The story of my long journey of healing after my father’s suicide death – told in a series of 8 episodes.
Part 6: The Purple Heart
If you are currently experiencing a crisis or feeling hopeless please know that you are not alone. Call the National Suicide Prevention Lifeline for free and confidential support available 24/7 for people in distress:
1-800-273-8255
or Text HELLO to 741-741.
This episode consists of:
How hospice work help me get “unstuck” on my grief journey
How I uncovered my anger at my Dad and my need to forgive him for taking his life
The “secret” my Aunt Lena told me about Dad and World War II
What I learned from psychiatrist Dr. Jeff Black who treats war veterans for trauma and “soul loss”
The RAIN formula from Jack Kornfeld for healing trauma:
Recognize the effect the trauma has had on your life
Acknowledge and accept the pain you are experiencing
Investigate the patterns
Non-attachment to the “story” of the trauma
Poem: “Griefwork”
A message of hope for those grieving a suicide and for anyone who might be considering suicide at this time:
Please don’t give up. There is light in the darkness, there is love for you, there is grace. I have survived and I am here to spread hope.
Please call 1-800-273-8255 for help if you are thinking about suicide.
The story of my long journey of healing after my father’s suicide death – told in a series of 8 episodes.
Part 5: Guns
If you are currently experiencing a crisis or feeling hopeless please know that you are not alone. Call the National Suicide Prevention Lifeline for free and confidential support available 24/7 for people in distress:
1-800-273-8255
or Text HELLO to 741-741.
This episode consists of:
-Dad’s passion for guns and hunting
-A Time Magazine Article from July 1989 about Death by Gun
The story of my long journey of healing after my father’s suicide death – told in a series of 8 episodes.
Part 4: The Bicycle
If you are currently experiencing a crisis or feeling hopeless please know that you are not alone. Call the National Suicide Prevention Lifeline for free and confidential support available 24/7 for people in distress:
The story of my long journey of healing after my father’s suicide death – told in a series of 8 episodes.
Part 3: Tough Times
If you are currently experiencing a crisis or feeling hopeless please know that you are not alone. Call the National Suicide Prevention Lifeline for free and confidential support available 24/7 for people in distress:
The story of my long journey of healing after my father’s suicide death – told in a series of 8 episodes.
Part 2: The Funeral
If you are currently experiencing a crisis or feeling hopeless please know that you are not alone. Call the National Suicide Prevention Lifeline for free and confidential support available 24/7 for people in distress:
1-800-273-8255
or Text HELLO to 741-741.
This episode consists of:
My father’s funeral
The surprising number of visitors who attended the funeral
Stories of my father that were shared after his death
The story of my long journey of healing after my father’s suicide death – told in a series of 8 episodes.
Part 1: The Phone Call
If you are currently experiencing a crisis or feeling hopeless please know that you are not alone. Call the National Suicide Prevention Lifeline for free and confidential support available 24/7 for people in distress:
1-800-273-8255
or Text HELLO to 741-741.
This episode consists of:
Introduction to the podcast
The day I learned of my father’s death
The shock and grief experienced by the survivors of a suicide death
Learn how 3 nurses started a simple project to help families traumatized by sudden, unexpected death in the E.R.
This episode will feature my interview with Rochelle Martin, an E.R. nurse who started the One Washcloth Project to help families care for their loved ones after an unexpected death in the E.R. You’ll be touched to hear how this simple gesture can change the experience of traumatic death for people in emergency settings.
On April 10th an 8-part series will begin on this podcast titled Suicide: Surviving the Aftermath. Each episode will focus on my own personal journey of healing after my father’s suicide death.
I will share my process of learning about my Dad and the factors in his life that led to his death, while also portraying the grief and guilt I suffered as a survivor of suicide. My goal is to share hope with those who are currently on this journey of grief.
For anyone who is currently experiencing a crisis and feeling hopeless the National Suicide Prevention Lifeline provides free and confidential support 24/7.
You can help support this podcast and the End-of-Life University Interview Series by making a small monthly donation at www.Patreon.com/eolu. To thank you for your donation I’ll promote your end-of-life related website, business, or organization on this podcast. Thank you to my newest supporter: Phyllis Shacter, author of the new book Choosing to Die about her husband’s choice for VSED at the end of his life. Learn more at her website PhyllisShacter.com. Thanks also to all of the patrons who have offered your support over the past year!
THE ONE WASHCLOTH PROJECT:
Rochelle Martin RN, death midwife and emergency room nurse, and Dr. Wyatt discuss the One Washcloth Project, which Rochelle co-founded to offer compassion and support to families who have suffered an unexpected loss of a loved one in the emergency room. They will talk about the challenges for both staff and family members of coping with death in the ER setting.
In this interview you will learn:
how the One Washcloth Initiative hopes to help families say goodbye to loved ones who have died in healthcare settings
about the challenges facing ER staff as they deal with traumatic deaths
what changes are needed in the medical system to improve the care offered to dying patients and their families in the ER and hospital.
Rochelle Martin is a Registered Nurse with specialty certification in Psychiatric and Mental Health Nursing. She holds a Master of Divinity degree from the University of Toronto, and has experience in emergency and acute psychiatry, palliative care, and spiritual care.
