our regular bonuses: the monthly EOL News Update, monthly What to Watch recommendations, Behind the Scenes Bonus content, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to Barbara Walker for donating on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.
Learn how finding just one little thing to be thankful for every day can help us with grief.
My guest Kelly Buckley is the author of the book and founder of the movement called Just One Little Thing that has a loyal following worldwide. She is a registered nurse who now nurtures other souls who are dealing with grief. Her own story of journeying from the depths of grief by clinging to gratitude has inspired tens of thousands of people and her writings have been featured on sites such as Maria Shriver, the Huffington Post, Open to Hope, and Hello Grief. Learn more about her work at her website:
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand receive free gifts like the “Mind if we talk about death?” mini-poster or Love Your Life sticker or coffee mug. PLUS get our regular bonuses: the monthly EOL News Update, monthly What to Watch recommendations, Behind the Scenes Bonus content, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to Erin Collins and Karen Johnston for donating on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.
Learn why it’s important to be aware of the needs of people with disabilities (and their families) when providing end-of-life and bereavement care.
My guest Carrie Batt is an end-of-life doula and the founder of SEOL Care which offers disability-competent end-of-life care, support and planning for people with a disability and their families. She advocates for disability competent care and grief support after losing a loved one with a disability . She created a Facebook group To Walk a Mile in My Shoes that honors loss and disability. Learn more at her website:
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand receive free gifts like the “Mind if we talk about death?” mini-poster or Love Your Life sticker or coffee mug. PLUS get our regular bonuses: the monthly EOL News Update, monthly What to Watch recommendations, Behind the Scenes Bonus content, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons Dawn, Rosie Ross, and Beverly. And thank you to Xu Ying Steiner for buying me 5 coffees and to Nancy Reese Jones who made a donation on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.
Learn how a project making memory bears for people who are grieving is opening the door to conversation about the end of life.
My guest Michelle Sebern is an RN who trained as an end-of-life doula to channel her skills and passion into more community-focused work. When she found her rural community wasn’t quite ready to receive end-of-life doula services she decided to find a more creative way to give back. She will share how she founded The Memory Bear Maker and now creates customized bears to help people in their grief and begin end-of-life conversations. Learn more at her website:
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand receive free gifts like the “Mind if we talk about death?” mini-poster or Love Your Life sticker or coffee mug. PLUS get our regular bonuses: the monthly EOL News Update, monthly What to Watch recommendations, Behind the Scenes Bonus content, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Sue Simone, and to Caroline McClure for buying me 3 coffees! Your contributions make all the difference and ensure this podcast stays ad-free.
Learn how doulas and chaplains collaborate to provide end-of-life care in a skilled nursing facility.
My guests for this episode are Jane Whitlock and Liza Neal who both work with the Full Circle Care Program in a skilled nursing facility to support residents and their loved ones during end-of-life journeys. Jane is an end-of-life doula who also helped found the Minnesota Death Collaborative and co-founded Full Circle Care. Liza is a chaplain who has worked to develop spiritual community within and outside faith and multi-faith contexts. She joined the skilled nursing facility in order to be part of the Full Circle Care Program, which we discuss in this interview.
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand receive free gifts like the “Mind if we talk about death?” mini-poster or Love Your Life sticker or coffee mug. PLUS get our regular bonuses: the monthly EOL News Update, monthly What to Watch recommendations, Behind the Scenes Bonus content, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Trina Wacasey, and to everyone who has bought me a coffee or donated on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.
Learn how leadership skills and organizational tools can help decrease stress for family caregivers.
My guest Jennifer O’Brien has been a practice management consultant to physicians for 35 years and is the author of the book The Hospice Doctor’s Widow, which was the subject of our previous interview. After providing care for her husband, a hospice and palliative care physician, at the end of his life she has focused on helping people start conversations about caregiving and end of life. She shares insights and tips from her latest book Care Boss: Leadership Strategies and Resources for Family Caregivers, which was inspired by her realization that there are profound similarities between leadership and family caregivers. Learn more at her website:
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand receive free gifts like the “Mind if we talk about death?” mini-poster or Love Your Life sticker or coffee mug. PLUS get our regular bonuses: the monthly EOL News Update, monthly What to Watch recommendations, Behind the Scenes Bonus content, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to everyone who has bought me a coffee or donated on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.
Learn how a hospice volunteer and doula utilizes his artistic talents to help patients and families.
