EOLPodcast

Ep. 498 Memory Bears and Grief in Community with Michelle Sebern RN

Learn how a project making memory bears for people who are grieving is opening the door to conversation about the end of life.

My guest Michelle Sebern is an RN who trained as an end-of-life doula to channel her skills and passion into more community-focused work. When she found her rural community wasn’t quite ready to receive end-of-life doula services she decided to find a more creative way to give back. She will share how she founded The Memory Bear Maker and now creates customized bears to help people in their grief and begin end-of-life conversations. Learn more at her website:

thememorybearmaker.com

Watch on YouTube

Listen here:

This episode includes:

  • Michelle’s journey from nurse to doula and memory bear maker
  • The challenges of introducing doula services into a community not quite ready for that step
  • How she discovered memory bears to be the perfect blend of her passions
  • How memory bears help with grief
  • Why the bears are an alternate doorway into end-of-life education and conversations
  • How grief unites people by dissolving barriers
  • The magic of storytelling that comes with memory bear making

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Sue Simone, and to Caroline McClure for buying me 3 coffees! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 497 Integrating Doulas and Chaplains in End-of-Life Care with Jane Whitlock and Liza Neal

Learn how doulas and chaplains collaborate to provide end-of-life care in a skilled nursing facility.

My guests for this episode are Jane Whitlock and Liza Neal who both work with the Full Circle Care Program in a skilled nursing facility to support residents and their loved ones during end-of-life journeys. Jane is an end-of-life doula who also helped found the Minnesota Death Collaborative and co-founded Full Circle Care. Liza is a chaplain who has worked to develop spiritual community within and outside faith and multi-faith contexts. She joined the skilled nursing facility in order to be part of the Full Circle Care Program, which we discuss in this interview.

Watch on YouTube

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This episode includes:

  • How the Full Circle Care Program came about
  • The goals for the program and what it consists of
  • The roles of doulas and chaplains and how they work together
  • How they support and educate patients, families and staff around grief and end-of-life choices
  • The community that develops within a residential facility and approaching the experience of grief for everyone in the facility
  • The importance of teaching families and staff how to say goodbye to a dying person
  • How this program helps fills the gaps left by today’s “modern” hospice care
  • Obstacles that have occurred in creating this program
  • Tips for other skilled nursing facilities that might want to start a similar program

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Trina Wacasey, and to everyone who has bought me a coffee or donated on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.


EOLPodcast

Ep. 496 Visual Storytelling for End-of-Life Planning with Jill Greenbaum

Learn how the art of Visual Storytelling can enhance end-of-life education and serve as a tool for advance care planning.

My guest Jill Greenbaum is a contemplative chaplain and advocate of conscious living and dying. She completed chaplaincy training at the Upaya Zen Center and integrates her experience in psychology, education, visualization, and trauma-informed teaching into her work helping people explore their choices for end-of-life planning. She discusses how she utilizes visual storytelling in her work and why it is a powerful tool. Learn more at her website:

jillgreenbaum.com

Watch on YouTube

Listen here:

This episode includes:

  • How Jill was drawn to visual storytelling and applying it to end-of-life planning
  • What is visual storytelling and how is it used
  • Why images can convey messages more powerfully than text
  • What is “graphic medicine”
  • Tips for more effective end-of-life planning and conversations
  • How to incorporate visual storytelling into end-of-life education
  • How visual storytelling can be used to create a visual obituary and a graphic recording for a celebration of life

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to everyone who has bought me a coffee or donated on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 494 Integrating Art and the End of Life with Rich Curtis

Learn how a hospice volunteer and doula utilizes his artistic talents to help patients and families.