Recently certified as an End-of-Life and Home Funeral-Care Guide (Beyond Hospice, 2012), most of the families Rochelle supports are saying goodbye to loved ones immediately following unexpected, often traumatic deaths in ER. She considers it a great privilege to be with families in these raw, intense moments, when there is little to offer but compassionate presence.
Currently collaborating on a number of death midwifery-related projects, Rochelle is working to establish a Canadian national community of practice, has co-founded the One Washcloth initiative, and serves on the Education Committee of the National Home Funeral Alliance. Her local efforts include leading after-death care workshops for healthcare, religious, and community groups, and exploring a conservation burial partnership in Hamilton, Ontario.
Enjoy this special interview! Remember to tune in starting next week for the 8-part series Suicide: Surviving the Aftermath. Until then:
Learn how Caitlin Doughty is changing the funeral industry one funeral at a time.
In this episode I share an interview with Caitlin Doughty, a progressive young funeral director in Los Angeles and the founder of the Order of the Good Death and the popular YouTube series Ask a Mortician.
ANNOUNCMENTS:
On April 10th an 8-part series will begin on this podcast titled Suicide: Surviving the Aftermath. Each episode will focus on my own personal journey of healing after my father’s suicide death.
I will share my process of learning about my Dad and the factors in his life that led to his death, while also portraying the grief and guilt I suffered as a survivor of suicide. My goal is to share hope with those who are currently on this journey of grief.
For anyone who is currently experiencing a crisis and feeling hopeless the National Suicide Prevention Lifeline provides free and confidential support 24/7.
You can help support this podcast and the End-of-Life University Interview Series by making a small monthly donation at www.Patreon.com/eolu. To thank you for your donation I’ll promote your end-of-life related website, business, or organization on this podcast. Thank you to my newest supporter: Adrianne Berry and thanks to all of the patrons who have offered your support over the past year!
THE YOUNG MORTICIAN:
Caitlin Doughty works as a funeral director/mortician in Los Angeles and is in the process of opening her own alternative funeral service, Undertaking LA, to help people handle their own . Caitlin has created the popular webseries Ask a Mortician, which has 33,500 subscribers and she founded The Order of the Good Death, a web-based membership site dedicated to bringing the realistic discussion of death back into popular culture.
In this interview you will learn:
why we need to make death a part of our lives
how to take a step toward accepting mortality by planning for a natural burial
ways to overcome our fear of death
Caitlin Doughty attended the University of Chicago, where she graduated in medieval history. After graduation, Caitlin moved to California, where she began to apply to crematories in an attempt to put into practice her theoretical interest in death. Her first job in the funeral industry was as a crematory operator, burning bodies by day and reading Ernest Becker by night. Since then, she has worked as a funeral arranger, a body-van transport driver, and returned to Cypress College for her second degree, in mortuary science.
Currently she works as a licensed funeral director/mortician in Los Angeles and is in the process of opening her own alternative funeral service, Undertaking LA, to help people help themselves (handle a corpse).
The Order of the Good Death was founded in 2011 with the goal of bringing the realistic discussion of death back into popular culture. Caitlin’s webseries “Ask a Mortician” and the Order website have led to features on National Public Radio, BBC, the Huffington Post, Vice, the LA Times, Jezebel.com, Forbes, Bust Magazine, and Salon.
Caitlin’s first book, Smoke Gets in Your Eyes: And Other Lessons from the Crematory, is a New York Times bestseller and will be discussed in this interview.
She has now also authored a second book, which will soon be released: From Here to Eternity: Traveling the World to Find the Good Death.
You can order her books on Amazon.com or find them in bookstores everywhere.
Tune in every Monday for a new episode of the podcast! Until next week remember:
What can you do when a hospice patient refuses spiritual care? Here’s how to meet the need for a spiritual approach to dying for every patient.
In this episode I’ll share the story of a hospice patient who refused spiritual care because he was a non-believer and how we discovered what really mattered to him at the end of life.
ANNOUNCEMENT:
The online course Step-by-Step Roadmap for End-of-Life Planning is still available. Learn more about it at www.eoluniversity.com/roadmap.
You can help support this podcast and the End-of-Life University Interview Series by making a small monthly donation at www.Patreon.com/eolu. To thank you for your donation I’ll promote your end-of-life related website, business, or organization on this podcast. Thank you to all of our current patrons – you make this podcast possible!
SPIRITUAL CARE FOR NON-SPIRITUAL PATIENTS:
This episode was inspired by my recent attendance at the Accompanying the Dying Residential Retreat hosted by Deanna Cochran of Quality of Life Careand led by Kirsten DeLeo and Dr. Ann Allegre of the Spiritual Care Program. This retreat provided a deep dive into the task of providing spiritual care to our patients at the end of life and offered an amazing opportunity to explore our own depths of spiritual practice and presence.
In my work in hospice I have long thought about those patients who refuse all spiritual care because they are “not religious” or just not interested. But everyone has a spiritual aspect, whether or not they are aware of it or develop that part of themselves. And every dying patient is entitled to receive the presence and compassion of a spiritual care provider. But how can this care be offered without offending or intruding upon the patient’s own beliefs?
Theologian Paul Tillich has defined spirituality as one’s “ultimate concern” meaning that whatever really matters to a person at the very end of life is the expression of that person’s spiritual nature. So for some individuals the ultimate concern might be a religion or a particular practice, but for others it could be anything … even baseball.
