Ep. 393 End-of-Life Care for People with Dementia with Barbara Karnes RN

Learn about the challenges faced by caregivers for dementia patients and some creative ideas for offering support.

In this episode I welcome back my recurring guest Barbara Karnes, hospice nurse, speaker, thought leader, and expert on end-of-life care. She is the author of the “little blue hospice book” Gone From My Sight and her most recent book By Your Side: A Guide for Caring for the Dying at Home. We discuss the challenges of caring for a person with dementia and the impact that care can have on family members. Learn more about Barbara’s work at her website:


Listen here:

This episode includes:

  • There are now over 7 million people with dementia in the US
  • Dementia patients require twice as many hours of care as other patients
  • The late stage of dementia can last 1-2 years; patients are eligible for hospice care during the last 6 months
  • How the last stage of life for dementia patients differs from that of other end-of-life patients
  • Why caregivers for dementia patients are much more likely to suffer exhaustion and depression
  • A marker to use for determining when a dementia patient is eligible for hospice
  • Why it’s essential to create an advance directive early in the course of dementia while the patient can make decisions
  • The need for “dementia doulas” to guide and assist caregivers
  • What happens when a caregiver can no longer take care of their loved one at home
  • How some financial planners are doing a better job talking to their clients about preparing for healthcare needs than medical providers are doing
  • Simple tips to help caregivers in the moment

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Barbara Richardson and thank you also to Jen Blalock for buying me a coffee! Your contributions make all the difference.

End of Life, EOLPodcast

Ep. 182 When You Die … You Will Not Be Scared to Die with Lindsay Tunkl

Learn how art and the written word can be a powerful tool for confronting our mortality.


My guest Lindsay Tunkl is a conceptual artist and writer who explores subjects such as death, heartbreak, and the apocalypse. Her work has been shown at galleries in the United States, the United Kingdom, and Germany. Today she will talk about her book “When You Die You Will Not Be Scared To Die” and her workshop Parting Practice: Rituals for Endings and Failure. 

Learn more at Lindsay’s website:



Get the book here.

Listen here.


This interview includes:

  • How Lindsay’s fear of death inspired her to approach it through her art
  • Why the fear of death should not be shamed
  • How both death and emotionality are banished in our society
  • Description of Lindsay’s book of meditations
  • How the book can be used for a contemplative/journaling practice
  • The importance of both the mundane and the profound in life
  • How to reframe death by writing lists similar to the book
  • The ability to plan ahead for death is actually a luxury that is not afforded to everyone
  • How to use the book as a tool for exploring mortality in conversation

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes! Thanks again to all supporters on Patreon.com/eolu, especially my new patron Diane A. Kelly!



Ep. 154 Two Doctors Discuss Death with Bob Uslander and Karen Wyatt



drBob-Uslander-In this episode I share an interview with me that Dr. Bob Uslander hosted on his show: A Life & Death Conversation. 

You can learn more about Dr. Uslander’s work at www.drbobuslander.com and his podcast at www.integratedmdcare.com/category/podcast/.



Thank you to my newest supporter on Patreon.com/eolu: Ann Gillespie! I appreciate all of my patrons who help keep End-of-Life University on the air. Go to Patreon.com/eolu if you are interested in joining the team and receiving bonuses as a thank-you gift!

At the time of broadcast I’ll be traveling and camping in Colorado! I hope you are enjoying your summer too.

Tune in every Monday for a new episode.