My guest Rich Curtis is an artist, teacher, hospice volunteer and end-of-life doula. He currently volunteers for Archbold Hospice in Thomasville GA where he has utilized his artistic talents to help patients and their families at the end of life. Rich discusses his own path as an artist and eventually becoming a doula. He shares his drawings and tips for those considering being a hospice volunteer in this conversation. View Rich’s drawings at the link below or watch the video on YouTube to see them on screen:

View Rich’s drawings here

Watch on YouTube

Listen here:

This episode includes:

  • Rich’s spiritual journey to becoming a doula
  • How Buddhism encourages contemplation of death
  • The value of teaching art students about death
  • How Rich began drawing the hands of patients
  • Why drawings of hands are a unique and powerful remembrance
  • Life stories as told through images of hands
  • Art as an opening to conversations with difficult patients
  • The power of bringing our creative talents to the bedside of hospice patients
  • Tips for hospice volunteers
  • How Rich is creating “Breath Poems” from the sounds of end stage breathing

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my latest supporters Tanya Archambault and Malynda Cress and thanks to Heather Jardine for buying me 3 cups of coffee! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 492 Rituals and Ceremonies for Life, Death and Grief with Megan Sheldon

Learn about the benefits of creating intentional rituals for the big and small moments of life and death.

My guest Megan Sheldon is a cultural mythologist, humanist celebrant, and end-of-life doula in North Vancouver, BC. She is the co-founder of Be Ceremonial, the world’s first guided ritual and ceremony app. Megan will discuss her work creating ceremonies for people around the world, focusing on what she calls the ‘seemingly invisible moments of change’ in life and in death. She offers online workshops, virtual courses, and seasonal retreats and you can learn more at her website:

beceremonial.com

Watch on YouTube

Listen here:

This episode includes:

  • Why rituals are important as we navigate life and loss
  • How rituals are a forgotten part of our lives that come naturally to us
  • Ceremonies and rituals ultimately involve storytelling
  • What inspired Megan and her husband to create the Be Ceremonial app
  • How the app works and who might benefit from using it
  • Daily rituals can help us build our own creativity
  • The components of a meaningful ceremony, including a ritual for being present
  • Examples of simple rituals
  • Rituals for care providers for supporting self and others
  • How rituals help us embody the emotions we feel during challenging times

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to everyone who has bought me a coffee or donated on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 490 How to Write Non-Fiction About Death, Dying and Grief with Joanna Penn

Learn why and how to share your end-of-life wisdom and stories by writing a non-fiction book.

My guest Joanna Penn writes non-fiction for authors and is an award-winning, New York Times and USA Today bestselling author of thrillers, dark fantasy, and memoir as J.F. Penn. She is also an award-winning podcaster, creative entrepreneur, and international professional speaker. Her most recent publication is the 2nd edition of How to Write Non-Fiction: Turn Your Knowledge Into Words. Today we discuss the challenges of writing non-fiction books about difficult and personal subjects like death and grief. Joanna offers her best tips and encouragement for anyone who wants to write a book but doesn’t know where to begin. Learn more about her work at her website:

thecreativepenn.com

Listen here:

This episode includes:

  • Types of non-fiction books and how to choose the best format for your subject matter
  • Why you don’t have to be an expert or “great” writer to write a book
  • Why and how to identify the target market for your writing
  • Choosing the best title for your book (and why it’s important)
  • The balance between writing what you think people need vs. what people want to read
  • The challenge of vulnerability in writing memoir
  • Why you need an outside editor or proofreader for your book

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest supporters Morgan Everitt and Minda Sanchez. Also thank you to everyone who has bought me a coffee or donated on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 489 Influencing Death: Teaching Hospice Care on TikTok with Penny Smith RN

Learn from “Hospice Nurse Penny” how she started working in hospice and ended up being a viral influencer about end-of-life issues on social media.

My guest this week is Penny Smith RN, known on social media as “Hospice Nurse Penny.” She discusses her journey to becoming a hospice nurse and her rise to fame on TikTok during the COVID-19 lockdown. Her new book Influencing Death, Reframing Dying for Better Living is an honest and vulnerable look at her own life story and what she has learned from working with dying patients. Learn more and connect with Penny at her website:

hospicenursepenny.com

Listen here:

This episode includes:

  • How Penny’s life experiences helped her be a better hospice nurse
  • How she helps family members feel comfortable when their loved ones experience end-of-life visions and dreams
  • How Penny went viral on TikTok
  • What information TikTok users are searching for about death and dying
  • Why social media platforms can be a good place to address misconceptions about death

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, to Simply Celebrate for donating on Paypal and thanks (again) to Robin Bissell for buying me 3 cups of coffee! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 488 DEAD Talks Podcast: Life, Grief and the L.A. Fires with David Ferrugio

Learn how talking about death and grief on a podcast can help us face tragedy and loss together.