In this episode I tell the story of a hospice patient whose “ultimate concern” was baseball and how we eventually recognized that instead of trying to get him to talk about the meaning of life or his regrets, we just needed to let him talk about baseball. Listening to his stories about his favorite team was the path that ultimately helped him heal some of old regrets and unfinished business.
This story illustrates the need for the following conditions whenever we provide spiritual care to a patient who doesn’t identify as having spiritual needs:
Listen. The importance of allowing the patient to talk about the topics of his or her choice cannot be over emphasized. Deep listening with a compassionate heart is essential for honoring the perspective of the patient.
Discover the “ultimate concern.” When patients are allowed to guide the conversation they will naturally reveal what really matters to them.
Honor the patient’s wisdom and experience. Listen with reverence as the patient talks about his or her values and priorities. Recognize what is sacred to the patient even if it seems ordinary to you.
Connect patients to their own feelings of peace and joy. The “ultimate concern” is usually the source of positive feelings and experiences for patients. Help them recall those moments of being connected with something greater by listening to stories or guiding them to re-imagine a previous happy occasion.
In the podcast you will hear how Warren’s story came to a close as an example of finding a path to healing by going through the ultimate concern of baseball. Enjoy listening!
Remember to tune in every Monday for a new episode. Until then:
Find out how The Conversation Project is helping families talk about planning ahead for the end of life.
In this episode we’ll hear about the work of The Conversation Project from an advisor to the organization, ICU physician Dr. Jessica McCannon. Learn how to utilize this excellent tool to get your own conversations started.
COLORADO LISTENERS!! You can download a special version of The Conversation Starter Kit that has been customized just for Coloradans. This version is a little shorter and includes a place where you can name your Medical Durable Power of Attorney. Visit this website to download your copy now:
You can still sign up for the Death & Afterlife Summit, which takes place March 16-18, 2017. You’ll be able to learn from 10 experts about dying, death and beyond in this series of online interviews–and it’s totally FREE! Go to eoluniversity.com/afterlife to learn more and register.
If you’d like some guidance in completing your own advance directives, check out the Step-by-Step Roadmap to End-of-Life Planning–my NEW online self-directed course that will help you prepare and plan for your later years.
The Huntsville Hospital in Huntsville AL has started a unique pilot program that places a hospice nurse in the Emergency Department 3 days a week. The RN meets with patients and families and educates them about end-of-life options to help in their decision-making processes. She also helps them complete advance directives and other documents needed for their hospitalization.
THE CONVERSATION PROJECT:
Join Dr. Karen Wyatt and her special guest Dr. Jessica McCannon, ICU physician and advisor to The Conversation Project, a non-profit organization dedicated to helping people talk about their wishes for end-of-life care. They will discuss The Conversation Project, the history and goals of this organization, and how their resources can benefit you, your loved ones or your patients when making plans for the end-of-life.
You will learn:
How and why The Conversation Project was started
The value of telling stories about the end-of-life
Benefits of The Conversation Starter Kit and The Pediatric Starter Kit
How doctors might utilize The Conversation Starter Kit
Dr. Jessica McCannon is board-certified in internal medicine, and completed Harvard’s Clinical and Research Fellowship in Pulmonary and Critical Care Medicine. After completing her internal medicine residency training at Massachusetts General Hospital, she began providing care to adults at the Mass General Hospital Down Syndrome Program. Prior to starting medical training she received her BA from Cornell University. Dr. McCannon currently practices clinical medicine as an ICU physician and serves as an advisor to The Conversation Project.
Tune in each Monday for a new episode. If you are interested in supporting the podcast and the End-of-Life University Interview Series you can make a small contribution of just $1 or $2 a month and help keep us on the air! Go to Patreon.com/eolu to learn more!
Hear how this alternative practitioner teaches people to connect with their highest selves and heal their deepest grief.
Dr. Sue Morter is a practitioner of bio-energetic and quantum field medicine who utilizes the embodiment of high frequency energy patterns to activate full human potential. She is an internationally known authority on bridging science and spirit and she provides excellent tools for grief counselors and healers, as well as anybody working through personal grief or loss.
“There is only one thing happening here … and it is good.” – Dr. Sue Morter
ANNOUNCEMENTS:
Check out the new course Step-by-Step Roadmap for End-of-Life Planning by going to www.eoluniversity.com/roadmap. You’ll receive guidance and advice for completing your advance directives once and for all!
Don’t miss out on the Death & Afterlife Summit coming up March 16-18, 2017. Sign up for FREE to hear 10 expert speakers on dying, death and beyond. You’ll benefit a great deal from these presentations and also get a preview of the upcoming Afterlife Awareness Conference in Portland OR June 1-4. Learn more and register for the Summit here!
DISSOLVING THE VEIL:
In this interview Dr. Sue shares her wisdom with us about the changes happening in the world and why we should not lose faith. She reminds us that for a baby chick who is breaking out of its shell, the whole world appears to be falling apart. But a new life awaits on the other side.
Dr. Sue Morter is an internationally known authority on bridging science, spirit and human possibility. Through her seminars, retreats and presentations she illuminates the relationships of quantum thoughts and energy medicine; the elevation of human consciousness and life mastery; the sole purpose and practical living.
