Category: EOLPodcast

EOLPodcast

Ep. 393 End-of-Life Care for People with Dementia with Barbara Karnes RN

kwyattmd

Learn about the challenges faced by caregivers for dementia patients and some creative ideas for offering support.

In this episode I welcome back my recurring guest Barbara Karnes, hospice nurse, speaker, thought leader, and expert on end-of-life care. She is the author of the “little blue hospice book” Gone From My Sight and her most recent book By Your Side: A Guide for Caring for the Dying at Home. We discuss the challenges of caring for a person with dementia and the impact that care can have on family members. Learn more about Barbara’s work at her website:

www.bkbooks.com

Get the book here

Watch on YouTube

Listen here:

This episode includes:

  • There are now over 7 million people with dementia in the US
  • Dementia patients require twice as many hours of care as other patients
  • The late stage of dementia can last 1-2 years; patients are eligible for hospice care during the last 6 months
  • How the last stage of life for dementia patients differs from that of other end-of-life patients
  • Why caregivers for dementia patients are much more likely to suffer exhaustion and depression
  • A marker to use for determining when a dementia patient is eligible for hospice
  • Why it’s essential to create an advance directive early in the course of dementia while the patient can make decisions
  • The need for “dementia doulas” to guide and assist caregivers
  • What happens when a caregiver can no longer take care of their loved one at home
  • How some financial planners are doing a better job talking to their clients about preparing for healthcare needs than medical providers are doing
  • Simple tips to help caregivers in the moment

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Barbara Richardson and thank you also to Jen Blalock for buying me a coffee! Your contributions make all the difference.

EOLPodcast

Ep. 392 The Evolution of the American Funeral with Todd Harra

kwyattmd

Learn the fascinating history of some funeral customs in America and how the profession is changing.

My guest Todd Harra is a 4th generation funeral director, embalmer, post-mortem reconstructionist, and creationist who works for the family funeral business in Wilmington, Delaware. He is also an author of several books including his latest book Last Rites: The Evolution of the American Funeral. He discusses the fascinating history of many funeral customs here in the U.S. and why funerals are important. Learn more at his website:

www.toddharra.com

Get the book here

Watch on YouTube

Listen here:

This episode includes:

  • What inspired Todd to work in the family business as a funeral director
  • How this career provides lessons in grace and humility
  • Common myths and stigmas about the profession of funeral director
  • How the funeral industry continues to evolve
  • How and why the practice of embalming the dead began in the U.S.
  • The history of viewing the body before burial and why it may be helpful for mourners
  • The discovery at a Neanderthal burial site of evidence for early funeral practices
  • Why funerals are important and a vital step in the grieving process
  • When and why to include children in funerals
  • How technology will change funerals in the future
  • What we need to remember about the history of funerals as we move into the future

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Heather Capuano! Your contributions make all the difference.

EOLPodcast

Ep. 391 Dying in America: A Journalist’s Exploration with Ann Neumann

kwyattmd

Learn about this journalist’s research into “the good death” and what she learned through seven years of study and travel across the U.S.

My guest Ann Neumann is a journalist whose work has appeared in The New York Times, The Guardian, Harper’s magazine, The Baffler, Guernica magazine, and elsewhere. After caring for her father at his end of life she became a hospice volunteer and began to research the meaning of a “good death” in this country, which led to her book The Good Death: An Exploration of Dying in America. She shares some of the things she learned about death as she traveled the country and listened to opinions, beliefs, and stories about what constitutes a good death. Learn more at her website:

www.annneumann.wordpress.com

Get the book here

Watch on YouTube

Listen here:

This episode includes:

  • How Ann’s experience caring for her father at the end of his life inspired her research for the book
  • How Ann and her family felt unprepared for the actual dying process even though they were receiving care from hospice
  • How the “gentle” marketing of hospice and death care services can obscure the reality of the challenges of dying
  • The tragedy of “false hope” being offered to patients rather than factual information
  • Where Ann found inspiration for each of the topics she covered in the book (e.g. medical aid in dying, pro-life movement, religious influence on dying, disability issues, prison hospice)
  • Why “dignity” can mean something different to people who live with disabilities
  • The extensive work needed to overcome racial disparities in end-of-life care and restore trust

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Jason P. and thank you also the anonymous person who bought me 5 coffees! Your contributions make all the difference.