My guest Rich Curtis is an artist, teacher, hospice volunteer and end-of-life doula. He currently volunteers for Archbold Hospice in Thomasville GA where he has utilized his artistic talents to help patients and their families at the end of life. Rich discusses his own path as an artist and eventually becoming a doula. He shares his drawings and tips for those considering being a hospice volunteer in this conversation. View Rich’s drawings at the link below or watch the video on YouTube to see them on screen:
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand receive free gifts like the “Mind if we talk about death?” mini-poster or Love Your Life sticker or coffee mug. PLUS get our regular bonuses: the monthly EOL News Update, monthly What to Watch recommendations, Behind the Scenes Bonus content, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my latest supporters Tanya Archambault and Malynda Cress and thanks to Heather Jardine for buying me 3 cups of coffee! Your contributions make all the difference and ensure this podcast stays ad-free.
Learn what it means to have a “good death” and how and why we all need to prepare for the end of life to benefit ourselves, our loved ones and our planet.
My guest Suzanne B. O’Brien RN is the founder and CEO of Doulagivers Institute and a “pioneer” in the global death doula movement. She has trained hundreds of thousands of people from all around the world to care those at the end of life. Most recently Suzanne is the author of The Good Death: A Guide for Supporting Your Loved One Through the End of Life. She discusses the book and why it’s so important that we facilitate a shift in how we experience death at this time in our world. Learn more at her websites:
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand receive free gifts like the “Mind if we talk about death?” mini-poster or Love Your Life sticker or coffee mug. PLUS get our regular bonuses: the monthly EOL News Update, monthly What to Watch recommendations, Behind the Scenes Bonus content, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donor Connie WS and to John Wadsworth for renewing your pledge. Also thanks to Someone who became a monthly member of Buy Me a Coffee! Your contributions make all the difference and ensure this podcast stays ad-free.
Learn about the benefits of creating intentional rituals for the big and small moments of life and death.
My guest Megan Sheldon is a cultural mythologist, humanist celebrant, and end-of-life doula in North Vancouver, BC. She is the co-founder of Be Ceremonial, the world’s first guided ritual and ceremony app. Megan will discuss her work creating ceremonies for people around the world, focusing on what she calls the ‘seemingly invisible moments of change’ in life and in death. She offers online workshops, virtual courses, and seasonal retreats and you can learn more at her website:
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand receive free gifts like the “Mind if we talk about death?” mini-poster or Love Your Life sticker or coffee mug. PLUS get our regular bonuses: the monthly EOL News Update, monthly What to Watch recommendations, Behind the Scenes Bonus content, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to everyone who has bought me a coffee or donated on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.
Learn how talking about death and grief on a podcast can help us face tragedy and loss together.
My special guest David Ferrugio is the host of DEAD Talks Podcast, where he hosts guests like Tony Hawk, Neil deGrasse Tyson, Billy Carson, David Dastmalchian, Bryan Callen, Hospice Nurse Julie and many more over a growing audience of nearly 1 million followers, including social media platforms. He discusses his story of loss at the early age of 12 and his passion for helping others face grief by sharing conversations with his guests about loss. As current residents of Los Angeles we also talk about the recent fires that have devastated this city. Learn more about David’s work and podcast at this link:
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand receive free gifts like the “Mind if we talk about death?” mini-poster or Love Your Life sticker or coffee mug. PLUS get our regular bonuses: the monthly EOL News Update, monthly What to Watch recommendations, Behind the Scenes Bonus content, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu. Your contributions make all the difference and ensure this podcast stays ad-free.
Find out what you may have missed in 2024 if you haven’t listened to every episode!
In this solo episode I recap some of the episodes of this podcast that had the greatest impact on me personally and professionally! All of the interviews from 2024 were fantastic but if you missed any of these be sure to take a listen! Thanks for your support this year! Looking forward to another amazing year – be sure to subscribe and leave a rating and review if you enjoy this content.
HAPPY NEW YEAR AND MANY BLESSINGS TO YOU AND YOUR BELOVEDS!
Join the team atPatreon.com/eoluand receive free gifts like the “Mind if we talk about death?” mini-poster or Love Your Life sticker or coffee mug. PLUS get our regular bonuses: the monthly EOL News Update, monthly What to Watch recommendations, Behind the Scenes Bonus content, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my latest supporters Nancy Walker and Linda Fennigbauer and thanks to Linda for also making a Paypal donation! Your contributions make all the difference and ensure this podcast stays ad-free.