My special guest David Ferrugio is the host of DEAD Talks Podcast, where he hosts guests like Tony Hawk, Neil deGrasse Tyson, Billy Carson, David Dastmalchian, Bryan Callen, Hospice Nurse Julie and many more over a growing audience of nearly 1 million followers, including social media platforms. He discusses his story of loss at the early age of 12 and his passion for helping others face grief by sharing conversations with his guests about loss. As current residents of Los Angeles we also talk about the recent fires that have devastated this city. Learn more about David’s work and podcast at this link:

www.deadtalks.net

Watch on YouTube

Listen here:

This episode includes:

  • David’s journey with grief since the death of his father on 9/11
  • What inspired him to create DEAD Talks Podcast
  • Why his podcast is about life as much as death
  • The fact that grief is both universal and also unique to each and every person
  • Loss as an impetus for growth
  • How his perspective on a possible afterlife opened after interviewing certain guests
  • The importance of gratitude in life and when facing loss
  • The impact of the LA fires and grieving as a community

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu. Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 486 Death & Grief in Pop Culture: Songs to Die For with Benjamin Kintisch

Learn about a Top Ten Playlist of songs selected by hospice patients for their own end of life journey.

We start out this new year with another episode our special series: Death & Grief in Pop Culture. This week my co-host Ben Kintisch and I will be reviewing the Top Ten Songs from an end-of-life playlist created by hospice patients in the UK. Ben is a cantor, hospice and eldercare chaplain, music teacher, and the creator of Life Review: The Hospice Musical. Learn more about Ben’s work at his website:

lifereviewmusical.com

YouTube Channel (Check out the full un-edited video there!)

Listen here:

This episode includes:

  • How the Top Ten List was compiled
  • Why music is a compelling marker for our life histories and companion for our journey
  • The List
  • What was expected and what was surprising about the playlist choices
  • Why end-of-life workers should help people create playlists as part of their legacy
  • Our personal choices to add to the playlist

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to everyone who has bought me a coffee or made a donation through Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 485 Highlights of 2024: The Best of the Best with Karen Wyatt MD

Find out what you may have missed in 2024 if you haven’t listened to every episode!

In this solo episode I recap some of the episodes of this podcast that had the greatest impact on me personally and professionally! All of the interviews from 2024 were fantastic but if you missed any of these be sure to take a listen! Thanks for your support this year! Looking forward to another amazing year – be sure to subscribe and leave a rating and review if you enjoy this content.

HAPPY NEW YEAR AND MANY BLESSINGS TO YOU AND YOUR BELOVEDS!

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Listen here:

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my latest supporters Nancy Walker and Linda Fennigbauer and thanks to Linda for also making a Paypal donation! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLU Blog

How Family Movie Night Can Lead to a Conversation About Death and Grief

by Karen Wyatt MD

Recently there has been a growing focus for individuals in our society to look at their hopes and desires for the end-of-life and put those wishes into writing. The Five Wishes document and The Conversation Project Starter Kit, along with many online options, have helped people think about that day when life will come to an end and put those thoughts and feelings into writing.

But the most important step in the end-of-life planning process is to talk about those wishes with loved ones and that conversation is often difficult to initiate. How do we start talking about death with people who aren’t sure they want to discuss it? How do we address the experience of loss and grief, which is also often avoided in our society?

One idea is to use a film, perhaps during a family “movie night,” to help introduce the topic and get the discussion started. Films project the stories of characters onto the screen and allow us to look at difficult subjects from a distance without feeling personally involved. The stories portrayed in movies can also inspire the imagination, stir up emotions and provoke deep thoughts—all of which can be helpful during a conversation about death and grief.

Here are some suggestions for creating a special “movie night” exploration of death and grief: 

  • Allow ample time 

    Choose a night when nothing else has been planned so there will be time and space for the conversation to unfold naturally after the film.

    • Keep it cozy

    Make sure the seating arrangements are comfortable for everyone, provide snacks and beverages, and minimize outside distractions that might take attention away from the film and the conversation.