EOLPodcast

Ep. 390 Funeral Consumers Alliance: Resources for Funeral Planning with Martha Lundgren

kwyattmd

Learn how the FCA helps consumers plan ahead for funerals and make informed choices for themselves and their loved ones.

My guest Martha Lundgren is the president of the board of Funeral Consumers Alliance of Arizona. She also serves on the speakers bureau for FCA-AZ and is a representative in the Arizona End of Life Care Partnership. Martha will tell us the role FCA plays in educating people about their rights when planning a funeral and how to avoid costly mistakes, which is information we all need to know for ourselves, loved ones, patients and clients. Learn more at the websites:

Funeral Consumers Alliance of Arizona: www.fcaaz.org

National Funeral Consumers Alliances: www.funerals.org

Watch on YouTube

Listen here:

This episode includes:

  • The role of the Funeral Consumers Alliance
  • Why planning ahead is important for funerals, especially if you have specific wishes for what happens
  • How FCA helps consumers “shop around” for funeral arrangements
  • The funeral industry in general lacks transparency about pricing
  • Why you should plan in advance but not pay in advance for funerals
  • Consumers should beware of deceptive advertising in the funeral industry
  • Why it’s important to name someone to pay for and plan your funeral
  • What to do if your loved one doesn’t want a funeral
  • How to cover the cost of a funeral or disposition
  • What happens if someone dies while traveling out of state or out of the country

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Diana Hiatt! Your contributions make all the difference.

EOLPodcast

Ep. 389 Virtual Reality as a Tool for End-of-Life Anxiety and Pain with Gregory Roufa and Lama Karma

kwyattmd

Learn how virtual reality technology can be utilized in a powerful way to ease distress and find meaning for people facing life-limiting illness.

My two guests, Gregory Roufa and Lama Karma, both work for Anuma, a company specializing in developing sacred experiences in virtual reality. Gregory is the co-founder and CEO at Anuma and Karma is an experience designer. They discuss the work Anuma is doing to create VR experiences that can benefit patients facing serious illness, particularly at the end of life, without the use of drugs. Learn more at the website:

www.anuma.com

Watch on YouTube

Listen here:

This episode includes:

  • What is Virtual Reality
  • What equipment is used for a VR experience
  • The inspiration behind Anuma
  • What is a “self-transcendent” experience
  • How to use VR in a beneficial rather than a harmful way
  • What to expect from the Clear Light Program
  • Why a transcendent experience can be helpful for anxiety at the end of life
  • Results seen so far from Anuma’s studies
  • How to work with Anuma as a facilitator on pilot projects or as a capital partner
  • How Virtual Reality has similar effects to a medium dose of psychedelic medication (and is legal and available now)

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Jean Oswald and also to Madeleine for buying me a coffee! Your contributions make all the difference.

EOLPodcast

Ep. 388 A Song for You: Personalized Songs for Hospice Patients with Emily Cavanagh

kwyattmd

Learn about an initiative to provide hospice patients with songs written specifically for them about their lives and stories.