In addition to her private practice, Morter HealthCenter, she is founder and visionary of the Morter Institute, an organization committed to teaching individuals self-healing techniques and a new approach to life based on Quantum Science. She also founded Soulful Science Productions, a production company focused on providing support for autistic and differently-abled children through guided meditation and affirmations.
Remember you can help support the EOLU Podcast and the End-of-Life University Interview Series by making a tiny donation ($1 or $2 per month) at our page: Patreon.com/eolu.
The term “death-positive” is everywhere these days. But what does it mean and how do we spread this mindset through our society?
In this episode I’ll share thoughts from a recent blog post about how to make sure your own death mindset is clear and free of hidden wounds. These simple practices will help you stay on track as you do your work in the world.
ANNOUNCEMENTS:
The Step-by-Step Roadmap for End-of-Life Planning Course is now available if you need any help with your own advance care planning paperwork. You can learn more at this link:
Register now for the Death & Afterlife Summit, which will talk place on March 16-18, 2017. You’ll be able to hear presentations from 10 speakers on dying, death and beyond for FREE. Replays will be available if you can’t attend live. Learn more and register at this link: http://www.eoluniversity.com/afterlife
IN THE NEWS:
A Dutch nursing home is offering college students free rent in exchange for spending 30 hours per month with residents of the home. The students teach the elders how to use technology and get valuable experience connecting with the older generation. The expected benefits for the residents are decreased dementia symptoms, decreased loneliness and isolation, and increased life expectancy. A similar study is being conducted in the UK where students read poetry to nursing home residents, which has led to improved memory skills. We need programs like this in the US!
In order to help our society achieve a death-positive mindset we must tend to our thoughts and personal awareness of death. Even though we may work with the deaths of others on a daily basis, we can still be in denial of our own mortality. Here are some steps to take to ensure that your own death mindset is as free as possible of denial and fear:
Address your fears of death. Learn to live with your fear but not be controlled by it.
Explore your past experiences of grief. Process your old, unhealed losses and gradually work to release the pain you carry.
Challenge your misperceptions about death. Stop seeing death as sorrowful and learn to see that death can be both beautiful and tragic.
Change your language. Free yourself of “tragic-speak” and use non-negative language when describing death. Beware of overly positive platitudes as well, such as “It’s for the best” or “He’s in a better place.” Allow others to experience their own emotions about death without judging or amplifying their pain.
Think about death every day. Cultivate a daily death-awareness practice to stay mindful of how precious life is and to remember to make the most of every moment.
Do your work with an open mind and heart and help spread a death-positive mindset wherever you go.
If you’d like to support this podcast, go to Patreon.com/eolu to donate $1 or $2 per month.
Thank you to current patrons! Your support is greatly appreciated.
Tune in every Monday for a new episode and until next week remember:
Learn how ICU and Palliative Care Physician Dr. Jessica Zitter is changing the culture of critical care medicine in America.
My guest Dr. Jessica Zitter, MD, MPH, is committed to changing the current paradigm of end-of-life medical decision-making. In today’s medical culture, the dying are often put on what she calls the “End-of-Life Conveyor Belt.” They are intubated, catheterized, and die attached to machines, frequently without even knowing they are dying.
In her work, Zitter builds bridges between patients and the healthcare team, striving to offer care aligned with each patient’s values and preferences. She has come to see that patients empowered with knowledge can die well, even beautifully.
Dr. Zitter practices the unusual combination of Critical and Palliative Care medicine at Highland Hospital, a public hospital in Oakland, California. She attended Stanford University and Case Western Reserve University Medical School and earned her Masters in Public Health from University of California, Berkeley. Her medical training includes an Internal Medicine residency at the Brigham and Women’s Hospital in Boston and a fellowship in Pulmonary/Critical Care at the University of California, San Francisco. She is also co-founder of Vital Decisions, a telephone-based counseling service for patients with life-limiting illness.
Dr. Zitter is the author of the new book, Extreme Measures – Finding a Better Path to the End of Life, published by Penguin Random House in February 2017. She is a regular contributor to The New York Times on these issues, and her writing has appeared in The Atlantic, The Huffington Post, Pacific Standard, and JAMA, The Journal of the American Medical Association. She is featured in the short documentary Extremis, which won top honors at the Tribeca and San Francisco International Film Festivals, has been nominated for an Academy Award, and is now streaming on Netflix.
What does it take to be ready and at peace when you reach the end of life? Here are some thoughts on how to prepare.
In this episode we’ll take a look at what you need to do to prepare for the future, particularly the end of life. You’ll find out how to BE Ready for whatever life brings your way!
This 4-module course is like having your own personal consultation with an end-of-life physician (me!) who guides you through completing your paperwork one step at a time!
Check it out!
This podcast is sponsored through the EOLU donation page at Patreon.com/eolu. By contributing just $1 or $2 per month you can help support the podcast and the End-of-Life University Interview Series. If you become a supporter I will happily promote your book, website, cause or organization on a future episode of the podcast! THANK YOU to my latest patron Sylvie and to all current patrons!!
IN THE NEWS:
Facebook announces it will offer employees up to 20 days of paid bereavement leave and 6 weeks of paid leave to care for an ill loved one.