    • Select the film carefully

    Consider the age and comfort level of the people you want to engage in conversation as you make your choice. Also be clear about your objective: do you want to inspire a discussion about death in general or do you have specific topics to bring up such as hospice care or living fully at the end of life or facing grief after the death of a loved one?

    For example, The Bucket List is a great film to kick off a conversation about how to live life fully when you know you are going to die. His Three Daughters shows the difficulties of family dynamics when one member is dying. Terms of Endearment focuses on the mother-daughter relationship and portrays the dying process and the grief that follows. Many holiday movies like The Christmas Checklist focus on characters who are experiencing grief when others are celebrating. If children are part of the conversation, The Lion King, Coco or Up could help address issues of grief after loss and the fact that death is a normal part of life.

    • Have a few questions ready 

    Don’t force the conversation but be prepared to get it started with your own comments or questions. For example ask “What’s on your bucket list?” or “What would you give as a gift if you knew it was your last Christmas?” or “How do you think Mufasa’s death changed Simba?” or “How did the Christmas Checklist help Emily process her grief?”

    • Do it again

    In case your first movie night conversation doesn’t go as well as hoped, plan to try again with a different film and a different approach. These conversations are challenging but extremely important so don’t give up on the idea! 

    Since death is a natural and universal part of our human existence we really should be talking about it on a regular basis. Get creative and imagine how you might bring up the discussion after other films your family might watch together. Remember that families who have talked about death are more likely to have positive experiences when a loved one reaches the end of life. It’s definitely a conversation worth having!

    EOLU Blog

    What Forrest Gump Teaches Us About Death and Dying

    by Karen Wyatt MD

    The classic movie Forrest Gump (1994), directed by Robert Zemeckis, has been described by some as a profound social commentary and a historical depiction of southern culture, and by others as a model of man’s resiliency. But on closer look, Forrest Gump, the tale of a simple man negotiating a complex world, can actually be interpreted as a film about death and dying with some important lessons for us to learn on this subject.

    Throughout the film Forrest tells stories of historical events that involve the deaths of various iconic figures such as Elvis Presley, John F. Kennedy, Bobby Kennedy, Martin Luther King, and John Lennon. He matter-of-factly talks about each man’s death and sums up his own lack of explanation for these tragedies with “for no particular reason” or “I don’t know why,” reminding us that death is a mystery that very often cannot be understood from a rational perspective.

    But Forrest also faces death on a personal level as he must endure the loss of three of the most important people in his life: his Momma, his “best good friend” Bubba, and his beloved Jenny, who won his heart the moment he first laid eyes on her. As we watch Forrest cope with death in his uncomplicated and imperturbable manner there are certain lessons that shine forth for each of us about death and dying:

    “You never know what you’re gonna get.”

      This is the corollary to Forrest’s most famous adage: “Life [and also Death] is like a box of chocolates.” One of our greatest struggles is the fact that life and death are uncertain. We have no way of knowing when or how we will die and must live with our questions and take our chances as we move through this world. 

      Even if we demand control over death by choosing to take it into our own hands, there are still no guarantees: the method we choose to hasten death might fail, we might change our minds at the last minute, or we might even die by some other cause before the date of our planned death.

      So we have to reach into the box of life, not knowing what we will get, and make the best of whatever we draw out. Forrest is okay with this reality of life and models for us, in his Zen-like fashion, that sometimes not-knowing and simply accepting things as they are can be the highest form of wisdom.

       “If I’d known this would be the last time we’d talk I’d have thought of something better to say.”

      These are Forrest’s words as he reflects on his last moments with his “best good friend” Bubba who dies during a firefight in Vietnam. Forrest reminds us that our words may be the last gift we will ever give to our loved ones and we should choose them carefully. Any moment with someone we care about could be our final opportunity to express our love and admiration, so let’s not waste a single one. The last words our loved ones hear us utter need not be profound or deeply wise, but wouldn’t it be sweet if those words spoke of love and compassion?

      “It’s my time—just my time.”

      With these few words, Momma explains to Forrest in simple terms that death has its own time frame, as the verse from Ecclesiastes 3:2 states, there is “a time to be born and a time to die.” Momma accepts her dying with calmness and fearlessness that reassure Forrest and help him see that even a painful loss can be perfect in a way. 