My guest Emily Cavanagh is a singer/songwriter based in New York City who performs in places like New York, Chicago and Dublin. She has made a career for herself as a singer at the intersection of music and service as she brings music to marginalized communities. She is the founder of the music initiative A Song for You, which features local, touring, and Grammy Award-winning songwriters who compose and perform original personalized songs for hospice patients and their families. She will discuss the inspiration behind A Song for You and how this work has benefitted both the recipients and the creators of these special songs. Learn more at her websites:

www.emilycavanaghmusic.com

www.hereisasongforyou.org

Watch on YouTube

Listen here:

This episode includes:

  • How Emily got started in social work, activism and music
  • What inspired her to create A Song for You
  • The first song Emily wrote for a patient
  • How she writes songs for total strangers
  • How A Song for You has grown over time
  • The process for applying to have a song written for someone
  • How patients, families and songwriters have benefitted from sharing this special music
  • How to support A Song for You and its mission

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons Lucy Karl and Amrita Dhanji, and also to Karen Friedmann for buying me a coffee! Your contributions make all the difference.

EOLPodcast

Ep. 387 How to Save Hospice with Ira Byock MD

kwyattmd

Learn about some positive steps that are needed to heal the current hospice industry in the U.S. and how your story can make a difference.

My guest Dr. Ira Byock is a leading palliative care physician, author and public advocate for improving care through the end of life. He is the author of Dying Well, The Four Things That Matter Most, and The Best Care Possible. We discuss his recent essay pinion piece published in STAT online: “Hospice Care Needs Saving,” which is a response to the November Propublica/New Yorker article How the Visionary Hospice Movement Became a For-Profit Hustle. Learn more at his website:

www.irabyock.org

Read the STAT article

Watch on YouTube

Listen here:

This episode includes:

  • Our reactions to the Propublica article
  • What the article got right about today’s hospice and why we need to take it seriously
  • What the hospice movement needs to work on to improve care for patients and rebuild trust with the public
  • Why internal “self-correction” is more important now for the hospice industry than expecting Congress to make changes
  • Why over-focus on profit is dangerous for the hospice movement
  • Why transparency, strengthened oversight, and legal accountability are important steps for saving hospice
  • How stories about current hospice care can be helpful as we move forward

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Sara Perry! Your contributions make all the difference.

EOLPodcast

Ep. 386 Five Wishes: Advance Care Planning for Everyone with Joanne Eason

kwyattmd

Learn more about the Five Wishes document and why it can be a good choice as an advance directive.

My guest Joanne Eason is the president of Five Wishes, the nation’s only national advance care planning program. She discusses the history of the Five Wishes organization and the benefits of using the Five Wishes form as an advance directive. We review the reasons why everyone over age 18 needs and advance directive and how Five Wishes can meet that need. Learn more at the website:

www.fivewishes.org

Watch on YouTube

Listen here:

This episode includes:

  • The original inspiration behind Five Wishes
  • What the Five Wishes document consists of
  • Which 46 states recognize Five Wishes as a legal document and the extra steps needed in the other 4 states
  • Why choose Five Wishes over state advance directive forms or how to use both forms together
  • The benefits of planning ahead for the end of life
  • The importance of choosing the best person as a healthcare proxy
  • Why Five Wishes asks individuals to define “what life support treatment means to me”
  • The importance of including questions about more than just wishes for medical treatment in advance care planning
  • What steps to take after completing Five Wishes
  • How the Five Wishes form acknowledges the “gray areas” of end-of-life planning

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons Kyle Tevlin and Janice Cotter! Your contributions make all the difference.

EOLPodcast

Ep. 385 End Well: Shifting the Culture Around End of Life with Tracy Wheeler

kwyattmd

Learn how End Well brings together fresh and diverse perspectives on the end of life from art, design and other non-medical fields.