As the anniversary of my mother’s death approaches I’m reflecting back on that first year after her death and how I navigated grief through the year, including the holidays. I was with Mom for the week before she died and had the privilege of shepherding her through that transition—a moment I had been preparing for since I first became a hospice physician. I knew many years ago that I would be with my Mom on the day she died and that it would be one of the most important days of my life.
Her death itself was actually joyful, though it was a process that took a great deal of inner work on her part, which has also been true for many of my hospice patients. Mom had been ready and waiting to “go home” for the previous 5 years and was relieved that her time had finally come. So as she took her last breaths I had to celebrate on her behalf, that her struggle was coming to an end, even while my heart was breaking as each thread of our physical connection slipped through my hands and I confronted the enormity of that loss.
For days after her death I was in a heightened state of consciousness—sensing her presence everywhere around me, exquisitely aware of the beauty and fragility of absolutely everything in existence. Every portal of my being was wide open and love poured freely into and out from my heart as I delicately negotiated those tender days.
But within a few weeks I had retreated into the protective cocoon of grief, while I went through the motions of daily life, numb and slightly dazed. I could no longer recall what it felt like to be in that incredible state of lightness I had experienced immediately after her death and I concluded that it had simply been a symptom of sleep deprivation.
Over the next few months I kept myself incredibly busy as I joined a mastermind group, traveled to a publicity summit, became a radio show host, produced a digital workshop and created an online interview series, along with doing speaking engagements in various parts of the country. I stayed constantly on the go and rarely took a moment off, even when I was “on vacation.”
I was proud of myself for being so resilient and productive. I didn’t realize that I had actually been hiding for all of those months from the grief that was mounting up inside me. But then everything fell apart: my radio show was cancelled, the interview series ended, my mastermind group moved on without me, my publicity contacts stopped communicating and I had run out of speaking engagements.
Winter weather had arrived, the holidays were looming, my calendar was empty and I had nothing to show for a year of exhausting over-commitment and frantic busy-ness. I suddenly recognized how short the days had become as I laid awake for hours in the darkness, lost in my own emptiness.
“This is my first holiday season without Mom,” I thought to myself, remembering how much she loved these times of celebration and always made each moment feel so full … full of love and joy and laughter. And now, though I had the financial resources to buy anything I wanted or needed, I could not even begin to fill this emptiness that haunted me deep in the darkness.
How had she done it? What “magic” had she created to make each moment of anticipation before a special holiday feel so extraordinary, so full of meaning?
Searching for answers, I unpacked a box of some of her prized holiday decorations I had “inherited” after she died: a glittery ornament she and my grandmother had pieced together from old greeting cards; a tree-shaped wall hanging she and her sister made from broken green and brown glass (beer bottles my grandfather found in the trash behind a local dance hall) and adorned with old costume jewelry; various vases and candle holders she had crafted from discarded plastic bottles and glass jars, decorated with scraps of lace and fabric.
I had found these “treasures” of hers to be deeply embarrassing when I was a teenager and my friends from across town would visit our little house. They lived in huge homes, fancily decorated with porcelain figurines and hand-painted glass ornaments, which no one was allowed to touch. Yet my mother, oblivious of our humiliating low social status, proudly displayed her homemade trinkets as if they were priceless works of art.
Lost in these memories as I held the fragile greeting card ornament in my hands, I suddenly realized what my mother had been able to do all those years ago …
She had created something from nothing …
She had excelled at making each day seem special, even though her resources were limited. She managed to create little miracles everywhere she went, though her pocketbook was empty. She took things that were unwanted and discarded and gave them new purpose and meaning, finding the hidden beauty in everything.
She did this even with the destitute families she met who needed a place to live—she allowed them to move into the little rental house she owned, knowing they wouldn’t be able to pay their rent for several months. “You will make it up later when things are going better,” she would tell them. And her grateful tenants, relieved that someone finally saw something of value in them, almost always repaid her.
As I arranged my mother’s treasures on a shelf in my living room, I suddenly knew what I needed to do. I would find my way through this grief that was smothering me by doing what Mom would do: make something from nothing for the holidays.
That night when the sun went down and the temperature dropped well below freezing, I placed two buckets of water out in the snow. They froze around the perimeter and remained hollow inside, forming beautiful sparkling ice lanterns that glowed with the light of the candles I placed in them.