      Lieutenant Dan believed that “his time” was to die during the war as a hero, but when Forrest saved his life he had to recognize eventually that his path had something else in store for him. We really cannot say what the timing of death will be or should be—we can only observe it and marvel that death always arrives with its own sense of mystery. 

      “Death is just a part of life.”

      Forrest recalls these words from his Momma as he copes with losing his dear Jenny. At this point in the story it becomes clear that this simple truth has been an important message of the entire film: Death cannot be separated from life. 

      In fact, death is a necessary part of the cycle of life and should be accepted as a natural, though painful, process. Forrest is able to grasp this concept and use it as his lens for looking at all of the events of his own existence, which is evidence that life and death are not necessarily difficult to understand. But we tend to complicate them by overthinking and overreacting emotionally to the circumstances that occur. Forrest teaches us to take a step back and look at life and death without expectations or attachments.

      “I couldn’t tell where Heaven stopped and Earth began.”

      When Jenny asks Forrest if he was ever afraid in Vietnam, he ends up describing to her all of the beautiful moments he remembers from that experience and also from running back and forth across the country multiple times. 

      He recalls several times when nature’s beauty was especially astounding such as when the stars came out on a clear night, a gorgeous scene was reflected perfectly upon a still lake, and the sun rose and set with all its vivid colors.  These are the moments when we recognize that Heaven is not a place to transition to—Heaven is always right here, right now, within our own perception of life and death.

       “I don’t know if we each have a destiny or we’re all just floatin’ around accidental like on a breeze. Maybe both happening at the same time …”

      With this final musing, Forrest sums up the key message of this movie: life can be like a feather floating on a breeze, randomly swayed and directed by gusts of wind that shift direction without warning. But life also, like each feather, has a purpose and a reason to exist. And both are happening at the same time. 

      When we can grasp both of those concepts, as Forrest has, we will have mastered the key to enlightenment and also the answer to the fear of dying. We don’t have to worry about death—we will float there on a breeze, but in that process we will also fulfill our greatest purpose. 

      EOLPodcast

      Ep. 478 Death & Grief in Pop Culture: Hamilton with Benjamin Kintisch

      Learn how grief is a major theme of Alexander Hamilton’s life as portrayed in Lin-Manuel Miranda’s hit musical Hamilton.

      Today I’m joined once again by my co-host Benjamin Kintisch for another episode of the Death & Grief in Pop Culture Series. Ben is a cantor, hospice and eldercare chaplain, music teacher, and the creator of Life Review: The Hospice Musical. Together we talk about all the interesting ways death shows up in culture, what we might learn about death and grief through the lens of pop culture, and how we can utilize popular references to death and grief to increase death literacy for ourselves and others. This week we are discussing the Broadway musical “Hamilton” Learn more about Ben’s work at his website:

      lifereviewmusical.com

      Listen here:

      This episode includes:

      • How we can talk about difficult subjects with a touch of lightness and humor
      • Some of the most memorable moments in theatre deal with uncomfortable topics
      • Grief is a powerful lens through which to view the mega-Broadway hit Hamilton
      • Alexander Hamilton experienced multiple types of grief including survivor’s grief and guilt as a war hero
      • The poignancy of the death of Hamilton’s son Phillip and subsequent grief as expressed in the song It’s Quiet Uptown
      • How setting apart this song in contrast to others in the musical made it even more emotionally evocative
      • We need to experience the full spectrum of emotions in our grief
      • How Eliza Hamilton utilized her grief to take action and make a difference in the world

      Links mentioned in this episode:

      If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my latest supporters Bonnie and CJ, and to everyone who has bought me a coffee or made a donation through Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.

      EOLPodcast

      Ep. 471 NEW SERIES – Death & Grief in Pop Culture: “Dear Evan Hansen” with Benjamin Kintisch

      Learn how death and grief are portrayed in pop culture through this new series that analyzes theater, film and music, starting with the Broadway musical Dear Evan Hansen.

      Trigger Warning: This episode contains references to suicide and grief after suicide so use your own discretion if these are sensitive topics for you. If you are struggling with thoughts of suicide and need help call or text the National Suicide Hotline at 988.

