EOLU Blog

Blog: The Last Ecstatic Days Trailer

THE LAST ECSTATIC DAYS is a film about a young man with brain cancer in search of community, and the hospice doctor who gives up everything to honor his dying wish.

To learn more…

Visit the film’s website: www.thelastecstaticdaysmovie.com

Subscribe to THE LAST ECSTATIC DAYS on YouTube:  http://tiny.cc/TheLastEcstaticDaysSub

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Virtual Screening with Karen Wyatt MD

March 24th 4 PM Pacific

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EOLPodcast

Ep. 445 Grief and Bereavement on the Hospice Journey with Barbara Karnes RN

Learn about grief from the perspective of two hospice providers on their personal experiences of loss.

This week I’m happy to be speaking once again to my recurring guest Barbara Karnes RN, hospice nurse, author, thought leader and expert on end-of-life care and the dynamics of dying. Barbara is the author of “the little blue book” used by hospices around the world to teach families what to expect as their loved one dies. She is also the author of My Friend, I Care, a book about grief that she designed to be used as a sympathy card. She discusses the bereavement support that is a required benefit of hospice care and we delve deeply into our own grief experiences and what we learned from them. Learn more about Barbara’s work at her website:

bkbooks.com

Listen here:

This episode includes:

  • What hospices are required to provide for bereavement care
  • Why grievers may not attend bereavement groups offered by hospices
  • How hospice volunteers can be helpful with bereavement
  • Why some grievers may prefer more solitude and less interaction with others in the early days after a death
  • Learning how to live without a loved one who has died is the ongoing work of grief
  • The grief we learned about in textbooks is not the same as the real experience of deep grief
  • Why support groups may be more helpful later in the grief process
  • Anticipatory grief that occurs from the moment of diagnosis
  • Journaling as a tool for grieving
  • How our grief experiences can be sacred to us

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donors Jenny and Kristine. Also thank you to Jean for buying me a coffee and everyone who has joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 444 Contemplative Practices for Death and Grief with Sensei Koshin Paley Ellison

Learn about contemplative practices for medical providers offered by the NY Zen Center for Contemplative Care.

My guest Koshin Paley Ellison is an author, Zen teacher, and Jungian psychotherapist. He co-founded the New York Zen Center for Contemplative Care, which offers contemplative approaches to care through education, personal caregiving, and Zen practice. Koshin is also the co-editor of Awake at the Bedside: Contemplative Teachings on Palliative and End of Life Care. He discusses his work with people who are dying and grieving and the life lessons he has learned. For more information visit the website:

zencare.org

Listen here:

This episode includes:

  • Awake at the Bedside as a tool for caregivers and death professionals
  • Lessons learned during the AIDS epidemic
  • Koshin’s experience caring for his grandmother at the end of her life
  • The importance of curiosity in life and at the end of it
  • The lack of contemplative practice in Western medicine
  • Daily question: Am I actually living according to my values?
  • NY Zen Center’s Contemplative Medicine Fellowship
  • The importance of understand suffering and how to be with it
  • How the mystery of life is actually part of the medicine of life

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donors Michelle Wickum and Robin Bissell. Also thank you to everyone who has bought me a coffee or joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 443 Combatting Social Isolation: An Intergenerational Approach with Jeremy Holloway PhD

Learn how an innovative curriculum is tackling loneliness and social isolation in older adults and bridging the generation gap.

My guest Dr. Jeremy Holloway is Assistant Professor and Director of Geriatric Education at the University of North Dakota. He discusses his research which focuses on the social determinants of health, specifically self-efficacy, connectedness, and resiliency of older adults. Dr. Holloway will share information about the intergenerational curriculum he created, called Tellegacy, that helps combat the social isolation and loneliness of older adults. Learn more at these websites:

YouTube Channel

Listen here:

This episode includes:

  • What inspired Jeremy to focus on older adults in his work
  • The impact of loneliness and social isolation on public health
  • How the Tellegacy curriculum bridges the generation gap and enhances the lives of older adults
  • The value of Tellegacy for preparing healthcare students to care for older adults in the future
  • How the Tellegacy program has evolved since its inception
  • Tools and activities used in Tellegacy to contribute to the well-being of older adults
  • Stories from the students and older adults participating in Tellegacy
  • How Tellegacy can also be used for healthcare staffs and other individuals
  • How the program has been adopted by nursing homes, Meals on Wheels and health insurance companies
  • How to get involved with and support Tellegacy

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donors Megan Baird, Alida Merrill, and Lynn Wittenberg. Also thank you to everyone who has bought me a coffee or joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 442 When You Die Project: Raising Death Awareness with Johanna Lunn

Learn about a trilogy of documentary films that inform and inspire conversations about death, dying and the afterlife.