I situated these ice lanterns at the top of my driveway, where they illuminated the path toward home in the deepest darkness of night though they were composed of “nothing” but water. Each evening as I trudged through the snow to light them I took comfort in the warmth emitted by those tiny flames and found hope that perhaps this light will also guide others who are wandering in the dark shrouds of grief toward the home they are seeking.
Though Mom will never again be with me physically and I will never again open a present from her on a special holiday, I have received the most important gift she could ever give me: the ability to cherish what really matters in life, to find the hidden beauty in everything, to make something from nothing.
And that has become my path through this process of grief: to continue to honor Mom’s memory by offering up whatever I have as a gift to the Universe, free from self-judgment and embarrassment, cherishing each moment as a priceless work of art, creating always:
Something from nothing …
Light in the darkness …
Fullness within the emptiness.
It is all I can do right now … and indeed … all that needs to be done.
Recently there has been a growing focus for individuals in our society to look at their hopes and desires for the end-of-life and put those wishes into writing. The Five Wishes document and The Conversation Project Starter Kit, along with many online options, have helped people think about that day when life will come to an end and put those thoughts and feelings into writing.
But the most important step in the end-of-life planning process is to talk about those wishes with loved ones and that conversation is often difficult to initiate. How do we start talking about death with people who aren’t sure they want to discuss it? How do we address the experience of loss and grief, which is also often avoided in our society?
One idea is to use a film, perhaps during a family “movie night,” to help introduce the topic and get the discussion started. Films project the stories of characters onto the screen and allow us to look at difficult subjects from a distance without feeling personally involved. The stories portrayed in movies can also inspire the imagination, stir up emotions and provoke deep thoughts—all of which can be helpful during a conversation about death and grief.
Here are some suggestions for creating a special “movie night” exploration of death and grief:
Allow ample time
Choose a night when nothing else has been planned so there will be time and space for the conversation to unfold naturally after the film.
Keep it cozy
Make sure the seating arrangements are comfortable for everyone, provide snacks and beverages, and minimize outside distractions that might take attention away from the film and the conversation.
Select the film carefully
Consider the age and comfort level of the people you want to engage in conversation as you make your choice. Also be clear about your objective: do you want to inspire a discussion about death in general or do you have specific topics to bring up such as hospice care or living fully at the end of life or facing grief after the death of a loved one?
For example, The Bucket List is a great film to kick off a conversation about how to live life fully when you know you are going to die. His Three Daughters shows the difficulties of family dynamics when one member is dying. Terms of Endearment focuses on the mother-daughter relationship and portrays the dying process and the grief that follows. Many holiday movies like The Christmas Checklist focus on characters who are experiencing grief when others are celebrating. If children are part of the conversation, TheLion King, Coco or Up could help address issues of grief after loss and the fact that death is a normal part of life.
Have a few questions ready
Don’t force the conversation but be prepared to get it started with your own comments or questions. For example ask “What’s on your bucket list?” or “What would you give as a gift if you knew it was your last Christmas?” or “How do you think Mufasa’s death changed Simba?” or “How did the Christmas Checklist help Emily process her grief?”
Do it again
In case your first movie night conversation doesn’t go as well as hoped, plan to try again with a different film and a different approach. These conversations are challenging but extremely important so don’t give up on the idea!
Since death is a natural and universal part of our human existence we really should be talking about it on a regular basis. Get creative and imagine how you might bring up the discussion after other films your family might watch together. Remember that families who have talked about death are more likely to have positive experiences when a loved one reaches the end of life. It’s definitely a conversation worth having!
Learn about effective, personalized grief support that arrives via text message and how this innovation is a game changer for caregivers, healthcare workers, and the bereaved.
My guest Emma Payne is the founder and CEO of Help Texts, which provides private grief, caregiver, or mental health support via personalized text messages. On this episode, Emma’s second guest appearance, she will discuss what’s new on the Help Texts platform and the data they’ve been gathering about the efficacy of grief-informed texting. You need to know about this tool if you work anywhere in the end of life as a means of offering support to people who are grieving, caregivers and healthcare workers. This is a game-changer! Learn more at the website:
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand receive free gifts like the “Mind if we talk about death?” mini-poster or Love Your Life sticker or coffee mug. PLUS get our regular bonuses: the monthly EOL News Update, monthly What to Watch recommendations, Behind the Scenes Bonus content, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to Molly Byock for making a donation through Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.