      My guest Benjamin Kintisch is a cantor, hospice and eldercare chaplain, music teacher, and the creator of Life Review: The Hospice Musical. Ben and I are teaming up for a new series on Death & Grief in Pop Culture to talk about all the interesting ways death shows up in culture, what we might learn about death and grief through the lens of pop culture, and how we can utilize popular references to death and grief to increase death literacy for ourselves and others. This week we are discussing the Broadway musical “Dear Evan Hansen.” Learn more about Ben’s work at his website:

      lifereviewmusical.com

      YouTube Channel

      Listen here:

      This episode includes:

      • Death and grief are all around us in popular culture
      • How pop culture can help us increase death literacy for ourselves and in conversations with others
      • Learning how to stay present with the pain and grief of others
      • The power of live theatre to touch our hearts and teach our minds
      • The preponderance of orphans as characters in popular films and stories
      • Death and grief in Life Review: The Hospice Musical
      • The authenticity of grief depicted in Dear Evan Hansen
      • Why this musical is transformative and uplifting at the end

      Links mentioned in this episode:

      If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my latest supporters Cheri and Mark and to Dana Tuttle for buying me 3 coffees! Your contributions make all the difference and ensure this podcast stays ad-free.

      EOLPodcast

      Ep. 463 “So Sorry for Your Loss:” Learning to Live with Grief with Dina Gachman

      Learn about a grief book that combines personal experience with expert advice and a touch of humor.

      My guest Dina Gachman is a Pulitzer Center grantee, an award-winning journalist, and a frequent contributor to the New York Times, Texas Monthly, Vox, and more. She wrote her second book So Sorry for Your Loss: How I Learned to Live with Grief and Other Grave Concerns after experiencing two deaths in her family and needing to process and learn more about her own grief. Learn more at her website:

      dinagachmanwrites.com

      Listen here:

      This episode includes:

      • What inspired Dina to write this book
      • Choosing the right therapist for grief counseling
      • Her family’s experience with hospice and what she wishes she had known
      • Why they struggled with accepting palliative care earlier in the course of her mother’s illness
      • “Opening the box” as a tool for initiating end-of-life conversations
      • How patient and family stories can help us make productive changes in end-of-life care
      • Tips for bringing food to a grieving friend (and why a bucket of chicken is worth considering)
      • Ambiguous loss in the face of alcohol and substance abuse
      • Responses to the book

      Links mentioned in this episode:

      If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donor Catherine Noble Heart . Also thank you to everyone who has donated through Paypal or bought me a coffee! Your contributions make all the difference and ensure this podcast stays ad-free.

      EOLPodcast

      Ep. 461 The NOKbox: A Gift for Your Next of Kin with Maria Fraietta

      Learn about a helpful tool for organizing all your records and files for your later years and your loved ones.

      My guest Maria Fraietta is the founder of The Nokbox, which is a complete system that helps you organize all of your accounts, possessions, social media presence, communities, kids, pets, personal history, and estate plans. Maria is a former high school teacher and lives and works as an entrepreneur in Littleton, Colorado. She discusses the importance of being organized and prepared as we look ahead to later life. Learn more at her website:

      thenokbox.com

      Listen here:

      This episode includes:

      • How Maria was inspired to create The Nokbox
      • Why tools like The Nokbox are essential right now
      • What happens when people don’t plan ahead
      • How The Nokbox works and can be customized
      • Suggestions for getting started organizing records and files for our next of kin
      • How to update information in The Nokbox over time
      • Services offered by The Nokbox team and on the website

      Links mentioned in this episode:

      If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my latest supporter Jennifer Keenan and to Simply Celebrate for buying me a coffee. Also many thanks to Raven Butterfly for joining the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

      EOLPodcast

      Ep. 460 ENCORE: Deathbed Dreams and Visions with Christopher Kerr, MD

      Learn how this hospice doctor’s important research sheds light on the dreams and visions of the dying and why they are meaningful.