A study done by U of Colorado Anschutz showed that oncologists are reluctant to have conversations with patients about their prognosis and patients seem equally unwilling to discuss the difficult facts about their diagnosis. This demonstrates the need for better preparation for the end of life BEFORE the onset of a life-limiting illness.
Change Happens: How to be Prepared for the Ultimate Transition
What steps should you take now to be fully prepared for later life? I like to break them down into 3 categories: Paperwork, People, and Purpose.
Here are some suggestions for your own preparations:
Paperwork:
Make sure you have completed an estate plan and/or will to protect your financial assets
Appoint someone to be your financial power of attorney AND a separate person as your medical power of attorney
Complete your advance directive (or living will)
Plan for your funeral and burial
Gather important documents, account numbers, passwords, etc. into on file where they will be accessible in the future (Check out the BE Ready Checklist for a list of all these documents you should gather)
2. People:
Tie up “loose ends” in your life by practicing forgiveness
Make amends with the people closest to you
Say “I love you” whenever you have the opportunity
Talk with your loved ones about your healthcare wishes
Talk with your doctors (and also spiritual advisor or attorney if relevant) about your end-of-life wishes
Be prepared to care for an ill or dying loved one at home if that should become necessary
3. Purpose:
Think about your own sense of meaning and purpose in life–are you living life fully in each moment?
Practice being present in the moment by taking up mindfulness or using deep breathing
Recognize that your purpose is not really something you hope to accomplish in the future; it lies in how you live your life each moment
Face your fear of death so that you can fully prepare and then relax and enjoy all that your life offers to you
Click hereto download the End-of-Life Preparedness Assessment to see if you are ready!
Tune in every Monday for a new episode. Until the next time, remember:
What do you do when a family (your own or a patient’s) is crumbling due to unhealed resentments and irreconcilable differences? Find out now.
In today’s episode I’ll share my best tips for helping families move through conflict toward resolution during stressful times like the death of a loved one. I’ve had lots of experience with this work during my years as a hospice doctor so be prepared for a longer-than-usual episode!
Announcements:
My new course Step-by-Step Roadmap for End-of-Life Planning is almost ready for release (just a few days away as I record this!) The course is simple yet comprehensive and will help you examine your mindset, values, beliefs, and fears about death before you make decisions about your end-of-life healthcare. Go to eoluniversity.com/roadmap to learn more and sign up to be notified as soon as the course is released.
Sponsorship:
This podcast is sponsored through the EOLU donation page at Patreon.com/eolu. By contributing just $1 or $2 per month you can help support the podcast and the End-of-Life University Interview Series. If you become a supporter I will happily promote your book, website, cause or organization on a future episode of the podcast! THANK YOU to all current patrons!!
Managing Family Conflict at the End of Life:
Families facing the death of a loved one are particularly prone to be divided by the resurgence of old conflicts and resentments. Over my years as a hospice doctor I have seen many families split apart by their differences at a time when they most need to be united.
Most of these families had longstanding grievances that had been buried and ignored over the years, only to rise to the surface under the stress of a loved one’s death. Sibling rivalries, parental favoritism, divorce, and competition for inheritances are the most common reasons for these resentments. In addition many families are also divided over religious and political differences, which is an especially prevalent problem right now.
One of the important functions of hospice staff members and other end-of-life workers is to assist splintered families with healing and resolution of their conflicts, whenever possible. But sometimes we are called to assist our own families when challenges arise. Here are some tips for being a peacemaker for a fractured family:
Remain neutral on the issues of conflict. As much as possible leave your own biases, preferences and beliefs at the door if you hope to help resolve a disagreement. This will be much easier if you are not emotionally entangled in the conflict. But even if you are, you need to learn to become a “Witness” to the situation (a higher state of consciousness that allows you remain detached.)
Listen to all sides of the argument. Spend time with each person involved in the conflict until you can grasp their perspective. If you are part of the disagreement then at least try to understand the point of view of the others involved in the situation. As soon as you begin to understand how and why the others feel the way they do then you have taken a huge step toward reconciliation.
Avoid trigger topics. Political and religious differences may complicate family conflicts at the end of life but are usually not reconcilable. So it is best to “agree to disagree” about these points of view and set them aside so that the focus can be on healing other issues.
Be present. By staying calm and unemotional you can prevent the conflict from escalating into an all-out war. Practice mindfulness to help strengthen your ability to be present so that your own emotions don’t flare up when you are trying to help others.
Find common ground. As you listen carefully to the stories of each opponent in the disagreement you may recognize certain common threads–areas where they actually share the same perspective without realizing it. Gather these threads so that you can remind those in conflict that are some things they have in common. Help them untie around the things that matter most (like doing what’s best for their loved one.)
Learn the wishes of the dying loved one (if possible.) If you can still communicate with the patient you may find out that she has a wish for her family to reconcile. You can use this wish to help draw the combatants together in their desire to please and comfort the one they love. Let the patient’s wishes become a “magnet” around which the rest of the family gradually comes together.
Have patience. Don’t try to force a reconciliation by rushing into a family conference or intervention. Allow for some separation initially and let the gaps between individuals gradually begin to close.
