Month: March 2024

EOLPodcast

Ep. 448 Human-Centered Design for End-of-Life and After-Death Care with Isabel Knight

kwyattmd

Learn how the concept of human-centered design can improve how we care for people at end of life and also how we operate our businesses.

My guest Isabel Knight is a human-centered designer and end-of-life guide who founded The Death Designer to provide design services for deathcare businesses and non-profits. She is also the president of the National Home Funeral Alliance, which teaches people about community deathcare and how to conduct a funeral from home. She discusses her work as an end-of-life guide, home funerals, and the concept of human-centered design. Learn more at these websites:

thedeathdesigner.com

homefuneralalliance.org

YouTube Channel

Listen here:

This episode includes:

  • What the National Home Funeral Alliance provides
  • Why home funerals are important
  • How funeral homes can help support community deathcare
  • What is human-centered design and why it’s important
  • The power of simple small changes to make a difference
  • Designing products and systems for the needs of the most vulnerable people benefits everyone
  • Challenges facing end-of-life care from the perspective of a young person
  • The need for a business model for death doulas
  • Potential changes coming to the “Funeral Rule” to increase transparency around funeral home prices

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donors Kelly G. and Yuka Itahashi. Also thank you to Pradeep Berry and Kathleen Lynch for joining the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 447 Compassionate Communities and End-of-Life Care with Elizabeth Johnson, Erin Collins and Qwynn Galloway-Salazar

kwyattmd

Learn about a powerful international model that calls for a public health approach to end-of-life care and how we are championing it in the U.S.

This week I am hosting three guests who are my collaborators in a “think tank” on the Compassionate Communities Model: Elizabeth Johnson and Erin Collins of The Peaceful Presence Project and Qwynn Galloway-Salazar, creator of the Caring for Veterans Through the End-of-Life Series. We discuss the need for a Compassionate Communities approach to end-of-life care here in the U.S. and offer resources and ideas for spreading this model throughout the country. Learn more at:

compassionatecommunities.us

View handout below or download here

YouTube Channel

Listen here:

This episode includes:

  • How the four of us came together as a “think tank”
  • What is a Compassionate Community
  • Brief history of the compassionate community model
  • How this model could benefit end-of-life care in the U.S. in general
  • How the compassionate community approach can help us address specific issues: community death education (especially in rural areas), veteran care, caregiver crisis
  • “End-of-Life Friendly Criteria” as a simple tool to assess and map our communities
  • Public Health Palliative Care International (PHPCI) as a resource
  • FREE presentation on Compassionate Communities Model available May 1, 2024 (email with May 1st in the subject line: info@thepeacefulpresenceproject.org)

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donors Penny Amyot and Amy Wilson. Also thank you to Anonymous for buying me a cup of coffee, Paullette MacDougal for sending a donation by mail and to everyone who has joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLPodcast

Ep. 446 “The Last Ecstatic Days:” How to Die Without Fear with Aditi Sethi-Brown MD

kwyattmd

Learn about THE LAST ECSTATIC DAYS, a film about a young man with brain cancer in search of community, and the hospice doctor who gives up everything to honor his dying wish.

My guest Dr. Aditi Sethi-Brown is a hospice and palliative care physician, end-of-life doula, and musician. She is the founder and executive director of the Center for Conscious Living and Dying and an emerging and important voice for shifting our cultures understanding and approach to dying, death, and bereavement care. She discusses the documentary film The Last Ecstatic Days, which features her work with a very special patient at the end of his life. Learn more at the following websites:

aditisethimd.com

ccld.community

thelastecstaticdaysmovie.com

Register for screening

YouTube Channel

Listen here:

This episode includes:

  • Ethan Sisser’s journey and how Aditi came to work with him
  • What inspired the making of The Last Ecstatic Days
  • How Ethan served as a teacher for others during his life and in his dying process
  • How Ethan called together a community of people willing to help care for him as he was dying
  • The power of social media that Ethan harnessed throughout his journey after his diagnosis
  • How Aditi was inspired to start the Center for Conscious Living and Dying after caring for Ethan
  • The upcoming screenings for the film and how to register

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donor Amy Morgan. Also thank you to Dawn Briskey for joining the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.

EOLU Blog

Blog: The Last Ecstatic Days Trailer

kwyattmd

THE LAST ECSTATIC DAYS is a film about a young man with brain cancer in search of community, and the hospice doctor who gives up everything to honor his dying wish.

To learn more…

Visit the film’s website: www.thelastecstaticdaysmovie.com

Subscribe to THE LAST ECSTATIC DAYS on YouTube:  http://tiny.cc/TheLastEcstaticDaysSub

Follow THE LAST ECSTATIC DAYS on Instagram: https://bit.ly/TheLastEcstaticDays-IG

Like THE LAST ECSTATIC DAYS on Facebook: https://bit.ly/TheLastEcstaticDays-FB

Virtual Screening with Karen Wyatt MD

March 24th 4 PM Pacific

REGISTER HERE

EOLPodcast

Ep. 445 Grief and Bereavement on the Hospice Journey with Barbara Karnes RN

kwyattmd

Learn about grief from the perspective of two hospice providers on their personal experiences of loss.

This week I’m happy to be speaking once again to my recurring guest Barbara Karnes RN, hospice nurse, author, thought leader and expert on end-of-life care and the dynamics of dying. Barbara is the author of “the little blue book” used by hospices around the world to teach families what to expect as their loved one dies. She is also the author of My Friend, I Care, a book about grief that she designed to be used as a sympathy card. She discusses the bereavement support that is a required benefit of hospice care and we delve deeply into our own grief experiences and what we learned from them. Learn more about Barbara’s work at her website:

bkbooks.com

Get the book here

YouTube Channel

Listen here:

This episode includes:

  • What hospices are required to provide for bereavement care
  • Why grievers may not attend bereavement groups offered by hospices
  • How hospice volunteers can be helpful with bereavement
  • Why some grievers may prefer more solitude and less interaction with others in the early days after a death
  • Learning how to live without a loved one who has died is the ongoing work of grief
  • The grief we learned about in textbooks is not the same as the real experience of deep grief
  • Why support groups may be more helpful later in the grief process
  • Anticipatory grief that occurs from the moment of diagnosis
  • Journaling as a tool for grieving
  • How our grief experiences can be sacred to us

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest donors Jenny and Kristine. Also thank you to Jean for buying me a coffee and everyone who has joined the $10 for 10 Years Campaign! Your contributions make all the difference and ensure this podcast stays ad-free.