Learn why it’s important to be aware of the needs of people with disabilities (and their families) when providing end-of-life and bereavement care.
My guest Carrie Batt is an end-of-life doula and the founder of SEOL Care which offers disability-competent end-of-life care, support and planning for people with a disability and their families. She advocates for disability competent care and grief support after losing a loved one with a disability . She created a Facebook group To Walk a Mile in My Shoes that honors loss and disability. Learn more at her website:
This episode includes:
- How Carrie ended up working in the deathcare community as a disability advocate
- Definition and categories of disability
- Why is there so little awareness of the needs of the disability community
- How end-of-life planning may differ for the disability community
- What disability awareness training for deathcare workers should consist of
- Obstacles to improving disability education
- Providing bereavement support to caregivers for those with a disability
- End-of-life resources for the disability community
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