My guest Tracy Wheeler is the executive director of End Well, an organization dedicated to transforming how the world views end of life. Tracy has a background in art, education, culture and politics, which inform her commitment to shining a light on how we might make end of life a part of life. She discusses the mission and work of End Well since its founding and what lies ahead in the future, including the new End Well Podcast. Learn more at the website:

www.endwellproject.org

Watch on YouTube

Listen here:

This episode includes:

  • Why the end-of-life movement needs to expand beyond the perspective of the healthcare industry
  • Why End Well is working with Hollywood to get more stories written about the end of life
  • How the Netflix series From Scratch portrayed very accurately a true story of serious illness and end of life
  • What the first season of the End Well Podcast consists of
  • About Dr. Shoshana Ungerleider, the founder of End Well, and what inspired her to create this organization
  • Why end-of-life care issues cannot be fixed within the medical system that helped create those very issues
  • The End Well Conference planned for 2024 and how to sign up for the mailing list
  • Why psychedelic assisted therapy will be part of the wave of the future
  • The fear of death that exists within the medical profession
  • The impact of COVID on how healthcare approaches death and dying

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons Michele Duncan King, Arianna Workman, and Katrina Marcuse-Sharratt! Your contributions make all the difference.

EOLPodcast

Ep. 384 People Don’t Die Like They Do in the Movies with Barbara Karnes RN

kwyattmd

Learn how to counteract the misinformation about death in modern media and teach people the truth about the natural dying process.

In this episode I welcome back my recurring guest Barbara Karnes who is a hospice nurse, international speaker, and author of the books Gone From My Sight: The Dying Experience and By Your Side: A Guide for Caring for the Dying at Home. We discuss her slogan “People don’t die like they do in the movies” and how popular media, including television, film and books, provide misleading and inaccurate portrayals of the dying process. Learn how to get a T-shirt with the slogan on her website:

www.bkbooks.com

Watch on YouTube

Listen here:

This episode includes:

  • How movies and television programs misinform people about death and dying
  • The consequences of inaccurate portrayals of the end of life in popular media
  • What the natural dying process actually looks like
  • The “work” of dying and how to support a person in the process
  • Why we can’t expect a dying loved one to do or say something to support us
  • How a person’s breathing changes before death
  • Preparation for the dying process helps loved one be more present at the bedside
  • How CPR is depicted in medical TV shows as a miracle procedure that works most of the time
  • The actual facts about CPR
  • Confusion in advance care planning due to misinformation
  • Choosing the right healthcare proxy

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Sharon Patterson! Your contributions make all the difference.

EOLPodcast

Ep. 383 The Good News of 2022 with Karen Wyatt

kwyattmd

Learn some of the positive developments around end-of-life issues that took place in 2022.

This is the last episode of 2022 and I’m sharing some of the best “good news” stories I’ve seen this year about progress we’ve made around care at the end of life. Every month I curate end-of-life news stories for my supporters on Patreon and I’ve made note of some encouraging developments that I present to you today. Watch this on YouTube if you’d like to see slides or enjoy listening to the audio. Meanwhile, farewell to 2022 and best wishes for a Happy New Year!

Watch on YouTube

Listen here:

This episode includes:

  • The Lancet Commission on the Value of Death calls for a global paradigm shift on death and dying
  • NHPCO works to improve equity in death and dying and decrease racial disparities in care
  • Studies document inequities in end-of-life care
  • Plan to train community workers to do outreach in underserved areas
  • Recognizing the emotional and spiritual aspects of the dying process
  • Federal legislation to create a national strategy on grief and to expand advance care planning
  • Studies on caregiver stress and model for paying family caregivers
  • Best and worst places to die in the US
  • Studies on use of psychedelics to decrease anxiety at end of life
  • Virtual reality similar to psilocybin in reducing anxiety
  • “Death Tech” and media coverage of death both on the rise
  • Human composting now legal in 5 states

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to those who have made a donation through Paypal or bought me a coffee! Your contributions make all the difference.

EOLPodcast

Ep. 382 Dear Death: Finding Meaning in Life and Peace in Death with Diane Button

kwyattmd

Learn how to create a meaningful life and prepare for death with tools to help death doulas, hospice staff, and loved ones navigate the end of life.

My guest Diane Button is a founding partner of the Bay Area End-of-Life Doula Alliance in Northern California and an instructor for the University of Vermont Larner College of Medicine End-of-Life Doula Professional Certificate Program. She is also the author of Dear Death: Finding Meaning in Life, Peace in Death and Joy in an Ordinary Day and she shares insights she gathered from research she did for her masters degree and from working with hospice and doula clients over the past decade. Learn more at the website:

www.dianebutton.com

Get the book here

Watch on YouTube

Listen here:

This episode includes:

  • What led Diane to become a death doula
  • The inspiration behind Dear Death
  • The 4 pillars of a meaningful life and how Diane gathered this information
  • Why legacy projects are important and how to create one
  • What does it take to have a “good death”
  • Why Diane created The Doula’s Final Checklist
  • The “Mint Jelly” exercise for talking about death
  • Where to get Dear Death and the companion workbook

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons Lyn Canale and Donelle Dreese and thank you Joy for increasing your pledge! Your contributions make all the difference.

EOLPodcast

Ep. 381 Hospice Help Foundation: Supporting Patients in Need with Marsha Filion

kwyattmd

Learn about a charitable foundation that helps hospice patients with the simple needs of life to bring them dignity and comfort.

My guest Marsha Filion is the Executive Director of Hospice Help Foundation, a 501(c)3 charitable organization that provides financial assistance to hospice patients in need. After training as a hospice volunteer she joined the foundation to help bring dignity and comfort to people at the end of life. She will discuss how Hospice Help Foundation functions and why many hospice patients require additional support for services not provided by Medicare, Medicaid or private insurance. Learn more at the website:

www.hhelpfoundation.org

Watch on YouTube

Listen here:

This episode includes:

  • Why Marsha was drawn to work as a volunteer in hospice
  • How Hospice Help Foundation began and what it does
  • The types of support offered by the foundation
  • Why additional support is necessary and important for many hospice patients
  • How patients apply for help from the foundation and who is eligible
  • Stories of people who have benefitted from the support of the foundation

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially Bob Hoffman for increasing your pledge and thanks to Ed Modell for your donation through PayPal! Your contributions make all the difference.

EOLPodcast

Ep. 380 Heartwood: The Cycle of Life and Loss with Barbara Becker

kwyattmd

Learn about a beautiful new book that explores how death teaches us, through many varied experiences of loss, how to truly live.

My guest Barbara Becker is an interfaith minister and a strategic communications consultant specializing in strengthening the voice of the non-profit community, working with the United Nations, Human Rights First, the Ms. Foundation for Women, and the Grameen Bank of Bangladesh. She is also the author of the book Heartwood: The Art of Living with the End in Mind and she shares the important lessons she has learned from death and loss throughout her life. Learn more about her work at the website:

www.barbarabecker.com

Get the book here

Watch on YouTube

Listen here:

This episode includes:

  • What inspired Barbara to become an interfaith minister and to volunteer in hospice
  • How her work in hospice informed her own feelings about death
  • What is “heartwood” and why it is a fitting title for the book
  • How Barbara turned to her own book for guidance when she faced a health crisis of her own
  • The one question we should ask ourselves to live a more purposeful life
  • What we can learn about coping with death and grief from religious traditions outside of our own
  • Advice to help family caregivers cope with caring for loved ones with Alzheimer’s
  • How to cope with the first holiday season while grieving the death of a loved one

Links mentioned in this episode:

EOLPodcast

Ep. 379 Honoring Choices: A Film to Inspire End-of-Life Planning with Elizabeth Coplan and Halle Williams

kwyattmd

Learn about a short film that was created to encourage people to plan for and have conversations about the end of life.