My guest Johanna Lunn is an award-winning producer, director, and writer, who has crafted many compelling, entertaining, and profoundly thought-provoking programs during her 20+ years in the business. She is the director and producer of the When You Die Documentary Trilogy. Johanna discusses how she founded WhenYouDie.org to foster awareness about death by curating many voices to share their stories–from palliative care clinicians, death doulas and the bereaved, to poets, comedians, and artists. Learn more at the website:

whenyoudie.org

YouTube Channel

Listen here:

This episode includes:

  • What inspired Johanna to create this series of films
  • How she gathered the speakers she interviewed for each film
  • Why we need to look ahead to create something new rather than relying on what has worked in the past
  • The need for both a “curing team” and a “healing team”
  • What Johanna has learned about death, dying and the afterlife from creating the When You Die Project
  • Who can benefit from these films and her long term goals for them
  • How to watch and share these three documentaries with others

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donors Jane Whitlock, Robin Mallor, Carla Wheeler, and 4Brigid.  Also thank you to Dana Tuttle for buying me 3 coffees and Lisa Creeden for joining the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 441 The Doula Tool Kit: A Guide for EOL Doulas with Diane Button, Gabby Elise Jimenez, and Angela Shook

Learn about a helpful new tool kit that’s not just for end-of-life doulas but can benefit anyone who cares for others at the end of life.

My three guests this week, Diane Button, Gabby Elise Jimenez, and Angela Shook, are all end-of-life doulas who have teamed up to create a helpful guidebook for other doulas: The Doula Tool Kit: The Complete Practical Guide for End-of-Life Doulas and Caregivers. We’ll learn all about the book and how this trio came together to write it. Plus they’ll share some of their tips for doulas and what motivates them to do this work. Learn more at their websites:

Listen here:

This episode includes:

  • How these three doulas connected to collaborate on this project
  • Why a “doula tool kit” is needed right now for new doulas after training
  • What’s included in the book
  • Who can benefit from the contents of the book
  • The power of collaboration and why we need more of it in the end-of-life field
  • Why the book is not just for doulas but also for lay people and family caregivers
  • Why some doulas for humans may also want to get training as companion animal doulas

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donor Jan Booth and to Linda Read for increasing your pledge.  Also thank you to everyone who has bought me a coffee or joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 440 Nights of Grief and Mystery with Stephen Jenkinson

Enjoy this deep and soulful conversation with “The Griefwalker” Stephen Jenkinson.

My guest Stephen Jenkinson is the author of the award-winning book Die Wise: A Manifesto for Sanity and Soul and the creator and principal instructor of the Orphan Wisdom School. He discusses the Nights of Grief and Mystery project, which he created with singer/songwriter Gregory Hoskins, and how they have been touring the world with this profound musical and storytelling show. Stephen shares his thoughts on the crises of our contemporary society and how to proceed in the midst of our deep sorrow. Learn more about Stephen’s work at his website:

orphanwisdom.com

Get Stephen’s book here

Watch on YouTube

Listen here:

This episode includes:

  • How Stephen views his “audience” as allies
  • Tips for being fully present during performances on tour
  • A reading of the Invocation from the show
  • “Rage is what you do when you don’t know how to have a broken heart”
  • Why happiness is a by-product of living life a certain way, not a goal of life
  • Why age + experience does not add up to wisdom
  • How the second half of life differs from the first (and what to do about it)
  • “Crisis” literally means the place where the roads cross and a choice must be made
  • Why Stephen says hope doesn’t belong in a time such as ours

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to those who’ve bought me a coffee! Also many thanks to all of you who joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 439 Medical Aid in Dying: A Chaplain’s Perspective with Rev. Dr. Terri Daniel

Learn how hospice chaplains can offer support to people who choose medical aid in dying.

My guest Dr. Terri Daniel is an inter-spiritual hospice chaplain, end-of-life educator, and grief counselor, who is the author of four books on death, grief and the afterlife, and a frequent guest on the podcast. Today Terri and I talk about medical aid in dying from a chaplain’s perspective and she discusses her experiences working for a hospice in Oregon that provides support for MAID. Learn more about Terri’s work at her website:

danieldirect.net

Watch on YouTube

Listen here:

This episode includes:

  • The history of medical aid in dying in Oregon
  • How EOLCOR (End-of-Life Choices Oregon) assists people who want to utilize medical aid in dying
  • The wide variations in hospice policies around medical aid in dying
  • Dilemmas around communicating with family members who don’t support MAID
  • How MAID differs from suicide and why we need to understand that difference
  • A beautiful end-of-life ritual Terri created for a person utilizing MAID
  • Why some chaplains feel conflicted about supporting medical aid in dying
  • Religious objections to MAID
  • The “don’t ask, don’t tell” policy about MAID in some hospices
  • Dementia directive for advance care planning

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donor Kathleen Behrens.  Also thank you to Tom Waknitz and Carew Papritz for joining the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 438 How to Choose the Best Hospice for Your Loved One with Barbara Karnes RN

Learn tips for choosing the best hospice and asking all the right questions.