The bottom line is that families who don’t wait until the end of life to resolve their differences have a much easier time negotiating the challenges of death and dying. But that’s not the case for most families. Most are left to rehash old sibling issues, betrayals, disappointments, and wounds during the last days of their loved one’s life when they should be sitting at the bedside offering love and comfort.
Start working through your own resentments now–practice love and forgiveness earlier in life and your final days will be blessed. If you need extra help consider checking out the Step-by-Step Roadmap for End-of-Life Planningor the book What Really Matters. You’ll find guidance and support from me for your journey!
Tune in every Monday for a new episode! Until next week remember:
What advice do hospice patients have about how we should live?
In this episode I’ll share some of the wisdom I gathered from my hospice patients as they faced the end of life. This simple advice can help us live more fully with less fear and worry.
This podcast is sponsored through the EOLU donation page at Patreon.com/eolu. By contributing just $1 or $2 per month you can help support the podcast and the End-of-Life University Interview Series. If you become a supporter I will happily promote your book, website, cause or organization on a future episode of the podcast!
Today I have a huge thank-you for my new patron on Patreon.com/eolu: Kerrie Noonan. Thank you for your support Kerrie!
In the News:
An article on Time.com listed “7 New Jobs That Are So ‘2017’” and included Death Doula as one of the new occupations! What’s great about this is the fact that a major news outlet is breaking through the taboo and using the word “death” and that there has been a recognition of the importance of people who assist others at the end of life. In Episode 71I listed Death Doula as one of the trends for the year and included links to several training programs for becoming a doula. If you are considering a career change or looking for some post-retirement work you might want to become a midwife for the dying. There will be a huge demand in the very near future for people fulfilling this role.
In a story reported on the Today show we learned that 31-year-old actor Chris Salvatore invited his 89-year-old neighbor to live with him when she was no longer able to live on her own. Salvatore and Norma live in the same apartment building and had been friends for about 5 years when she was hospitalized with leukemia and respiratory problems. When doctors told Norma she would have to go to a long-term care facility because she had no family members to care for her, Chris stepped up and took her into his home. He now provides care for her as she faces the end of her life. Doctors didn’t expect Norma to live through the holidays but she is thriving in her new home. This example of selfless generosity is exactly what we need as we move into the future where 25% of Baby Boomers will have no family members available to provide care to them. Well done Chris Salvatore – a huge salute to you from End-of-Life University!
What My Hospice Patients Wanted You to Know:
Here is some of the wisdom my hospice patients shared with me as they neared the end of their lives. I promised them that I would bring their messages to you since they are no longer here to speak for themselves.
“What seems important now doesn’t matter in the end.”
“Don’t worry so much about diet and exercise.”
“Your doctor doesn’t have all the answers for you.”
“Your life’s purpose isn’t what you think.”
“Religion is less important than learning how to love others.”
“Dying isn’t as scary as you think.”
“You’re going to die anyway so you might as well be ready.”
Listen to this episode so you can learn more about each of these statements. And then maybe you’ll be inspired to change some aspects of your life and prepare for the very end!
Be sure to subscribe to End-of-Life Interview Series (if you haven’t already) so you can listen to our fantastic educational interviews with EOL experts every month. Go to www.eoluniversity.com to register. And if you’d like to support EOLU and this podcast check out the donation page at Patreon.com/eolu.
Tune in next week for another new episode and until then remember:
It’s not enough to get your paperwork done … make sure it’s done right!
In this episode we’ll look at several common mistakes people make when doing their advance directives–mistakes that could make it more difficult for their end-of-life wishes to be carried out. Learn how to get your paperwork right so you can relax!
This podcast is supported through the generous donations of listeners made on Patreon.com/eolu. When you donate just $1 or $2 per month I will thank you by mentioning your name on the podcast and promoting your cause!
Thank you to my latest patron: Jayne Boulton–I appreciate your support Jayne!
In the News:
An online article from Managed Healthcare Executive asks the question: Can Data Analytics Aid in End-of-Life Care Decisions? The author cites a recent study from JAMA that shows 70% of MD’s reporting that they have not been trained to have end-of-life conversations with patients and 73% of patients over the age of 65 have never had an advance care planning discussion with a doctor.
Medical data analysts have suggested that EHR’s might be useful to help health systems identify patients in need of end-of-life conversations. The article points out that current management of advance directives on EHR’s is poor since on average it requires clicks on 12 different screens to locate a patient’s AD, which takes 1.3 minutes–not fast enough in an emergency situation. In addition many patients at the end of life experience more than 3 transfers to different facilities and their paperwork is often lost in the process.
Much work needs to be done to help patients get their wishes met at the end of life! For that reason I have created a NEW online course to guide people through creating their advance directives, making them legal, and having conversations with loved ones and doctors about their wishes.
I’ve written the course to help people be prepared mentally and emotionally to make end-of-life decisions and avoid the common mistakes discussed below.
Would you like to bring your community together to talk about death? Here’s how …
In this episode we will deconstruct a large-scale death-positive community event and share with you the lessons learned from that experience with guest Holly Pruett, founder of Death OK: Let’s Talk About It. The goal of this discussion is to inspire others to create events in their own communities. Below you’ll find some previous podcasts with helpful resources.