In this episode I welcome two guests to discuss the short film Honoring Choices that is a powerful tool for persuading people to plan for and talk about the end of life. Elizabeth Coplan is the founder of Grief Dialogues and the creator of the stage play Honoring Choices that ultimately became the film we are featuring. Halle Williams is the marketing director for both Grief Dialogues and Honoring Choices and the co-host of Out of Grief Comes Art Podcast along with Elizabeth. Learn more about their work at the website:

www.griefdialogues.com

Honoring Choices trailer

Watch interview on YouTube

Listen here:

This episode includes:

  • What inspired the creation of the film Honoring Choices
  • The true story behind the film
  • What Elizabeth and Halle hope the film will accomplish
  • The serious racial disparity in completing advance directives and how the film helps address this issue
  • The power of storytelling and how the film uses story to teach
  • The premiere of Honoring Choices at the Reimagine Festival in LA
  • How to use the film for teaching for hospices, hospitals, schools, churches
  • How to sponsor a screening of the film
  • Inspiration for the podcast Out of Grief Comes Art

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patron Maggie Dial! Your contribution makes all the difference.

EOLPodcast

Ep. 378 Surviving Grief with Humor with Laurie Burrows Grad

kwyattmd

Learn how this television chef and blogger used humor to help her navigate life as a widow.

My guest Laurie Burrows Grad is a cookbook author and television chef who began blogging about grief, widowhood, and survival after the death of her husband Peter. She shares how she used humor to help her navigate life as a widow and offers some practical tips for others facing widowhood. Laurie is the author of the book The Joke’s Over, You Can Come Back Now: How this Widow Plowed Through Grief and Survived. Learn more about her work at her website:

www.lauriegrad.com

Get the book here

Watch on YouTube

Listen here:

This episode includes:

  • How Laurie felt demoted socially after the death of her husband
  • How writing blogs helped Laurie get through her grief
  • Why you have to get through the pain of grief in order to come out on the other side
  • Laurie’s experiences with grief counselors and with Our House Grief Support Center
  • How finding meaning within loss can help you feel better
  • How Laurie has used humor in her writing and throughout her grief process
  • The challenges of trying to date as a widow in later life
  • The trauma of experiencing a loved one’s death while traveling in an unfamiliar place and how the Neptune Society helped
  • Top ten things not to say to someone grieving and what to say instead
  • How cooking for others was also helpful for Laurie in her grief
  • How to get through the holidays and anniversaries by preparing in advance
  • The most important things Laurie has learned on her grief journey

Links mentioned in this episode:

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu and to those who have made a donation through Paypal or bought me a coffee! Your contributions make all the difference.

EOLPodcast

Ep. 377 Center for Conscious Living and Dying: An End-of-Life Care Home with Aditi Sethi, MD

kwyattmd

Learn about a model for a non-medical home that is changing how we provide end-of-life care.

My guest Dr. Aditi Sethi is a hospice and palliative care physician and end-of-life doula. She is the founder and executive director of the Center for Conscious Living and Dying, a community supported end-of-life care home near Asheville NC. Aditi shares her journey toward working with death and dying and the creative inspiration that is bringing CCLD into existence. We discuss why the care home model may be the solution to many problems currently facing hospice and end-of-life care. Learn more at the website:

www.ccld.community

Watch on YouTube

Listen here:

This episode includes:

  • How intuition guided Aditi’s journey to becoming a hospice and palliative care physician and an EOL doula
  • What Aditi learned from her travels in India during childhood
  • What needs to change in the medical system to improve how people die
  • How conscious living and conscious dying are intertwined
  • Practices to become more awake and aware in life and in dying
  • What is the Center for Conscious Living and Dying
  • The benefits of community-supported end-of-life homes
  • How creativity can help us devise solve the problems we face around end-of-life care
  • Resources available from the Omega Home Network to help people start EOL care homes
  • How working with Ethan Sisser at his end of life inspired Aditi’s next steps to leap into the unknown

Links mentioned in this episode:

EOLPodcast

Ep. 376 Creating a Sacred Space at the Moment of Death with Barbara Karnes, RN

kwyattmd

Learn some simple steps to honor the sacredness of the moments before and after death.