This week I welcome back my recurring guest Barbara Karnes RN, hospice nurse, author, speaker, thought leader and expert on end-of-life care. She is the author of ‘the little blue hospice book, Gone from My Sight and the recently published By Your Side: A Guide for Caring for the Dying at Home. Today we discuss why we hope people will choose hospice for care at the end of life and how to choose the right hospice for their loved one. Learn more about Barbara’s work at her website:

www.bkbooks.com

Listen here:

This episode includes:

  • Why we need to do our own research on hospices that are available to us
  • How Medicare-certified hospices can differ from one another
  • The importance of having a primary nurse assigned to each hospice patient
  • Why you need to ask about the availability of inpatient care for private pay
  • Understand that families have to provide the 24/7 care at home
  • Ask how often visits will occur and how long each visit will last
  • Ask if staff members prioritize being there at the time of death
  • Find out how quickly first visit will occur
  • Don’t just go with the hospice recommended by the hospital discharge planner
  • Ask about the quality of bereavement support offered

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donor Deborah Laukaitis.  Also thank you to Dana Tuttle for buying me a coffee and to everyone who has joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 437 Holding Space for Birth and Death with Amy Wright Glenn

Learn what it actually means to “hold space” for others during times of challenge.

My guest Amy Wright Glenn is a Kripalu Yoga teacher, birth and death doula, hospital chaplain, and prenatal yoga and wellness instructor. She is the founder of the Institute for the study of Birth, Breath, and Death, known for its teacher training programs. Amy is the author of the book Holding Space: On Loving, Dying, and Letting Go, which she discusses today. Amy shares what it means to hold space and how we learn to practice that. Learn more at her website:

www.birthbreathanddeath.com

Listen here:

This episode includes:

  • How Amy came to create the Institute for the Study of Birth, Breath and Death
  • How birth and death are connected
  • What it means to “hold space” for others
  • Practices for learning how to hold space
  • The “companioning model” of grief support
  • How to hold space for pregnancy loss
  • Training course for facilitators of pregnancy loss support groups

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donors Marian Folkemer, Monica Czaplinski, Jan Wiebking, Neo Sakurai, Chrissi Guerin, Donna Fleming and to Joy and Suzanne for increasing your pledges.  Also thank you to Sam Cash, Mark Langlois and “Someone” for buying me coffees and to Shannon Tolson, Sylvia Sigurdson, Jeya Venugopalakrishnan, Leslie Morgan and Laura Srygley for joining the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

BONUS: Casting Call for Docuseries on Grief with Kim Clevenger

In this special brief episode I’m bringing you an invitation from casting director Kim Clevenger to contact her about appearing in a new docuseries on grief and loss. She is looking for people experiencing grief over any type of loss who are willing to share their journey with others in this series. In the recording she explains a bit about the show and what it will consist of. If you’re interested contact Kim at the email address below and send your full name, photo, story, and contact information.

GriefShowCasting@gmail.com

Listen here:

EOLPodcast

Ep. 436 Highlights of 2023: The Best of the Best with Karen Wyatt MD

Find out what you may have missed in 2023 if you haven’t listened to every episode!

In this solo episode I recap some of the episodes of this podcast that had the greatest impact on me personally and professionally! All of the interviews from 2023 were fantastic but if you missed any of these be sure to take a listen! Thanks for your support this year! Looking forward to another amazing year – be sure to subscribe and leave a rating and review if you enjoy this content.

HAPPY NEW YEAR AND MANY BLESSINGS TO YOU AND YOUR BELOVEDS!

Watch on YouTube

Listen here:

Links mentioned in this episode:

EOLPodcast

Ep. 435 Home Funerals as an Option After Death with Jerrigrace Lyons

Learn how to create a home funeral ceremony that can honor and celebrate the life of a loved one.