      In this interview from the archives of EOLU my guest is Dr. Christopher Kerr  who currently practices at Hospice Buffalo in Buffalo, NY. He is conducting a research project on the dreams and visions of his patients as they near death. You’ll hear the results of his ongoing project. Since this interview aired initially Dr. Kerr has written and published the book Death is But a Dream: Finding Hope and Meaning at Life’s End. Learn more at his website:

      drchristopherkerr.com

      Listen here:

      This episode includes:

      • The difference between delirium and deathbed visions
      • How he conducts his research project
      • Results of his research 
      • The nature of the dreams experienced by his patients
      • What he has learned from this work
      • How this work is helping to inform medical professionals about the end-of-life experiences of their patients

      Links mentioned in this episode:

      EOLPodcast

      Ep. 458 The Phone of the Wind: Connecting with Those We Grieve with Dina Stander

      Learn how the “phone of the wind” can help us establish continuing bonds with our loved ones who have died.

      My guest Dina Stander is an end-of-life navigator, funeral celebrant and burial shroud maker. She is also the founder of the Northeast Death Care Collaborative, an author and a propagator of phones of the wind, which she discusses today. Learn more at her website:

      dinastander.com

      YouTube Channel

      Listen here:

      This episode includes:

      • How Dina’s life experiences led her to the varied work she is doing now
      • The need for specialized death resources for disabled people
      • Why Dina’s shroud-making services use “up-cycled” fabrics for shrouds
      • The history behind the Phone of the Wind
      • How Dina shares the Phone of the Wind with others
      • How to locate a Phone of the Wind near you
      • What type of phone is best to use
      • How the phone of the wind allows for expression of all emotions, including anger
      • Why a wind phone could be part of a compassionate community
      • The many settings that could benefit from the presence of a wind phone

      Links mentioned in this episode:

      If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to Annie Valdez for buying me 5 coffees! Also many thanks to Thilda Zorn for joining the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

      EOLPodcast

      Ep. 457 Creativity and Serious Illness with Christina Holbrook and Walker Vreeland

      Learn how two creators each facing serious illness came together to produce an award-winning masterpiece.

      My guests Christina Holbrook and Walker Vreeland are joining me today to talk about their personal stories of serious illness and facing mortality in the midst of working on a creative project. Numerous synchronicities and little miracles came together to make possible the publication of Christina’s novel and audiobook All the Flowers of the Mountain after she was diagnosed with glioblastoma. Each of us has been inspired and transformed through the process of getting this book out into the world during a time of uncertainty. Learn more at these websites:

      Listen here:

      This episode includes:

      • How Christina, Walker and I all came together to work on her novel and audiobook
      • How Christina and Walker are both facing their mortality every day
      • How creativity can help overcome the isolation of serious illness
      • Finding meaning for life by bringing a project to the world that will outlive us
      • Facing mortality forces us to think about what really matters in life
      • Why tragedy may be necessary in order to become death-aware
      • Making peace of mind more important than survival
      • Love finds a way, even against tremendous odds

      Links mentioned in this episode:

      If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donor Kris Kington-Barker. Also thank you to everyone who has donated through Paypal or bought me a coffee! Your contributions make all the difference and ensure this podcast stays ad-free.

      EOLPodcast

      Ep. 456 Passages: An EOL Program for a Senior Living Community with Tom Waknitz

      Learn about a senior living community that is bringing end-of-life doula training to residents, thanks to the efforts of its chaplain.

      My guest Tom Waknitz is a chaplain and end-of-life doula who is working with Walker Methodist Senior Living Community to establish a unique end-of-life program for residents called Passages. He is certified by INELDA and is currently earning a Master of Divinity Degree. After serving his first year as an end-of-life doula, Tom shares his innovative ideas for serving people and their families in transition at the end of life. Learn more about Passages and Tom’s coaching services at these websites:

      YouTube Channel

      Listen here:

      This episode includes:

      • Tom’s journey from a career in technology to becoming a chaplain and end-of-life doula
      • Tom’s role as a chaplain and doula in a senior living community
      • Why Tom decided to bring INELDA training to the residents of this community and how it can serve as a model for others
      • The power of guided imagery and “familial stories”
      • Facilitating end-of-life conversations with residents and family members
      • What Tom learned in his first year as an end-of-life doula
      • The power of the intentional pause
      • Why changes in the end-of-life field must be sustainable

      Links mentioned in this episode:

      If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to those who’ve bought me a coffee! Also many thanks to all of you who joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.