My favorite guest Barbara Karnes, RN is back for another episode where we talk about issues in hospice care. Barbara is an internationally recognized speaker and expert on end-of-life care. She is author of the popular booklet Gone from My Sight and By Your Side: A Guide for Caring for the Dying at Home, among others. Today Barbara shares some fantastic tips for how to help a family create a sacred space for the moment of their loved one’s death and just after. We discuss what hospice providers, death doulas, or family members can do to enhance meaning and reverence as the last breath is taken. These simple reminders are important to make sure that we don’t overlook this brief moment-in-time that is filled with so much significance and grace. Learn more about Barbara’s work at her website:

www.bkbooks.com

Get By Your Side here

Watch on YouTube

Listen here:

This episode includes:

  • What to do in the hours before a death
  • How to be a “conductor” for this final moment of life
  • Why each family member should be encouraged to say a private goodbye
  • How to prepare the body immediately after death
  • How to arrange the room immediately after a death
  • When to call the funeral home
  • What to do after the body is removed
  • How to talk about the benefits of having a visitation
  • How to help family members, including children, write letters or draw pictures to leave with loved one at the funeral
  • How to create sacred space in a hospital room or ICU

Links mentioned in this episode:

EOLPodcast

Ep. 375 Touching Two Worlds: Finding Hope After Loss with Sherry Walling PhD

kwyattmd

Learn how our grief touches the two worlds of sorrow and joy and how we can navigate these turbulent times.

My guest Dr. Sherry Walling is a clinical psychologist, speaker, podcaster, author and mental health advocate. She helps entrepreneurs and leaders navigate transition, loss, and complex human experience. Sherry is the author of Touching Two Worlds: A Guide for Finding Hope in the Landscape of Loss, a poetic exploration of grief informed by two very personal losses in her own life. She discusses the presence of both sorrow and joy within grief and how her own life has been reshaped by the grief she has experienced. Learn more at her websites:

www.sherrywalling.com

www.touchingtwoworlds.com

Get the book here

Watch on YouTube

Listen here:

This episode includes:

  • What inspired Sherry to write this book
  • The experience of compound grief and “death by heartbreak”
  • The “two worlds” of grief
  • How grief changes us and why it’s important
  • How Sherry’s two grief experiences differed – after cancer and after suicide
  • The guilt experienced by medical professionals when a loved one dies
  • Coping with a suicide death
  • Parenting children while going through grief and teaching them about loss
  • How various forms of movement can help us with grief
  • The art of crying on airplanes
  • Grief requires us to rewrite our assumptions about the world

Links mentioned in this episode:

Buy me a coffee

Donate on Paypal

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to Marsha for buying me a coffee! Your contributions make all the difference.

EOLPodcast

Ep. 374 Why We Need to Talk About Death with Lisa Pahl LCSW and Lori LoCicero

kwyattmd

Learn how The Death Deck helps people have important and necessary conversations about death and dying.

My guests today are the co-creators of The Death Deck, a card game to help inspire conversations about death, dying and grief. Lisa Pahl LCSW is a Hospice Social Worker and ER Crisis Interventionist. Lori LoCicero is a writer and entrepreneur and runs a website to help others travel their paths through difficulty. Together they will share why they decided to create The Death Deck, how it can be used, and why conversations about death matter. Learn more about The Death Deck at the website:

www.thedeathdeck.com

Watch on YouTube

Listen here:

This episode includes:

  • What The Death Deck offers and how it helps inspire conversations about death
  • Why it’s important to talk about death, dying and grief
  • How Lori feels she and her husband would have benefitted from talking about these issues before he became ill
  • New version (The EOL Deck) coming soon to help people who are facing terminal illness or at the end of life
  • Creative ideas for using The Death Deck in various situations

Links mentioned in this episode:

Buy me a coffee

Donate on Paypal

If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, and to all who have made donations through Paypal or Buy Me a Coffee! Your contributions make all the difference.