My guest for this interview from the archives is Jerrigrace Lyons, founder of Final Passages, where she offers training for death doulas and home funeral guides. She shares the beauty of a home funeral and describes step-by-step how to honor a loved one with a private, intimate ceremony after death. Learn more at her website:

www.finalpassages.org

Hear the original interview and see the slides at this link: https://InstantTeleseminar.com/Events/89192217

Watch on YouTube

Listen here:

This episode includes:

  • How the home funeral movement is changing our societal perception of death and after-death care
  • Why home funerals are powerful
  • The beautiful rituals that can be created economically for a home funeral
  • How to go about creating a home funeral

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to those who’ve bought me a coffee! Also many thanks to all of you who joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 434 Life-Cycle Celebrants® and Ceremonies for Life’s Transitions with Charlotte Eulette

Learn how celebrants co-create ceremonies to help people navigate the milestones of life.

My guest for this interview from the archives is Charlotte Eulette is the International Director of the non-profit educational organization Celebrant Foundation and Institute. The foundation certifies and trains people to become ritual experts who create ceremonies to mark milestones in life. Charlotte discusses the importance of these rituals for ourselves and our communities and how to become a celebrant. Learn more at the website:

www.celebrantinstitute.org

Watch on YouTube

Listen here:

This episode includes:

  • What is a life-cycle celebrant and what do they do
  • How the modern celebrant movement got started
  • Honoring the culture and beliefs of the participants in ceremonies
  • Why ceremonies and rituals are important for everyone with or without religious affiliation
  • How rituals can make a difference for grievers
  • Alternatives when a loved one doesn’t want a funeral
  • How celebrants can be helpful in healthcare settings
  • What training is required to become a celebrant
  • Why “closure” is not a helpful concept at times of loss and change

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to those who’ve bought me a coffee! Also many thanks to all of you who joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 433 Medical Aid in Dying: A Physician’s Perspective with Dr. Bob Uslander

Learn about a unique medical practice that focuses on end-of-life issues for patients including medical aid in dying.

My guest Dr. Bob Uslander is an emergency medicine physician whose career evolved toward caring for the elderly and those facing the end of their lives. He created a novel approach to end-of-life care called Empowered Endings with his wife Elizabeth, a spiritual counselor and medical social worker, to ensure that patients and their loved ones have their decisions, goals and dignity honored at the end of life. Dr. Bob shares his experiences and thoughts around providing support for patients who choose to use Medical Aid in Dying. Learn more at his website:

www.empoweredendings.com

Watch on YouTube

Listen here:

This episode includes:

  • How Dr. Bob got interested in working with patients at the end of life
  • The significant gaps that currently exist in palliative and end-of-life care for patients
  • Why his practice focuses on holistic care for both patients and their families
  • How Empowered Endings works along with hospice and fills in the gaps when hospice cannot provide care
  • The need for physicians to support patients who choose to use MAID
  • Why MAID providers should have some special training in this area in order to properly support patients and their families
  • What it’s like as a physician to provide medical support for patients choosing MAID
  • Advice for other physicians who may be considering supporting MAID

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to those who’ve bought me a coffee! Also many thanks to all of you who joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 432 Soul Contracts Between Humans and Their Pets with Danielle MacKinnon

Learn how this animal communicator connects with animals before and after death and the lessons we can learn from our animal companions.

My guest Danielle MacKinnon is an animal communicator who has been connecting intuitively with animals and pets for all of her life. She shares her experiences learning from animals and discovering that they are some of our best teachers for our own lives, even after they have died. She teaches others how to develop their own innate ability to communicate with their pets and discusses how to understand what our pets want us to know about the role they play in our lives and how to deal with our grief after they have died. Learn more about her work at her website:

www.daniellemackinnon.com

Listen here:

This episode includes:

  • How Danielle discovered her talent for animal communication
  • Why our pet’s “problems” are really a reflection of our own issues
  • How pets try to help us learn about and improve our own lives
  • The “soul contracts” we have with our pets and other animals
  • How to cope with grief over the death of an animal companion
  • Animals have their own timeline for life

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to those who’ve bought me a coffee! Also many thanks to all of you who joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 431 “No Story Lost”: Preserving Meaning and Memories with Andrew Hall

Learn about a service to create a beautiful “coffee table book” to preserve the cherished stories of a loved one.