This podcast and the End-of-Life University Interview Series are supported by the generous contributions of listeners through the EOLU donation page at Patreon.com/eolu. To thank you for your donation I will mention your name on a future podcast episode and promote your EOL-related website, business, organization, book or cause! Go to Patreon.com/eolu to learn more and contribute $1 or $2 per month!
In the news:
The staff in the ICU at St. Joseph’s Healthcare in Hamilton, Ontario have been connecting with patients and their loved ones by creating “word clouds” for each patient, using the patient’s name plus adjectives and phrases suggested by loved ones and staff members (see the example of a word cloud in this photo.) Healthcare staff say the word clouds help remind them of the humanity of each patient, allow them to get to know the patient better, and stimulate story-telling about the patient. Families often take the word clouds home with them to help with their grieving process. (Make you own word clouds atwww.wordle.com)
A mobile palliative care team has been providing care to terminally ill homeless people on the streets of Seattle. The team receives referrals from shelters and drop-in clinics then tracks down the patients, evaluates them, and gets them connected to appropriate care. The program is similar to the PEACH (Palliative Education and Care for the Homeless) Program in Toronto. Results of the pilot project show that hospitals stays for the homeless patients have been reduced by 25% and ER visits by 50%.
Interview with Holly Pruett:
Holly Pruett is a Life-Cycle Celebrant, Home Funeral Guide, and the founder of Death OK: Let’s Talk About It, a ten-hour day of inspiration, information and connection in Portland, Oregon. She is also the founder of DeathTalkProject.comand the co-founder of PDX Death Cafe.
In this interview she breaks down Death OK and shares the process used to create this community-wide event along with the lessons learned.
This highlights include:
Why a small team of organizers is best
The benefits of a private, intimate venue for such an event
The importance of sustaining volunteer commitment
How to structure the financing for a large event
The benefits of choosing an engaging and provocative keynote speaker
We hope you’ll be inspired to create your own community event! Find more information at www.DeathOK.com.
Be sure to sign up for End-of-Life University mailing list so you’ll receive notifications about the latest EOLU interviews other upcoming events!
What does it take to have a smile on your face the day you die?
In this episode I pay a tribute to my Mom, Margaret Wyatt, who died 4 years ago in her own home, filled with joy and love. I’ll share the lessons I learned from her death about how each one of us can “Die Happy”!
This podcast is sponsored through the EOLU donation page at Patreon.com/eolu. By contributing just $1 or $2 per month you can help support the podcast and the End-of-Life University Interview Series. If you become a supporter I will happily promote your book, website, cause or organization on a future episode of the podcast!
Today I have a huge thank-you for 2 new patrons on Patreon.com/eolu:
Michelle Holmes – who has asked that I promote a favorite cause of hers: The Still Place.The Still Place is a charitable organization providing rest, renewal and re-creation to families living with serious illness in hope of fostering resiliency, empowerment and self-determination. We provide free of charge vacations, uniquely planned and lovingly facilitated for families who find it difficult if not impossible to get away, plan and experience the healing restorative properties of a family vacation. Go to their website at www.thestillplace.org to learn more!
Holly Pruett – who is the founder of Death Talk Project. Death Talk Project organizes workshops, rituals, Death Cafes, monthly movie nights, and other events in Portland, Oregon. Join in for useful, honest conversation about how we die, how we mourn, and how we care for and remember our dead. Holly also created the community event Death OK: Let’s Talk About It and Death Talk Project grew out of that event. Learn more at www.deathtalkproject.com.
A Tribute to Margaret Wyatt
My Mom died four years today, on the day I am writing and recording this episode, and I had the privilege of being at her bedside for the last 5 days of her life. She was happy and joyful and filled with love as she took her final breaths and she inspired me to want to teach other people how to die happy too.
Mom was in very frail health for the last 5 years before she died and had become housebound as a result. She only left her home a handful of times during those years, but she received help from a friend with grocery shopping, housework and laundry.
Believing that she was going to die soon, Mom set about to plan and prepare for her own death, though she didn’t realize then that she would live for 5 more years. She created a Living Will (using Five Wishes), planned her funeral and burial (and paid for them), and gathered together all of the financial, insurance, and estate documents that she thought my brother and I might need after her death.
She also talked about her own death, her end-of-life wishes, and how she imagined her own dying process. She made sure that both my brother and I knew what she wanted at the time of her death: to be in her own home, in her own bed, with me at her side providing care. And that is exactly what happened when she died. Her wishes were fulfilled because she had thought about them, planned for them and talked about them.
Mom was happy when she died because she was ready to go. She wasn’t afraid to die and felt that she had lived a full life. There was nothing left undone in her mind and she was looking forward to leaving her tired and painful body behind when the time came. Her death was happy, peaceful and beautiful because of the way she lived her life. Here are some of the lessons I learned from her about how to die happy:
Believe in something bigger than yourself. Mom always devoted her time to being of service to others. In her last years of life she spent every afternoon praying for people from the comfort of her reclining chair.
Have a daily spiritual practice.
Prepare for and talk about death. As already mentioned, Mom was ready in every possible way for her own death.
Let go of attachments. She freed herself from some of the burden of material possessions by giving things away to her visitors for 5 years.
Make amends with the past and with other people.
Be satisfied with life just as it is.
Make the most of whatever you have been given.