Learn about a helpful book for grieving teens by grief counselor and thanatologist Dr. Korie Leigh … and why you should have it on your bookshelf.
My guest Dr. Korie Leigh is a grief counselor and an Associate Professor and Program Director of the Thanatology Program at Marian University. She has spent 20 years working with children and families experiencing grief and loss. She is the author of two books including What Does Grief Feel Like? and It Won’t Ever Be the Same: A Teen’s Guide to Grief and Grieving. Learn more about her work at the website:
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand receive free gifts like the “Mind if we talk about death?” mini-poster or Love Your Life sticker or coffee mug. PLUS get our regular bonuses: the monthly EOL News Update, monthly What to Watch recommendations, Behind the Scenes Bonus content, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my latest supporter Pam, and to everyone who has bought me a coffee or made a donation through Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.
Learn how grief is a major theme of Alexander Hamilton’s life as portrayed in Lin-Manuel Miranda’s hit musical Hamilton.
Today I’m joined once again by my co-host Benjamin Kintisch for another episode of the Death & Grief in Pop CultureSeries. Ben is a cantor, hospice and eldercare chaplain, music teacher, and the creator of Life Review: The Hospice Musical. Together we talk about all the interesting ways death shows up in culture, what we might learn about death and grief through the lens of pop culture, and how we can utilize popular references to death and grief to increase death literacy for ourselves and others. This week we are discussing the Broadway musical “Hamilton” Learn more about Ben’s work at his website:
Check out the Series I’ve recorded in the past here
Join the team atPatreon.com/eoluand receive free gifts like the “Mind if we talk about death?” mini-poster or Love Your Life sticker or coffee mug. PLUS get our regular bonuses: the monthly EOL News Update, monthly What to Watch recommendations, Behind the Scenes Bonus content, and automatic access to A Year of Reading Dangerously!
If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my latest supporters Bonnie and CJ, and to everyone who has bought me a coffee or made a donation through Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.
When my niece died in hospice in another city a few years ago I was unable to travel there to say goodbye before her death. I was crushed that I didn’t have one last opportunity to hold her hand and tell her I loved her, but as it worked out that visit was just not possible.
In an ideal world many of us would like to be with our dearest loved ones at the end of their lives, to say goodbye and “I love you” one last time. But in this day and age we live very busy lives that often take place many miles away from our families so there are times when we cannot travel to be present for those special and fleeting moments.
Some of us may even go to great lengths to get to another city only to find that we missed the final breath by a few hours. This distressing reality can lead to unresolved guilt and grief as we blame ourselves for not being there. But here are some things I’d like you to know about the dying process based on my many years of hospice experience:
Dying has a unique time frame.
Even with the best of medical knowledge we cannot accurately predict when a terminal patient will die. I have seen patients live far longer than seemed medically possible and also patients who died much sooner than expected for no obvious reason. Don’t blame yourself if you cannot be there at the “right” time since you have no way of knowing in advance when that time will be.
Dying is an internal process.
In the last few days before death patients tend to turn inward and focus on the personal work they need to do in order to let go of life. They enter into a semi-comatose state where they seem to be having experiences that we cannot understand. They may express a desire to see a particular family member, but often they are preoccupied with their own process and don’t need much interaction with others. Most likely your loved one is not focusing on whether or not you are physically present in the room.
Each person’s preferences are different.
Some people want to be surrounded by loved ones as they prepare to die, but others need to be left alone in order to complete the work they are doing. We usually cannot predict who will want to be alone in advance and even patients themselves, when asked about it ahead of time, don’t realize that they may need solitude during those last moments. Some people who have always been very social find that they no longer want to interact with others when they are ready to die.
While you may want to be there to say goodbye it’s possible that your loved one is content to have fewer visitors at that time. In fact one woman I know spent every moment at her mother’s side so that she would not die alone. But the mother took her last breath during a brief period when her daughter went outside for a few minutes. Apparently she needed to be alone to finally let go and her daughter simply had to accept her choice.
Sometimes dying patients seem to delay death
Again without any medical explanation, some dying patients seem to be able to postpone the time of death in order to “wait” for a loved one who is expected to visit. I have seen many occasions when the patient had an intense need to see someone one last time and, against medical odds, survived an amazing number of extra days, until that person arrived. If your loved one did not wait for you to come please view it as a sign that there was no unfinished business between you and don’t blame yourself for not getting there on time.
The dying perceive things that we cannot explain.
In my work with dying patients I have witnessed their ability to “see” and “feel” the love that others are sending to them, even from a far distance. Many of them have explained that they feel connected to distant family members and “know” that they are loved, even if those people cannot be physically present. Trust that all of your concern and loving thoughts have been received by your dear one and forgive yourself for not being able to be in the room at the time of death.
If you know you cannot be there and you have a need to say goodbye try calling on the telephone to express your love. The day before my mother died she received phone calls from two dear friends who lived far away. Even though she was semi-comatose she listened as I held the receiver to her ear and smiled at the sound of their voices. She was unable to respond verbally but I could see that she heard the message so I reassured her friends that their farewells got through to her.
Remember that you have no control over the timing of your loved one’s death. Follow your heart and travel if you need to and you can but don’t stress if it doesn’t work out. Your effort and your loving intention will still be perceived by your loved one in some way or another.
Trust that your loved one would not want you to carry a burden of guilt with you and create your own “goodbye” ritual if you cannot be there in person. On the day my niece died I gathered some wildflowers and dropped them into a flowing stream while I spoke all of the messages I would have shared with her at her bedside. My heart became much lighter as I imagined her standing next to me, watching the blossoms drift slowly downstream.
May you too find a way to be at peace with every farewell you must speak from a distance.
As a hospice doctor I have often worked with families caring for a dying loved one at home. But I have only once had the opportunity to switch places and be the caregiver myself when my mother died. That was a profound and educational experience for me as I suddenly understood personally what it was like to be with a dying loved one around-the-clock.
While before I had imagined what it felt like to sit up all night at the bedside holding vigil before the moment of death, I can now vividly recall the exhaustion and the uncertainty of that experience. Now I know far more than ever before what the act of being a caregiver takes and what it gives back.
I was able to let go of little moments with her one-by-one.”
The greatest blessing of being a caregiver for me was the opportunity to experience grief even before my mother had died. I was able to let go of little moments with her one-by-one: the last time she ate a spoonful of the custard she loved so much, the last morning she brushed her own hair, the last afternoon she shuffled through the kitchen with her walker, the last evening she sat on her recliner and listened to the news, the last night she touched my face and kissed me goodnight.
With the arrival of each new day, something else had been lost and the little world we were sharing became a bit smaller until we were left with only the bed she rested upon and the chair where I sat next to her. But I was able to let all of it go gradually while she was letting go of life and the pain I felt was somehow bearable.
There are other ways that the act of being a caregiver helped me:
Providing hands-on care and keeping my mother comfortable in her last hours gave me comfort as well. I was not just passively observing her dying process but I was helping her and it was a tremendous relief to be able to do something for her at that time.
I knew I was honoring her wishes by keeping her at home because she had talked with me about what she wanted at the end of life. Everything I did and every moment I spent with her felt “right” to me because I understood her preferences.
I was there for special moments when Mom spoke a few words or opened her eyes and smiled. Those tiny little experiences mean everything to me now as I remember our journey together to her last breaths. I am forever grateful that I didn’t miss a single moment.
I could give her one last gift of gratitude by enabling her to stay in her own home and have the kind of death she wanted. While there is no way to ever repay a mother for all of her years of nurturing and tender care, being there when Mom needed me was one small gesture I could make to show her my deep love.
We forgave one another. Our relationship had not always been easy and there were some painful memories between us that we could never discuss. But in the middle of the night when Mom nearly fell out of bed and I was frantically trying to lift her back to safety, we connected in a moment of pure human frustration and love. Without saying a word we looked at one another and both understood somehow—life is difficult and we hurt one another along the way but nothing really shakes the deep love that resonates between our hearts. We both let go of all our resentment in that brief moment.
These opportunities were only possible because we had enlisted the aid of a home hospice team, who made regular visits and assisted me with the care that was needed. I could not have done the work without their help and I understand more than ever the important role played by hospice staffs all over the world.
I am a new person since caring for my Mom at the end of her life. I am a better doctor, a more compassionate wife, a more fun-loving mother, and a much wiser woman as I face my own aging. Life and death and grief … they are all what we make of them and how we take care of ourselves and others during the journey. I know this for sure now and the rest of my life will be blessed by that knowledge.