My guest Andrew Hall is the co-founder of “No Story Lost” – a service to help families capture their loved one’s stories and photos into a beautiful print memoir book. He’ll discuss the value of preserving memories, both before and after death, and how he and his cousin decided to create a business helping people do that. Learn more at the website:

https://nostorylost.com

Watch on YouTube

Listen here:

This episode includes:

  • How No Story Lost gathers and preserves stories for their clients
  • Why our stories and memories matter when we want to leave a legacy for others
  • How memorial projects have benefitted families as they grieve the death of a loved one
  • The significance of “memento mori” and how it informs Andrew’s work
  • How legacy and memorial projects help people find meaning at the end of life
  • How transformation and healing might occur through the process of creating a memorial book

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest supporter Akhila Murphy and to those who’ve bought me a coffee! Also many thanks to all of you who joined the $10 for 10 Years Campaign including Stacy Ann Bussy! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 430 Workplace Bereavement: Education for Employers with Mekel Harris PhD and Janet Gwilliam-Wright

Learn about a project to train organizations and employers to provide better support for their employees who are grieving.

This week I’m hosting two guests who have teamed up to address the issue of bereavement in the workplace. Mekel Harris PhD is a licensed psychologist who specializes in coping and adjustment to acute and chronic illness, grief and loss, and health-related trauma. She is the author of the memoir Relaxing Into the Pain: My Journey Into Grief & Beyond along with The Grief Anatomy Toolkit and Re-Imagining Life After Loss interactive course. Janet Gwilliam-Wright is a leader in the grief and loss space who founded the Motherlove Project, a global platform for motherless daughters. Janet has 15 years experience leading large organizational change and working on complex issues. Together Mekel and Janet have created Bloomwell to teach organizations and managers to support employees navigating grief and loss. Learn more at the following websites:

growwithbloomwell.com

Listen here:

This episode includes:

  • How Mekel and Janet came to focus on grief in their professional lives
  • How grief is not adequately addressed in the workplace in our society
  • The struggle workers face when being required to return to work shortly after the death of a loved one
  • How employers can create a better culture in the workplace
  • What to do to help a grieving co-worker
  • Bloomwell’s framework for managing grief in the workplace
  • The training offered by Bloomwell including the physical, emotional, and spiritual impact of grief
  • Why education alone doesn’t lead to behavioral change
  • The importance of creating a sense of belonging for people who are grieving
  • How workplace culture around grief starts at the top

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to those who’ve bought me a coffee! Also many thanks to all of you who joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 429 Debunking Myths About Hospice Care with Barbara Karnes RN

Learn how to bust through several common myths about hospice care that persist in our society.

My recurring guest Barbara Karnes RN is back again in this episode to talk about the myths that still persist in our society around hospice care. She shares her own journey of grief after the recent death of her dear husband and how our emotions can change our ability to see what may be right in front of us. We cover the most common myths we’ve encountered from our years of talking about hospice with the general public and what we can do to overcome them. Barbara is the author of the “little blue hospice book” Gone from My Sight and By Your Side: A Guide for Caring for the Dying at Home. Learn more at her website:

www.bkbooks.com

Listen here:

This episode includes:

  • How emotions can impact our experiences with hospice
  • Myths about hospice that involve medication management and fears of over-medicating pain
  • Myths that some doctors have about hospice including that it causes people to lose hope and that it’s only appropriate a few hours or days before death
  • Myths about what hospice is, where it is located and how care is provided and paid for
  • Why myths like these are harmful to patients
  • Why we need to get a clear message across about the benefits of hospice

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to those who’ve bought me a coffee! Also many thanks to all of you who joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 428 Love and Loss as a Caregiver Dealing with Lewy Body Dementia with Mary Lou Falcone

Learn about Lewy Body Dementia, why it is difficult to diagnose, and the special challenges faced by caregivers.

My guest Mary Lou Falcone has been an advocate for Lewy body dementia awareness since her dear husband Nicky Zann died of the disease in 2020. Mary Lou is internationally known as a classical music publicist who has guided the careers of many celebrated artists such as Van Cliburn, Renée Fleming, and James Taylor. Her communication and strategy skills make her well-suited to be an ambassador for LBD awareness and she is committed to sharing her experience and factual information about LBD with the public. She is the author of the newly published book I Didn’t See it Coming: Scenes of Love, Loss, and Lewy Body Dementia. Learn more at her website:

www.maryloufalcone.com

Listen here:

This episode includes:

  • Why Mary Lou decided to become a crusader for LBD awareness
  • The difference between Alzheimer’s and Lewy Body Dementia
  • The symptoms of LBD and why it is often difficult to diagnose
  • The inspiration for writing this book
  • Why LBD is little known by the general population
  • How to cope as a caregiver with the fluctuating symptoms of LBD
  • Survival strategies for LBD caregivers
  • Helpful resources available for caregivers

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donors Trina Wacasey and Samantha Potter and to Dianne Feltham for increasing your pledge.  Also thank you to Anonymous for buying me 3 coffees and to Carol Soppe and Samantha Potter for joining the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.