My Mom is dearly missed but I am comforted by knowing that she was happy when she died. Her beautiful death inspired all of the work I have done in the past 4 years with End-of-Life University, Death Expo and this podcast. I’m passionate about helping everyone find a way to die happy! I wish you could have met her ….
In today’s episode we’ll look at some common euphemisms for death and learn how and why they came into use, how to break down our societal taboos against talking about death, and when it might actually be appropriate to use euphemisms.
Remember that this podcast is an offshoot of the End-of-Life University Interview Series, which includes two interviews per month with experts from all aspects of the end-of-life arena. If you are not already registered sign up here to get email notification each time a new interview is posted.
Support for the EOLU Series and this podcast comes from your generous donations at Patreon.com/eolu. When you support this show with just a $1 or $2 per month donation I will mention your name and promote your cause on the podcast as a thank-you!
In a new feature for this podcast I will start by highlighting some recent “death-positive” events in the news:
First a wonderful story appeared in USA Today about Morrie Boogaart, a 91-year 0ld man living out his last days in an assisted living facility in Michigan. While he his mostly bed bound due to his physical health, Morrie spends his days knitting hats for the homeless. So far he has given away over 8,000 hats! Thank you Morrie for being an inspiring example of how to live fully for all your days and use whatever energy and capacity you have to be of loving service to others. You are my hero!
Next a study reported in the Journal of Psychopharmacology and on ScienceMag.orgdemonstrated that cancer patients who were given the hallucinogen psilocybin experienced a significant decrease in depression and anxiety. According to the author, the patients who had a “mystical experience” while using the hallucinogen were the most likely to have a reduction in fear. This compelling finding supports the data from consciousness studies that show that as consciousness develops there is less and less fear of death at each expanded stage of development, which will be significant later in this discussion.
As we turn to look at the use of euphemisms about death I want to explain why I use the term “end of life” in many of my discussions because some people have accused me of “soft-peddling” death when I use that phrase. But here’s what I mean when I refer to the end of life: I see End of Life as the final stage of human development that incorporates the process of dying, death itself, and the time after death.
For me, End of Life describes the phase on our journey through life when our attention finally turns to the fact that we are mortal and death is inevitable. When we begin to prepare for our eventual death we have entered the End-of-Life Stage in our human development. For some this stage doesn’t start until the process of dying is underway, but for others of us it begins earlier, when death may still be many months or even years in the future. So “end of life” is not a euphemism for death – it is a term that incorporates much more than the moment of death or the dying process.
An interesting article from the Journal in English Lexicology describes the functions of euphemisms throughout human history:
To protect from discomfort over a subject that is “taboo”
To mislead or misrepresent (as in some advertising)
To present in a more positive or “aspirational” light (e.g. using “senior living facility” rather than “old folks’ home”)
To reveal the hidden truth of something or remove a stigma
To bind a group together and create a shared identity
To entertain and lighten the burden of something that is difficult to bear (e.g. medical staffs using humorous references to cope with emotionally heavy situations)
To refer to all euphemisms as dishonest or misleading is to miss the fact that they have had a positive purpose throughout history: they allow people to discuss a taboo subject using terms that are less uncomfortable and triggering for them.
Most euphemisms change over time as taboos are confronted and dismantled. But some of the alternative terms for death have survived for centuries:
to “lose” a loved one to death has been in use since the 12th century
“pass away” or “pass on” have been commonly substituted for the word “die” since the 14th century
“deceased,” “departed” and “no longer with us” have been used since the 15th century
Interestingly not only have those euphemisms survived over hundreds of years they still have exactly the same meaning as they did when they first became popular. This is evidence of the fact that the “death-taboo” has not changed or broken down much during all of those centuries.
But we are part of a pioneering group that is trying to dispel the taboo about death so we freely use the words “dead”, “die”, “death,” and “dying.” But the majority of people in our society are still not comfortable with those words.
In fact, the consciousness of most people in our society has not yet evolved to a level that diminishes the fear of death. So they react to direct language about death with fear and rejection.
To break down a societal taboo there are at least two different approaches:
The rebellious approach, where unfair practices are exposed and denounced publicly, while advocating for openness and freedom. This approach brings much-needed attention to the taboo issue and pushes toward change. But it risks triggering resistance and strengthening the taboo for those who are afraid of the issue.
The quiet approach involves using positive language and energy to engage conversations that are not too confrontational. This approach also normalizes the taboo subject and even celebrates it with special events (such as Dying to Know Day.)
While the rebellious approach is needed to draw public attention and to shine the light on areas where change is desperately needed, the quiet approach is equally important to draw people closer to the issue by helping them to feel safe and to verbalize their fears.
This “quiet approach” may require us to use euphemisms judiciously so that we don’t repel or frighten away those who want to talk about death but do not yet feel comfortable with the language. Insisting that everyone use our appropriate and preferred terms for death may actually discourage and alienate them from conversation.
So if someone needs to say “My father passed away last year” or “I lost my father last year”, don’t correct them at that moment. Allow the conversation to unfold on that person’s terms because for now it is better to talk about “passing away” than to shut down the discussion altogether. Remember: that person does not yet have the same consciousness, awareness and comfort level with death that you have attained. Have compassion and meet people where they are so that you can gradually encourage and guide them to grow.
Until next week when a brand-new episode will air, remember to: