Tag: advance directive for dementia

EOLPodcast

Ep. 508 Navigating Life as a Dementia Caregiver with Beverly Thorn PhD

kwyattmd

Learn about a helpful book with resources for dementia caregivers.

My guest Dr. Beverly Thorn is dual trained in the neurosciences and clinical psychology. She is the author of hundreds of articles, two books, and four workbooks on coping with chronic illness. She has also been trained as an end-of-life doula and served as her husband’s caregiver through his dementia illness and at the end of his life. She is the author of the newly published book Before I Lose My Own Mind: Navigating Life as a Dementia Caregiver. Learn more at her website:

drbeverlythorn.com

Get the book here

Watch on YouTube

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This episode includes:

  • How her husband recognized that something was wrong long before his diagnosis
  • Patients and loved ones need to be empowered to change physicians if they don’t like the care they are receiving
  • The important contributions of end-of-life doulas and advocates
  • The stages of dementia Beverly observed in caring for Walt
  • Why others may not recognize significant changes that the caregiver can see
  • The constant loss and grief of dementia caregiving
  • Why an advance directive tailored for dementia is essential
  • There is a window of time where life values conversations need to be held with patients and loved ones
  • The experience of caregiver grief and guilt

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to everyone who bought me a coffee or donated on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 393 End-of-Life Care for People with Dementia with Barbara Karnes RN

kwyattmd

Learn about the challenges faced by caregivers for dementia patients and some creative ideas for offering support.

In this episode I welcome back my recurring guest Barbara Karnes, hospice nurse, speaker, thought leader, and expert on end-of-life care. She is the author of the “little blue hospice book” Gone From My Sight and her most recent book By Your Side: A Guide for Caring for the Dying at Home. We discuss the challenges of caring for a person with dementia and the impact that care can have on family members. Learn more about Barbara’s work at her website:

www.bkbooks.com

Get the book here

Watch on YouTube

Listen here:

This episode includes:

  • There are now over 7 million people with dementia in the US
  • Dementia patients require twice as many hours of care as other patients
  • The late stage of dementia can last 1-2 years; patients are eligible for hospice care during the last 6 months
  • How the last stage of life for dementia patients differs from that of other end-of-life patients
  • Why caregivers for dementia patients are much more likely to suffer exhaustion and depression
  • A marker to use for determining when a dementia patient is eligible for hospice
  • Why it’s essential to create an advance directive early in the course of dementia while the patient can make decisions
  • The need for “dementia doulas” to guide and assist caregivers
  • What happens when a caregiver can no longer take care of their loved one at home
  • How some financial planners are doing a better job talking to their clients about preparing for healthcare needs than medical providers are doing
  • Simple tips to help caregivers in the moment

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Barbara Richardson and thank you also to Jen Blalock for buying me a coffee! Your contributions make all the difference.